MS Jun's 2nd letter(attached file)

[Guest guest]

Please find pictures of my daughter in attached file.

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[Guest guest]

Please find pictures of my daughter in attached file.

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[Guest guest]

Your daughter is beautiful!! Please tell her hello from me.

~Connie H

>

> Please find pictures of my daughter in attached file.

>

>

>

>

> ---------------------------------

> =¢Á.¢Á= ¹è°íÆÄ¿ä~³Ä¿ËÀÌ ¹äÁÖ¼¼¿ä~, ¾ßÈÄ! ÆêÄ£±¸

> °øÂ¥·Î ¹ß¸®°¡´Â ¹æ¹ý! ÄûÁ Ç®¸é µÅ~,¾ßÈÄ! ÄûÁî¿Õ ¸®±×

[Guest guest]

Your daughter is beautiful!! Please tell her hello from me.

~Connie H

>

> Please find pictures of my daughter in attached file.

>

>

>

>

> ---------------------------------

> =¢Á.¢Á= ¹è°íÆÄ¿ä~³Ä¿ËÀÌ ¹äÁÖ¼¼¿ä~, ¾ßÈÄ! ÆêÄ£±¸

> °øÂ¥·Î ¹ß¸®°¡´Â ¹æ¹ý! ÄûÁ Ç®¸é µÅ~,¾ßÈÄ! ÄûÁî¿Õ ¸®±×

[Guest guest]

Moonsung,

Thank you for sharing the pictures of your daughter. She is beautiful.

How old is she?

Sandy

----- Original Message -----

Please find pictures of my daughter in attached file.

=¢Á.¢Á= ¹è°íÆÄ¿ä~³Ä¿ËÀÌ ¹äÁÖ¼¼¿ä~, ¾ßÈÄ! ÆêÄ£±¸°øÂ¥·Î ¹ß¸®°¡´Â ¹æ¹ý! ÄûÁ Ç®¸é µÅ~,¾ßÈÄ! ÄûÁî¿Õ ¸®±× DISCLAIMER!!WE ARE NOT MEDICAL PROFESSIONALS, THEREFORE ANY INFORMATION THAT IS RECEIVED HERE IS FROM EXPERIENCE ONLY. PLEASE CONSULT WITH YOUR DOCTOR BEFORE TRYING ANYTHING THAT IS SUGGESTED. WE ARE NOT A SUBSTITUTE FOR YOUR PHYSICIAN AND ARE NOT TRYING TO BE. REMEMBER EVERYONE IS DIFFERENT AND TREATMENT MAYBE DIFFERENT FOR MANY OF US. THANK YOU

[Guest guest]

Moonsung,

Thank you for sharing the pictures of your daughter. She is beautiful.

How old is she?

Sandy

----- Original Message -----

Please find pictures of my daughter in attached file.

=¢Á.¢Á= ¹è°íÆÄ¿ä~³Ä¿ËÀÌ ¹äÁÖ¼¼¿ä~, ¾ßÈÄ! ÆêÄ£±¸°øÂ¥·Î ¹ß¸®°¡´Â ¹æ¹ý! ÄûÁ Ç®¸é µÅ~,¾ßÈÄ! ÄûÁî¿Õ ¸®±× DISCLAIMER!!WE ARE NOT MEDICAL PROFESSIONALS, THEREFORE ANY INFORMATION THAT IS RECEIVED HERE IS FROM EXPERIENCE ONLY. PLEASE CONSULT WITH YOUR DOCTOR BEFORE TRYING ANYTHING THAT IS SUGGESTED. WE ARE NOT A SUBSTITUTE FOR YOUR PHYSICIAN AND ARE NOT TRYING TO BE. REMEMBER EVERYONE IS DIFFERENT AND TREATMENT MAYBE DIFFERENT FOR MANY OF US. THANK YOU

[Guest guest]

--- " Capt.Moon-Sung Jun " wrote:

>

> Please find pictures of my daughter in attached

> file.

>

>

> Dear Captain - thank you for sending pictures of

your lovely Daughter. I am so sorry to hear that she

is suffering with rp. I think it is much harder on

the young people. My name is Liz, I am English but

work in Saudi Arrabia; at the moment I am in

California. Your doctors sound as if they know what

they are talking about, which isn't always the case! I

have had rp for some years but was only diagnosed a

few years ago. I was on and off prednisone for several

years, but since being diagnosed and have been on

methotrexate I have been much better. I started on

Plaqueni in addition to the metho 2 months ago in an

effort to get off the low dose (10mg) of prednisone I

have been taking for over a year, and I think I have

succeeded, but it is early to say - only one week but

so far so good! I don't think anyone really knows why

some people respond to methotrexate, and some dont.

It is a question of trial and error. However there

are more drugs available, and more knowlege available

than even a few years ago. Also the RP Foundation

which was recently founded is trying to raise

awareness. We also have some members who have had RP

for many years. It may not be curable but it is

controllable. Please keep us updated on your

daughter's progress, and we will include her in our

thought and prayers. Liz Cobb

>

> ---------------------------------

> =¢Á.¢Á= ¹è°íÆÄ¿ä~³Ä¿ËÀÌ ¹äÁÖ¼¼¿ä~, ¾ßÈÄ! ÆêÄ£±¸

> °øÂ¥·Î ¹ß¸®°¡´Â ¹æ¹ý! ÄûÁ Ç®¸é µÅ~,¾ßÈÄ! ÄûÁî¿Õ

¸®±×

> ATTACHMENT part 2 image/pjpeg name=Inhae826.JPG

> ATTACHMENT part 3 image/pjpeg name=inhae505.JPG

__________________________________________________

[Guest guest]

--- " Capt.Moon-Sung Jun " wrote:

>

> Please find pictures of my daughter in attached

> file.

>

>

> Dear Captain - thank you for sending pictures of

your lovely Daughter. I am so sorry to hear that she

is suffering with rp. I think it is much harder on

the young people. My name is Liz, I am English but

work in Saudi Arrabia; at the moment I am in

California. Your doctors sound as if they know what

they are talking about, which isn't always the case! I

have had rp for some years but was only diagnosed a

few years ago. I was on and off prednisone for several

years, but since being diagnosed and have been on

methotrexate I have been much better. I started on

Plaqueni in addition to the metho 2 months ago in an

effort to get off the low dose (10mg) of prednisone I

have been taking for over a year, and I think I have

succeeded, but it is early to say - only one week but

so far so good! I don't think anyone really knows why

some people respond to methotrexate, and some dont.

It is a question of trial and error. However there

are more drugs available, and more knowlege available

than even a few years ago. Also the RP Foundation

which was recently founded is trying to raise

awareness. We also have some members who have had RP

for many years. It may not be curable but it is

controllable. Please keep us updated on your

daughter's progress, and we will include her in our

thought and prayers. Liz Cobb

>

> ---------------------------------

> =¢Á.¢Á= ¹è°íÆÄ¿ä~³Ä¿ËÀÌ ¹äÁÖ¼¼¿ä~, ¾ßÈÄ! ÆêÄ£±¸

> °øÂ¥·Î ¹ß¸®°¡´Â ¹æ¹ý! ÄûÁ Ç®¸é µÅ~,¾ßÈÄ! ÄûÁî¿Õ

¸®±×

> ATTACHMENT part 2 image/pjpeg name=Inhae826.JPG

> ATTACHMENT part 3 image/pjpeg name=inhae505.JPG

__________________________________________________