Guest guest Posted August 29, 2001 Report Share Posted August 29, 2001 In a message dated 08/29/2001 5:40:07 AM Central Daylight Time, Rpolychondritis writes: << I kept telling Heidi it would be nice weather... See.... guess I need a raincoat now. >> , We need the rain so badly, so I doubt that it will happen. I think they're only giving us a 20 - 30% chance of rain. This is ONE weekend I actually don't want it to rain. Seriously doubt you need to pack a raincoat. Umbrella might come in handy. Love you, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 29, 2001 Report Share Posted August 29, 2001 In a message dated 08/29/2001 5:40:07 AM Central Daylight Time, Rpolychondritis writes: << I kept telling Heidi it would be nice weather... See.... guess I need a raincoat now. >> , We need the rain so badly, so I doubt that it will happen. I think they're only giving us a 20 - 30% chance of rain. This is ONE weekend I actually don't want it to rain. Seriously doubt you need to pack a raincoat. Umbrella might come in handy. Love you, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 29, 2001 Report Share Posted August 29, 2001 In a message dated 08/29/2001 5:40:07 AM Central Daylight Time, Rpolychondritis writes: << Oh I'm not ready either. I know I'm going to forget something. >> Sandy, It's always the toothbrush I forget. LOL Well, we have stores close by the hotel so you should be able to get almost anything except medications....and, who knows, between all of us, we might even be able to help you with that also. <grin> Can't wait to meet you. Love, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 29, 2001 Report Share Posted August 29, 2001 In a message dated 08/29/2001 5:40:07 AM Central Daylight Time, Rpolychondritis writes: << Oh I'm not ready either. I know I'm going to forget something. >> Sandy, It's always the toothbrush I forget. LOL Well, we have stores close by the hotel so you should be able to get almost anything except medications....and, who knows, between all of us, we might even be able to help you with that also. <grin> Can't wait to meet you. Love, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 29, 2001 Report Share Posted August 29, 2001 In a message dated 08/29/2001 5:40:07 AM Central Daylight Time, Rpolychondritis writes: << Are there any members who feel or believe the RP flaring is related to > the mental condition of patient? >> Yes, yes, yes! Stress always sends me into a flare, and I've had a lot of stress the past couple of years. My Rheumy keeps telling me to reduce the stress. Well, duh, if SHE can't tell me how to do it, who can?? It's not exactly like I'm stressing because I WANT it. Take care, T. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 29, 2001 Report Share Posted August 29, 2001 In a message dated 08/29/2001 5:40:07 AM Central Daylight Time, Rpolychondritis writes: << Are there any members who feel or believe the RP flaring is related to > the mental condition of patient? >> Yes, yes, yes! Stress always sends me into a flare, and I've had a lot of stress the past couple of years. My Rheumy keeps telling me to reduce the stress. Well, duh, if SHE can't tell me how to do it, who can?? It's not exactly like I'm stressing because I WANT it. Take care, T. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 29, 2001 Report Share Posted August 29, 2001 In a message dated 08/29/2001 5:40:07 AM Central Daylight Time, Rpolychondritis writes: << Hey Heidi... all of us at the hotel, might be staying at your house. LOL >> Heidi, Get out those tents and bedrolls. Ha. Since they're coming to Indian country, they might actually expect the tents. LOL But remind them to watch out for the buffalo that roam around wild. Love you, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 29, 2001 Report Share Posted August 29, 2001 In a message dated 08/29/2001 5:40:07 AM Central Daylight Time, Rpolychondritis writes: << Hey Heidi... all of us at the hotel, might be staying at your house. LOL >> Heidi, Get out those tents and bedrolls. Ha. Since they're coming to Indian country, they might actually expect the tents. LOL But remind them to watch out for the buffalo that roam around wild. Love you, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 29, 2001 Report Share Posted August 29, 2001 In a message dated 08/29/2001 5:40:07 AM Central Daylight Time, Rpolychondritis writes: << Oh T. This is cool weather? >> Lu, Hey, girl! You should have been here when it was 110 deg. Yes, this is cool(er). Love you, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 29, 2001 Report Share Posted August 29, 2001 In a message dated 08/29/2001 5:40:07 AM Central Daylight Time, Rpolychondritis writes: << Oh T. This is cool weather? >> Lu, Hey, girl! You should have been here when it was 110 deg. Yes, this is cool(er). Love you, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 29, 2001 Report Share Posted August 29, 2001 In a message dated 08/29/2001 5:40:07 AM Central Daylight Time, Rpolychondritis writes: << I get to go to > > some > > > very " exotic " places, and I am really excited > > about > > > Tulsa, Oklahoma. See you soon, love Liz >> Liz, I want to go to some of those exotic places with you. Love, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 29, 2001 Report Share Posted August 29, 2001 In a message dated 08/29/2001 5:40:07 AM Central Daylight Time, Rpolychondritis writes: << I get to go to > > some > > > very " exotic " places, and I am really excited > > about > > > Tulsa, Oklahoma. See you soon, love Liz >> Liz, I want to go to some of those exotic places with you. Love, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 30, 2001 Report Share Posted August 30, 2001 I just found out something about MedicAlert that those of you who haven't ordered a bracelet would benefit from my mistake. When you make a list of your medical conditions think twice before you make it final. You won't be able to change the list-order later. Confused? Here was my dilemma: My bracelet says " Relapsing Polychondritis. Caution with endotracheal intubation. " In their information database (what they'll tell drs during that all-important phone call), it says " Relapsing Polychondritis. Steroid-induced diabetes. Caution with endotracheal intubation. " It occurred to me that some drs may not know what RP is and I worried about the time wasted looking it up, so I called medicalert tonight to ask them to add " connective tissue disease " right after " Relapsing Polychondritis. " They couldn't add the new line where I wanted it placed, they could add it only to the end of the list. To some of you, it might not be a big deal, but to me, adding it to the end sounded like I had a second disease IN ADDITION to the RP. Their problem is a limitation on their database application. Maybe I'm thinking too much about the worst possibilities, but when you're at death's door... Just something to think about when you order your bracelet. I'll have to make the change I wanted when I'm ready for a new bracelet. ======================== Moonsung: No one told me about the moody side effects of Prednisone until a month later. You run the gamut between crying and being mad, from being happy to being sad...as soon as my dr told me about the moodiness, it seemed like the clouds opened up for me. Since then, I have a better handle on my moods, no matter what dosage of Prednisone I'm on. Your daughter has an uphill battle to climb and she may still have some emotional problems based on her age (she's 14, right? Teenagers tend to be moody alot) and the fact this disease came to her suddenly and she's had to take all kinds of medications in addition to having a tracheotomy. You might consider taking her to a therapist who specializes in chronic illness. ===== When choosing the lesser of two evils, I always like the one I haven't tried. -- Mae West __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 30, 2001 Report Share Posted August 30, 2001 I just found out something about MedicAlert that those of you who haven't ordered a bracelet would benefit from my mistake. When you make a list of your medical conditions think twice before you make it final. You won't be able to change the list-order later. Confused? Here was my dilemma: My bracelet says " Relapsing Polychondritis. Caution with endotracheal intubation. " In their information database (what they'll tell drs during that all-important phone call), it says " Relapsing Polychondritis. Steroid-induced diabetes. Caution with endotracheal intubation. " It occurred to me that some drs may not know what RP is and I worried about the time wasted looking it up, so I called medicalert tonight to ask them to add " connective tissue disease " right after " Relapsing Polychondritis. " They couldn't add the new line where I wanted it placed, they could add it only to the end of the list. To some of you, it might not be a big deal, but to me, adding it to the end sounded like I had a second disease IN ADDITION to the RP. Their problem is a limitation on their database application. Maybe I'm thinking too much about the worst possibilities, but when you're at death's door... Just something to think about when you order your bracelet. I'll have to make the change I wanted when I'm ready for a new bracelet. ======================== Moonsung: No one told me about the moody side effects of Prednisone until a month later. You run the gamut between crying and being mad, from being happy to being sad...as soon as my dr told me about the moodiness, it seemed like the clouds opened up for me. Since then, I have a better handle on my moods, no matter what dosage of Prednisone I'm on. Your daughter has an uphill battle to climb and she may still have some emotional problems based on her age (she's 14, right? Teenagers tend to be moody alot) and the fact this disease came to her suddenly and she's had to take all kinds of medications in addition to having a tracheotomy. You might consider taking her to a therapist who specializes in chronic illness. ===== When choosing the lesser of two evils, I always like the one I haven't tried. -- Mae West __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 30, 2001 Report Share Posted August 30, 2001 , First thing I packed was the toothbrushes. Just have to remember to pack the toiletry bag. LOL See you very soon. Love Ya, Sandy Sandy,It's always the toothbrush I forget. LOLWell, we have stores close by the hotel so you should be able to get almost anything except medications....and, who knows, between all of us, we might even be able to help you with that also. <grin>Can't wait to meet you.Love,DISCLAIMER!!WE ARE NOT MEDICAL PROFESSIONALS, THEREFORE ANY INFORMATION THAT IS RECEIVED HERE IS FROM EXPERIENCE ONLY. PLEASE CONSULT WITH YOUR DOCTOR BEFORE TRYING ANYTHING THAT IS SUGGESTED. WE ARE NOT A SUBSTITUTE FOR YOUR PHYSICIAN AND ARE NOT TRYING TO BE. REMEMBER EVERYONE IS DIFFERENT AND TREATMENT MAYBE DIFFERENT FOR MANY OF US. THANK YOU Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 30, 2001 Report Share Posted August 30, 2001 , First thing I packed was the toothbrushes. Just have to remember to pack the toiletry bag. LOL See you very soon. Love Ya, Sandy Sandy,It's always the toothbrush I forget. LOLWell, we have stores close by the hotel so you should be able to get almost anything except medications....and, who knows, between all of us, we might even be able to help you with that also. <grin>Can't wait to meet you.Love,DISCLAIMER!!WE ARE NOT MEDICAL PROFESSIONALS, THEREFORE ANY INFORMATION THAT IS RECEIVED HERE IS FROM EXPERIENCE ONLY. PLEASE CONSULT WITH YOUR DOCTOR BEFORE TRYING ANYTHING THAT IS SUGGESTED. WE ARE NOT A SUBSTITUTE FOR YOUR PHYSICIAN AND ARE NOT TRYING TO BE. REMEMBER EVERYONE IS DIFFERENT AND TREATMENT MAYBE DIFFERENT FOR MANY OF US. THANK YOU Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 4, 2001 Report Share Posted September 4, 2001 > I just found out something about MedicAlert that > those of you who haven't ordered a bracelet would > benefit from my mistake. Thanks for the information... I didn't know that either.. It is almost time for me to order another one because my writing is wearing down... Will be sure to get it right the next time. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 4, 2001 Report Share Posted September 4, 2001 > I just found out something about MedicAlert that > those of you who haven't ordered a bracelet would > benefit from my mistake. Thanks for the information... I didn't know that either.. It is almost time for me to order another one because my writing is wearing down... Will be sure to get it right the next time. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 6, 2001 Report Share Posted September 6, 2001 In a message dated 09/05/2001 12:50:27 AM Central Daylight Time, RCColloran@... writes: << just found out something about MedicAlert that > those of you who haven't ordered a bracelet would > benefit from my mistake. >> WHAT?????????????????? I have to order mine! Love, Judy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 6, 2001 Report Share Posted September 6, 2001 In a message dated 09/05/2001 12:50:27 AM Central Daylight Time, RCColloran@... writes: << just found out something about MedicAlert that > those of you who haven't ordered a bracelet would > benefit from my mistake. >> WHAT?????????????????? I have to order mine! Love, Judy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 7, 2001 Report Share Posted September 7, 2001 I just found out something about MedicAlert that > those of you who haven't ordered a bracelet would > benefit from my mistake. I missed the info on medic alert bracelets can you repeat it please love, hugs and hope Angie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 7, 2001 Report Share Posted September 7, 2001 I just found out something about MedicAlert that > those of you who haven't ordered a bracelet would > benefit from my mistake. I missed the info on medic alert bracelets can you repeat it please love, hugs and hope Angie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 9, 2001 Report Share Posted September 9, 2001 In a message dated 9/7/01 3:32:53 PM Pacific Daylight Time, rpawareness@... writes: << I missed the info on medic alert bracelets can you repeat it please love, hugs and hope Angie >> Angie.... the info is ..... ORDER ONE!!!!!! Didn't you hear a word I said in OK!!! LOL Just call them at 1- or www.medicalert.org With your history, it might be better to call and they can fit as much as possible on the bracelet. That's what I did and they were really helpful.... I'll give you a week, then I " m checkin back to NAG!!! LOl Love you bunches PS... this goes for all of you who don't have one yet.... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 9, 2001 Report Share Posted September 9, 2001 In a message dated 9/7/01 3:32:53 PM Pacific Daylight Time, rpawareness@... writes: << I missed the info on medic alert bracelets can you repeat it please love, hugs and hope Angie >> Angie.... the info is ..... ORDER ONE!!!!!! Didn't you hear a word I said in OK!!! LOL Just call them at 1- or www.medicalert.org With your history, it might be better to call and they can fit as much as possible on the bracelet. That's what I did and they were really helpful.... I'll give you a week, then I " m checkin back to NAG!!! LOl Love you bunches PS... this goes for all of you who don't have one yet.... Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.