RE: [SPAM] Re: Group Meeting Results/DAN Info.

[Guest guest]

Oh Colleen....

Sorry about the aluminum issue. (Better than the high lead we are dealing with

though! We are doing DMSA round one this weekend to try to get rid of all the

lead Mark has inside of him)

So.... have you gone shopping yet? You need to get rid of all your

pots/pans/cookware with aluminum. No more juice boxes (those are aluminum right

or are they tin?). You've got to go through the house and give it all the

heave-ho toss! YIPPIE... more money to spend!

Also look for to a good anti-oxident for detox. How was Charlie's sulfate

level? Was it low? If so, think about glutathione supplementation. We use 500

mg 2-3 times per day..... great for getting rid of the bad stuff. Ask your DAN

about it.

I actually think that you got lucky here. I would gladly have aluminum over

mercury & lead any day of the week. I expect that aluminum is a lot easier to

deal with. I will keep an eye out for information and pas it on to you when I

come across it.

Mark & I are actually lucky and mercury is not as big a problem as first

suspected... it is the lead and probably has been the lead all of these years!

I would bet my kid has been sucking on lead toys and going to lead laden schools

his entire life. Nasty...

Janice

Mother of Mark, 13

[ ] Group Meeting Results/DAN Info.

> >

> >

> >

> > Went to the group meeting in my town tonight. My town is 1/4

square

> > mile, Mayberry, everyone knows everyone elses beeswax so we

signed

> > confidentiality agreements but are allowed to do what I am doing

> now

> > so long as we say, " Someone in my group. "

> >

> > The group is made up of parents of the following types of kids

but

> > not all have just speech issues and one, the only one exposed to

> > fluoride in large doses, is diagnosed with dyspraxia.

> >

> > 1) PDD Nos, sensory issues pretty severe.

> > 2) Nonverbal, PDD Nos, older sibling possible Aspergers. Going to

> > Neubrander, slightly leary about him.

> > 3) Me, with one kid with shiners and, off GFCF diet she is

whiney,

> > has focus issues, food strikes and less unprovoked speech. The

> other

> > kid is undiagnosed but had signs of apraxia and ASD. Low tone,

> > initial trouble producing speech, poor receptive, fine and gross

> > motor issues. Those things improved and some resolved on GFCF

diet

> > and removal of bad water. Articulation issues pend.

> >

> > The mom of the sensory kid went GFCF in Sept and has seen major

> > changes. She went to a DAN (A PhD not MD), Dr. King who operates

in

> > conjunction with an MD, Dr. Podell, in Springfield, NJ. The mom

is

> > healing the kid on diet but wanted to know where the kids gut was

> at,

> > if she was getting the right vitamins and minerals, using the

right

> > probiotic, etc. She was not interested in chelation. She also

> wanted

> > alternative remedies to things that have plagued her kid in the

> past,

> > like ear stuff.

> >

> > She did poop and pee tests via Drs Data and vitamin measurements

> via

> > Bioreference. She also did an IGE test. What she discovered was

> that

> > milk and wheat are an issue and some other things as well, mostly

> she

> > realized but a few, like soy and rice, must leave the diet. The

> > metals testing showed the worst of her stuff was actually, at

this

> > point " high normal. " The two big things that need addressing were

> > aluminum and nickel. Neither are a surprise. We live in a town

> where

> > aluminum frame windows are made and then there are the vaccines.

> > Several industries have operated in this town so nickel is also

not

> a

> > surprise.

> >

> > The interesting thing was the poop test and what it told her

about

> > what the kid was and was not getting from the current probiotic

and

> > how to address it as well as a panel showing bacterial

> > susceptibilities and natural agents that could be used to address

> > these.

> >

> > Despite giving calmag every day the kid is low in calcium.

> >

> > So for $500 for the first visit, $350 paid by insurance, and

> another

> > $1500 for poop, pee, minerals, vitamin and bacterial

susceptibility

> > tests and IGG food sensitivity testing and maybe some more for a

> > second visit this woman has a blueprint to treat her child. A new

> > probiotic was ordered, she is starting CLO, flax seed and some

> other

> > stuff tailored to her child.

> >

> > So here I sit, one month shy of my son's EI age out date. There

are

> > no preschools to take him because I waited. The town preschool

that

> I

> > waived because I thought they would not abide by diet, is

actually

> > asking the parents I was sitting with to present the GFCF diet to

> the

> > school parents as it has helped NT siblings with behavioral stuff

> and

> > parents. I can get him in there in 2 months. After what I have

seen

> > in that meeting, where AP kids go GFCF and there problems leave

> > whereas my kid has aticulation stuff makes me wonder if what is

> left

> > in my guy is fluoride and lead. I need the testing. I see that

now.

> > None of these tests seem to address fluoride which concerns me. I

> > will test the baby water though. At least I'll have a gauge of

what

> > went in. I need to know the minerals, the vitamins, the flora

info.

> > and the remedies. This is the testing we should be able to get

when

> > we go to a mainstream dr. with a child with delays. I am scared.

I

> am

> > mad. This should not have taken this long.

> >

> > Hubby is on board. We are behind the 8 ball now and it is time to

> > catch up. Janice was right. You have to do it all:

> >

> > The therapy

> > The diet/vitamin and mineral regimen

> > and

> > the DAN testing

> >

> > You have to know what is in front of you and how to fix it. My

DAN

> > knows the tests. Beyond that I don't know if he can give me a

> > blueprint like this woman got or if hers is even correct. What I

do

> > know is I need the tests and I trust my own instincts to find

> someone

> > knowledgable and trustworthy to help me find a map from there.

> >

> >

> >

> >

> >

> >

> >

> >

> >

[Guest guest]

Janice,

Thanks again for terrific advice. This family appreciates your emails and

value what you have to say. As well as so many others. I posted the results

of the test in a long email. If you dont mind giving it a once over and your

thoughts I would appreciate it.

This kid looks autistic on mineral panels, but is functioning at almost

normal standards all around. This is tricky stuff!

Colleen

Mother of Charlie 30 months

Re: [sPAM][ ] Re: Group Meeting Results/DAN Info.

Oh Colleen....

Sorry about the aluminum issue. (Better than the high lead we are dealing

with though! We are doing DMSA round one this weekend to try to get rid of

all the lead Mark has inside of him)

So.... have you gone shopping yet? You need to get rid of all your

pots/pans/cookware with aluminum. No more juice boxes (those are aluminum

right or are they tin?). You've got to go through the house and give it all

the heave-ho toss! YIPPIE... more money to spend!

Also look for to a good anti-oxident for detox. How was Charlie's sulfate

level? Was it low? If so, think about glutathione supplementation. We use

500 mg 2-3 times per day..... great for getting rid of the bad stuff. Ask

your DAN about it.

I actually think that you got lucky here. I would gladly have aluminum over

mercury & lead any day of the week. I expect that aluminum is a lot easier

to deal with. I will keep an eye out for information and pas it on to you

when I come across it.

Mark & I are actually lucky and mercury is not as big a problem as first

suspected... it is the lead and probably has been the lead all of these

years! I would bet my kid has been sucking on lead toys and going to lead

laden schools his entire life. Nasty...

Janice

Mother of Mark, 13

[ ] Group Meeting Results/DAN Info.

> >

> >

> >

> > Went to the group meeting in my town tonight. My town is 1/4

square

> > mile, Mayberry, everyone knows everyone elses beeswax so we

signed

> > confidentiality agreements but are allowed to do what I am doing

> now

> > so long as we say, " Someone in my group. "

> >

> > The group is made up of parents of the following types of kids

but

> > not all have just speech issues and one, the only one exposed to

> > fluoride in large doses, is diagnosed with dyspraxia.

> >

> > 1) PDD Nos, sensory issues pretty severe.

> > 2) Nonverbal, PDD Nos, older sibling possible Aspergers. Going to

> > Neubrander, slightly leary about him.

> > 3) Me, with one kid with shiners and, off GFCF diet she is

whiney,

> > has focus issues, food strikes and less unprovoked speech. The

> other

> > kid is undiagnosed but had signs of apraxia and ASD. Low tone,

> > initial trouble producing speech, poor receptive, fine and gross

> > motor issues. Those things improved and some resolved on GFCF

diet

> > and removal of bad water. Articulation issues pend.

> >

> > The mom of the sensory kid went GFCF in Sept and has seen major

> > changes. She went to a DAN (A PhD not MD), Dr. King who operates

in

> > conjunction with an MD, Dr. Podell, in Springfield, NJ. The mom

is

> > healing the kid on diet but wanted to know where the kids gut was

> at,

> > if she was getting the right vitamins and minerals, using the

right

> > probiotic, etc. She was not interested in chelation. She also

> wanted

> > alternative remedies to things that have plagued her kid in the

> past,

> > like ear stuff.

> >

> > She did poop and pee tests via Drs Data and vitamin measurements

> via

> > Bioreference. She also did an IGE test. What she discovered was

> that

> > milk and wheat are an issue and some other things as well, mostly

> she

> > realized but a few, like soy and rice, must leave the diet. The

> > metals testing showed the worst of her stuff was actually, at

this

> > point " high normal. " The two big things that need addressing were

> > aluminum and nickel. Neither are a surprise. We live in a town

> where

> > aluminum frame windows are made and then there are the vaccines.

> > Several industries have operated in this town so nickel is also

not

> a

> > surprise.

> >

> > The interesting thing was the poop test and what it told her

about

> > what the kid was and was not getting from the current probiotic

and

> > how to address it as well as a panel showing bacterial

> > susceptibilities and natural agents that could be used to address

> > these.

> >

> > Despite giving calmag every day the kid is low in calcium.

> >

> > So for $500 for the first visit, $350 paid by insurance, and

> another

> > $1500 for poop, pee, minerals, vitamin and bacterial

susceptibility

> > tests and IGG food sensitivity testing and maybe some more for a

> > second visit this woman has a blueprint to treat her child. A new

> > probiotic was ordered, she is starting CLO, flax seed and some

> other

> > stuff tailored to her child.

> >

> > So here I sit, one month shy of my son's EI age out date. There

are

> > no preschools to take him because I waited. The town preschool

that

> I

> > waived because I thought they would not abide by diet, is

actually

> > asking the parents I was sitting with to present the GFCF diet to

> the

> > school parents as it has helped NT siblings with behavioral stuff

> and

> > parents. I can get him in there in 2 months. After what I have

seen

> > in that meeting, where AP kids go GFCF and there problems leave

> > whereas my kid has aticulation stuff makes me wonder if what is

> left

> > in my guy is fluoride and lead. I need the testing. I see that

now.

> > None of these tests seem to address fluoride which concerns me. I

> > will test the baby water though. At least I'll have a gauge of

what

> > went in. I need to know the minerals, the vitamins, the flora

info.

> > and the remedies. This is the testing we should be able to get

when

> > we go to a mainstream dr. with a child with delays. I am scared.

I

> am

> > mad. This should not have taken this long.

> >

> > Hubby is on board. We are behind the 8 ball now and it is time to

> > catch up. Janice was right. You have to do it all:

> >

> > The therapy

> > The diet/vitamin and mineral regimen

> > and

> > the DAN testing

> >

> > You have to know what is in front of you and how to fix it. My

DAN

> > knows the tests. Beyond that I don't know if he can give me a

> > blueprint like this woman got or if hers is even correct. What I

do

> > know is I need the tests and I trust my own instincts to find

> someone

> > knowledgable and trustworthy to help me find a map from there.

> >

> >

> >

> >

> >

> >

> >

> >

> >