International cea Society - Pascoe for President

July 31, 2002

Michele,

thanks for the 2001 Report. At least they have improved when you consider that

they

spent 35.6% of the contributions for grants, yet the amount was $22,000 less

than the

year 2000. But remember that at the end of 2000 the NRS had net assets worth

$537,497. I imagine that at the end of 2001 the net assets went down. At least

this

group may keep a keen interest in the NRS budget and wonder if any rosaceans can

have an impact on what the research dollars are spent on. I still think Pascoe

should

organize an International cea Society based in Australia that can have

rosaceans

running it who might allow a fresh approach to research. I realize that this

would

require a serious undertaking on his part but it could start out with him

operating out of

his home office in his spare time. What do you think ? Your the man. You

have

created the largest rosacea support group on planet earth which is no small

accomplishment. IRS all the way!

Brady Barrows

-- In rosacea-support@y..., mschmidt <mschmidt40@y...> wrote:

> Hi- I actually have their 2001 Form 990 - I requested

> it months ago, when the threads were about donating to

> the NRS, and I was curious. Their income has dropped

> in 2001. They received revenue of $202,637 in year

> 2001. Their expenses totaled $451,894. They spent

> $403,212 on program services, $27,308 on management

> and general, and $21,374 on fundraising.

> Program Services includes: $97,180 on public

> awareness which includes a toll free number and

> website; $142,269 on patient education which includes

> cea Review newsletter; $81,423 on Medical

> Scientific Education - which includes committees to

> develop standardized criteria, an annual rosacea

> workshop, and technical exhibits at major medical

> meetings; and $82,340 on Research grants program--and

> $72,230 on actual grants to drs. for research.

>

> Research grants were given to: Dr. M. Yaar at Boston

> University; Dr. Lerner at Mass. General Hospital; Dr.

> Kavanagh at Nat'l. Univ. Ireland, Kildare, Ireland;

> Dr. Fitzpatric at Univ. Coll. Dublin, Ireland; Dr.

> Thiboutot at Penn. State Univ., Dr. Gallo at Veterans

> Med. Research in San Diego. (Maybe someone out there

> knows these doctors and could find out more about

> their research projects.)

>

> No directors or key employees were paid over $50,000.

> The President is Huff, the Treasurer is Datha

> Olney; and Erhard is the Secretary. However,

> $288,626 was paid to Glendale Communications Group in

> Barrington IL (listed as a contractor). (I wonder if

> Sam Huff and Associates changed their name??)

>

> I'm not an accountant, but before I would give any

> dollars to them, I'd want to know more about what the

> research grants cover, and why the change in income

> from year 2000 to 2001. Just an FYI in 1997 their

> gifts (contributions) received were $284,353, then in

> 1998, it jumped to $1,078,778 and then remained in the

> $900,000 range for 1999 and 2000. Now it's down again

> for 2001..... Interesting.....who stopped giving $

> ...and why?

>

> Brady's right you really need to be an

> accountant--preferably one knowledgeable in non-profit

> accounting to really analyze this document.

>

> Michele

>

> --- ruizdelvizo <ruizdelvizo@y...> wrote:

> > Hi Brady,

> >

> > Wow, you really uncovered some good stuff. I wonder

> > how many of those

> > contributor dollars are from Galderma? I noticed on

> > the Form 990 that

> > they list an individual contributor giving over

> > $700,000 to the NRS.

> > The site blocked out the name of the contributor. I

> > did happen to go

> > the Galderma site and noticed that Galderma is a

> > joint venture

> > between LOreal and Nestle. It's not a little company

> > on it's own.

> >

> > Here's the link if anyone is interested:

> >

> > http://www.galderma.com/about_galderma/about.php

> >

> > I'll see if I can dig up the Galderma annual

> > statement somewhere.

> >

> > Take care,

> > Matija

> >

> > > Someone helped me () find a way to get the

> > Form 990 Report

> > on

> > > the NRS and a copy of the is available online.

> > >

> > > In 2000 the NRS received about $954,000 of which

> > over $12,000 was

> > > interest and spent over a million bucks for

> > 'grants, program

> > services,

> > > management and fund raising.' By the way, the

> > total expenditure on

> > > grants was only a little over $94,000 which is

> > less than 10% of the

> > > expenditures. At the end of 2000 the net assets

> > of the NRS was

> > $537,497.

> > >

> > > The NRS spent $18,038 for online services,

> > $155,046 for 'program

> > > services expenses' (with regard to the $94,564

> > grants given out),

> > > $75,219 for the physician referral service,

> > $42,819 for a 'rosacea

> > > hotline,' $174,422 for the cea Review

> > Newsletter, $386,429 for

> > > Awareness and Education, and $148,772 for

> > 'Fulfillment Services.'

> > > This totals over a million bucks.

> > >

> > > The NRS has three listed names, B Huff,

> > President, Dathy J

> > Olney,

> > > Treasurer, and A Earhard, Secretary. It is of

> > note that the

> > only

> > > listed expenditure for " Part II - Compensation of

> > the Five Highest

> > Paid

> > > Independent Contractors for Professional Services "

> > > was paid to Sam Huff & Associates, Inc. of

> > Barrington, IL,

> > for 'Public

> > > Relations' in the amount of $744,075.

> > >

> > > You have to be a certified public accountant or

> > maybe one of

> > Arthur

> > > 's men to figure out some of this, but it

> > sure looks like

> > > if you donate to the NRS you can see where your

> > money is going by

> > > reading FORM 990 which is public knowledge

> > available for free.

> > >

> > > Maybe there should be another organization for

> > rosacea with a

> > better

> > > expenditure approach?

> > >

> > > You can get all this information in a pdf at this

> > url >

> > >

> > > http://www.guidestar.org

> > >

> > > type in the box 'National cea Society'

> > >

> > > and search for the FORM 990 pdf for 2000 and you

> > have your own copy.

> > >

> > > Brady Barrows

> >

> > --

> > Please read the list highlights before posting to

> > the whole group (http://rosacea.ii.net/toc.html).

> > Your post will be delayed if you don't give a

> > meaningful subject or trim your reply text. You must

> > change the subject when replying to a digest !

> >

> > See http://www.drnase.com for info on his recently

> > published book.

> >

> > To leave the list send an email to

> > rosacea-support-unsubscribe@y...

> >

July 31, 2002

Michele,

thanks for the 2001 Report. At least they have improved when you consider that

they

spent 35.6% of the contributions for grants, yet the amount was $22,000 less

than the

year 2000. But remember that at the end of 2000 the NRS had net assets worth

$537,497. I imagine that at the end of 2001 the net assets went down. At least

this

group may keep a keen interest in the NRS budget and wonder if any rosaceans can

have an impact on what the research dollars are spent on. I still think Pascoe

should

organize an International cea Society based in Australia that can have

rosaceans

running it who might allow a fresh approach to research. I realize that this

would

require a serious undertaking on his part but it could start out with him

operating out of

his home office in his spare time. What do you think ? Your the man. You

have

created the largest rosacea support group on planet earth which is no small

accomplishment. IRS all the way!

Brady Barrows

-- In rosacea-support@y..., mschmidt <mschmidt40@y...> wrote:

> Hi- I actually have their 2001 Form 990 - I requested

> it months ago, when the threads were about donating to

> the NRS, and I was curious. Their income has dropped

> in 2001. They received revenue of $202,637 in year

> 2001. Their expenses totaled $451,894. They spent

> $403,212 on program services, $27,308 on management

> and general, and $21,374 on fundraising.

> Program Services includes: $97,180 on public

> awareness which includes a toll free number and

> website; $142,269 on patient education which includes

> cea Review newsletter; $81,423 on Medical

> Scientific Education - which includes committees to

> develop standardized criteria, an annual rosacea

> workshop, and technical exhibits at major medical

> meetings; and $82,340 on Research grants program--and

> $72,230 on actual grants to drs. for research.

>

> Research grants were given to: Dr. M. Yaar at Boston

> University; Dr. Lerner at Mass. General Hospital; Dr.

> Kavanagh at Nat'l. Univ. Ireland, Kildare, Ireland;

> Dr. Fitzpatric at Univ. Coll. Dublin, Ireland; Dr.

> Thiboutot at Penn. State Univ., Dr. Gallo at Veterans

> Med. Research in San Diego. (Maybe someone out there

> knows these doctors and could find out more about

> their research projects.)

>

> No directors or key employees were paid over $50,000.

> The President is Huff, the Treasurer is Datha

> Olney; and Erhard is the Secretary. However,

> $288,626 was paid to Glendale Communications Group in

> Barrington IL (listed as a contractor). (I wonder if

> Sam Huff and Associates changed their name??)

>

> I'm not an accountant, but before I would give any

> dollars to them, I'd want to know more about what the

> research grants cover, and why the change in income

> from year 2000 to 2001. Just an FYI in 1997 their

> gifts (contributions) received were $284,353, then in

> 1998, it jumped to $1,078,778 and then remained in the

> $900,000 range for 1999 and 2000. Now it's down again

> for 2001..... Interesting.....who stopped giving $

> ...and why?

>

> Brady's right you really need to be an

> accountant--preferably one knowledgeable in non-profit

> accounting to really analyze this document.

>

> Michele

>

> --- ruizdelvizo <ruizdelvizo@y...> wrote:

> > Hi Brady,

> >

> > Wow, you really uncovered some good stuff. I wonder

> > how many of those

> > contributor dollars are from Galderma? I noticed on

> > the Form 990 that

> > they list an individual contributor giving over

> > $700,000 to the NRS.

> > The site blocked out the name of the contributor. I

> > did happen to go

> > the Galderma site and noticed that Galderma is a

> > joint venture

> > between LOreal and Nestle. It's not a little company

> > on it's own.

> >

> > Here's the link if anyone is interested:

> >

> > http://www.galderma.com/about_galderma/about.php

> >

> > I'll see if I can dig up the Galderma annual

> > statement somewhere.

> >

> > Take care,

> > Matija

> >

> > > Someone helped me () find a way to get the

> > Form 990 Report

> > on

> > > the NRS and a copy of the is available online.

> > >

> > > In 2000 the NRS received about $954,000 of which

> > over $12,000 was

> > > interest and spent over a million bucks for

> > 'grants, program

> > services,

> > > management and fund raising.' By the way, the

> > total expenditure on

> > > grants was only a little over $94,000 which is

> > less than 10% of the

> > > expenditures. At the end of 2000 the net assets

> > of the NRS was

> > $537,497.

> > >

> > > The NRS spent $18,038 for online services,

> > $155,046 for 'program

> > > services expenses' (with regard to the $94,564

> > grants given out),

> > > $75,219 for the physician referral service,

> > $42,819 for a 'rosacea

> > > hotline,' $174,422 for the cea Review

> > Newsletter, $386,429 for

> > > Awareness and Education, and $148,772 for

> > 'Fulfillment Services.'

> > > This totals over a million bucks.

> > >

> > > The NRS has three listed names, B Huff,

> > President, Dathy J

> > Olney,

> > > Treasurer, and A Earhard, Secretary. It is of

> > note that the

> > only

> > > listed expenditure for " Part II - Compensation of

> > the Five Highest

> > Paid

> > > Independent Contractors for Professional Services "

> > > was paid to Sam Huff & Associates, Inc. of

> > Barrington, IL,

> > for 'Public

> > > Relations' in the amount of $744,075.

> > >

> > > You have to be a certified public accountant or

> > maybe one of

> > Arthur

> > > 's men to figure out some of this, but it

> > sure looks like

> > > if you donate to the NRS you can see where your

> > money is going by

> > > reading FORM 990 which is public knowledge

> > available for free.

> > >

> > > Maybe there should be another organization for

> > rosacea with a

> > better

> > > expenditure approach?

> > >

> > > You can get all this information in a pdf at this

> > url >

> > >

> > > http://www.guidestar.org

> > >

> > > type in the box 'National cea Society'

> > >

> > > and search for the FORM 990 pdf for 2000 and you

> > have your own copy.

> > >

> > > Brady Barrows

> >

> > --

> > Please read the list highlights before posting to

> > the whole group (http://rosacea.ii.net/toc.html).

> > Your post will be delayed if you don't give a

> > meaningful subject or trim your reply text. You must

> > change the subject when replying to a digest !

> >

> > See http://www.drnase.com for info on his recently

> > published book.

> >

> > To leave the list send an email to

> > rosacea-support-unsubscribe@y...

> >

August 2, 2002

On Thursday, 1 August 2002, at 01:19:11 [GMT -0000] you wrote:

b> I still think Pascoe should organize an International cea Society

b> based in Australia that can have rosaceans running it who might allow a

b> fresh approach to research. I realize that this would require a serious

b> undertaking on his part but it could start out with him operating out

b> of his home office in his spare time. What do you think ? Your the

b> man. You have created the largest rosacea support group on planet earth

b> which is no small accomplishment. IRS all the way!

thanks for the vote of confidence ... I think ? Sadly, this is way more

than I have time for.

The NRS have come around some so have proved that they can change

according to customer demand. I don't see that they are particularly

influenced by their funding from Galderma - they seem to quite clearly

steer away from endorsing their products for eg (or any particular

treatments for that matter). Also the job that they do do in terms of

disseminating information and being a point of contact - the phone

service, web site and brochures, obviously cost real dollars. To even get

a grant program off the ground is probably in another ball park in terms

of financing as well.

I don't think that we need to write off the NRS, we just need to support

and encourage them to speak for us.

The problem for me all along has been that the NRS is not what all of us

really want. We have hopes for them that are pretty unlikely to be met as

they are just too much. What we hope and dream for is an advocate with

unlimited funds to inspire original research, and to educate the masses.

We are a long way from that.

cheers,

davidp.

--

Pascoe, mailto:dp@..., Western Australia

August 2, 2002