Guest guest Posted July 30, 2002 Report Share Posted July 30, 2002 there has always been a concern or interest over profit verses non profit with regard to rosacea treatment that somehow being non profit is perceived better - however commercial ventures sometimes are better - it is nice that there are both, but non profit sure is tricky --- good thing there are lawyers to sort through all this and raise the price of all the treatment, right? an interesting development just recently occurred when the domain name rosacea.com was bought by Dermik Lab in Feb 2002. check out this url: https://www.netsol.com/cgi- bin/whois/whois?STRING=rosacea.com & STRING2.x=23 & STRING2.y=9 & SearchType=do you can see the rosacea.com site at this url > http://www.rosacea.com/ wonder what they paid for the name? It has been for sell for over three years. Anyway, you can now get some of your information on rosacea at rosacea.com or rosacea.org and of course the National cea Society has rosacea.org that is supposed to be profit verses non-profit since supposedly non profit sites end in dot.org while profit sites end in dot.com meaning 'commercial' what is interesting is how the NRS is sponsored by Galderma which is obvious since the only links mentioned on their site are physicians organizations and InfoDerm which is a site owned by Galderma. see this url > http://www.rosacea.org/links.html if you note the list of Board of Directors which is very impressive and then note how many research grants go to the same universities that the board of directors happen to also be on the faculty you can see there seems to be a conflict of interest going on, but whom you may have a different opinion. see this url > http://www.rosacea.org/grants/board.html research grants > http://www.rosacea.org/grants/awards.html Are there any laymen who are rosacea sufferers on the board of directors? All are medical doctors. I wrote an email to the NRS asking for a breakdown of their expenses and receipts. So far no response. I suppose that there is a way to get an account report from a non profit organization somehow. Maybe someone knows. Maybe there ought to be an International cea Society that is truly NON PROFIT and will not accept grants from commercial organizations but the problem is that the commercial organizations have all the money and donate to these non profit organizations which are eagerly awaiting the funds to operate. This is the accepted course for non profit organizations in the USA. Money whether profit or non profit is still needed. I guess when you think about it the NRS can do whatever they want with their money and give it to whomever they please. Pascoe is absolutely the only site I have seen that accepts no commercial sponsors. Does anyone know of another site? 's site can be found here > http://www.rosacea.ii.net/ Brady Barrows -- Brady Barrows - webmaster for http://www.rosaceans.com http://groups.yahoo.com/group/rosaceans http://www.rosacea-control.com http://www.rosaceadiet.com http://groups.yahoo.com/group/rosacea-diet-users-support-group Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 30, 2002 Report Share Posted July 30, 2002 there has always been a concern or interest over profit verses non profit with regard to rosacea treatment that somehow being non profit is perceived better - however commercial ventures sometimes are better - it is nice that there are both, but non profit sure is tricky --- good thing there are lawyers to sort through all this and raise the price of all the treatment, right? an interesting development just recently occurred when the domain name rosacea.com was bought by Dermik Lab in Feb 2002. check out this url: https://www.netsol.com/cgi- bin/whois/whois?STRING=rosacea.com & STRING2.x=23 & STRING2.y=9 & SearchType=do you can see the rosacea.com site at this url > http://www.rosacea.com/ wonder what they paid for the name? It has been for sell for over three years. Anyway, you can now get some of your information on rosacea at rosacea.com or rosacea.org and of course the National cea Society has rosacea.org that is supposed to be profit verses non-profit since supposedly non profit sites end in dot.org while profit sites end in dot.com meaning 'commercial' what is interesting is how the NRS is sponsored by Galderma which is obvious since the only links mentioned on their site are physicians organizations and InfoDerm which is a site owned by Galderma. see this url > http://www.rosacea.org/links.html if you note the list of Board of Directors which is very impressive and then note how many research grants go to the same universities that the board of directors happen to also be on the faculty you can see there seems to be a conflict of interest going on, but whom you may have a different opinion. see this url > http://www.rosacea.org/grants/board.html research grants > http://www.rosacea.org/grants/awards.html Are there any laymen who are rosacea sufferers on the board of directors? All are medical doctors. I wrote an email to the NRS asking for a breakdown of their expenses and receipts. So far no response. I suppose that there is a way to get an account report from a non profit organization somehow. Maybe someone knows. Maybe there ought to be an International cea Society that is truly NON PROFIT and will not accept grants from commercial organizations but the problem is that the commercial organizations have all the money and donate to these non profit organizations which are eagerly awaiting the funds to operate. This is the accepted course for non profit organizations in the USA. Money whether profit or non profit is still needed. I guess when you think about it the NRS can do whatever they want with their money and give it to whomever they please. Pascoe is absolutely the only site I have seen that accepts no commercial sponsors. Does anyone know of another site? 's site can be found here > http://www.rosacea.ii.net/ Brady Barrows -- Brady Barrows - webmaster for http://www.rosaceans.com http://groups.yahoo.com/group/rosaceans http://www.rosacea-control.com http://www.rosaceadiet.com http://groups.yahoo.com/group/rosacea-diet-users-support-group Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 30, 2002 Report Share Posted July 30, 2002 after following the link to rosacea.com i looked at their own links page and went to about-rosacea.com , and a popup appeared of a " new " rosacea treatment called Zenmed. here's the link if anyone wants to check it out. it claims to reduce redness and visible vessels, pimples, and even flushing. the typical rosacea miracle cure. who knows though,it might work for some of us. in the " how it works " section i believe there's a pretty detailed report on some of its ingredients, so someone with expertise in that area might be able to give some insight. anyway,heres the link : http://zenmed.com/rosacea/ > there has always been a concern or interest over profit verses non > profit with regard to rosacea treatment that somehow being non profit is > perceived better - however commercial ventures sometimes are better - it > is nice that there are both, but non profit sure is tricky --- good > thing there are lawyers to sort through all this and raise the price of > all the treatment, right? > > an interesting development just recently occurred when the domain name > rosacea.com was bought by Dermik Lab in Feb 2002. > check out this url: > > https://www.netsol.com/cgi- > bin/whois/whois? STRING=rosacea.com & STRING2.x=23 & STRING2.y=9 & SearchType=do > > you can see the rosacea.com site at this url > > > http://www.rosacea.com/ > > wonder what they paid for the name? It has been for sell for over three > years. Anyway, you can now get some of your information on rosacea at > rosacea.com or rosacea.org > > and of course the National cea Society has rosacea.org > > that is supposed to be profit verses non-profit since supposedly > non profit sites end in dot.org while profit sites end in dot.com > meaning 'commercial' > > what is interesting is how the NRS is sponsored by Galderma which is > obvious since the only links mentioned on their site are physicians > organizations and InfoDerm which is a site owned by Galderma. > > see this url > > http://www.rosacea.org/links.html > > if you note the list of Board of Directors which is very impressive > and then note how many research grants go to the same universities that > the board of directors happen to also be on the faculty you can see > there seems to be a conflict of interest going on, but whom you may have > a different opinion. > > see this url > > http://www.rosacea.org/grants/board.html > > research grants > > > http://www.rosacea.org/grants/awards.html > > Are there any laymen who are rosacea sufferers on the board of > directors? All are medical doctors. I wrote an email to the NRS asking > for a breakdown of their expenses and receipts. So far no response. I > suppose that there is a way to get an account report from a non profit > organization somehow. Maybe someone knows. Maybe there ought to be an > International cea Society that is truly NON PROFIT and will not > accept grants from commercial organizations but the problem is that the > commercial organizations have all the money and donate to these non > profit organizations which are eagerly awaiting the funds to operate. > This is the accepted course for non profit organizations in the USA. > Money whether profit or non profit is still needed. I guess when you > think about it the NRS can do whatever they want with their money and > give it to whomever they please. > > Pascoe is absolutely the only site I have seen that accepts no > commercial sponsors. Does anyone know of another site? > > 's site can be found here > > > http://www.rosacea.ii.net/ > > Brady Barrows > > > > > > -- > Brady Barrows - webmaster for > http://www.rosaceans.com > http://groups.yahoo.com/group/rosaceans > http://www.rosacea-control.com > http://www.rosaceadiet.com > http://groups.yahoo.com/group/rosacea-diet-users-support-group > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 30, 2002 Report Share Posted July 30, 2002 after following the link to rosacea.com i looked at their own links page and went to about-rosacea.com , and a popup appeared of a " new " rosacea treatment called Zenmed. here's the link if anyone wants to check it out. it claims to reduce redness and visible vessels, pimples, and even flushing. the typical rosacea miracle cure. who knows though,it might work for some of us. in the " how it works " section i believe there's a pretty detailed report on some of its ingredients, so someone with expertise in that area might be able to give some insight. anyway,heres the link : http://zenmed.com/rosacea/ > there has always been a concern or interest over profit verses non > profit with regard to rosacea treatment that somehow being non profit is > perceived better - however commercial ventures sometimes are better - it > is nice that there are both, but non profit sure is tricky --- good > thing there are lawyers to sort through all this and raise the price of > all the treatment, right? > > an interesting development just recently occurred when the domain name > rosacea.com was bought by Dermik Lab in Feb 2002. > check out this url: > > https://www.netsol.com/cgi- > bin/whois/whois? STRING=rosacea.com & STRING2.x=23 & STRING2.y=9 & SearchType=do > > you can see the rosacea.com site at this url > > > http://www.rosacea.com/ > > wonder what they paid for the name? It has been for sell for over three > years. Anyway, you can now get some of your information on rosacea at > rosacea.com or rosacea.org > > and of course the National cea Society has rosacea.org > > that is supposed to be profit verses non-profit since supposedly > non profit sites end in dot.org while profit sites end in dot.com > meaning 'commercial' > > what is interesting is how the NRS is sponsored by Galderma which is > obvious since the only links mentioned on their site are physicians > organizations and InfoDerm which is a site owned by Galderma. > > see this url > > http://www.rosacea.org/links.html > > if you note the list of Board of Directors which is very impressive > and then note how many research grants go to the same universities that > the board of directors happen to also be on the faculty you can see > there seems to be a conflict of interest going on, but whom you may have > a different opinion. > > see this url > > http://www.rosacea.org/grants/board.html > > research grants > > > http://www.rosacea.org/grants/awards.html > > Are there any laymen who are rosacea sufferers on the board of > directors? All are medical doctors. I wrote an email to the NRS asking > for a breakdown of their expenses and receipts. So far no response. I > suppose that there is a way to get an account report from a non profit > organization somehow. Maybe someone knows. Maybe there ought to be an > International cea Society that is truly NON PROFIT and will not > accept grants from commercial organizations but the problem is that the > commercial organizations have all the money and donate to these non > profit organizations which are eagerly awaiting the funds to operate. > This is the accepted course for non profit organizations in the USA. > Money whether profit or non profit is still needed. I guess when you > think about it the NRS can do whatever they want with their money and > give it to whomever they please. > > Pascoe is absolutely the only site I have seen that accepts no > commercial sponsors. Does anyone know of another site? > > 's site can be found here > > > http://www.rosacea.ii.net/ > > Brady Barrows > > > > > > -- > Brady Barrows - webmaster for > http://www.rosaceans.com > http://groups.yahoo.com/group/rosaceans > http://www.rosacea-control.com > http://www.rosaceadiet.com > http://groups.yahoo.com/group/rosacea-diet-users-support-group > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 30, 2002 Report Share Posted July 30, 2002 I wrote an > email to the NRS asking > for a breakdown of their expenses and receipts. So > far no response. I > suppose that there is a way to get an account report > from a non profit > organization somehow. Maybe someone knows. OK, I know a little about charities - To find out information on charities, there are a couple of sources: 1. Contact the charity directly and ask for their most recently copy of their " Form 990 " . It is the tax form that all charities must file to the IRS if they have annual income (including contributions) over $25,000. The Form 990 is available to the public upon request. Requests may be made in person or in writing. They may charge a copying fee. Requests in writing have to be sent within 30 days of the request. In person requests may be fulfilled that day or if circumstances do not allow for copying then it must be completed by the next business day. Note: There is a section in the Form 990 which is a breakdown of donations received, which is not public information (but I have seen copies of 990's where charities include it--probably not realizing that they don't have to for the public.) 2. There is a website that will provide a " snapshot " of financial information on charities - www.guidestar.org It is free. Enter the name of the charity in the search area. However, the latest information on this site may be year 1999 or 2000. But it does show a breakdown of income and expenses. Hope this is helpful. Michele __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 30, 2002 Report Share Posted July 30, 2002 I wrote an > email to the NRS asking > for a breakdown of their expenses and receipts. So > far no response. I > suppose that there is a way to get an account report > from a non profit > organization somehow. Maybe someone knows. OK, I know a little about charities - To find out information on charities, there are a couple of sources: 1. Contact the charity directly and ask for their most recently copy of their " Form 990 " . It is the tax form that all charities must file to the IRS if they have annual income (including contributions) over $25,000. The Form 990 is available to the public upon request. Requests may be made in person or in writing. They may charge a copying fee. Requests in writing have to be sent within 30 days of the request. In person requests may be fulfilled that day or if circumstances do not allow for copying then it must be completed by the next business day. Note: There is a section in the Form 990 which is a breakdown of donations received, which is not public information (but I have seen copies of 990's where charities include it--probably not realizing that they don't have to for the public.) 2. There is a website that will provide a " snapshot " of financial information on charities - www.guidestar.org It is free. Enter the name of the charity in the search area. However, the latest information on this site may be year 1999 or 2000. But it does show a breakdown of income and expenses. Hope this is helpful. Michele __________________________________________________ Quote Link to comment Share on other sites More sharing options...
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