Guest guest Posted February 15, 2010 Report Share Posted February 15, 2010 > I'm wondering how each of you tell if something is "die-off" or if > you're doing or eating something that your body just can't deal with and > shouldn't have? I think part of the reason I ask is that I've been SCD > for at least 4 years now. I make all my own stuff, I don't eat anything > illegal. Ever. But I do have a mini flare every month, no matter what > (hormone related?). And this past year I've had 3 major flares. We > haven't been able to figure out what caused them (no infection, no sign > of disease, no new foods). The starter diet isn't enough to get my > symptoms under control anymore but, fortunately, I've found that my body > responds really quickly to a juice fast (heh...pre-starter diet for me > ) and then I can start adding one food at a time from the starter > diet. During my last colonoscopy (a couple weeks ago) my doc said that > there was no sign of disease and to keep doing what I'm doing. After > doing this for four years it seems unlikely that these are episodes of > die-off but I'm really not sure how to tell if flare symptoms and > die-off symptoms seem to be the same (I say this because I've not > experienced the achiness/headache/fever etc symptoms - it's always > flare). So I'd like to hear how you can tell whether you're actually > flaring or having to deal with die-off?> Stacey >What symptoms do you get when you experience what you're calling a flare?For me, a flare involves, first and foremost a resurgence of abdominal pain (in a very specific location) and renewed gas and diarrhea. Die-off makes my joints ache, creates some fatigue or at least tiredness, mental fog, irritability and nausea at some level. True, all of those can also accompany Crohn's itself. But over the years I've pretty much gotten to be able to tell the difference, since depending on the cause, they feel subtlely different.n ______________________________A funny, touching gift book for cat lovers. Signed copies, free shipping (U.S., reduced elsewhere): Confessions of a Cataholic: My Life With the 10 Cats Who Caused My Addiction by n Van Til www.wordpowerpublishing.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 15, 2010 Report Share Posted February 15, 2010 > I'm wondering how each of you tell if something is "die-off" or if > you're doing or eating something that your body just can't deal with and > shouldn't have? I think part of the reason I ask is that I've been SCD > for at least 4 years now. I make all my own stuff, I don't eat anything > illegal. Ever. But I do have a mini flare every month, no matter what > (hormone related?). And this past year I've had 3 major flares. We > haven't been able to figure out what caused them (no infection, no sign > of disease, no new foods). The starter diet isn't enough to get my > symptoms under control anymore but, fortunately, I've found that my body > responds really quickly to a juice fast (heh...pre-starter diet for me > ) and then I can start adding one food at a time from the starter > diet. During my last colonoscopy (a couple weeks ago) my doc said that > there was no sign of disease and to keep doing what I'm doing. After > doing this for four years it seems unlikely that these are episodes of > die-off but I'm really not sure how to tell if flare symptoms and > die-off symptoms seem to be the same (I say this because I've not > experienced the achiness/headache/fever etc symptoms - it's always > flare). So I'd like to hear how you can tell whether you're actually > flaring or having to deal with die-off?> Stacey >What symptoms do you get when you experience what you're calling a flare?For me, a flare involves, first and foremost a resurgence of abdominal pain (in a very specific location) and renewed gas and diarrhea. Die-off makes my joints ache, creates some fatigue or at least tiredness, mental fog, irritability and nausea at some level. True, all of those can also accompany Crohn's itself. But over the years I've pretty much gotten to be able to tell the difference, since depending on the cause, they feel subtlely different.n ______________________________A funny, touching gift book for cat lovers. Signed copies, free shipping (U.S., reduced elsewhere): Confessions of a Cataholic: My Life With the 10 Cats Who Caused My Addiction by n Van Til www.wordpowerpublishing.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 15, 2010 Report Share Posted February 15, 2010 n writes: For me, a flare involves, first and foremost a resurgence of abdominal pain (in a very specific location) and renewed gas and diarrhea. Die-off makes my joints ache, creates some fatigue or at least tiredness, mental fog, irritability and nausea at some level. True, all of those can also accompany Crohn's itself. But over the years I've pretty much gotten to be able to tell the difference, since depending on the cause, they feel subtlely different. n, Since I have these symptoms all the time anyway, how can I tell if I'm having die off?? Debbie Dysbiosis, fatigue, lots of aches and pains 17 yr old Son ASD, OCD. ADD, tics, etc. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 15, 2010 Report Share Posted February 15, 2010 n writes: For me, a flare involves, first and foremost a resurgence of abdominal pain (in a very specific location) and renewed gas and diarrhea. Die-off makes my joints ache, creates some fatigue or at least tiredness, mental fog, irritability and nausea at some level. True, all of those can also accompany Crohn's itself. But over the years I've pretty much gotten to be able to tell the difference, since depending on the cause, they feel subtlely different. n, Since I have these symptoms all the time anyway, how can I tell if I'm having die off?? Debbie Dysbiosis, fatigue, lots of aches and pains 17 yr old Son ASD, OCD. ADD, tics, etc. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 15, 2010 Report Share Posted February 15, 2010 Stacey, First of all, it is awesome that your colonoscopy was free of disease. If you were having inflammation from UC every month, it is doubtful that your colonoscopy would be so normal. The " flares " could be residual IBS, or hormones, or anything, but thankfully you did not have signs of IBD. I wish I could advise you, but I am so glad to hear your colonoscopy is good. That alone is encouraging. PJ > > > I'm wondering how each of you tell if something is " die-off " or ifyou're > > doing or eating something that your body just can't deal with and > > shouldn't have? I think part of the reason I ask is that I've been SCD > > for at least 4 years now. I make all my own stuff, I don't eat anything > > illegal. Ever. But I do have a mini flare every month, no matter what > > (hormone related?). And this past year I've had 3 major flares. We > > haven't been able to figure out what caused them (no infection, no sign > > of disease, no new foods). The starter diet isn't enough to get my > > symptoms under control anymore but, fortunately, I've found that my body > > responds really quickly to a juice fast (heh...pre-starter diet for me > > ) and then I can start adding one food at a time from the starterdiet. > > During my last colonoscopy (a couple weeks ago) my doc said thatthere > > was no sign of disease and to keep doing what I'm doing. Afterdoing this > > for four years it seems unlikely that these are episodes ofdie-off but > > I'm really not sure how to tell if flare symptoms anddie-off symptoms > > seem to be the same (I say this because I've notexperienced the > > achiness/headache/fever etc symptoms - it's alwaysflare). So I'd like to > > hear how you can tell whether you're actuallyflaring or having to deal > > with die-off? > > Stacey > > > > What symptoms do you get when you experience what you're calling a flare? > > For me, a flare involves, first and foremost a resurgence of abdominal > pain (in a very specific location) and renewed gas and diarrhea. Die-off > makes my joints ache, creates some fatigue or at least tiredness, mental > fog, irritability and nausea at some level. True, all of those can also > accompany Crohn's itself. But over the years I've pretty much gotten to be > able to tell the difference, since depending on the cause, they feel > subtlely different. > > n > > > ______________________________ > > A funny, touching gift book for cat lovers. Signed copies, free shipping > (U.S., reduced elsewhere): Confessions of a Cataholic: My Life With the > 10 Cats Who Caused My Addiction by n Van Til > www.wordpowerpublishing.com > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 15, 2010 Report Share Posted February 15, 2010 Stacey, First of all, it is awesome that your colonoscopy was free of disease. If you were having inflammation from UC every month, it is doubtful that your colonoscopy would be so normal. The " flares " could be residual IBS, or hormones, or anything, but thankfully you did not have signs of IBD. I wish I could advise you, but I am so glad to hear your colonoscopy is good. That alone is encouraging. PJ > > > I'm wondering how each of you tell if something is " die-off " or ifyou're > > doing or eating something that your body just can't deal with and > > shouldn't have? I think part of the reason I ask is that I've been SCD > > for at least 4 years now. I make all my own stuff, I don't eat anything > > illegal. Ever. But I do have a mini flare every month, no matter what > > (hormone related?). And this past year I've had 3 major flares. We > > haven't been able to figure out what caused them (no infection, no sign > > of disease, no new foods). The starter diet isn't enough to get my > > symptoms under control anymore but, fortunately, I've found that my body > > responds really quickly to a juice fast (heh...pre-starter diet for me > > ) and then I can start adding one food at a time from the starterdiet. > > During my last colonoscopy (a couple weeks ago) my doc said thatthere > > was no sign of disease and to keep doing what I'm doing. Afterdoing this > > for four years it seems unlikely that these are episodes ofdie-off but > > I'm really not sure how to tell if flare symptoms anddie-off symptoms > > seem to be the same (I say this because I've notexperienced the > > achiness/headache/fever etc symptoms - it's alwaysflare). So I'd like to > > hear how you can tell whether you're actuallyflaring or having to deal > > with die-off? > > Stacey > > > > What symptoms do you get when you experience what you're calling a flare? > > For me, a flare involves, first and foremost a resurgence of abdominal > pain (in a very specific location) and renewed gas and diarrhea. Die-off > makes my joints ache, creates some fatigue or at least tiredness, mental > fog, irritability and nausea at some level. True, all of those can also > accompany Crohn's itself. But over the years I've pretty much gotten to be > able to tell the difference, since depending on the cause, they feel > subtlely different. > > n > > > ______________________________ > > A funny, touching gift book for cat lovers. Signed copies, free shipping > (U.S., reduced elsewhere): Confessions of a Cataholic: My Life With the > 10 Cats Who Caused My Addiction by n Van Til > www.wordpowerpublishing.com > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 15, 2010 Report Share Posted February 15, 2010 Debbie,Those same symptoms can be from low thyroid and adrenal fatigue (aches, fatigue, nausea, brain fog, muscle weakness are just a few). Sky, in this group, pointed me to a website www.stopthethyroidmadness.com and there is also a book by the same name. In the book there are several things that can get out of balance and cascade down through the body systems. Thyroid controls the metabolism, but if the adrenals are fatigued and not producing well, the thyroid chemicals can't get into the cells. You have the chemicals, just can't use them, and you will have hypothyroid symptoms. The adrenals control the steroids and if you have been stressed for a long time (as in the case of a prolonged illness) they can get tired and not produce these steriods consistently or as much as required. I find it interesting because one the first things a dr. gives a crohns or UC patient is synthetic steriods (prednisone). The above also usually comes along with low ferritin (again fatigue and brain fog) and low stomach acid. If the stomach acid is low, you won't digest your food (or suppements) well. You will have indigestion and bloating among other things. Just some things to consider.AmeliaHusband UC 9 years, SCD 19 monthsLDN 3 mgTo: BTVC-SCD Sent: Mon, February 15, 2010 9:32:50 PMSubject: Re: How do you tell? n writes:For me, a flare involves, first and foremost a resurgence of abdominal pain (in a very specific location) and renewed gas and diarrhea. Die-off makes my joints ache, creates some fatigue or at least tiredness, mental fog, irritability and nausea at some level. True, all of those can also accompany Crohn's itself. But over the years I've pretty much gotten to be able to tell the difference, since depending on the cause, they feel subtlely different.n,Since I have these symptoms all the time anyway, how can I tell if I'm having die off??DebbieDysbiosis, fatigue, lots of aches and pains17 yr old Son ASD, OCD. ADD, tics, etc. ------------------------------------ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 15, 2010 Report Share Posted February 15, 2010 Debbie,Those same symptoms can be from low thyroid and adrenal fatigue (aches, fatigue, nausea, brain fog, muscle weakness are just a few). Sky, in this group, pointed me to a website www.stopthethyroidmadness.com and there is also a book by the same name. In the book there are several things that can get out of balance and cascade down through the body systems. Thyroid controls the metabolism, but if the adrenals are fatigued and not producing well, the thyroid chemicals can't get into the cells. You have the chemicals, just can't use them, and you will have hypothyroid symptoms. The adrenals control the steroids and if you have been stressed for a long time (as in the case of a prolonged illness) they can get tired and not produce these steriods consistently or as much as required. I find it interesting because one the first things a dr. gives a crohns or UC patient is synthetic steriods (prednisone). The above also usually comes along with low ferritin (again fatigue and brain fog) and low stomach acid. If the stomach acid is low, you won't digest your food (or suppements) well. You will have indigestion and bloating among other things. Just some things to consider.AmeliaHusband UC 9 years, SCD 19 monthsLDN 3 mgTo: BTVC-SCD Sent: Mon, February 15, 2010 9:32:50 PMSubject: Re: How do you tell? n writes:For me, a flare involves, first and foremost a resurgence of abdominal pain (in a very specific location) and renewed gas and diarrhea. Die-off makes my joints ache, creates some fatigue or at least tiredness, mental fog, irritability and nausea at some level. True, all of those can also accompany Crohn's itself. But over the years I've pretty much gotten to be able to tell the difference, since depending on the cause, they feel subtlely different.n,Since I have these symptoms all the time anyway, how can I tell if I'm having die off??DebbieDysbiosis, fatigue, lots of aches and pains17 yr old Son ASD, OCD. ADD, tics, etc. ------------------------------------ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 15, 2010 Report Share Posted February 15, 2010 I was also thinking adrenals/thyroid, but I think your symptoms might be more consistent throughout the month if it was solely that. It sounds like hormones are influencing your flares. I know right before TTOTM I have my worst symptoms because my candida flares. > > Debbie, > > Those same symptoms can be from low thyroid and adrenal fatigue (aches, fatigue, nausea, brain fog, muscle weakness are just a few). Sky, in this group, pointed me to a website www.stopthethyroidmadness.com and there is also a book by the same name. In the book there are several things that can get out of balance and cascade down through the body systems. Thyroid controls the metabolism, but if the adrenals are fatigued and not producing well, the thyroid chemicals can't get into the cells. You have the chemicals, just can't use them, and you will have hypothyroid symptoms. The adrenals control the steroids and if you have been stressed for a long time (as in the case of a prolonged illness) they can get tired and not produce these steriods consistently or as much as required. I find it interesting because one the first things a dr. gives a crohns or UC patient is synthetic steriods (prednisone). The above also usually comes along with low > ferritin (again fatigue and brain fog) and low stomach acid. If the stomach acid is low, you won't digest your food (or suppements) well. You will have indigestion and bloating among other things. > > Just some things to consider. > > Amelia > Husband UC 9 years, SCD 19 months > LDN 3 mg > > > > > > ________________________________ > > To: BTVC-SCD > Sent: Mon, February 15, 2010 9:32:50 PM > Subject: Re: How do you tell? > > n writes: > > For me, a flare involves, first and foremost a resurgence of abdominal > pain (in a very specific location) and renewed gas and diarrhea. Die-off > makes my joints ache, creates some fatigue or at least tiredness, mental > fog, irritability and nausea at some level. True, all of those can also > accompany Crohn's itself. But over the years I've pretty much gotten to > be able to tell the difference, since depending on the cause, they feel > subtlely different. > > n, > > Since I have these symptoms all the time anyway, how can I tell if I'm > having die off?? > > Debbie > Dysbiosis, fatigue, lots of aches and pains > 17 yr old Son ASD, OCD. ADD, tics, etc. > > > > > ------------------------------------ > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 15, 2010 Report Share Posted February 15, 2010 I was also thinking adrenals/thyroid, but I think your symptoms might be more consistent throughout the month if it was solely that. It sounds like hormones are influencing your flares. I know right before TTOTM I have my worst symptoms because my candida flares. > > Debbie, > > Those same symptoms can be from low thyroid and adrenal fatigue (aches, fatigue, nausea, brain fog, muscle weakness are just a few). Sky, in this group, pointed me to a website www.stopthethyroidmadness.com and there is also a book by the same name. In the book there are several things that can get out of balance and cascade down through the body systems. Thyroid controls the metabolism, but if the adrenals are fatigued and not producing well, the thyroid chemicals can't get into the cells. You have the chemicals, just can't use them, and you will have hypothyroid symptoms. The adrenals control the steroids and if you have been stressed for a long time (as in the case of a prolonged illness) they can get tired and not produce these steriods consistently or as much as required. I find it interesting because one the first things a dr. gives a crohns or UC patient is synthetic steriods (prednisone). The above also usually comes along with low > ferritin (again fatigue and brain fog) and low stomach acid. If the stomach acid is low, you won't digest your food (or suppements) well. You will have indigestion and bloating among other things. > > Just some things to consider. > > Amelia > Husband UC 9 years, SCD 19 months > LDN 3 mg > > > > > > ________________________________ > > To: BTVC-SCD > Sent: Mon, February 15, 2010 9:32:50 PM > Subject: Re: How do you tell? > > n writes: > > For me, a flare involves, first and foremost a resurgence of abdominal > pain (in a very specific location) and renewed gas and diarrhea. Die-off > makes my joints ache, creates some fatigue or at least tiredness, mental > fog, irritability and nausea at some level. True, all of those can also > accompany Crohn's itself. But over the years I've pretty much gotten to > be able to tell the difference, since depending on the cause, they feel > subtlely different. > > n, > > Since I have these symptoms all the time anyway, how can I tell if I'm > having die off?? > > Debbie > Dysbiosis, fatigue, lots of aches and pains > 17 yr old Son ASD, OCD. ADD, tics, etc. > > > > > ------------------------------------ > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 15, 2010 Report Share Posted February 15, 2010 Sky, no I did not feel any different when my TSH was 0.01 than when it was high. Always have felt low thyroid symptoms. Debbie > > Hi Debbie > > Did you feel good when your tsh was really low? > Also there is no point in taking thyroid medication if your ferritin is low that could explain the tightness in the chest. > > Sky > > > > > > > > _ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 15, 2010 Report Share Posted February 15, 2010 Sky, no I did not feel any different when my TSH was 0.01 than when it was high. Always have felt low thyroid symptoms. Debbie > > Hi Debbie > > Did you feel good when your tsh was really low? > Also there is no point in taking thyroid medication if your ferritin is low that could explain the tightness in the chest. > > Sky > > > > > > > > _ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 15, 2010 Report Share Posted February 15, 2010 I don't know if I've had die-off symptoms or not, so I can't answer your question, but what you describe sounds hormone-related. To: BTVC-SCD Sent: Mon, February 15, 2010 3:16:15 PMSubject: How do you tell? I'm wondering how each of you tell if something is "die-off" or if you're doing or eating something that your body just can't deal with and shouldn't have? I think part of the reason I ask is that I've been SCD for at least 4 years now. I make all my own stuff, I don't eat anything illegal. Ever. But I do have a mini flare every month, no matter what (hormone related?). And this past year I've had 3 major flares. We haven't been able to figure out what caused them (no infection, no sign of disease, no new foods). The starter diet isn't enough to get my symptoms under control anymore but, fortunately, I've found that my body responds really quickly to a juice fast (heh...pre-starter diet for me ) and then I can start adding one food at a time from the starter diet. During my last colonoscopy (a couple weeks ago) my doc said that there was no sign of disease and to keep doing what I'm doing. After doing this for four years it seems unlikely that these are episodes of die-off but I'm really not sure how to tell if flare symptoms and die-off symptoms seem to be the same (I say this because I've not experienced the achiness/headache/ fever etc symptoms - it's always flare). So I'd like to hear how you can tell whether you're actually flaring or having to deal with die-off? Stacey Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 15, 2010 Report Share Posted February 15, 2010 I don't know if I've had die-off symptoms or not, so I can't answer your question, but what you describe sounds hormone-related. To: BTVC-SCD Sent: Mon, February 15, 2010 3:16:15 PMSubject: How do you tell? I'm wondering how each of you tell if something is "die-off" or if you're doing or eating something that your body just can't deal with and shouldn't have? I think part of the reason I ask is that I've been SCD for at least 4 years now. I make all my own stuff, I don't eat anything illegal. Ever. But I do have a mini flare every month, no matter what (hormone related?). And this past year I've had 3 major flares. We haven't been able to figure out what caused them (no infection, no sign of disease, no new foods). The starter diet isn't enough to get my symptoms under control anymore but, fortunately, I've found that my body responds really quickly to a juice fast (heh...pre-starter diet for me ) and then I can start adding one food at a time from the starter diet. During my last colonoscopy (a couple weeks ago) my doc said that there was no sign of disease and to keep doing what I'm doing. After doing this for four years it seems unlikely that these are episodes of die-off but I'm really not sure how to tell if flare symptoms and die-off symptoms seem to be the same (I say this because I've not experienced the achiness/headache/ fever etc symptoms - it's always flare). So I'd like to hear how you can tell whether you're actually flaring or having to deal with die-off? Stacey Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 15, 2010 Report Share Posted February 15, 2010 The mini flares that I have each month have something to do with my period. My colitis acts up the week before and during. It's extraordinarily miserable but I've never found anything that would help with the symptoms. The suspicion is that it's hormone related. I have to make an appointment with a new GYN. I'm going to one that my GI doc recommended so my hope is that she'll be more familiar with patients with UC and the complications that go with it. Stacey > > > > > I'm wondering how each of you tell if something is " die-off " or ifyou're > > > doing or eating something that your body just can't deal with and > > > shouldn't have? I think part of the reason I ask is that I've been SCD > > > for at least 4 years now. I make all my own stuff, I don't eat anything > > > illegal. Ever. But I do have a mini flare every month, no matter what > > > (hormone related?). And this past year I've had 3 major flares. We > > > haven't been able to figure out what caused them (no infection, no sign > > > of disease, no new foods). The starter diet isn't enough to get my > > > symptoms under control anymore but, fortunately, I've found that my body > > > responds really quickly to a juice fast (heh...pre-starter diet for me > > > ) and then I can start adding one food at a time from the starterdiet. > > > During my last colonoscopy (a couple weeks ago) my doc said thatthere > > > was no sign of disease and to keep doing what I'm doing. Afterdoing this > > > for four years it seems unlikely that these are episodes ofdie-off but > > > I'm really not sure how to tell if flare symptoms anddie-off symptoms > > > seem to be the same (I say this because I've notexperienced the > > > achiness/headache/fever etc symptoms - it's alwaysflare). So I'd like to > > > hear how you can tell whether you're actuallyflaring or having to deal > > > with die-off? > > > Stacey > > > > > > > What symptoms do you get when you experience what you're calling a flare? > > > > For me, a flare involves, first and foremost a resurgence of abdominal > > pain (in a very specific location) and renewed gas and diarrhea. Die-off > > makes my joints ache, creates some fatigue or at least tiredness, mental > > fog, irritability and nausea at some level. True, all of those can also > > accompany Crohn's itself. But over the years I've pretty much gotten to be > > able to tell the difference, since depending on the cause, they feel > > subtlely different. > > > > n > > > > > > ______________________________ > > > > A funny, touching gift book for cat lovers. Signed copies, free shipping > > (U.S., reduced elsewhere): Confessions of a Cataholic: My Life With the > > 10 Cats Who Caused My Addiction by n Van Til > > www.wordpowerpublishing.com > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 15, 2010 Report Share Posted February 15, 2010 The mini flares that I have each month have something to do with my period. My colitis acts up the week before and during. It's extraordinarily miserable but I've never found anything that would help with the symptoms. The suspicion is that it's hormone related. I have to make an appointment with a new GYN. I'm going to one that my GI doc recommended so my hope is that she'll be more familiar with patients with UC and the complications that go with it. Stacey > > > > > I'm wondering how each of you tell if something is " die-off " or ifyou're > > > doing or eating something that your body just can't deal with and > > > shouldn't have? I think part of the reason I ask is that I've been SCD > > > for at least 4 years now. I make all my own stuff, I don't eat anything > > > illegal. Ever. But I do have a mini flare every month, no matter what > > > (hormone related?). And this past year I've had 3 major flares. We > > > haven't been able to figure out what caused them (no infection, no sign > > > of disease, no new foods). The starter diet isn't enough to get my > > > symptoms under control anymore but, fortunately, I've found that my body > > > responds really quickly to a juice fast (heh...pre-starter diet for me > > > ) and then I can start adding one food at a time from the starterdiet. > > > During my last colonoscopy (a couple weeks ago) my doc said thatthere > > > was no sign of disease and to keep doing what I'm doing. Afterdoing this > > > for four years it seems unlikely that these are episodes ofdie-off but > > > I'm really not sure how to tell if flare symptoms anddie-off symptoms > > > seem to be the same (I say this because I've notexperienced the > > > achiness/headache/fever etc symptoms - it's alwaysflare). So I'd like to > > > hear how you can tell whether you're actuallyflaring or having to deal > > > with die-off? > > > Stacey > > > > > > > What symptoms do you get when you experience what you're calling a flare? > > > > For me, a flare involves, first and foremost a resurgence of abdominal > > pain (in a very specific location) and renewed gas and diarrhea. Die-off > > makes my joints ache, creates some fatigue or at least tiredness, mental > > fog, irritability and nausea at some level. True, all of those can also > > accompany Crohn's itself. But over the years I've pretty much gotten to be > > able to tell the difference, since depending on the cause, they feel > > subtlely different. > > > > n > > > > > > ______________________________ > > > > A funny, touching gift book for cat lovers. Signed copies, free shipping > > (U.S., reduced elsewhere): Confessions of a Cataholic: My Life With the > > 10 Cats Who Caused My Addiction by n Van Til > > www.wordpowerpublishing.com > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 15, 2010 Report Share Posted February 15, 2010 Flare for me consists of pain/cramping, D (occasionally with mucus, I usually catch it before it gets to the blood phase though), sudden urgencies all throughout the day. I lose weight (ha, not that I mind that part!) and often feel nauseated during the urgency. I get fatigued a day or two after it starts but I think that's less a symptom and more my body reacting to the cramping, pain and inability to keep anything in it. So yeah...fun! /end sarcasm Stacey > What symptoms do you get when you experience what you're calling a flare? > > For me, a flare involves, first and foremost a resurgence of abdominal > pain (in a very specific location) and renewed gas and diarrhea. Die-off > makes my joints ache, creates some fatigue or at least tiredness, mental > fog, irritability and nausea at some level. True, all of those can also > accompany Crohn's itself. But over the years I've pretty much gotten to be > able to tell the difference, since depending on the cause, they feel > subtlely different. > > n > > > ______________________________ > > A funny, touching gift book for cat lovers. Signed copies, free shipping > (U.S., reduced elsewhere): Confessions of a Cataholic: My Life With the > 10 Cats Who Caused My Addiction by n Van Til > www.wordpowerpublishing.com > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 15, 2010 Report Share Posted February 15, 2010 Flare for me consists of pain/cramping, D (occasionally with mucus, I usually catch it before it gets to the blood phase though), sudden urgencies all throughout the day. I lose weight (ha, not that I mind that part!) and often feel nauseated during the urgency. I get fatigued a day or two after it starts but I think that's less a symptom and more my body reacting to the cramping, pain and inability to keep anything in it. So yeah...fun! /end sarcasm Stacey > What symptoms do you get when you experience what you're calling a flare? > > For me, a flare involves, first and foremost a resurgence of abdominal > pain (in a very specific location) and renewed gas and diarrhea. Die-off > makes my joints ache, creates some fatigue or at least tiredness, mental > fog, irritability and nausea at some level. True, all of those can also > accompany Crohn's itself. But over the years I've pretty much gotten to be > able to tell the difference, since depending on the cause, they feel > subtlely different. > > n > > > ______________________________ > > A funny, touching gift book for cat lovers. Signed copies, free shipping > (U.S., reduced elsewhere): Confessions of a Cataholic: My Life With the > 10 Cats Who Caused My Addiction by n Van Til > www.wordpowerpublishing.com > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 15, 2010 Report Share Posted February 15, 2010 Stacey - this really could be yeast related. Yeast tends to flare right around that time. That is very similar to what happens to me, just much less severe in my case. > > > > > > > I'm wondering how each of you tell if something is " die-off " or ifyou're > > > > doing or eating something that your body just can't deal with and > > > > shouldn't have? I think part of the reason I ask is that I've been SCD > > > > for at least 4 years now. I make all my own stuff, I don't eat anything > > > > illegal. Ever. But I do have a mini flare every month, no matter what > > > > (hormone related?). And this past year I've had 3 major flares. We > > > > haven't been able to figure out what caused them (no infection, no sign > > > > of disease, no new foods). The starter diet isn't enough to get my > > > > symptoms under control anymore but, fortunately, I've found that my body > > > > responds really quickly to a juice fast (heh...pre-starter diet for me > > > > ) and then I can start adding one food at a time from the starterdiet. > > > > During my last colonoscopy (a couple weeks ago) my doc said thatthere > > > > was no sign of disease and to keep doing what I'm doing. Afterdoing this > > > > for four years it seems unlikely that these are episodes ofdie-off but > > > > I'm really not sure how to tell if flare symptoms anddie-off symptoms > > > > seem to be the same (I say this because I've notexperienced the > > > > achiness/headache/fever etc symptoms - it's alwaysflare). So I'd like to > > > > hear how you can tell whether you're actuallyflaring or having to deal > > > > with die-off? > > > > Stacey > > > > > > > > > > What symptoms do you get when you experience what you're calling a flare? > > > > > > For me, a flare involves, first and foremost a resurgence of abdominal > > > pain (in a very specific location) and renewed gas and diarrhea. Die-off > > > makes my joints ache, creates some fatigue or at least tiredness, mental > > > fog, irritability and nausea at some level. True, all of those can also > > > accompany Crohn's itself. But over the years I've pretty much gotten to be > > > able to tell the difference, since depending on the cause, they feel > > > subtlely different. > > > > > > n > > > > > > > > > ______________________________ > > > > > > A funny, touching gift book for cat lovers. Signed copies, free shipping > > > (U.S., reduced elsewhere): Confessions of a Cataholic: My Life With the > > > 10 Cats Who Caused My Addiction by n Van Til > > > www.wordpowerpublishing.com > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 15, 2010 Report Share Posted February 15, 2010 Stacey - this really could be yeast related. Yeast tends to flare right around that time. That is very similar to what happens to me, just much less severe in my case. > > > > > > > I'm wondering how each of you tell if something is " die-off " or ifyou're > > > > doing or eating something that your body just can't deal with and > > > > shouldn't have? I think part of the reason I ask is that I've been SCD > > > > for at least 4 years now. I make all my own stuff, I don't eat anything > > > > illegal. Ever. But I do have a mini flare every month, no matter what > > > > (hormone related?). And this past year I've had 3 major flares. We > > > > haven't been able to figure out what caused them (no infection, no sign > > > > of disease, no new foods). The starter diet isn't enough to get my > > > > symptoms under control anymore but, fortunately, I've found that my body > > > > responds really quickly to a juice fast (heh...pre-starter diet for me > > > > ) and then I can start adding one food at a time from the starterdiet. > > > > During my last colonoscopy (a couple weeks ago) my doc said thatthere > > > > was no sign of disease and to keep doing what I'm doing. Afterdoing this > > > > for four years it seems unlikely that these are episodes ofdie-off but > > > > I'm really not sure how to tell if flare symptoms anddie-off symptoms > > > > seem to be the same (I say this because I've notexperienced the > > > > achiness/headache/fever etc symptoms - it's alwaysflare). So I'd like to > > > > hear how you can tell whether you're actuallyflaring or having to deal > > > > with die-off? > > > > Stacey > > > > > > > > > > What symptoms do you get when you experience what you're calling a flare? > > > > > > For me, a flare involves, first and foremost a resurgence of abdominal > > > pain (in a very specific location) and renewed gas and diarrhea. Die-off > > > makes my joints ache, creates some fatigue or at least tiredness, mental > > > fog, irritability and nausea at some level. True, all of those can also > > > accompany Crohn's itself. But over the years I've pretty much gotten to be > > > able to tell the difference, since depending on the cause, they feel > > > subtlely different. > > > > > > n > > > > > > > > > ______________________________ > > > > > > A funny, touching gift book for cat lovers. Signed copies, free shipping > > > (U.S., reduced elsewhere): Confessions of a Cataholic: My Life With the > > > 10 Cats Who Caused My Addiction by n Van Til > > > www.wordpowerpublishing.com > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 16, 2010 Report Share Posted February 16, 2010 Stacey I have a dysfunctional upper GI, so I have some chronic symptoms; kept minimal since being on SCD. The cause of my Sphincter of Oddi dysfunction is thought to be neurological and I certainly have been experiencing a slow but steady decline in neurological functions. One of the interesting things I’ve discovered is that I have a regular cycle of flares of both digestive and neurological symptoms, sometimes together, sometimes separated by a few days. In other words, I haven’t eaten any “new” foods, haven’t taken any new supplements, my daily life isn’t any more stressful, but yet my digestion will go downhill for a few days or I’ll experience what I call a neurological “crash” when my body just doesn’t work right (different set of symptoms). For 3 years I’ve seen a regular mild deterioration about every 14 to 18 days (I kept a log for a year) with a severe digestive symptom flare twice a year. The neurological crashes have been regular (same 14 to 18 days) but haven’t gotten any worse. Although I haven’t done a lot of research into this issue, I have mentioned the symptom flare to both my gastroenterologist and neurologist. Both said this is “normal.” I’ve certainly seen plenty of emails from women who experience a symptom flare every month as part of the hormonal shifts. So I wouldn’t worry, as long as your body recovers each time. I sometimes fall back to my intro. diet or even clear liquids for a day or two during my severe symptom episodes, then when things recover, I go back to my usual routine and am fine for another two weeks or so. Kim M. SCD 6 years >>>>>>>>>. I'm wondering how each of you tell if something is " die-off " or if you're doing or eating something that your body just can't deal with and shouldn't have? I think part of the reason I ask is that I've been SCD for at least 4 years now. I make all my own stuff, I don't eat anything illegal. Ever. But I do have a mini flare every month, no matter what (hormone related?). And this past year I've had 3 major flares. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 16, 2010 Report Share Posted February 16, 2010 Stacey I have a dysfunctional upper GI, so I have some chronic symptoms; kept minimal since being on SCD. The cause of my Sphincter of Oddi dysfunction is thought to be neurological and I certainly have been experiencing a slow but steady decline in neurological functions. One of the interesting things I’ve discovered is that I have a regular cycle of flares of both digestive and neurological symptoms, sometimes together, sometimes separated by a few days. In other words, I haven’t eaten any “new” foods, haven’t taken any new supplements, my daily life isn’t any more stressful, but yet my digestion will go downhill for a few days or I’ll experience what I call a neurological “crash” when my body just doesn’t work right (different set of symptoms). For 3 years I’ve seen a regular mild deterioration about every 14 to 18 days (I kept a log for a year) with a severe digestive symptom flare twice a year. The neurological crashes have been regular (same 14 to 18 days) but haven’t gotten any worse. Although I haven’t done a lot of research into this issue, I have mentioned the symptom flare to both my gastroenterologist and neurologist. Both said this is “normal.” I’ve certainly seen plenty of emails from women who experience a symptom flare every month as part of the hormonal shifts. So I wouldn’t worry, as long as your body recovers each time. I sometimes fall back to my intro. diet or even clear liquids for a day or two during my severe symptom episodes, then when things recover, I go back to my usual routine and am fine for another two weeks or so. Kim M. SCD 6 years >>>>>>>>>. I'm wondering how each of you tell if something is " die-off " or if you're doing or eating something that your body just can't deal with and shouldn't have? I think part of the reason I ask is that I've been SCD for at least 4 years now. I make all my own stuff, I don't eat anything illegal. Ever. But I do have a mini flare every month, no matter what (hormone related?). And this past year I've had 3 major flares. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 16, 2010 Report Share Posted February 16, 2010 I am way past periods now but I always had an IBS flare before and during the heavy part of my periods. Always. I really think this is hormone-related though I can't tell you how. I don't know what you could do about it, alas. I hope your new GYN will have some ideas. The mini flares that I have each month have something to do with my period. My colitis acts up the week before and during. It's extraordinarily miserable but I've never found anything that would help with the symptoms. The suspicion is that it's hormone related. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 16, 2010 Report Share Posted February 16, 2010 I am way past periods now but I always had an IBS flare before and during the heavy part of my periods. Always. I really think this is hormone-related though I can't tell you how. I don't know what you could do about it, alas. I hope your new GYN will have some ideas. The mini flares that I have each month have something to do with my period. My colitis acts up the week before and during. It's extraordinarily miserable but I've never found anything that would help with the symptoms. The suspicion is that it's hormone related. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 16, 2010 Report Share Posted February 16, 2010 I definitely think the hormones impact the immune system at that time. If I ever got a cold or any illness, it was that time of the month! > > I am way past periods now but I always had an IBS flare before and > during the heavy part of my periods. Always. I really think this is > hormone-related though I can't tell you how. I don't know what you > could do about it, alas. I hope your new GYN will have some ideas. > > > The mini flares that I have each month have something to do with my > period. My colitis acts up the week before and during. It's > extraordinarily miserable but I've never found anything that would > help with the symptoms. The suspicion is that it's hormone related. > Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.