Guest guest Posted August 29, 2004 Report Share Posted August 29, 2004 Chrissy, Welcome and congrats on your pregnancy. My daughter is 4 months and she is my first so I can only speak on a pregnancy post wls. I gained while pregnant but it has all come off since my daughter was born. I feel that breastfeeding has helped in this area but I can't be sure because I also give my daughter formula. My appetite is still bigger than before my pregnancy but I'm sure that is because I'm breastfeeding. I'm sorry to hear that your going through some tough times but I'm sure that all of us here will be happy to give you support however we can. Axelrod New to Group Hello Everyone, I am 2 years 8 months post op and 11 weeks pregnant. My weight loss was a complete success, I lost 154 lbs. and I don't want to gain it back. At my second prenatal visit, I'd gained 6 lbs! I am scared to death! I have decided to keep the baby, even though I am in the process of a divorce and have 3 children that I share parenting with their father. I am really concerned about having a healthy baby and would like to have any advice. I am taking my prenatal vitamins daily, but no other supplements. My appetite has definitely increased, which is frightening and I can eat more than I used to. I mean I actually feel hungry again, which is a sensation I have not had since surgery. I still dump, which is awful along with terrible morning sickness. I had some spotting in the first 6 weeks, but have not seen anything since. Although this is my fourth time around, I almost feel like a first time mom. It's kind of scary. Someone advise please, Chrissy Ragland Children are a blessing, and a gift from the Lord. -Psalm 127:3 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 29, 2004 Report Share Posted August 29, 2004 Welcome Chrissy & congrats on your blessing. I can relate to being daunted by a post-op pg, thinking about my malabsorption. But my fears have diminished quite a bit, thank the Good Lord. WlsMomma #1 due in mid Dec > Hello Everyone, > > I am 2 years 8 months post op and 11 weeks pregnant. I am really concerned about having a healthy baby and would > like to have any advice. I am taking my prenatal vitamins daily, > but no other supplements. My appetite has definitely increased, > which is frightening and I can eat more than I used to. I mean I > actually feel hungry again, which is a sensation I have not had > since surgery. I still dump, which is awful along with terrible > morning sickness. I had some spotting in the first 6 weeks, but > have not seen anything since. > > Although this is my fourth time around, I almost feel like a first > time mom. It's kind of scary. > > Someone advise please, > > Chrissy Ragland Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 15, 2004 Report Share Posted December 15, 2004 Jen, Welcome to the group, you will find many mito experts here! Please tell us more about your daughter. What took so long to get her diagnosed? Did she have any other diagnosis before mito? My daughter was given a nonspecific mito diagnosis at 2 1/2 after many inconclusive tests, and based mainly on her clinical symptoms. After 5 years, we found out she has a gene mutation for Rett Syndrome, by a 2nd opinion neuro. There is quite a cross over in symptoms between the 2, and I still suspect she does have mito issues along with the Rett's. Hope you get some answers you are looking for=) e, Chelsea's mom, Atypical Rett Syndrome (FKA nonspecific mito) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 15, 2004 Report Share Posted December 15, 2004 Hi Jen, Im glad you found the group! What sorts of symptoms does your daughter have? Hope you stick around, its so nice to be able to talk to people who know what your going through... Keely (mom of , 2years, awaiting biopsy results) > > > Hi all! > > I am new to the group. My daughter was recently diagnosed with a > mild functional defect > in complex II. It took only 5 YEARS to get a diagnosis, but I feel > so blessed that at least > now I know something and can feel like I am active in 's > development. She is my > only child, and neither my husband nor I suffer from mito issues. > > I have SO many questions for you all, but I will start out slow and > just say Hello! I hope > everyone is looking forward to a nice holiday season. I am glad I > found you!! > > Jen Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 15, 2004 Report Share Posted December 15, 2004 We are glad you found us too. Feel free to start asking your questions. This group is great for knowing tons of information, sometimes better than the docs do. We would love to hear more about your child as well. See www.caringbridge.org/ia/mitomomof9 and this link to see a real look into Mito using a photo collage of my girls at www.heartbeatsformito.org Darla: mommy to Asenath (4) Mito, CNS Vasculitis, strokes, migraines, seizures, G-tube, hypotonicity, disautonomy, SID, dev. delays, asthma, cyclic vomiting... Zipporrah (12 months) Mito, strokes, neuro-motor planning dysfunction, SID, GERD, 100% G-tube fed, asthma, trach issues, aberrant subclavian artery, disautonomy, hypo & hypertonicity, migraines, possible seizures, dumping syndrome, iron deficiency... Luke (16), Leah (14), Rachael (12), Isaac (10), Tirzah (8), Kezia (3), & Marquis (2) (some with Mito symptoms) New to Group > > > > Hi all! > > I am new to the group. My daughter was recently diagnosed with a > mild functional defect > in complex II. It took only 5 YEARS to get a diagnosis, but I feel > so blessed that at least > now I know something and can feel like I am active in 's > development. She is my > only child, and neither my husband nor I suffer from mito issues. > > I have SO many questions for you all, but I will start out slow and > just say Hello! I hope > everyone is looking forward to a nice holiday season. I am glad I > found you!! > > Jen > > > > > > > > > > Please contact mito-owner with any problems or questions. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 16, 2004 Report Share Posted December 16, 2004 Dear Jen, Welcome to our group. I hope you will find being here is helpful and the best of luck to you. Suhad Haddad -- Mom to Samya (Died 12-10-02 of Leigh's Synd.) & Leanna with same disease. Samya's Memorial Site: www.samyahaddad.com/.org/.net Email: Suhad1970@... Alt Email: Suhad@... AiM Chat: Suhad1970 New to Group Hi all! I am new to the group. My daughter was recently diagnosed with a mild functional defect in complex II. It took only 5 YEARS to get a diagnosis, but I feel so blessed that at least now I know something and can feel like I am active in 's development. She is my only child, and neither my husband nor I suffer from mito issues. I have SO many questions for you all, but I will start out slow and just say Hello! I hope everyone is looking forward to a nice holiday season. I am glad I found you!! Jen Please contact mito-owner with any problems or questions. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 23, 2005 Report Share Posted January 23, 2005 , > Oma, I am sorry about your grandaughter but welcome to the group. Ask any question and we'll be happy to try to answer. For additional mito info go to www.umdf.org. that is where you will find alot of the info you need at the beginning until you have specific questions. Let us know what we can do. Dawn Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 23, 2005 Report Share Posted January 23, 2005 Well, it's Sunday A.M. and just spoke to my daughter-n-law, the doctors are releasing Chloe tomorrow. She'll be sent home with her feeding tube and they've taught Jessie how to give her injection. She started on steroids yesterday and I really don't know what else. I'm 650 miles away from them, so it's difficult for me to know all that goes on and even if I did, I'm not sure I'd understand.I guess it is the uncertainty of what to exspect. My son doesn't know what to say when I ask how Chloe is and I don't know the right questions to ask. I guess this is a normal process, but I guess what I'm getting at is what as a grandparent can I do or say to give the kids the support they need? Thanks for the ear. Omathefourofus03 wrote: ,> Oma,I am sorry about your grandaughter but welcome to the group. Ask any question and we'll be happy to try to answer. For additional mito info go to www.umdf.org. that is where you will find alot of the info you need at the beginning until you have specific questions. Let us know what we can do. DawnPlease contact mito-owner with any problems or questions. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 23, 2005 Report Share Posted January 23, 2005 I am sorry to hear about your grandchild. It can be a scary time when you start hearing about possible disorders and all the unknowns that go with it. Feel free to ask anything that might help you better understand what is going on in your grandchild. I hope she starts recovering from some of the issues that put her in the hospital and that her seizures will be under control. See www.caringbridge.org/ia/mitomomof9 and www.heartbeatsformito.org to see a photo look into what Mito looks like Darla: mommy to Asenath (4) Mito, CNS Vasculitis, strokes, migraines, seizures, G-tube, hypotonicity, disautonomy, SID, global delays, asthma, cyclic vomiting, bladder issues, wheelchair for distances, eye issues, autistic behaviors, gastric emptying issues... Zipporrah (14 months) Mito, strokes, neuro-motor planning dys., SID, GERD, dysphasia, 100% G-tube fed, speech delays, extreme fatigue, excessive phlegm, asthma, trach issues, aberrant subclavian artery, disautonomy, hypertonicity, migraines, possible seizures, dumping syndrome, iron deficiency, ... Luke (16), Leah (14), Rachael (13), Isaac (10), Tirzah (8), Kezia (4), & Marquis (3), Joey & (12 months) (some with Mito symptoms) New to Group > > > > Hello, > My Grandaughter is 7 months old and is hospitalized with seizure > disorder, gerd, and is developmentally delayed. She had a muscle > biopsy last week and we are waiting for the results. In the mean > time, they treat her with meds, feeding tube, iv,ocassionally oxygen > and continue to search for answers. Would appreciate any > information. I have checked out some of the medical information and > have received information from MDA. > Thanks for listening, > Oma > > > > > > > > > > Please contact mito-owner with any problems or questions. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 24, 2005 Report Share Posted January 24, 2005 Oma, I too am a grandmother of a little girl with Mito. Audrey is 3 years old and the sunshine of my day. I wish I knew what to tell you as far as what to do for your son and DIL, but all I can say is support them. They are going to have a very bumpy road ahead and they may have to make some very difficult decisions in the future and it will be very important for you to support their decisions no matter if yo agree or not. This is their child and they will do what is right for her. Being 600 miles away is going to make it difficult in that you will not be able to be there physically, but you can me there in heart. Pray with them, cry with them, be mad with them and be able to laugh with them. Yes, there will be things to laugh about in the future, I promise. It won't be all bad. If you are able to go to there place sometimes, give them a night out. Don't be afraid of Chloe. Find out all you can about this horrible disease. You have made a great start by coming to this group. They are very knowledgable and up to date on Mito. If you would like to email me off group that would be fine. I would like to message with other grandmas. Where in the country are you? My thoughts and prayers are with you, Kathy, grandma to Audey, 3 yearsoma tisdale wrote: Well, it's Sunday A.M. and just spoke to my daughter-n-law, the doctors are releasing Chloe tomorrow. She'll be sent home with her feeding tube and they've taught Jessie how to give her injection. She started on steroids yesterday and I really don't know what else. I'm 650 miles away from them, so it's difficult for me to know all that goes on and even if I did, I'm not sure I'd understand.I guess it is the uncertainty of what to exspect. My son doesn't know what to say when I ask how Chloe is and I don't know the right questions to ask. I guess this is a normal process, but I guess what I'm getting at is what as a grandparent can I do or say to give the kids the support they need? Thanks for the ear. Omathefourofus03 wrote: ,> Oma,I am sorry about your grandaughter but welcome to the group. Ask any question and we'll be happy to try to answer. For additional mito info go to www.umdf.org. that is where you will find alot of the info you need at the beginning until you have specific questions. Let us know what we can do. DawnPlease contact mito-owner with any problems or questions. Please contact mito-owner with any problems or questions. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 5, 2006 Report Share Posted January 5, 2006 Welcome Laurel! Hopefully this time will be your turn. We're here to support you the whole way, no matter which way the path turns. Keep us updated on your progress. Let us support you as your WLS journey begins again. Francisco > > Hi everyone, my name is Laurel and I am new to the group. I am newly > re-married and have four beautiful children 13, 11, 8, and 6 1/5. I > have been through some of this before. I tried a little over two years > ago but they turned me down because I was 1 point under the required > BMI and had no health problems at the time. Since then I have > developed GERDS, Diabetes, and chronic pain from a car accident I was > in two years ago. I only got passed the psych and the orientation > class then they sent me a denial letter. I think I have a pretty good > chance at it going further this time. I am looking forward to being > more healthy and energetic. Not to mention more energy for my > children. I miss out on alot of fun with them because of my weight and > health. I have been reading all the post from the last couple of days > and it seems that everyone is very nice and full of wonderful > information and encouragement. I look forward to reading more. > Laurel > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 6, 2006 Report Share Posted January 6, 2006 Laurel Welcome and we are here for any one who needs us. Don't just read, if you have any questions or concerns let us know, theirs a lot of us who will send information to you. Take care. DonnaLaurel Borre wrote: Hi everyone, my name is Laurel and I am new to the group. I am newlyre-married and have four beautiful children 13, 11, 8, and 6 1/5. Ihave been through some of this before. I tried a little over two yearsago but they turned me down because I was 1 point under the requiredBMI and had no health problems at the time. Since then I havedeveloped GERDS, Diabetes, and chronic pain from a car accident I wasin two years ago. I only got passed the psych and the orientationclass then they sent me a denial letter. I think I have a pretty goodchance at it going further this time. I am looking forward to beingmore healthy and energetic. Not to mention more energy for mychildren. I miss out on alot of fun with them because of my weight andhealth. I have been reading all the post from the last couple of daysand it seems that everyone is very nice and full of wonderfulinformation and encouragement. I look forward to reading more.Laurel Donna JordonDSJordon@... Yahoo! Photos Ring in the New Year with Photo Calendars. Add photos, events, holidays, whatever. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 6, 2006 Report Share Posted January 6, 2006 Welcome, Laurel!!! Which kaiser are you going to? I'm just starting the process too. My pcp is in Union City. Good Luck to you! :-) in San LorenzoLaurel Borre wrote: Hi everyone, my name is Laurel and I am new to the group. I am newlyre-married and have four beautiful children 13, 11, 8, and 6 1/5. Ihave been through some of this before. I tried a little over two yearsago but they turned me down because I was 1 point under the requiredBMI and had no health problems at the time. Since then I havedeveloped GERDS, Diabetes, and chronic pain from a car accident I wasin two years ago. I only got passed the psych and the orientationclass then they sent me a denial letter. I think I have a pretty goodchance at it going further this time. I am looking forward to beingmore healthy and energetic. Not to mention more energy for mychildren. I miss out on alot of fun with them because of my weight andhealth. I have been reading all the post from the last couple of daysand it seems that everyone is very nice and full of wonderfulinformation and encouragement. I look forward to reading more.Laurel San Lorenzo, CA ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~ Just starting my GBS journey! PCP and Nutritionist Appt. down, Psych Evaluation to go until paperwork submitted to Kaiser SSF committee for review! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 7, 2006 Report Share Posted January 7, 2006 Welcome Laurel! Good luck in your quest! Laurie __________________________________________ Yahoo! DSL – Something to write home about. Just $16.99/mo. or less. dsl.yahoo.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 26, 2010 Report Share Posted January 26, 2010 Hi everyone, I'm new here and just started the diet. My inflammation stems from Lyme and I have CFS and fibromyalgia. I have been fighting candida for a while and I don't think I have it anymore. I have a lot of pain and inflammation and fatigue but I don't have the runs. Was once diagnosed with diverticulitis but CT scan showed that was wrong. Haven't had a colonoscopy but I don't think I have a specific disease. So I'm not totally sure I'm on the right diet, because the book keeps talking about diarrhea. Any opinions? Is there anyone on this list who just has dysbiosis and not CD or other diseases? Anyone with CFS and/or Lyme? Also, does anyone know if agave nectar is allowed? It's low glycemic and used by diabetics. And, what about whey protein isolate? I've always heard it was really good for the gut lining. It has almost zero lactose. Whey protein concentrate has a lot. But if there is some rule about isolate, I'd like to know it. Thanks! Nice to meet you all, you are a great inspiration to stay on this diet! Barb Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 26, 2010 Report Share Posted January 26, 2010 Hi everyone, I'm new here and just started the diet. My inflammation stems from Lyme and I have CFS and fibromyalgia. I have been fighting candida for a while and I don't think I have it anymore. I have a lot of pain and inflammation and fatigue but I don't have the runs. Was once diagnosed with diverticulitis but CT scan showed that was wrong. Haven't had a colonoscopy but I don't think I have a specific disease. So I'm not totally sure I'm on the right diet, because the book keeps talking about diarrhea. Any opinions? Is there anyone on this list who just has dysbiosis and not CD or other diseases? Anyone with CFS and/or Lyme? Also, does anyone know if agave nectar is allowed? It's low glycemic and used by diabetics. And, what about whey protein isolate? I've always heard it was really good for the gut lining. It has almost zero lactose. Whey protein concentrate has a lot. But if there is some rule about isolate, I'd like to know it. Thanks! Nice to meet you all, you are a great inspiration to stay on this diet! Barb Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 26, 2010 Report Share Posted January 26, 2010 Thanks for your reply . I'm glad to hear it's working well for you. It's now my 4th day and I feel more fatigued! But I think it's die-off. What tests shows how you absorb nutrients? I had a CDSA and it didn't show pathogens other than candida. Does that mean that I don't have the bad bugs? I have pain in my back and left side, not severe, but bothersome. I wonder if all the probiotics I've taken for a year have made things worse (Elaine says they do but doesn't go into it). Thanks again! Barb > > Barb, > > > > I have been on SCD for almost 30 days, although off and on from October last > year. My complaints are more brain-gut. I don't have many of the digestive > issues (ie. Diarrhea and bleeding) that bring many folks to this diet. The > good news being that I can tolerate almost all of SCD legal foods Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 26, 2010 Report Share Posted January 26, 2010 Thanks for your reply . I'm glad to hear it's working well for you. It's now my 4th day and I feel more fatigued! But I think it's die-off. What tests shows how you absorb nutrients? I had a CDSA and it didn't show pathogens other than candida. Does that mean that I don't have the bad bugs? I have pain in my back and left side, not severe, but bothersome. I wonder if all the probiotics I've taken for a year have made things worse (Elaine says they do but doesn't go into it). Thanks again! Barb > > Barb, > > > > I have been on SCD for almost 30 days, although off and on from October last > year. My complaints are more brain-gut. I don't have many of the digestive > issues (ie. Diarrhea and bleeding) that bring many folks to this diet. The > good news being that I can tolerate almost all of SCD legal foods Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 26, 2010 Report Share Posted January 26, 2010 Barb, I am not sure which ones specifically as I don’t have the records. The last time was in early October last year right before I found/got on SCD. I heard about SCD in the Living Without magazine. But both times I had tests they took blood and Urine … I think that was all. I wish I knew the names but I’m not good with all that. Last time I was low on Bs, D I think, protein and something else. I also had “hair analysis” once which showed that I was low on iron (this time my iron was fine) and that I was borderline anemic. But as I understand, one of the problems if you have this overgrowth of bad stuff in your gut is that you are not absorbing nutrients properly. The first five days on SCD back in October I felt awful! I started with intro etc and that was the slowest time I added foods. Anyway terrible headache and exhaustion but by the 6th day I was feeling much better. My energy has been slowly increasing and now, well last week I started doing some regular exercise. As far as the probiotics you’ve been taking, I have no idea what effect those might have had. I have pretty much stayed away from supplements and meds for many reasons, they wanted me to take a bunch of supplements in October and I tried for about two weeks then threw them away because I wasn’t convinced they were helping. From: BTVC-SCD [mailto:BTVC-SCD ] On Behalf Of multitoed Sent: Tuesday, January 26, 2010 5:44 PM To: BTVC-SCD Subject: Re: new to group Thanks for your reply . I'm glad to hear it's working well for you. It's now my 4th day and I feel more fatigued! But I think it's die-off. What tests shows how you absorb nutrients? I had a CDSA and it didn't show pathogens other than candida. Does that mean that I don't have the bad bugs? I have pain in my back and left side, not severe, but bothersome. I wonder if all the probiotics I've taken for a year have made things worse (Elaine says they do but doesn't go into it). Thanks again! Barb > > Barb, > > > > I have been on SCD for almost 30 days, although off and on from October last > year. My complaints are more brain-gut. I don't have many of the digestive > issues (ie. Diarrhea and bleeding) that bring many folks to this diet. The > good news being that I can tolerate almost all of SCD legal foods Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 26, 2010 Report Share Posted January 26, 2010 Barb, I am not sure which ones specifically as I don’t have the records. The last time was in early October last year right before I found/got on SCD. I heard about SCD in the Living Without magazine. But both times I had tests they took blood and Urine … I think that was all. I wish I knew the names but I’m not good with all that. Last time I was low on Bs, D I think, protein and something else. I also had “hair analysis” once which showed that I was low on iron (this time my iron was fine) and that I was borderline anemic. But as I understand, one of the problems if you have this overgrowth of bad stuff in your gut is that you are not absorbing nutrients properly. The first five days on SCD back in October I felt awful! I started with intro etc and that was the slowest time I added foods. Anyway terrible headache and exhaustion but by the 6th day I was feeling much better. My energy has been slowly increasing and now, well last week I started doing some regular exercise. As far as the probiotics you’ve been taking, I have no idea what effect those might have had. I have pretty much stayed away from supplements and meds for many reasons, they wanted me to take a bunch of supplements in October and I tried for about two weeks then threw them away because I wasn’t convinced they were helping. From: BTVC-SCD [mailto:BTVC-SCD ] On Behalf Of multitoed Sent: Tuesday, January 26, 2010 5:44 PM To: BTVC-SCD Subject: Re: new to group Thanks for your reply . I'm glad to hear it's working well for you. It's now my 4th day and I feel more fatigued! But I think it's die-off. What tests shows how you absorb nutrients? I had a CDSA and it didn't show pathogens other than candida. Does that mean that I don't have the bad bugs? I have pain in my back and left side, not severe, but bothersome. I wonder if all the probiotics I've taken for a year have made things worse (Elaine says they do but doesn't go into it). Thanks again! Barb > > Barb, > > > > I have been on SCD for almost 30 days, although off and on from October last > year. My complaints are more brain-gut. I don't have many of the digestive > issues (ie. Diarrhea and bleeding) that bring many folks to this diet. The > good news being that I can tolerate almost all of SCD legal foods Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 26, 2010 Report Share Posted January 26, 2010 Thanks ! I'm sure I can find some info. I went to Dr. Galland, who does digestive stuff, and he did tons of tests but I'm not sure if he did those. I'm hoping that, like you, this fatigue will be gone by the first week! I AM in a little less pain than I was a few days ago, so SCD must be doing something good. Barb > > Barb, > > > > I am not sure which ones specifically as I don't have the records. The last > time was in early October last year right before I found/got on SCD. I > heard about SCD in the Living Without magazine. But both times I had tests Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 26, 2010 Report Share Posted January 26, 2010 Thanks ! I'm sure I can find some info. I went to Dr. Galland, who does digestive stuff, and he did tons of tests but I'm not sure if he did those. I'm hoping that, like you, this fatigue will be gone by the first week! I AM in a little less pain than I was a few days ago, so SCD must be doing something good. Barb > > Barb, > > > > I am not sure which ones specifically as I don't have the records. The last > time was in early October last year right before I found/got on SCD. I > heard about SCD in the Living Without magazine. But both times I had tests Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 27, 2010 Report Share Posted January 27, 2010 Hi Barb, and welcome! I am sure the SCD can help reduce your symptoms. Although I do not have any of your dx’s, I do have Crohn’s and can tell you most definitely that the SCD saved my life. I experienced symptom relief right away. Of course healing is different for everyone so YMMV. Agave nectar is not allowed on the SCD. I’m pretty sure Whey Protein Isolate is illegal. Really the SCD provides excellent protein so why would one want to consume the whey product? Plus, who knows what else might be in that product? I would steer clear of stuff like that. Have you heard of LDN? It’s Low Dose Naltrexone and many, like myself, find it really helpful in healing. LDN boosts the body’s own endorphin production. Many are using it for CFS, Lyme and fibromyalgia as well as many other autoimmune diseases. Info here: www.LDNScience.org or www.LowDoseNaltrexone.org You could also read through posts about LDN and your health problems here and/or post questions about LDN yourself to this group: http://health.groups.yahoo.com/group/naltrexone/ I have read many posts from folks who are using LDN for all of your dx’s. Do you have a Lyme Literate Medical Doctor? Carol CD 21 yrs SCD 5 yrs B12 shots LDN (7 mo.) From: BTVC-SCD [mailto:BTVC-SCD ] On Behalf Of multitoed I'm new here and just started the diet. My inflammation stems from Lyme and I have CFS and fibromyalgia. I have been fighting candida for a while and I don't think I have it anymore. I have a lot of pain and inflammation and fatigue but I don't have the runs. Was once diagnosed with diverticulitis but CT scan showed that was wrong. Haven't had a colonoscopy but I don't think I have a specific disease. So I'm not totally sure I'm on the right diet, because the book keeps talking about diarrhea. Any opinions? Is there anyone on this list who just has dysbiosis and not CD or other diseases? Anyone with CFS and/or Lyme? Also, does anyone know if agave nectar is allowed? It's low glycemic and used by diabetics. And, what about whey protein isolate? I've always heard it was really good for the gut lining. It has almost zero lactose. Whey protein concentrate has a lot. But if there is some rule about isolate, I'd like to know it. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 27, 2010 Report Share Posted January 27, 2010 Hi Barb, and welcome! I am sure the SCD can help reduce your symptoms. Although I do not have any of your dx’s, I do have Crohn’s and can tell you most definitely that the SCD saved my life. I experienced symptom relief right away. Of course healing is different for everyone so YMMV. Agave nectar is not allowed on the SCD. I’m pretty sure Whey Protein Isolate is illegal. Really the SCD provides excellent protein so why would one want to consume the whey product? Plus, who knows what else might be in that product? I would steer clear of stuff like that. Have you heard of LDN? It’s Low Dose Naltrexone and many, like myself, find it really helpful in healing. LDN boosts the body’s own endorphin production. Many are using it for CFS, Lyme and fibromyalgia as well as many other autoimmune diseases. Info here: www.LDNScience.org or www.LowDoseNaltrexone.org You could also read through posts about LDN and your health problems here and/or post questions about LDN yourself to this group: http://health.groups.yahoo.com/group/naltrexone/ I have read many posts from folks who are using LDN for all of your dx’s. Do you have a Lyme Literate Medical Doctor? Carol CD 21 yrs SCD 5 yrs B12 shots LDN (7 mo.) From: BTVC-SCD [mailto:BTVC-SCD ] On Behalf Of multitoed I'm new here and just started the diet. My inflammation stems from Lyme and I have CFS and fibromyalgia. I have been fighting candida for a while and I don't think I have it anymore. I have a lot of pain and inflammation and fatigue but I don't have the runs. Was once diagnosed with diverticulitis but CT scan showed that was wrong. Haven't had a colonoscopy but I don't think I have a specific disease. So I'm not totally sure I'm on the right diet, because the book keeps talking about diarrhea. Any opinions? Is there anyone on this list who just has dysbiosis and not CD or other diseases? Anyone with CFS and/or Lyme? Also, does anyone know if agave nectar is allowed? It's low glycemic and used by diabetics. And, what about whey protein isolate? I've always heard it was really good for the gut lining. It has almost zero lactose. Whey protein concentrate has a lot. But if there is some rule about isolate, I'd like to know it. Quote Link to comment Share on other sites More sharing options...
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