Guest guest Posted February 16, 2010 Report Share Posted February 16, 2010 I definitely think the hormones impact the immune system at that time. If I ever got a cold or any illness, it was that time of the month! > > I am way past periods now but I always had an IBS flare before and > during the heavy part of my periods. Always. I really think this is > hormone-related though I can't tell you how. I don't know what you > could do about it, alas. I hope your new GYN will have some ideas. > > > The mini flares that I have each month have something to do with my > period. My colitis acts up the week before and during. It's > extraordinarily miserable but I've never found anything that would > help with the symptoms. The suspicion is that it's hormone related. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 16, 2010 Report Share Posted February 16, 2010 Could you have endometriosis? There was a woman at a crohn's board I go to who thought she had crohn's for many many years. When she finally had surgery, she found out she didn't have crohn's at all, but endometriosis. Here are a couple of links on how intestinal endometriosis can mimic crohn's: http://www.medindia.net/news/Intestinal-Endometriosis-Mimic-Crohns-Disease-33410\ -1.htm http://www.sciencedaily.com/releases/2008/02/080222101604.htm Holly Crohn's SCD 12/01/08 > > I'm wondering how each of you tell if something is " die-off " or if you're doing or eating something that your body just can't deal with and shouldn't have? I think part of the reason I ask is that I've been SCD for at least 4 years now. I make all my own stuff, I don't eat anything illegal. Ever. But I do have a mini flare every month, no matter what (hormone related?). And this past year I've had 3 major flares. We haven't been able to figure out what caused them (no infection, no sign of disease, no new foods). The starter diet isn't enough to get my symptoms under control anymore but, fortunately, I've found that my body responds really quickly to a juice fast (heh...pre-starter diet for me ) and then I can start adding one food at a time from the starter diet. During my last colonoscopy (a couple weeks ago) my doc said that there was no sign of disease and to keep doing what I'm doing. After doing this for four years it seems unlikely that these are episodes of die-off but I'm really not sure how to tell if flare symptoms and die-off symptoms seem to be the same (I say this because I've not experienced the achiness/headache/fever etc symptoms - it's always flare). So I'd like to hear how you can tell whether you're actually flaring or having to deal with die-off? > Stacey > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 16, 2010 Report Share Posted February 16, 2010 Could you have endometriosis? There was a woman at a crohn's board I go to who thought she had crohn's for many many years. When she finally had surgery, she found out she didn't have crohn's at all, but endometriosis. Here are a couple of links on how intestinal endometriosis can mimic crohn's: http://www.medindia.net/news/Intestinal-Endometriosis-Mimic-Crohns-Disease-33410\ -1.htm http://www.sciencedaily.com/releases/2008/02/080222101604.htm Holly Crohn's SCD 12/01/08 > > I'm wondering how each of you tell if something is " die-off " or if you're doing or eating something that your body just can't deal with and shouldn't have? I think part of the reason I ask is that I've been SCD for at least 4 years now. I make all my own stuff, I don't eat anything illegal. Ever. But I do have a mini flare every month, no matter what (hormone related?). And this past year I've had 3 major flares. We haven't been able to figure out what caused them (no infection, no sign of disease, no new foods). The starter diet isn't enough to get my symptoms under control anymore but, fortunately, I've found that my body responds really quickly to a juice fast (heh...pre-starter diet for me ) and then I can start adding one food at a time from the starter diet. During my last colonoscopy (a couple weeks ago) my doc said that there was no sign of disease and to keep doing what I'm doing. After doing this for four years it seems unlikely that these are episodes of die-off but I'm really not sure how to tell if flare symptoms and die-off symptoms seem to be the same (I say this because I've not experienced the achiness/headache/fever etc symptoms - it's always flare). So I'd like to hear how you can tell whether you're actually flaring or having to deal with die-off? > Stacey > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 16, 2010 Report Share Posted February 16, 2010 I will say that before I got on CLO or SCD, I had rectal bleeding and cramps every month and this was after my uterus was removed-I still have ovaries which is why I had the cramps (according to the dr.). I got on CLO before I tried SCD and the rectal bleeding went away, but I still had cramps. Since I've been on SCD, I cannot tell when I'm on my period (no cramps). So, I do believe that intestinal problems can mimic menstrual symptoms. I wish I had known that years ago. To: BTVC-SCD Sent: Tue, February 16, 2010 4:48:15 PMSubject: Re: How do you tell? Could you have endometriosis? There was a woman at a crohn's board I go to who thought she had crohn's for many many years. When she finally had surgery, she found out she didn't have crohn's at all, but endometriosis. Here are a couple of links on how intestinal endometriosis can mimic crohn's:http://www.medindia .net/news/ Intestinal- Endometriosis- Mimic-Crohns- Disease-33410- 1.htmhttp://www.scienced aily.com/ releases/ 2008/02/08022210 1604.htmHollyCrohn'sSCD 12/01/08>> I'm wondering how each of you tell if something is "die-off" or if you're doing or eating something that your body just can't deal with and shouldn't have? I think part of the reason I ask is that I've been SCD for at least 4 years now. I make all my own stuff, I don't eat anything illegal. Ever. But I do have a mini flare every month, no matter what (hormone related?). And this past year I've had 3 major flares. We haven't been able to figure out what caused them (no infection, no sign of disease, no new foods). The starter diet isn't enough to get my symptoms under control anymore but, fortunately, I've found that my body responds really quickly to a juice fast (heh...pre-starter diet for me ) and then I can start adding one food at a time from the starter diet. During my last colonoscopy (a couple weeks ago) my doc said that there was no sign of disease and to keep doing what I'm doing. After doing this for four years it seems unlikely that these are episodes of die-off but I'm really not sure how to tell if flare symptoms and die-off symptoms seem to be the same (I say this because I've not experienced the achiness/headache/ fever etc symptoms - it's always flare). So I'd like to hear how you can tell whether you're actually flaring or having to deal with die-off? > Stacey > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 16, 2010 Report Share Posted February 16, 2010 I will say that before I got on CLO or SCD, I had rectal bleeding and cramps every month and this was after my uterus was removed-I still have ovaries which is why I had the cramps (according to the dr.). I got on CLO before I tried SCD and the rectal bleeding went away, but I still had cramps. Since I've been on SCD, I cannot tell when I'm on my period (no cramps). So, I do believe that intestinal problems can mimic menstrual symptoms. I wish I had known that years ago. To: BTVC-SCD Sent: Tue, February 16, 2010 4:48:15 PMSubject: Re: How do you tell? Could you have endometriosis? There was a woman at a crohn's board I go to who thought she had crohn's for many many years. When she finally had surgery, she found out she didn't have crohn's at all, but endometriosis. Here are a couple of links on how intestinal endometriosis can mimic crohn's:http://www.medindia .net/news/ Intestinal- Endometriosis- Mimic-Crohns- Disease-33410- 1.htmhttp://www.scienced aily.com/ releases/ 2008/02/08022210 1604.htmHollyCrohn'sSCD 12/01/08>> I'm wondering how each of you tell if something is "die-off" or if you're doing or eating something that your body just can't deal with and shouldn't have? I think part of the reason I ask is that I've been SCD for at least 4 years now. I make all my own stuff, I don't eat anything illegal. Ever. But I do have a mini flare every month, no matter what (hormone related?). And this past year I've had 3 major flares. We haven't been able to figure out what caused them (no infection, no sign of disease, no new foods). The starter diet isn't enough to get my symptoms under control anymore but, fortunately, I've found that my body responds really quickly to a juice fast (heh...pre-starter diet for me ) and then I can start adding one food at a time from the starter diet. During my last colonoscopy (a couple weeks ago) my doc said that there was no sign of disease and to keep doing what I'm doing. After doing this for four years it seems unlikely that these are episodes of die-off but I'm really not sure how to tell if flare symptoms and die-off symptoms seem to be the same (I say this because I've not experienced the achiness/headache/ fever etc symptoms - it's always flare). So I'd like to hear how you can tell whether you're actually flaring or having to deal with die-off? > Stacey > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 16, 2010 Report Share Posted February 16, 2010 I've actually read about that and at one point thought it might be the case except that I have UC, not Crohn's. Plus we've seen the UC (the ulcerations, bleeding, inflammation) in the colonoscopies. I was checked for ovarian cysts many years ago (when I went to my doc with pain in my side that I thought might be endometriosis) but, like most of my ailments, nothing showed up during any of the tests. Eventually it went away on its own and comes back fairly infrequently now. Stacey > > > > I'm wondering how each of you tell if something is " die-off " or if you're doing or eating something that your body just can't deal with and shouldn't have? I think part of the reason I ask is that I've been SCD for at least 4 years now. I make all my own stuff, I don't eat anything illegal. Ever. But I do have a mini flare every month, no matter what (hormone related?). And this past year I've had 3 major flares. We haven't been able to figure out what caused them (no infection, no sign of disease, no new foods). The starter diet isn't enough to get my symptoms under control anymore but, fortunately, I've found that my body responds really quickly to a juice fast (heh...pre-starter diet for me ) and then I can start adding one food at a time from the starter diet. During my last colonoscopy (a couple weeks ago) my doc said that there was no sign of disease and to keep doing what I'm doing. After doing this for four years it seems unlikely that these are episodes of die-off but I'm really not sure how to tell if flare symptoms and die-off symptoms seem to be the same (I say this because I've not experienced the achiness/headache/fever etc symptoms - it's always flare). So I'd like to hear how you can tell whether you're actually flaring or having to deal with die-off? > > Stacey > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 16, 2010 Report Share Posted February 16, 2010 I've actually read about that and at one point thought it might be the case except that I have UC, not Crohn's. Plus we've seen the UC (the ulcerations, bleeding, inflammation) in the colonoscopies. I was checked for ovarian cysts many years ago (when I went to my doc with pain in my side that I thought might be endometriosis) but, like most of my ailments, nothing showed up during any of the tests. Eventually it went away on its own and comes back fairly infrequently now. Stacey > > > > I'm wondering how each of you tell if something is " die-off " or if you're doing or eating something that your body just can't deal with and shouldn't have? I think part of the reason I ask is that I've been SCD for at least 4 years now. I make all my own stuff, I don't eat anything illegal. Ever. But I do have a mini flare every month, no matter what (hormone related?). And this past year I've had 3 major flares. We haven't been able to figure out what caused them (no infection, no sign of disease, no new foods). The starter diet isn't enough to get my symptoms under control anymore but, fortunately, I've found that my body responds really quickly to a juice fast (heh...pre-starter diet for me ) and then I can start adding one food at a time from the starter diet. During my last colonoscopy (a couple weeks ago) my doc said that there was no sign of disease and to keep doing what I'm doing. After doing this for four years it seems unlikely that these are episodes of die-off but I'm really not sure how to tell if flare symptoms and die-off symptoms seem to be the same (I say this because I've not experienced the achiness/headache/fever etc symptoms - it's always flare). So I'd like to hear how you can tell whether you're actually flaring or having to deal with die-off? > > Stacey > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 16, 2010 Report Share Posted February 16, 2010 Oops, I gave you crohn's links. But wouldn't you know it that there are UC ones too: http://www.associatedcontent.com/article/457946/lessons_learned_about_endometrio\ sis.html?cat=52 http://www.obgyn.net/hysteroscopy/hysteroscopy.asp?page=/hysteroscopy/articles/e\ ndometriosis_bowel_symptoms Hopefully it's not that though. Life's tough enough with one disease. Holly Crohn's SCD 12/01/08 > > I've actually read about that and at one point thought it might be the case except that I have UC, not Crohn's. Plus we've seen the UC (the ulcerations, bleeding, inflammation) in the colonoscopies. I was checked for ovarian cysts many years ago (when I went to my doc with pain in my side that I thought might be endometriosis) but, like most of my ailments, nothing showed up during any of the tests. Eventually it went away on its own and comes back fairly infrequently now. > Stacey Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 16, 2010 Report Share Posted February 16, 2010 Oops, I gave you crohn's links. But wouldn't you know it that there are UC ones too: http://www.associatedcontent.com/article/457946/lessons_learned_about_endometrio\ sis.html?cat=52 http://www.obgyn.net/hysteroscopy/hysteroscopy.asp?page=/hysteroscopy/articles/e\ ndometriosis_bowel_symptoms Hopefully it's not that though. Life's tough enough with one disease. Holly Crohn's SCD 12/01/08 > > I've actually read about that and at one point thought it might be the case except that I have UC, not Crohn's. Plus we've seen the UC (the ulcerations, bleeding, inflammation) in the colonoscopies. I was checked for ovarian cysts many years ago (when I went to my doc with pain in my side that I thought might be endometriosis) but, like most of my ailments, nothing showed up during any of the tests. Eventually it went away on its own and comes back fairly infrequently now. > Stacey Quote Link to comment Share on other sites More sharing options...
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