Guest guest Posted December 27, 2001 Report Share Posted December 27, 2001 12/4/1953 Lu Could you all send me your Birthdays once more please ???? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 27, 2001 Report Share Posted December 27, 2001 12/4/1953 Lu Could you all send me your Birthdays once more please ???? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 27, 2001 Report Share Posted December 27, 2001 9-1-45 I need Help Gee this is not my week let me tell you all. Everything that can go wrong is going wrong!!! Ok I screwed up on my putter here and therefore I need you guys to help me out again. Could you all send me your Birthdays once more please ???? I only need the date not the year if you don't like to give that out.OK Please help me with this. I promise to not screw up again. Well on the other hand I cant guaranty it either. LOL I am a Blond !!!!!! LOL Thank you all. Send it to heidi@... DISCLAIMER!!WE ARE NOT MEDICAL PROFESSIONALS, THEREFORE ANY INFORMATION THAT IS RECEIVED HERE IS FROM EXPERIENCE ONLY. PLEASE CONSULT WITH YOUR DOCTOR BEFORE TRYING ANYTHING THAT IS SUGGESTED. WE ARE NOT A SUBSTITUTE FOR YOUR PHYSICIAN AND ARE NOT TRYING TO BE. REMEMBER EVERYONE IS DIFFERENT AND TREATMENT MAYBE DIFFERENT FOR MANY OF US. THANK YOU Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 27, 2001 Report Share Posted December 27, 2001 9-1-45 I need Help Gee this is not my week let me tell you all. Everything that can go wrong is going wrong!!! Ok I screwed up on my putter here and therefore I need you guys to help me out again. Could you all send me your Birthdays once more please ???? I only need the date not the year if you don't like to give that out.OK Please help me with this. I promise to not screw up again. Well on the other hand I cant guaranty it either. LOL I am a Blond !!!!!! LOL Thank you all. Send it to heidi@... DISCLAIMER!!WE ARE NOT MEDICAL PROFESSIONALS, THEREFORE ANY INFORMATION THAT IS RECEIVED HERE IS FROM EXPERIENCE ONLY. PLEASE CONSULT WITH YOUR DOCTOR BEFORE TRYING ANYTHING THAT IS SUGGESTED. WE ARE NOT A SUBSTITUTE FOR YOUR PHYSICIAN AND ARE NOT TRYING TO BE. REMEMBER EVERYONE IS DIFFERENT AND TREATMENT MAYBE DIFFERENT FOR MANY OF US. THANK YOU Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 27, 2001 Report Share Posted December 27, 2001 --- Heidi Main wrote: > Gee this is not my week let me tell you all. > Everything that can go wrong is going wrong!!! > Ok I screwed up on my putter here and therefore I > need you guys to help me out again. > Could you all send me your Birthdays once more > please ???? I only need the date not the year if you > don't like to give that out.OK > Please help me with this. I promise to not screw up > again. Well on the other hand I cant guaranty it > either. LOL I am a Blond !!!!!! LOL > Thank you all. Send it to > > heidi@... > Sharon here---11/11/44 ===== __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 27, 2001 Report Share Posted December 27, 2001 --- Heidi Main wrote: > Gee this is not my week let me tell you all. > Everything that can go wrong is going wrong!!! > Ok I screwed up on my putter here and therefore I > need you guys to help me out again. > Could you all send me your Birthdays once more > please ???? I only need the date not the year if you > don't like to give that out.OK > Please help me with this. I promise to not screw up > again. Well on the other hand I cant guaranty it > either. LOL I am a Blond !!!!!! LOL > Thank you all. Send it to > > heidi@... > Sharon here---11/11/44 ===== __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 8, 2003 Report Share Posted August 8, 2003 Hi Laurie: First I must tell you that others on this group can give you much more information that you need than I can. But I feel compelled to give you a few comments on your posting: -No doctor can " force " you to take RAI. You have to sign a " consent " form...just don't sign it...at least not until you have had at least another opinion & never until you are ready. -With RAI, there is no going back. You do NOT need RAI as your first treatment... you should likely just say " no " & tell the doc that you want to take PTU or Tepazole (PTU is more popular), and you then tell that doc that you will decide about if you want to eradicate your thyroid, but at your own time -No doctor can legally withhold lab test results from you. Write a letter to that doctor, send it certified to him, requesting nicely copies of " all of your lab tests " . If you want, you can later demand copies of your entire medical records he has on you. **If that doc refuses...after 1 follow up letter...you can sue him for LOTS of money.** It's illegal to not provide you with copies of blood tests. -If you have RAI, you cannot be around your son...probably for at least 4 weeks, and I think " optimally " not for 8 weeks. To do otherwise, you are radioactive and you could distroy his thyroid, literally. In fact, you can't be around a lot of people for awhile. RAI is a rather (my opinion) " barbarian " method. I guess it has its place (as last resort)...but you have not even been given any other choices. -Doctors can also be sued for forcing you into one treatment. But you don't want to get into that...just get copies of your lab tests...and go see another doc. -You don't need an Endo. In fact, some people on this list insist that endos are perhaps the least likely to be cooperative, from their experience. **You have a good relationship with your regular MD...he/she will give you PTU or Tepazole (antithyroid drugs), if you state your case and why. -There are lots of places that list the reasons " why RAI is not so great " . Start with the " files " section on this web site, right from the home page of this graves support list. **Also, check out the files on Elaine 's web site, and you'll have all the information you ever need. Here is the link...check it out " now " , it is terrific. http://daisyelaine_co.tripod.com/gravesdisease/ -Keep asking questions to the list, and put " urgent " in the titles. Unfortunately it is Friday, and there aren't as many who post over the weekend. But you have a lot of reading to do (as mentioned above). I hope I have given you some good places to start. (Remember...RAI is the cheapest medical method, & lots of docs are not knowledgable enough to even discuss other options. It's easy on them...and provides nothing but problems for you the patient!). Remember...you are in charge, it is your choice! Best to you, Ron swimmerron@... diagnosed 4/01, GD including TED, have been on PTU since beginning with no problems, eyes improved, now on low maintenace dose of PTU, and I am persuing alternative therapies. > Hi everyone. > I've been trying to find postings that will tell me what happens > when you have the RAI treatment. I have a friend that is going to go > to the Endo with me and because she doesn't have Graves Disease, she > doesn't know that much about RAI. I've been searching the web to > find info to e-mail her and I've found some but everything is basicly > telling me to have the RAI. I want to find reasons not to. I go > Monday to fight with the Endo because he's trying to force RAI on me, > and she's my support. He's still telling me that it's ok to be > around my son, but me being the mom I am, I DON " T THINK SO!!!!! I'm > a single mom and my friend will be watching my son if I have RAI or > Surgery so she wants to know what's going on. I'm also going for a > second opinion. I'm not that happy with a Dr that tells me my test > results are none of my business. Again, I DON'T THINK SO!!!!! I > need everyone to understand that I live in a small town and the endo > I have is 45 minutes away, the next closest is 4 hours away, so just > finding another Dr. isn't that easy for me. The second opinion that > I'm getting is from a Dr that I've known my intire life. He's going > to do research and such also to give me the best possible advise he > can. So anything anyone can send me or tell me would help with him > also. Thanks in advance! > LAURIE Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 8, 2003 Report Share Posted August 8, 2003 Hi Laurie: First I must tell you that others on this group can give you much more information that you need than I can. But I feel compelled to give you a few comments on your posting: -No doctor can " force " you to take RAI. You have to sign a " consent " form...just don't sign it...at least not until you have had at least another opinion & never until you are ready. -With RAI, there is no going back. You do NOT need RAI as your first treatment... you should likely just say " no " & tell the doc that you want to take PTU or Tepazole (PTU is more popular), and you then tell that doc that you will decide about if you want to eradicate your thyroid, but at your own time -No doctor can legally withhold lab test results from you. Write a letter to that doctor, send it certified to him, requesting nicely copies of " all of your lab tests " . If you want, you can later demand copies of your entire medical records he has on you. **If that doc refuses...after 1 follow up letter...you can sue him for LOTS of money.** It's illegal to not provide you with copies of blood tests. -If you have RAI, you cannot be around your son...probably for at least 4 weeks, and I think " optimally " not for 8 weeks. To do otherwise, you are radioactive and you could distroy his thyroid, literally. In fact, you can't be around a lot of people for awhile. RAI is a rather (my opinion) " barbarian " method. I guess it has its place (as last resort)...but you have not even been given any other choices. -Doctors can also be sued for forcing you into one treatment. But you don't want to get into that...just get copies of your lab tests...and go see another doc. -You don't need an Endo. In fact, some people on this list insist that endos are perhaps the least likely to be cooperative, from their experience. **You have a good relationship with your regular MD...he/she will give you PTU or Tepazole (antithyroid drugs), if you state your case and why. -There are lots of places that list the reasons " why RAI is not so great " . Start with the " files " section on this web site, right from the home page of this graves support list. **Also, check out the files on Elaine 's web site, and you'll have all the information you ever need. Here is the link...check it out " now " , it is terrific. http://daisyelaine_co.tripod.com/gravesdisease/ -Keep asking questions to the list, and put " urgent " in the titles. Unfortunately it is Friday, and there aren't as many who post over the weekend. But you have a lot of reading to do (as mentioned above). I hope I have given you some good places to start. (Remember...RAI is the cheapest medical method, & lots of docs are not knowledgable enough to even discuss other options. It's easy on them...and provides nothing but problems for you the patient!). Remember...you are in charge, it is your choice! Best to you, Ron swimmerron@... diagnosed 4/01, GD including TED, have been on PTU since beginning with no problems, eyes improved, now on low maintenace dose of PTU, and I am persuing alternative therapies. > Hi everyone. > I've been trying to find postings that will tell me what happens > when you have the RAI treatment. I have a friend that is going to go > to the Endo with me and because she doesn't have Graves Disease, she > doesn't know that much about RAI. I've been searching the web to > find info to e-mail her and I've found some but everything is basicly > telling me to have the RAI. I want to find reasons not to. I go > Monday to fight with the Endo because he's trying to force RAI on me, > and she's my support. He's still telling me that it's ok to be > around my son, but me being the mom I am, I DON " T THINK SO!!!!! I'm > a single mom and my friend will be watching my son if I have RAI or > Surgery so she wants to know what's going on. I'm also going for a > second opinion. I'm not that happy with a Dr that tells me my test > results are none of my business. Again, I DON'T THINK SO!!!!! I > need everyone to understand that I live in a small town and the endo > I have is 45 minutes away, the next closest is 4 hours away, so just > finding another Dr. isn't that easy for me. The second opinion that > I'm getting is from a Dr that I've known my intire life. He's going > to do research and such also to give me the best possible advise he > can. So anything anyone can send me or tell me would help with him > also. Thanks in advance! > LAURIE Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 8, 2003 Report Share Posted August 8, 2003 Laurie, I'm glad you made it to this group. There is SO MUCH to say, but I think it best for now if I get to the point. PLEASE, please, please do not get RAI right now. You need time to make an informed decision, and if you get RAI, you cannot change your mind. It is permanent. I am on medication (PTU), and so far, so good. If I need to do something permanent, I will have surgery rather than RAI, but I'm going to do everything I can to prevent that from happening. You may want to read responses to my initial posts at the AtomicWomen Yahoo Group http://groups.yahoo.com/group/AtomicWomen/ starting with #926, dated 6/16/03. There is so much information contained in those posts, and it may save people from having to repeat themselves. Also, please go to the Graves' Discussion section at Mediboard.com and read the Thyroid Awareness 101 thread: http://www.mediboard.com/ubb/ultimatebb.php?ubb=get_topic;f=1;t=004549 You will have no trouble coming up with reasons to refuse RAI. From what you have written, I believe you have keen instincts and you just need to follow them. You are correct that you cannot be near your son if you have RAI for days if not weeks (I wouldn't even want to be near my cats for weeks if I had RAI). You are also correct that you are completely entitled to your records, and you should be an active participant in your treatment. You definitely need a second opinion (and probably a change in doctors altogether). Unfortunately, you may have a tough time finding an endo who will agree to treating you properly. But have no fear, treatment of this illness is not beyond your comprehension. You can actually get the results you seek (hopefully remission) by working with a cooperative GP. You just need to do your homework. (My GP is more " with it " than my endo, and I only go to the endo because my GP wants me to -- I think he doesn't feel comfortable taking sole responsibility.) Elaine 's book, Graves' Disease: A Practical Guide is a great resource. You can get a copy, and you will be on your way to better health. But first, did you even get TSI antibodies tested? And did you get an ultrasound of your thyroid? If not, then your diagnosis is in question. Lastly, if you are looking for reasons not to have RAI, then DON'T DO IT. The immune system is at fault, not the thyroid (if you even have Graves'), and nuking your thyroid does nothing to address the underlying problem. ATDs (the anti-thyroid medications) have an immunosuppressive effect that can help you achieve remission. Graves' disease runs a course, and something like 10-25% of people a year go into remission: http://www.ithyroid.com/graves_treatments.htm If you have any eye involvement, there is a good chance RAI will make it worse (may even trigger it if you don't currently have eye symptoms). Well, I guess I had more to say than I thought! Happy reading, At 10:16 PM 8/8/2003, you wrote: >Hi everyone. > I've been trying to find postings that will tell me what happens >when you have the RAI treatment. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 9, 2003 Report Share Posted August 9, 2003 Aileen Fletcher Assistant professor of Art New River Community College Dublin, Va. 24084 nrfleta@... , ext. 4468 >>> dolphinsaremylove@... 08/08/03 22:16 PM >>> You should run from a doctor that tells you your test resuts are none of your business. Aileen Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 9, 2003 Report Share Posted August 9, 2003 Aileen Fletcher Assistant professor of Art New River Community College Dublin, Va. 24084 nrfleta@... , ext. 4468 >>> dolphinsaremylove@... 08/08/03 22:16 PM >>> You should run from a doctor that tells you your test resuts are none of your business. Aileen Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 9, 2003 Report Share Posted August 9, 2003 Hi, I had RAI in June. Had I found this site first, I would have reconsidered it. The worst side effect I got is that my eyes got even dryer and swollen. In fact today I am going to go have puntal plugs put in my ducts. Also, I got the sore neck/throat, nausea, very tired and basically just didn't feel like myself for a few weeks. In short I would have tried another treatment..at least for a while. Take Care, Marlene Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 9, 2004 Report Share Posted January 9, 2004 hello all. i am new to the group and i have had my surgery on dec 29 2003. my name is lauren and i am 22 years old. i just wanted a little encouragement and help because i do not know how i am going to get through this. did anyone feel this way? i mean i am doing ok when i went for my one week appt i had already lost 15 pounds. i am just depressed out of my mind. i feel like what the hell did i do to myself? one of my incisions is leaking like crazy, my dr had to pop it open it was painful. i had no complications with surgery but i feel like damn. i am not hungry ever and i cry and cry and do not know why. i was driving myself crazy staying in for that week and today i tried goign out to get my nails done but i felt so weak and light headed. i dont know how i am going to get through this. my dr told me i can start eating chicken and i had some tonight and i swear it tasted like the best i ever had. i dont understand. i just need help. i am contacting the hospital for support groups but until then i figure i will try this online thing a shot and i am looking if you guys have any tips for someone just starting out on foods- like what you can handle or not (im so afraid of dumping and i vow never to eat anything that will make me dump) and exercise tips - my dr said i can start regular exercise. well thats all i just needed to vent lauren Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 9, 2004 Report Share Posted January 9, 2004 hello all. i am new to the group and i have had my surgery on dec 29 2003. my name is lauren and i am 22 years old. i just wanted a little encouragement and help because i do not know how i am going to get through this. did anyone feel this way? i mean i am doing ok when i went for my one week appt i had already lost 15 pounds. i am just depressed out of my mind. i feel like what the hell did i do to myself? one of my incisions is leaking like crazy, my dr had to pop it open it was painful. i had no complications with surgery but i feel like damn. i am not hungry ever and i cry and cry and do not know why. i was driving myself crazy staying in for that week and today i tried goign out to get my nails done but i felt so weak and light headed. i dont know how i am going to get through this. my dr told me i can start eating chicken and i had some tonight and i swear it tasted like the best i ever had. i dont understand. i just need help. i am contacting the hospital for support groups but until then i figure i will try this online thing a shot and i am looking if you guys have any tips for someone just starting out on foods- like what you can handle or not (im so afraid of dumping and i vow never to eat anything that will make me dump) and exercise tips - my dr said i can start regular exercise. well thats all i just needed to vent lauren Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 9, 2004 Report Share Posted January 9, 2004 , You will be OK!! Just hang in there and run, run, run to your PCP and get started on some antidepressant medication. You have been through a massive life change. It didn't end when you woke up from anesthesia. It will continue to be an adjustment...and hopefully a good one since you've had no major complications. You may be expecting too much from yourself this early on. For now, please allow yourself to feel how you feel. You have earned the right to feel crappy!! Questioning yourself only makes it harder, right? Remember, you have closed the door on a lousy part of your life and walked through the door of good health and self esteem (and fun clothes). It will get better! 11/18/03 284/249 pre op/221/? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 9, 2004 Report Share Posted January 9, 2004 , You will be OK!! Just hang in there and run, run, run to your PCP and get started on some antidepressant medication. You have been through a massive life change. It didn't end when you woke up from anesthesia. It will continue to be an adjustment...and hopefully a good one since you've had no major complications. You may be expecting too much from yourself this early on. For now, please allow yourself to feel how you feel. You have earned the right to feel crappy!! Questioning yourself only makes it harder, right? Remember, you have closed the door on a lousy part of your life and walked through the door of good health and self esteem (and fun clothes). It will get better! 11/18/03 284/249 pre op/221/? Quote Link to comment Share on other sites More sharing options...
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