Guest guest Posted October 23, 2002 Report Share Posted October 23, 2002 please forward this letter to your meeting. I can only prayer and hope that someday there will be a cure and detection for such a disabling condition. Dr. Felicia Axelrod President, American Autonomic Society Dear Sirs, I commend you and your fellow researchers on giving us caregiver and suffers of these neuro-disorders insight on how this dieses affects thousands of souls worldwide, not only as patients, but as caregivers, loved ones and friends. Your work is greatly appreciated and very highly encouraged to move on to a cure. I have only heard of your organization and this disease within the last months of my father's life, a life which my father went from the patriarch of my wonder extended family to a helpless, withered man in less than a year. My father's name is Manual Lujan and was honored my President Bush for a 51 years Civil Service career in Quality Assurance for the U.S. Air Force, a career that encompassed the servicing and refueling of the Enola Gay on her way to Tinnin in World War II, the development and management of the Maverick, Sidewinder and Bullpup missiles, development of the radar scattering skin of the, then unknown F-117 and B-2, to mentoring thousand of young GI's in the start in aircraft management/maintenance. My father died October 8, 2002 in a foster care home while my mother held him and listened for his last breathes. We were told at the end, that Parkinson's does not cause this rapid decline in health as this possible condition call multiple system atrophy, or MSA. The combination of dyskinsia and rapid increase of intolerance to Sinemet lead our doctor to say " I've done all I can for him. I'm sorry, it's too late " . How could we let out beloved father, teacher, mentor, uncle, brother, boss, and utmost, husband, loose the ability to communicate, to laugh, joke, love and then die? This disease is unfair, unsympathetic, and cruel. If you and you colleague my find only on faint glimmer of hope and extend the quality of life for thousands of people like my father. then my dreams, hope and prayers are with you. Good Speed to a cure Lujan Albuquerque, NM Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 23, 2002 Report Share Posted October 23, 2002 please forward this letter to your meeting. I can only prayer and hope that someday there will be a cure and detection for such a disabling condition. Dr. Felicia Axelrod President, American Autonomic Society Dear Sirs, I commend you and your fellow researchers on giving us caregiver and suffers of these neuro-disorders insight on how this dieses affects thousands of souls worldwide, not only as patients, but as caregivers, loved ones and friends. Your work is greatly appreciated and very highly encouraged to move on to a cure. I have only heard of your organization and this disease within the last months of my father's life, a life which my father went from the patriarch of my wonder extended family to a helpless, withered man in less than a year. My father's name is Manual Lujan and was honored my President Bush for a 51 years Civil Service career in Quality Assurance for the U.S. Air Force, a career that encompassed the servicing and refueling of the Enola Gay on her way to Tinnin in World War II, the development and management of the Maverick, Sidewinder and Bullpup missiles, development of the radar scattering skin of the, then unknown F-117 and B-2, to mentoring thousand of young GI's in the start in aircraft management/maintenance. My father died October 8, 2002 in a foster care home while my mother held him and listened for his last breathes. We were told at the end, that Parkinson's does not cause this rapid decline in health as this possible condition call multiple system atrophy, or MSA. The combination of dyskinsia and rapid increase of intolerance to Sinemet lead our doctor to say " I've done all I can for him. I'm sorry, it's too late " . How could we let out beloved father, teacher, mentor, uncle, brother, boss, and utmost, husband, loose the ability to communicate, to laugh, joke, love and then die? This disease is unfair, unsympathetic, and cruel. If you and you colleague my find only on faint glimmer of hope and extend the quality of life for thousands of people like my father. then my dreams, hope and prayers are with you. Good Speed to a cure Lujan Albuquerque, NM Quote Link to comment Share on other sites More sharing options...
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