Re: re: Stem Cell Research at UTMB > Jim Stark

November 18, 2002

Hi,

I am sorry to report that my sister experienced rapid deterioration this

past March. She was admitted to the hospital to have a feeding tube

inserted into her stomach.....she was able to walk (with assistance and a

walker) and to talk. Immediately following her surgery, was in

intense pain...unlike anything any of us have ever seen (or ever wish to

see again). The doctors were baffled. Finally pain doctors got the pain

under control, but 's quality of life has not been the same since.

She left the hospital in September and went directly to a nursing home.

She cannot move (her body is completely rigid - - like a board), can barely

speak, and requires full-time medical care. Very grim situation.....my

heart cries for you and your family as it does for the many others and my

own family.

Sharon

~~~~~~~~~~~~~~~~~~~~~~~

Sharon Marsh, CMP

Manager, Internal Events

PeopleSoft, Inc.

4411 PeopleSoft Parkway

P.O. Box 9001

Pleasanton, CA 94588-9001

1-800-380-SOFT (7638)

(tel - direct line)

(fax)

www.peoplesoft.com

~~~~~~~~~~~~~~~~~~~~~~~

" Be who you are and say what you feel, because those who mind don't matter

and those who matter don't mind. "

--Dr. Seuss

RMADM4@...

To:

shydrager

11/18/2002 03:23 cc:

PM Subject: Re: re: Stem Cell

Rescearch at UTMB > Jim Stark

Please respond to

shydrager

Hi -

I have read all the emails for two years now (that was when my dad was d/a

with this horrible disease). I am now writing in hopes that with all in

the

incredible knowledge that this group has, that maybe I can find an answer

for

my dad. Three weeks ago he entered the hospital with kidney disease (thank

God I had the knowledge from this list to know that the rapid downhill

progression in a couple of days time was a big danger sign). He is now in

rehab in the hospital, but he is still extremely exhaused and all he wants

to

do is sleep. This past weekend he could not even do his physical therapy

because he was so exhaused. His doctor seemes to think that the diease is

causing the exhaustion and incapacitation, but I find that hard to believe

since he was not even half this bad a week before he was in the hospital.

He

says that he is amazed at the rapid deterioration. I guess my question is

this, Is that possible that he would deteriorate that fast even after being

on antibiotics for fourteen days, or could there be something else wrong.

I

really appreciate all the fantastic advise I have received here for the

past

two years and I keep all the patients and caretakers of this tragic disease

in my prayers. Thanks for your help.

November 18, 2002