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Hi everyone,

I have been reading just about all of the posts just about every day

since joining the group. I have not been posting though because I have

really been concentrating on the reading. I have learned heaps about

what to expect of this disease already, and I know there is much more

to learn. My husband Reg was given a definate diagnosis of MSA in

September, three years after being diagnosed with PD. We are still

really trying to come to terms with it. I have only been a member of

the group for a week or so, and have already been reading about things

which affect Reg, and which we did not realise was part of the

disease, such as his cold feet! They get as cold as ice, as do his

knees,but not his hands. I have to say though, that compared to the

suffering that many members of this group are experiencing, Reg is as

yet, only mildly affected. I do know this will change as time goes by,

but I feel a little more confident being a part of this group, with

all of these courageous people, sufferers and carers alike.

Robyn.

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Hi everyone,

I have been reading just about all of the posts just about every day

since joining the group. I have not been posting though because I have

really been concentrating on the reading. I have learned heaps about

what to expect of this disease already, and I know there is much more

to learn. My husband Reg was given a definate diagnosis of MSA in

September, three years after being diagnosed with PD. We are still

really trying to come to terms with it. I have only been a member of

the group for a week or so, and have already been reading about things

which affect Reg, and which we did not realise was part of the

disease, such as his cold feet! They get as cold as ice, as do his

knees,but not his hands. I have to say though, that compared to the

suffering that many members of this group are experiencing, Reg is as

yet, only mildly affected. I do know this will change as time goes by,

but I feel a little more confident being a part of this group, with

all of these courageous people, sufferers and carers alike.

Robyn.

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