Guest guest Posted February 5, 2010 Report Share Posted February 5, 2010 Amelia -- I wonder if Vitamin D might help the eczema. Has your husband had his Vitamin D level tested? Especially living in the far north, he could easily be deficient. Debbie T (UC 29 yrs, SCD 10/06, Lialda) > > > My husband is taking LDN and he isn't really seeing any difference. We did notice his scalp started flaking more about the time he started it. Then we noticed a small spot of eczema near the corner of one eye. I then started to suspect, about 3 weeks later, that maybe he was having a problem with yeast. He began taking s. boulardii at one capsule twice a day the first week, and is at two capsules twice a day with 1 capsule of acidophilus twice a day. At this point the eczema has spread to the corners of both eyes, both eyelids, and below the eyes, under his arms, on his bum ; ) , and the scalp flaking is still there. All this with feeling more fatigue again too. He did have a brief period of feeling more rested, but as it is winter in the NE of Scotland, we are lacking in sunshine at the moment! > > Someone in the group had a problem similar, but I can't remember who. My question is how long did it take to start improving, were you taking strong probiotics/s. boulardii? Did you find any cream/essential oil to help? Did you add/cut anything else out of your diet? > > Thanks! > > Amelia > Husband UC 9 years, SCD 19 months > LDN 3 mg. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 5, 2010 Report Share Posted February 5, 2010 Amelia -- I wonder if Vitamin D might help the eczema. Has your husband had his Vitamin D level tested? Especially living in the far north, he could easily be deficient. Debbie T (UC 29 yrs, SCD 10/06, Lialda) > > > My husband is taking LDN and he isn't really seeing any difference. We did notice his scalp started flaking more about the time he started it. Then we noticed a small spot of eczema near the corner of one eye. I then started to suspect, about 3 weeks later, that maybe he was having a problem with yeast. He began taking s. boulardii at one capsule twice a day the first week, and is at two capsules twice a day with 1 capsule of acidophilus twice a day. At this point the eczema has spread to the corners of both eyes, both eyelids, and below the eyes, under his arms, on his bum ; ) , and the scalp flaking is still there. All this with feeling more fatigue again too. He did have a brief period of feeling more rested, but as it is winter in the NE of Scotland, we are lacking in sunshine at the moment! > > Someone in the group had a problem similar, but I can't remember who. My question is how long did it take to start improving, were you taking strong probiotics/s. boulardii? Did you find any cream/essential oil to help? Did you add/cut anything else out of your diet? > > Thanks! > > Amelia > Husband UC 9 years, SCD 19 months > LDN 3 mg. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 5, 2010 Report Share Posted February 5, 2010 Does your niece pay for it when she eats the potatoes a couple times a week or does she pretty much totally get away with it as long as it isn't too often? My niece, who was strict SCD for two years is now able to eat potatoes a couple times a week, and rice occasionally. How long " long term " is depends on the individual. — Marilyn Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 5, 2010 Report Share Posted February 5, 2010 Does your niece pay for it when she eats the potatoes a couple times a week or does she pretty much totally get away with it as long as it isn't too often? My niece, who was strict SCD for two years is now able to eat potatoes a couple times a week, and rice occasionally. How long " long term " is depends on the individual. — Marilyn Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 5, 2010 Report Share Posted February 5, 2010 This diet is kind of amazing as far as soon as you think you 'have it', you learn something else. I'm not doing well with 'regular' food. Maybe I go off too soon or maybe I will have to stay on it from now on. R-ce (illegal) and yogurt definitely did not work for me ;-). I would say advanced 'advanced' when adding in regular food but that is probably just me. I'm just starting the S. boullardi (sp?) and pom supplements for regulating hormones. OT but does anyone spasm.cramp to death with (illegal) chili powder? For some reason, major trigger for me. I didn't purposely eat it but I wonder if it bothers CD and Celiac? (Sorry, nowhere else to ask) Debbie 40 cd > Does your niece pay for it when she eats the > potatoes a couple times a week or does she pretty > much totally get away with it as long as it isn't too often? > > > > My niece, who was strict SCD for two years is now > able to eat potatoes a couple times a week, and rice occasionally. > How long " long term " is depends on the individual. > — Marilyn > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 5, 2010 Report Share Posted February 5, 2010 This diet is kind of amazing as far as soon as you think you 'have it', you learn something else. I'm not doing well with 'regular' food. Maybe I go off too soon or maybe I will have to stay on it from now on. R-ce (illegal) and yogurt definitely did not work for me ;-). I would say advanced 'advanced' when adding in regular food but that is probably just me. I'm just starting the S. boullardi (sp?) and pom supplements for regulating hormones. OT but does anyone spasm.cramp to death with (illegal) chili powder? For some reason, major trigger for me. I didn't purposely eat it but I wonder if it bothers CD and Celiac? (Sorry, nowhere else to ask) Debbie 40 cd > Does your niece pay for it when she eats the > potatoes a couple times a week or does she pretty > much totally get away with it as long as it isn't too often? > > > > My niece, who was strict SCD for two years is now > able to eat potatoes a couple times a week, and rice occasionally. > How long " long term " is depends on the individual. > — Marilyn > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 5, 2010 Report Share Posted February 5, 2010 At 01:51 PM 2/5/2010, you wrote: Does your niece pay for it when she eats the potatoes a couple times a week or does she pretty much totally get away with it as long as it isn't too often? She's stated that she thinks she was healthier on strict SCD, but that she's doing quite well on gluten-free. She's apparently OK with the potatoes once or twice a week but any more often, and things get bad. This is the whole point of SCD. Dr. Haas' diet -- no gluten, no polysaccharides -- was perverted into " no gluten, " which leaves those of us who have other gut issues, not just intolerance to gluten, hung out to dry. — Marilyn New Orleans, Louisiana, USA Undiagnosed IBS since 1976, SCD since 2001 Darn Good SCD Cook No Human Children Shadow & Sunny Longhair Dachshund Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 5, 2010 Report Share Posted February 5, 2010 At 01:51 PM 2/5/2010, you wrote: Does your niece pay for it when she eats the potatoes a couple times a week or does she pretty much totally get away with it as long as it isn't too often? She's stated that she thinks she was healthier on strict SCD, but that she's doing quite well on gluten-free. She's apparently OK with the potatoes once or twice a week but any more often, and things get bad. This is the whole point of SCD. Dr. Haas' diet -- no gluten, no polysaccharides -- was perverted into " no gluten, " which leaves those of us who have other gut issues, not just intolerance to gluten, hung out to dry. — Marilyn New Orleans, Louisiana, USA Undiagnosed IBS since 1976, SCD since 2001 Darn Good SCD Cook No Human Children Shadow & Sunny Longhair Dachshund Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 5, 2010 Report Share Posted February 5, 2010 At 02:04 PM 2/5/2010, you wrote: I'm not doing well with 'regular' food. Maybe I go off too soon or maybe I will have to stay on it from now on. R-ce (illegal) and yogurt definitely did not work for me ;-) Elaine's daughter is not able to eat rice, even though it's gluten-free. Eating rice brings back her symptoms, including blood. When you consider how much " gluten free " stuff is made with rice.... I know you've had so much going on that has kept you from maintaining strict SCD. I've thought about you quite a bit. I dunno about chili powder. What I do know is that the illegal ingredients in my pain meds after my cancer surgery caused gut cramps so severe that I thought it was surgical pain. Only it took me a significant amount of time to figure out that it was the meds, and not the surgery which was causing the pain. — Marilyn New Orleans, Louisiana, USA Undiagnosed IBS since 1976, SCD since 2001 Darn Good SCD Cook No Human Children Shadow & Sunny Longhair Dachshund Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 5, 2010 Report Share Posted February 5, 2010 At 02:04 PM 2/5/2010, you wrote: I'm not doing well with 'regular' food. Maybe I go off too soon or maybe I will have to stay on it from now on. R-ce (illegal) and yogurt definitely did not work for me ;-) Elaine's daughter is not able to eat rice, even though it's gluten-free. Eating rice brings back her symptoms, including blood. When you consider how much " gluten free " stuff is made with rice.... I know you've had so much going on that has kept you from maintaining strict SCD. I've thought about you quite a bit. I dunno about chili powder. What I do know is that the illegal ingredients in my pain meds after my cancer surgery caused gut cramps so severe that I thought it was surgical pain. Only it took me a significant amount of time to figure out that it was the meds, and not the surgery which was causing the pain. — Marilyn New Orleans, Louisiana, USA Undiagnosed IBS since 1976, SCD since 2001 Darn Good SCD Cook No Human Children Shadow & Sunny Longhair Dachshund Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 5, 2010 Report Share Posted February 5, 2010 It's the same critter but not the same location. These are the normal places where candida lives. My doctor says that it's when the candida increases to the point (and I guess when the immune system is low) and it gets loose into the rest of the body that it's the big problem. Actually it is the same critter. Candida albicans is one of the fungal species (there are 3 or 4 in the human body) that inhabit moist and warm places in our body. This means inside the intestinal tract, in the mouth, in the genitourinary region. It's t Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 5, 2010 Report Share Posted February 5, 2010 It's the same critter but not the same location. These are the normal places where candida lives. My doctor says that it's when the candida increases to the point (and I guess when the immune system is low) and it gets loose into the rest of the body that it's the big problem. Actually it is the same critter. Candida albicans is one of the fungal species (there are 3 or 4 in the human body) that inhabit moist and warm places in our body. This means inside the intestinal tract, in the mouth, in the genitourinary region. It's t Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 5, 2010 Report Share Posted February 5, 2010 Debbie,I think they would laugh us out of the clinic if we asked for that. I tried to ask to have his B12 tested, and basically, if you aren't dying from something, they don't test for it here. He is taking a multivitamin from Freedas that has D in it. I can tell you that nothing replaces sunshine, though. I knew I had depleted my D reserves more than 5 years ago. Both of us are used to very sunny climates so I think it really bites hard living in a not so sunny climate. He starts complaining about the dark winter before it ever gets here! ; )AmeliaHusband UC 9 years, SCD 19 monthsLDN 3 mgTo: BTVC-SCD Sent: Fri, February 5, 2010 6:20:19 PMSubject: Re: Fighting Possible Yeast Amelia -- I wonder if Vitamin D might help the eczema. Has your husband had his Vitamin D level tested? Especially living in the far north, he could easily be deficient. Debbie T (UC 29 yrs, SCD 10/06, Lialda) > > > My husband is taking LDN and he isn't really seeing any difference. We did notice his scalp started flaking more about the time he started it. Then we noticed a small spot of eczema near the corner of one eye. I then started to suspect, about 3 weeks later, that maybe he was having a problem with yeast. He began taking s. boulardii at one capsule twice a day the first week, and is at two capsules twice a day with 1 capsule of acidophilus twice a day. At this point the eczema has spread to the corners of both eyes, both eyelids, and below the eyes, under his arms, on his bum ; ) , and the scalp flaking is still there. All this with feeling more fatigue again too. He did have a brief period of feeling more rested, but as it is winter in the NE of Scotland, we are lacking in sunshine at the moment! > > Someone in the group had a problem similar, but I can't remember who. My question is how long did it take to start improving, were you taking strong probiotics/s. boulardii? Did you find any cream/essential oil to help? Did you add/cut anything else out of your diet? > > Thanks! > > Amelia > Husband UC 9 years, SCD 19 months > LDN 3 mg. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 5, 2010 Report Share Posted February 5, 2010 Debbie,I think they would laugh us out of the clinic if we asked for that. I tried to ask to have his B12 tested, and basically, if you aren't dying from something, they don't test for it here. He is taking a multivitamin from Freedas that has D in it. I can tell you that nothing replaces sunshine, though. I knew I had depleted my D reserves more than 5 years ago. Both of us are used to very sunny climates so I think it really bites hard living in a not so sunny climate. He starts complaining about the dark winter before it ever gets here! ; )AmeliaHusband UC 9 years, SCD 19 monthsLDN 3 mgTo: BTVC-SCD Sent: Fri, February 5, 2010 6:20:19 PMSubject: Re: Fighting Possible Yeast Amelia -- I wonder if Vitamin D might help the eczema. Has your husband had his Vitamin D level tested? Especially living in the far north, he could easily be deficient. Debbie T (UC 29 yrs, SCD 10/06, Lialda) > > > My husband is taking LDN and he isn't really seeing any difference. We did notice his scalp started flaking more about the time he started it. Then we noticed a small spot of eczema near the corner of one eye. I then started to suspect, about 3 weeks later, that maybe he was having a problem with yeast. He began taking s. boulardii at one capsule twice a day the first week, and is at two capsules twice a day with 1 capsule of acidophilus twice a day. At this point the eczema has spread to the corners of both eyes, both eyelids, and below the eyes, under his arms, on his bum ; ) , and the scalp flaking is still there. All this with feeling more fatigue again too. He did have a brief period of feeling more rested, but as it is winter in the NE of Scotland, we are lacking in sunshine at the moment! > > Someone in the group had a problem similar, but I can't remember who. My question is how long did it take to start improving, were you taking strong probiotics/s. boulardii? Did you find any cream/essential oil to help? Did you add/cut anything else out of your diet? > > Thanks! > > Amelia > Husband UC 9 years, SCD 19 months > LDN 3 mg. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 5, 2010 Report Share Posted February 5, 2010 That's not sufficient. You should get Vitamin D-3, a high dose. MaraDebbie,I think they would laugh us out of the clinic if we asked for that. I tried to ask to have his B12 tested, and basically, if you aren't dying from something, they don't test for it here. He is taking a multivitamin from Freedas that has D in it. I can tell you that nothing replaces sunshine, though. I knew I had depleted my D reserves more than 5 years ago. Both of us are used to very sunny climates so I think it really bites hard living in a not so sunny climate. He starts complaining about the dark winter before it ever gets here! ; ) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 5, 2010 Report Share Posted February 5, 2010 That's not sufficient. You should get Vitamin D-3, a high dose. MaraDebbie,I think they would laugh us out of the clinic if we asked for that. I tried to ask to have his B12 tested, and basically, if you aren't dying from something, they don't test for it here. He is taking a multivitamin from Freedas that has D in it. I can tell you that nothing replaces sunshine, though. I knew I had depleted my D reserves more than 5 years ago. Both of us are used to very sunny climates so I think it really bites hard living in a not so sunny climate. He starts complaining about the dark winter before it ever gets here! ; ) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 5, 2010 Report Share Posted February 5, 2010 Mara,What kind of dose would you suggest? I have one of the SAD lights, but he doesn't use it.AmeliaTo: BTVC-SCD Sent: Fri, February 5, 2010 11:16:33 PMSubject: Re: Re: Fighting Possible Yeast That's not sufficient. You should get Vitamin D-3, a high dose. MaraDebbie,I think they would laugh us out of the clinic if we asked for that. I tried to ask to have his B12 tested, and basically, if you aren't dying from something, they don't test for it here. He is taking a multivitamin from Freedas that has D in it. I can tell you that nothing replaces sunshine, though. I knew I had depleted my D reserves more than 5 years ago. Both of us are used to very sunny climates so I think it really bites hard living in a not so sunny climate. He starts complaining about the dark winter before it ever gets here! ; ) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 5, 2010 Report Share Posted February 5, 2010 Mara,What kind of dose would you suggest? I have one of the SAD lights, but he doesn't use it.AmeliaTo: BTVC-SCD Sent: Fri, February 5, 2010 11:16:33 PMSubject: Re: Re: Fighting Possible Yeast That's not sufficient. You should get Vitamin D-3, a high dose. MaraDebbie,I think they would laugh us out of the clinic if we asked for that. I tried to ask to have his B12 tested, and basically, if you aren't dying from something, they don't test for it here. He is taking a multivitamin from Freedas that has D in it. I can tell you that nothing replaces sunshine, though. I knew I had depleted my D reserves more than 5 years ago. Both of us are used to very sunny climates so I think it really bites hard living in a not so sunny climate. He starts complaining about the dark winter before it ever gets here! ; ) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 5, 2010 Report Share Posted February 5, 2010 5000 IUs for a while and then adjust down. In summer, especially if you spend much time outside, you don't necessarily needto take it. I stopped over the summer and fall, but now I'm back. MaraMara,What kind of dose would you suggest? I have one of the SAD lights, but he doesn't use it.AmeliaTo: BTVC-SCD Sent: Fri, February 5, 2010 11:16:33 PMSubject: Re: Re: Fighting Possible YeastThat's not sufficient. You should get Vitamin D-3, a high dose. MaraDebbie,I think they would laugh us out of the clinic if we asked for that. I tried to ask to have his B12 tested, and basically, if you aren't dying from something, they don't test for it here. He is taking a multivitamin from Freedas that has D in it. I can tell you that nothing replaces sunshine, though. I knew I had depleted my D reserves more than 5 years ago. Both of us are used to very sunny climates so I think it really bites hard living in a not so sunny climate. He starts complaining about the dark winter before it ever gets here! ; ) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 5, 2010 Report Share Posted February 5, 2010 5000 IUs for a while and then adjust down. In summer, especially if you spend much time outside, you don't necessarily needto take it. I stopped over the summer and fall, but now I'm back. MaraMara,What kind of dose would you suggest? I have one of the SAD lights, but he doesn't use it.AmeliaTo: BTVC-SCD Sent: Fri, February 5, 2010 11:16:33 PMSubject: Re: Re: Fighting Possible YeastThat's not sufficient. You should get Vitamin D-3, a high dose. MaraDebbie,I think they would laugh us out of the clinic if we asked for that. I tried to ask to have his B12 tested, and basically, if you aren't dying from something, they don't test for it here. He is taking a multivitamin from Freedas that has D in it. I can tell you that nothing replaces sunshine, though. I knew I had depleted my D reserves more than 5 years ago. Both of us are used to very sunny climates so I think it really bites hard living in a not so sunny climate. He starts complaining about the dark winter before it ever gets here! ; ) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 6, 2010 Report Share Posted February 6, 2010 Debbie You mean an overgrowth of intestinal yeast? That is tricky, as tests are unreliable and most doctors don't consider candidiasis a legitimate condition unless you're also HIV/AIDS. So we use symptoms to indicate that we're dealing with an overgrowth of candida. If you had thrush, then you likely had an overgrowth of intestinal yeast as well. Unfortunately, yeast overgrowth goes along with having digestive disorders and a disturbed gut ecology and a compromised or overwhelmed immune system (or are on immuno-suppressant medications). So all of us here are dealing with a yeast overgrowth to some degree until we get our gut ecology balanced again and have healed our intestinal tract, and are no longer on immuno-suppressant meds. Knowing whether it's time to adjust your foods to eliminate high levels of yeast or take an antifungal is connected to whether you're experiencing yeast-related symptoms. Kim M. SCD 6 years >>>>>>>>>> Hey Kim, I guess I'm just realizing this. How do you know if you haveintestinal yeast?Have been treated for thrush when I was on pred all the time pre-SCD.Had cultures done but nobody (MD) has ever mentioned intestinal yeast.I wondered if it was somehow worse for those of us in humid areas--nooffensive meant to anyone.Thanks,Debbie 40 cd Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 6, 2010 Report Share Posted February 6, 2010 Debbie You mean an overgrowth of intestinal yeast? That is tricky, as tests are unreliable and most doctors don't consider candidiasis a legitimate condition unless you're also HIV/AIDS. So we use symptoms to indicate that we're dealing with an overgrowth of candida. If you had thrush, then you likely had an overgrowth of intestinal yeast as well. Unfortunately, yeast overgrowth goes along with having digestive disorders and a disturbed gut ecology and a compromised or overwhelmed immune system (or are on immuno-suppressant medications). So all of us here are dealing with a yeast overgrowth to some degree until we get our gut ecology balanced again and have healed our intestinal tract, and are no longer on immuno-suppressant meds. Knowing whether it's time to adjust your foods to eliminate high levels of yeast or take an antifungal is connected to whether you're experiencing yeast-related symptoms. Kim M. SCD 6 years >>>>>>>>>> Hey Kim, I guess I'm just realizing this. How do you know if you haveintestinal yeast?Have been treated for thrush when I was on pred all the time pre-SCD.Had cultures done but nobody (MD) has ever mentioned intestinal yeast.I wondered if it was somehow worse for those of us in humid areas--nooffensive meant to anyone.Thanks,Debbie 40 cd Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 6, 2010 Report Share Posted February 6, 2010 Kim and others- I have yeast problem -- red and white coloration on my penis and foreskin. I did take Diflucan, it went away only to come back. I also started having prostatitis soon after I started SCD, and there are theories that Candida may be one of the causes of prostatitis. I see the following: sometimes my stool is slightly white on the outside, and there are few white strands floating around (that doesn't quite look like mucus). Also there are few strands floating around when I pass my urine. Do these sound like yeast problems? I am not sure my MD will buy this. I did take a look at your file on yeast: Regarding food, I don't take honey. But I am still in early stages and so I have problems eliminating fruits and fruit juices because of calories. I take OoO. Any other natural remedies? Any advise? Thanks, Andy. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 6, 2010 Report Share Posted February 6, 2010 Kim and others- I have yeast problem -- red and white coloration on my penis and foreskin. I did take Diflucan, it went away only to come back. I also started having prostatitis soon after I started SCD, and there are theories that Candida may be one of the causes of prostatitis. I see the following: sometimes my stool is slightly white on the outside, and there are few white strands floating around (that doesn't quite look like mucus). Also there are few strands floating around when I pass my urine. Do these sound like yeast problems? I am not sure my MD will buy this. I did take a look at your file on yeast: Regarding food, I don't take honey. But I am still in early stages and so I have problems eliminating fruits and fruit juices because of calories. I take OoO. Any other natural remedies? Any advise? Thanks, Andy. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 6, 2010 Report Share Posted February 6, 2010 i've never had many " symptoms " per se but am having nausea again and stool tests should tons of yeast and now fat and undigested foods - so it is affecting me, my son has the same redness on his penis right now as you- 4 months into scd - i'm applying nystatin cream and he and I have no honey or fruit and are only stage 3 (me) - he's just starting 3 today- you can get calories w/o fruit and yeast triggers use olive oil, avocado steak ,1/2 & 1/2 yog- use fitday.com to make sure you're getting however many cal you need with the foods you can have - I needed 3000 a day but started healing more important to kill the yeast than worry too much about weight now - as I've learned 2 years in !!! all that honey and fruit was yummy , had no clue it was feeding a HUGE yeast problem from living off sugar for years!! eileen 2 years scd > > > Kim and others- > > I have yeast problem -- red and white coloration on my penis and foreskin. I did take Diflucan, it went away only to come back. > > I also started having prostatitis soon after I started SCD, and there are theories that Candida may be one of the causes of prostatitis. > > I see the following: sometimes my stool is slightly white on the outside, and there are few white strands floating around (that doesn't quite look like mucus). Also there are few strands floating around when I pass my urine. Do these sound like yeast problems? > > I am not sure my MD will buy this. > > I did take a look at your file on yeast: Regarding food, I don't take honey. But I am still in early stages and so I have problems eliminating fruits and fruit juices because of calories. > > I take OoO. Any other natural remedies? > > Any advise? > > Thanks, > Andy. > Quote Link to comment Share on other sites More sharing options...
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