Re: Continued blood loss with UC on diet - how long is normal?

[Guest guest]

How did they determine you were allergic to mesalamine?  I've been really anemic since being on Pentasa.  I read to take folic acid but nobody ever mentioned allergic to it.

 

Welcome ;-)

 

Debbie 40 cd houston

 

Hello,This is my first post here, so sorry if this is too much detail, but I feel a little lost about what is happening and I dont' know how much information is helpful for anwering my questions. Thank to everyone who reads this!!

Here is a brief paragraph about my history. I had painful bloating/distention from 6 rounds of antibiotics in 8 months, then started bleeding after the last round in June 09, at which time I was diagnosed with UC. I tried various dietary changes and avoided medicine until December 09 when I had a blood transfusion and started prednazone and mesalamine. The prednazone didnt' seem to help that much and has caused lots of painful side effects, but mesalamine stopped the bleeding (at that point it was 8-12/day most with blood) and I was very anemic. Turns out I am allergic to mesalamine, so I went off of that in mid-January right after starting to eat only SCD legal foods. I was on allegra for the drug rash, but when I stopped that the bleeding returned in much smaller quantities. I continued to only go 3ish times/day, less urgency, minimal pain by comparison, and less bloating/gas.

(I had also been experiencing schizophrenic symptoms that increased gradually since the first round of antibiotics, which I had to mentally turn off, and which have subsided since the transfusion and introduction of the diet.)

I just restarted with the actual beginner's diet last week and did that for 5 days (turns out the DCCC I bought for it was not legal and contained sugar). I ate a bunch of bananas for a day, because I was getting really fatigued and headachy from almost no carbs for so long. Then I ate only legal cheese/chicken soup for most of the day to restart the diet and then added in squash and spinach, which seemed to settle with me okay.

I realized bananas are not so good for me in large quantities - they cause burning. And cheese might not be good at all (gassy, bloating), so I stopped both, and seem to be doing better today. Mostly formed stools! But still bleeding since mid-January.

I was wondering how long it takes people to get better from the bleeding? My gastroenterologist had not heard of the diet - but said I could give her info about it! - and wanted me start another drug, which would take a long time to work and has many side effects. I would like to avoid medications if possible. I am just now finishing my taper with prednazone, and it is literally hell coming off of it.

I guess another question I have for people is, what do you experience when starting the diet and/or coming down from prednisone? I have had aches, joint pain, headaches, anger, fits of crying that last up to half-an-hour, inability to concentrate, fatigue (hard to walk up stairs), difficulty sleeping, violent thoughts, feeling feverish, and my planterfaciitis has come back after a couple years without it (thanks to yoga!). If all this is normal, then that's great. I just feel at a loss about what is happening to me. (I read that detoxing by starving out bacteria can cause some of this....but it feels very extreme!)

I guess one more question is, in your experience, is eating a lot of red meat (particularly beef) okay for a while in the beginning? That seems to settle best with me, and the fat in it satisfies really really bad fat cravings I've been having. Tried peanut butter once but I think that is too harsh.

Thanks to anyone who has any input on one (or all!) of my questions. I have a great naturopathic doctor, but I feel feedback from people going through this would be really helpful.Kat27 years old

Diagnosed UC June '09Meds: end of taper with prednazoneSCD foods only: Jan '10Restart at beginning of diet Feb. '10

[Guest guest]

How did they determine you were allergic to mesalamine?  I've been really anemic since being on Pentasa.  I read to take folic acid but nobody ever mentioned allergic to it.

 

Welcome ;-)

 

Debbie 40 cd houston

 

Hello,This is my first post here, so sorry if this is too much detail, but I feel a little lost about what is happening and I dont' know how much information is helpful for anwering my questions. Thank to everyone who reads this!!

Here is a brief paragraph about my history. I had painful bloating/distention from 6 rounds of antibiotics in 8 months, then started bleeding after the last round in June 09, at which time I was diagnosed with UC. I tried various dietary changes and avoided medicine until December 09 when I had a blood transfusion and started prednazone and mesalamine. The prednazone didnt' seem to help that much and has caused lots of painful side effects, but mesalamine stopped the bleeding (at that point it was 8-12/day most with blood) and I was very anemic. Turns out I am allergic to mesalamine, so I went off of that in mid-January right after starting to eat only SCD legal foods. I was on allegra for the drug rash, but when I stopped that the bleeding returned in much smaller quantities. I continued to only go 3ish times/day, less urgency, minimal pain by comparison, and less bloating/gas.

(I had also been experiencing schizophrenic symptoms that increased gradually since the first round of antibiotics, which I had to mentally turn off, and which have subsided since the transfusion and introduction of the diet.)

I just restarted with the actual beginner's diet last week and did that for 5 days (turns out the DCCC I bought for it was not legal and contained sugar). I ate a bunch of bananas for a day, because I was getting really fatigued and headachy from almost no carbs for so long. Then I ate only legal cheese/chicken soup for most of the day to restart the diet and then added in squash and spinach, which seemed to settle with me okay.

I realized bananas are not so good for me in large quantities - they cause burning. And cheese might not be good at all (gassy, bloating), so I stopped both, and seem to be doing better today. Mostly formed stools! But still bleeding since mid-January.

I was wondering how long it takes people to get better from the bleeding? My gastroenterologist had not heard of the diet - but said I could give her info about it! - and wanted me start another drug, which would take a long time to work and has many side effects. I would like to avoid medications if possible. I am just now finishing my taper with prednazone, and it is literally hell coming off of it.

I guess another question I have for people is, what do you experience when starting the diet and/or coming down from prednisone? I have had aches, joint pain, headaches, anger, fits of crying that last up to half-an-hour, inability to concentrate, fatigue (hard to walk up stairs), difficulty sleeping, violent thoughts, feeling feverish, and my planterfaciitis has come back after a couple years without it (thanks to yoga!). If all this is normal, then that's great. I just feel at a loss about what is happening to me. (I read that detoxing by starving out bacteria can cause some of this....but it feels very extreme!)

I guess one more question is, in your experience, is eating a lot of red meat (particularly beef) okay for a while in the beginning? That seems to settle best with me, and the fat in it satisfies really really bad fat cravings I've been having. Tried peanut butter once but I think that is too harsh.

Thanks to anyone who has any input on one (or all!) of my questions. I have a great naturopathic doctor, but I feel feedback from people going through this would be really helpful.Kat27 years old

Diagnosed UC June '09Meds: end of taper with prednazoneSCD foods only: Jan '10Restart at beginning of diet Feb. '10

[Guest guest]

Hi Kat

With being anemic in the past have you checked your thyroid?

Also you should look into this for your UC

http://www.lowdosenaltrexone.org/

The good thing about this is that it does not supress your immune system.

Sky

To: BTVC-SCD Sent: Fri, 19 February, 2010 1:59:45 PMSubject: Continued blood loss with UC on diet - how long is normal?

Hello,This is my first post here, so sorry if this is too much detail, but I feel a little lost about what is happening and I dont' know how much information is helpful for anwering my questions. Thank to everyone who reads this!!Here is a brief paragraph about my history. I had painful bloating/distention from 6 rounds of antibiotics in 8 months, then started bleeding after the last round in June 09, at which time I was diagnosed with UC. I tried various dietary changes and avoided medicine until December 09 when I had a blood transfusion and started prednazone and mesalamine. The prednazone didnt' seem to help that much and has caused lots of painful side effects, but mesalamine stopped the bleeding (at that point it was 8-12/day most with blood) and I was very anemic. Turns out I am allergic to mesalamine, so I went off of that in mid-January right after starting to eat only SCD legal foods. I was on allegra for the drug rash, but

when I stopped that the bleeding returned in much smaller quantities. I continued to only go 3ish times/day, less urgency, minimal pain by comparison, and less bloating/gas. (I had also been experiencing schizophrenic symptoms that increased gradually since the first round of antibiotics, which I had to mentally turn off, and which have subsided since the transfusion and introduction of the diet.)I just restarted with the actual beginner's diet last week and did that for 5 days (turns out the DCCC I bought for it was not legal and contained sugar). I ate a bunch of bananas for a day, because I was getting really fatigued and headachy from almost no carbs for so long. Then I ate only legal cheese/chicken soup for most of the day to restart the diet and then added in squash and spinach, which seemed to settle with me okay. I realized bananas are not so good for me in large quantities - they cause burning. And cheese might not be

good at all (gassy, bloating), so I stopped both, and seem to be doing better today. Mostly formed stools! But still bleeding since mid-January.I was wondering how long it takes people to get better from the bleeding? My gastroenterologist had not heard of the diet - but said I could give her info about it! - and wanted me start another drug, which would take a long time to work and has many side effects. I would like to avoid medications if possible. I am just now finishing my taper with prednazone, and it is literally hell coming off of it. I guess another question I have for people is, what do you experience when starting the diet and/or coming down from prednisone? I have had aches, joint pain, headaches, anger, fits of crying that last up to half-an-hour, inability to concentrate, fatigue (hard to walk up stairs), difficulty sleeping, violent thoughts, feeling feverish, and my planterfaciitis has come back after a couple years

without it (thanks to yoga!). If all this is normal, then that's great. I just feel at a loss about what is happening to me. (I read that detoxing by starving out bacteria can cause some of this....but it feels very extreme!)I guess one more question is, in your experience, is eating a lot of red meat (particularly beef) okay for a while in the beginning? That seems to settle best with me, and the fat in it satisfies really really bad fat cravings I've been having. Tried peanut butter once but I think that is too harsh. Thanks to anyone who has any input on one (or all!) of my questions. I have a great naturopathic doctor, but I feel feedback from people going through this would be really helpful.Kat27 years oldDiagnosed UC June '09Meds: end of taper with prednazoneSCD foods only: Jan '10Restart at beginning of diet Feb. '10

[Guest guest]

Hi Kat

With being anemic in the past have you checked your thyroid?

Also you should look into this for your UC

http://www.lowdosenaltrexone.org/

The good thing about this is that it does not supress your immune system.

Sky

To: BTVC-SCD Sent: Fri, 19 February, 2010 1:59:45 PMSubject: Continued blood loss with UC on diet - how long is normal?

Hello,This is my first post here, so sorry if this is too much detail, but I feel a little lost about what is happening and I dont' know how much information is helpful for anwering my questions. Thank to everyone who reads this!!Here is a brief paragraph about my history. I had painful bloating/distention from 6 rounds of antibiotics in 8 months, then started bleeding after the last round in June 09, at which time I was diagnosed with UC. I tried various dietary changes and avoided medicine until December 09 when I had a blood transfusion and started prednazone and mesalamine. The prednazone didnt' seem to help that much and has caused lots of painful side effects, but mesalamine stopped the bleeding (at that point it was 8-12/day most with blood) and I was very anemic. Turns out I am allergic to mesalamine, so I went off of that in mid-January right after starting to eat only SCD legal foods. I was on allegra for the drug rash, but

when I stopped that the bleeding returned in much smaller quantities. I continued to only go 3ish times/day, less urgency, minimal pain by comparison, and less bloating/gas. (I had also been experiencing schizophrenic symptoms that increased gradually since the first round of antibiotics, which I had to mentally turn off, and which have subsided since the transfusion and introduction of the diet.)I just restarted with the actual beginner's diet last week and did that for 5 days (turns out the DCCC I bought for it was not legal and contained sugar). I ate a bunch of bananas for a day, because I was getting really fatigued and headachy from almost no carbs for so long. Then I ate only legal cheese/chicken soup for most of the day to restart the diet and then added in squash and spinach, which seemed to settle with me okay. I realized bananas are not so good for me in large quantities - they cause burning. And cheese might not be

good at all (gassy, bloating), so I stopped both, and seem to be doing better today. Mostly formed stools! But still bleeding since mid-January.I was wondering how long it takes people to get better from the bleeding? My gastroenterologist had not heard of the diet - but said I could give her info about it! - and wanted me start another drug, which would take a long time to work and has many side effects. I would like to avoid medications if possible. I am just now finishing my taper with prednazone, and it is literally hell coming off of it. I guess another question I have for people is, what do you experience when starting the diet and/or coming down from prednisone? I have had aches, joint pain, headaches, anger, fits of crying that last up to half-an-hour, inability to concentrate, fatigue (hard to walk up stairs), difficulty sleeping, violent thoughts, feeling feverish, and my planterfaciitis has come back after a couple years

without it (thanks to yoga!). If all this is normal, then that's great. I just feel at a loss about what is happening to me. (I read that detoxing by starving out bacteria can cause some of this....but it feels very extreme!)I guess one more question is, in your experience, is eating a lot of red meat (particularly beef) okay for a while in the beginning? That seems to settle best with me, and the fat in it satisfies really really bad fat cravings I've been having. Tried peanut butter once but I think that is too harsh. Thanks to anyone who has any input on one (or all!) of my questions. I have a great naturopathic doctor, but I feel feedback from people going through this would be really helpful.Kat27 years oldDiagnosed UC June '09Meds: end of taper with prednazoneSCD foods only: Jan '10Restart at beginning of diet Feb. '10

[Guest guest]

Hi Kat

Sorry you've had such a rough year :/ but I'm glad you found SCD. It will help.

My son had to take a lot of steroids over the past few years and most of the current issues you describe sound like they could be from the prednisone. It's possible for some of it to be die-off or detox reactions as well, but my guess would be those awful steroids.

It sounds like you're very tuned-in to your body to know what's working for you and what's not. Congratulations! That's a big step. Steroids cause lots of cravings and I can understand why the red meat would be quite satisfying right now. Your cravings will probably balance out more after you're off the steroids.

I've never tried it myself, but several folks have recommended vitamin E enema's to help with UC and bleeding

http://curezone.com/forums/fm.asp?i=67345

..· ´¨¨)) -:¦:-Hope you're feeling better soon ¸.·´ .·´¨¨))((¸¸.·´ ..·´ -:¦:--:¦:- ((¸¸.·´*

To: BTVC-SCD Sent: Thu, February 18, 2010 9:59:45 PMSubject: Continued blood loss with UC on diet - how long is normal?

Hello,This is my first post here, so sorry if this is too much detail, but I feel a little lost about what is happening and I dont' know how much information is helpful for anwering my questions. Thank to everyone who reads this!!Here is a brief paragraph about my history. I had painful bloating/distention from 6 rounds of antibiotics in 8 months, then started bleeding after the last round in June 09, at which time I was diagnosed with UC. I tried various dietary changes and avoided medicine until December 09 when I had a blood transfusion and started prednazone and mesalamine. The prednazone didnt' seem to help that much and has caused lots of painful side effects, but mesalamine stopped the bleeding (at that point it was 8-12/day most with blood) and I was very anemic. Turns out I am allergic to mesalamine, so I went off of that in mid-January right after starting to eat only SCD legal foods. I was on allegra for the drug rash, but

when I stopped that the bleeding returned in much smaller quantities. I continued to only go 3ish times/day, less urgency, minimal pain by comparison, and less bloating/gas. (I had also been experiencing schizophrenic symptoms that increased gradually since the first round of antibiotics, which I had to mentally turn off, and which have subsided since the transfusion and introduction of the diet.)I just restarted with the actual beginner's diet last week and did that for 5 days (turns out the DCCC I bought for it was not legal and contained sugar). I ate a bunch of bananas for a day, because I was getting really fatigued and headachy from almost no carbs for so long. Then I ate only legal cheese/chicken soup for most of the day to restart the diet and then added in squash and spinach, which seemed to settle with me okay. I realized bananas are not so good for me in large quantities - they cause burning. And cheese might not be

good at all (gassy, bloating), so I stopped both, and seem to be doing better today. Mostly formed stools! But still bleeding since mid-January.I was wondering how long it takes people to get better from the bleeding? My gastroenterologist had not heard of the diet - but said I could give her info about it! - and wanted me start another drug, which would take a long time to work and has many side effects. I would like to avoid medications if possible. I am just now finishing my taper with prednazone, and it is literally hell coming off of it. I guess another question I have for people is, what do you experience when starting the diet and/or coming down from prednisone? I have had aches, joint pain, headaches, anger, fits of crying that last up to half-an-hour, inability to concentrate, fatigue (hard to walk up stairs), difficulty sleeping, violent thoughts, feeling feverish, and my planterfaciitis has come back after a couple years

without it (thanks to yoga!). If all this is normal, then that's great. I just feel at a loss about what is happening to me. (I read that detoxing by starving out bacteria can cause some of this....but it feels very extreme!)I guess one more question is, in your experience, is eating a lot of red meat (particularly beef) okay for a while in the beginning? That seems to settle best with me, and the fat in it satisfies really really bad fat cravings I've been having. Tried peanut butter once but I think that is too harsh. Thanks to anyone who has any input on one (or all!) of my questions. I have a great naturopathic doctor, but I feel feedback from people going through this would be really helpful.Kat27 years oldDiagnosed UC June '09Meds: end of taper with prednazoneSCD foods only: Jan '10Restart at beginning of diet Feb. '10

[Guest guest]

Hi Kat

Sorry you've had such a rough year :/ but I'm glad you found SCD. It will help.

My son had to take a lot of steroids over the past few years and most of the current issues you describe sound like they could be from the prednisone. It's possible for some of it to be die-off or detox reactions as well, but my guess would be those awful steroids.

It sounds like you're very tuned-in to your body to know what's working for you and what's not. Congratulations! That's a big step. Steroids cause lots of cravings and I can understand why the red meat would be quite satisfying right now. Your cravings will probably balance out more after you're off the steroids.

I've never tried it myself, but several folks have recommended vitamin E enema's to help with UC and bleeding

http://curezone.com/forums/fm.asp?i=67345

..· ´¨¨)) -:¦:-Hope you're feeling better soon ¸.·´ .·´¨¨))((¸¸.·´ ..·´ -:¦:--:¦:- ((¸¸.·´*

To: BTVC-SCD Sent: Thu, February 18, 2010 9:59:45 PMSubject: Continued blood loss with UC on diet - how long is normal?

Hello,This is my first post here, so sorry if this is too much detail, but I feel a little lost about what is happening and I dont' know how much information is helpful for anwering my questions. Thank to everyone who reads this!!Here is a brief paragraph about my history. I had painful bloating/distention from 6 rounds of antibiotics in 8 months, then started bleeding after the last round in June 09, at which time I was diagnosed with UC. I tried various dietary changes and avoided medicine until December 09 when I had a blood transfusion and started prednazone and mesalamine. The prednazone didnt' seem to help that much and has caused lots of painful side effects, but mesalamine stopped the bleeding (at that point it was 8-12/day most with blood) and I was very anemic. Turns out I am allergic to mesalamine, so I went off of that in mid-January right after starting to eat only SCD legal foods. I was on allegra for the drug rash, but

when I stopped that the bleeding returned in much smaller quantities. I continued to only go 3ish times/day, less urgency, minimal pain by comparison, and less bloating/gas. (I had also been experiencing schizophrenic symptoms that increased gradually since the first round of antibiotics, which I had to mentally turn off, and which have subsided since the transfusion and introduction of the diet.)I just restarted with the actual beginner's diet last week and did that for 5 days (turns out the DCCC I bought for it was not legal and contained sugar). I ate a bunch of bananas for a day, because I was getting really fatigued and headachy from almost no carbs for so long. Then I ate only legal cheese/chicken soup for most of the day to restart the diet and then added in squash and spinach, which seemed to settle with me okay. I realized bananas are not so good for me in large quantities - they cause burning. And cheese might not be

good at all (gassy, bloating), so I stopped both, and seem to be doing better today. Mostly formed stools! But still bleeding since mid-January.I was wondering how long it takes people to get better from the bleeding? My gastroenterologist had not heard of the diet - but said I could give her info about it! - and wanted me start another drug, which would take a long time to work and has many side effects. I would like to avoid medications if possible. I am just now finishing my taper with prednazone, and it is literally hell coming off of it. I guess another question I have for people is, what do you experience when starting the diet and/or coming down from prednisone? I have had aches, joint pain, headaches, anger, fits of crying that last up to half-an-hour, inability to concentrate, fatigue (hard to walk up stairs), difficulty sleeping, violent thoughts, feeling feverish, and my planterfaciitis has come back after a couple years

without it (thanks to yoga!). If all this is normal, then that's great. I just feel at a loss about what is happening to me. (I read that detoxing by starving out bacteria can cause some of this....but it feels very extreme!)I guess one more question is, in your experience, is eating a lot of red meat (particularly beef) okay for a while in the beginning? That seems to settle best with me, and the fat in it satisfies really really bad fat cravings I've been having. Tried peanut butter once but I think that is too harsh. Thanks to anyone who has any input on one (or all!) of my questions. I have a great naturopathic doctor, but I feel feedback from people going through this would be really helpful.Kat27 years oldDiagnosed UC June '09Meds: end of taper with prednazoneSCD foods only: Jan '10Restart at beginning of diet Feb. '10

[Guest guest]

Hi Kat,

My addition/suggestion to other valuable comments would be to

eat “SCD” yogurt at least twice a day.

Best wishes.

Ozgur

From: BTVC-SCD

[mailto:BTVC-SCD ] On Behalf Of evenstrangerquark

Sent: Friday, February 19, 2010 6:00 AM

To: BTVC-SCD

Subject: Continued blood loss with UC on diet - how long is

normal?

Hello,

This is my first post here, so sorry if this is too much detail, but I feel a

little lost about what is happening and I dont' know how much information is

helpful for anwering my questions. Thank to everyone who reads this!!

Here is a brief paragraph about my history. I had painful bloating/distention

from 6 rounds of antibiotics in 8 months, then started bleeding after the last

round in June 09, at which time I was diagnosed with UC. I tried various

dietary changes and avoided medicine until December 09 when I had a blood

transfusion and started prednazone and mesalamine. The prednazone didnt' seem

to help that much and has caused lots of painful side effects, but mesalamine

stopped the bleeding (at that point it was 8-12/day most with blood) and I was

very anemic. Turns out I am allergic to mesalamine, so I went off of that in

mid-January right after starting to eat only SCD legal foods. I was on allegra

for the drug rash, but when I stopped that the bleeding returned in much smaller

quantities. I continued to only go 3ish times/day, less urgency, minimal pain

by comparison, and less bloating/gas.

(I had also been experiencing schizophrenic symptoms that increased gradually

since the first round of antibiotics, which I had to mentally turn off, and

which have subsided since the transfusion and introduction of the diet.)

I just restarted with the actual beginner's diet last week and did that for 5

days (turns out the DCCC I bought for it was not legal and contained sugar). I

ate a bunch of bananas for a day, because I was getting really fatigued and

headachy from almost no carbs for so long. Then I ate only legal cheese/chicken

soup for most of the day to restart the diet and then added in squash and

spinach, which seemed to settle with me okay.

I realized bananas are not so good for me in large quantities - they cause

burning. And cheese might not be good at all (gassy, bloating), so I stopped

both, and seem to be doing better today. Mostly formed stools! But still

bleeding since mid-January.

I was wondering how long it takes people to get better from the bleeding? My

gastroenterologist had not heard of the diet - but said I could give her info

about it! - and wanted me start another drug, which would take a long time to

work and has many side effects. I would like to avoid medications if possible.

I am just now finishing my taper with prednazone, and it is literally hell

coming off of it.

I guess another question I have for people is, what do you experience when

starting the diet and/or coming down from prednisone? I have had aches, joint

pain, headaches, anger, fits of crying that last up to half-an-hour, inability

to concentrate, fatigue (hard to walk up stairs), difficulty sleeping, violent

thoughts, feeling feverish, and my planterfaciitis has come back after a couple

years without it (thanks to yoga!). If all this is normal, then that's great. I

just feel at a loss about what is happening to me. (I read that detoxing by

starving out bacteria can cause some of this....but it feels very extreme!)

I guess one more question is, in your experience, is eating a lot of red meat

(particularly beef) okay for a while in the beginning? That seems to settle

best with me, and the fat in it satisfies really really bad fat cravings I've

been having. Tried peanut butter once but I think that is too harsh.

Thanks to anyone who has any input on one (or all!) of my questions. I have a

great naturopathic doctor, but I feel feedback from people going through this

would be really helpful.

Kat

27 years old

Diagnosed UC June '09

Meds: end of taper with prednazone

SCD foods only: Jan '10

Restart at beginning of diet Feb. '10

Fethiye Mahallesi Havacılık Bulvarı No:17 06980 Kazan Ankara Türkiye Tel: (0312) 811 18 00 (pbx)Faks: (0312) 811 14 25 www.tai.com.tr "Bu mesaj ve ekleri mesajda gönderildiği belirtilen kişi ya da kişilere özel olup gizli bilgiler içeriyor olabilir. Mesajın muhatabı ilgilisi ya da gönderileni değilseniz lütfen mesajı herhangi bir şekilde kullanmayınız çoğaltmayınız ve başkalarına ifşa etmeyiniz. Eğer mesaj yanlışlıkla size ulaşmışsa anılan mesaj ve ekinde yer alan bilgileri gizli tutunuz ve mesajı gönderen kişiyi bilgilendirerek söz konusu mesaj ile eklerini derhal imha ediniz. Bu mesaj ve ekindeki belgelerin bilinen virüslere karşı kontrolü yapılmıştır. Ancak e-posta sistemlerinin taşıdığı risklerden dolayı şirketimiz bu mesajın ve içerdiği bilgilerin size değişikliğe uğrayarak veya geç ulaşmasından bütünlüğünün ve gizliliğinin korunamamasından virüs içermesinden ve herhangi bir sebeple bilgisayarınıza ve sisteminize verebileceği zararlardan sorumlu tutulamaz.Şirketimiz hakkında bilgi almak için lütfen web sitemizi ziyaret ediniz. (http://www.tai.com.tr)”Fethiye Mh. Havacilik Blv. No:17 06980 Kazan Ankara Turkey Tel: (90312) 811 18 00 (pbx)Fax: (90312) 811 14 25 www.tai.com.tr“This message together with its attachments is intended solely for the address(es) and may contain confidential or privileged information. If you are not the intended recipient please do not use copy or disclose the message for any purpose. Should you receive this message by mistake please keep all information contained in the message or its attachments strictly confidential and advise the sender and delete it immediately without retaining a copy. This message and its attachments have been swept by anti-virus systems for the presence of known viruses. However due to the risks of e-mail systems our company cannot accept liability for any changes or delay in receiving loss of integrity and confidentiality containing viruses and any damages caused in any way to your computer and system. To get information about our company please visit our web site. (http://www.tai.com.tr)”

[Guest guest]

Hi Kat,

My addition/suggestion to other valuable comments would be to

eat “SCD” yogurt at least twice a day.

Best wishes.

Ozgur

From: BTVC-SCD

[mailto:BTVC-SCD ] On Behalf Of evenstrangerquark

Sent: Friday, February 19, 2010 6:00 AM

To: BTVC-SCD

Subject: Continued blood loss with UC on diet - how long is

normal?

Hello,

This is my first post here, so sorry if this is too much detail, but I feel a

little lost about what is happening and I dont' know how much information is

helpful for anwering my questions. Thank to everyone who reads this!!

Here is a brief paragraph about my history. I had painful bloating/distention

from 6 rounds of antibiotics in 8 months, then started bleeding after the last

round in June 09, at which time I was diagnosed with UC. I tried various

dietary changes and avoided medicine until December 09 when I had a blood

transfusion and started prednazone and mesalamine. The prednazone didnt' seem

to help that much and has caused lots of painful side effects, but mesalamine

stopped the bleeding (at that point it was 8-12/day most with blood) and I was

very anemic. Turns out I am allergic to mesalamine, so I went off of that in

mid-January right after starting to eat only SCD legal foods. I was on allegra

for the drug rash, but when I stopped that the bleeding returned in much smaller

quantities. I continued to only go 3ish times/day, less urgency, minimal pain

by comparison, and less bloating/gas.

(I had also been experiencing schizophrenic symptoms that increased gradually

since the first round of antibiotics, which I had to mentally turn off, and

which have subsided since the transfusion and introduction of the diet.)

I just restarted with the actual beginner's diet last week and did that for 5

days (turns out the DCCC I bought for it was not legal and contained sugar). I

ate a bunch of bananas for a day, because I was getting really fatigued and

headachy from almost no carbs for so long. Then I ate only legal cheese/chicken

soup for most of the day to restart the diet and then added in squash and

spinach, which seemed to settle with me okay.

I realized bananas are not so good for me in large quantities - they cause

burning. And cheese might not be good at all (gassy, bloating), so I stopped

both, and seem to be doing better today. Mostly formed stools! But still

bleeding since mid-January.

I was wondering how long it takes people to get better from the bleeding? My

gastroenterologist had not heard of the diet - but said I could give her info

about it! - and wanted me start another drug, which would take a long time to

work and has many side effects. I would like to avoid medications if possible.

I am just now finishing my taper with prednazone, and it is literally hell

coming off of it.

I guess another question I have for people is, what do you experience when

starting the diet and/or coming down from prednisone? I have had aches, joint

pain, headaches, anger, fits of crying that last up to half-an-hour, inability

to concentrate, fatigue (hard to walk up stairs), difficulty sleeping, violent

thoughts, feeling feverish, and my planterfaciitis has come back after a couple

years without it (thanks to yoga!). If all this is normal, then that's great. I

just feel at a loss about what is happening to me. (I read that detoxing by

starving out bacteria can cause some of this....but it feels very extreme!)

I guess one more question is, in your experience, is eating a lot of red meat

(particularly beef) okay for a while in the beginning? That seems to settle

best with me, and the fat in it satisfies really really bad fat cravings I've

been having. Tried peanut butter once but I think that is too harsh.

Thanks to anyone who has any input on one (or all!) of my questions. I have a

great naturopathic doctor, but I feel feedback from people going through this

would be really helpful.

Kat

27 years old

Diagnosed UC June '09

Meds: end of taper with prednazone

SCD foods only: Jan '10

Restart at beginning of diet Feb. '10

Fethiye Mahallesi Havacılık Bulvarı No:17 06980 Kazan Ankara Türkiye Tel: (0312) 811 18 00 (pbx)Faks: (0312) 811 14 25 www.tai.com.tr "Bu mesaj ve ekleri mesajda gönderildiği belirtilen kişi ya da kişilere özel olup gizli bilgiler içeriyor olabilir. Mesajın muhatabı ilgilisi ya da gönderileni değilseniz lütfen mesajı herhangi bir şekilde kullanmayınız çoğaltmayınız ve başkalarına ifşa etmeyiniz. Eğer mesaj yanlışlıkla size ulaşmışsa anılan mesaj ve ekinde yer alan bilgileri gizli tutunuz ve mesajı gönderen kişiyi bilgilendirerek söz konusu mesaj ile eklerini derhal imha ediniz. Bu mesaj ve ekindeki belgelerin bilinen virüslere karşı kontrolü yapılmıştır. Ancak e-posta sistemlerinin taşıdığı risklerden dolayı şirketimiz bu mesajın ve içerdiği bilgilerin size değişikliğe uğrayarak veya geç ulaşmasından bütünlüğünün ve gizliliğinin korunamamasından virüs içermesinden ve herhangi bir sebeple bilgisayarınıza ve sisteminize verebileceği zararlardan sorumlu tutulamaz.Şirketimiz hakkında bilgi almak için lütfen web sitemizi ziyaret ediniz. (http://www.tai.com.tr)”Fethiye Mh. Havacilik Blv. No:17 06980 Kazan Ankara Turkey Tel: (90312) 811 18 00 (pbx)Fax: (90312) 811 14 25 www.tai.com.tr“This message together with its attachments is intended solely for the address(es) and may contain confidential or privileged information. If you are not the intended recipient please do not use copy or disclose the message for any purpose. Should you receive this message by mistake please keep all information contained in the message or its attachments strictly confidential and advise the sender and delete it immediately without retaining a copy. This message and its attachments have been swept by anti-virus systems for the presence of known viruses. However due to the risks of e-mail systems our company cannot accept liability for any changes or delay in receiving loss of integrity and confidentiality containing viruses and any damages caused in any way to your computer and system. To get information about our company please visit our web site. (http://www.tai.com.tr)”

[Guest guest]

Kat,My husband's bleeding went on for a very long time. I think it was well over a year to a year and a half with only brief periods of no bleeding mixed in. For some, it is one of the last things to go. Sounds like you are already making good progress. I would try introducing the yogurt soon. With all the anitbiotics and the prednisone for such long periods I think it is possible you have a yeast/Candida problem. It also sounds like you are having quite a bit of die-off. Take epsom salt baths (2 cups in a bath of warm water up to your navel) and soak for about 15 minutes. It will help with the detox. http://www.epsomsaltcouncil.org/health_benefits.htmHang in there, AmeliaHusband UC 9 years, SCD 20 monthsLDN 3 mgTo: BTVC-SCD Sent: Fri, February 19, 2010 3:59:45 AMSubject: Continued blood loss with UC on diet - how long is normal?

Hello,

This is my first post here, so sorry if this is too much detail, but I feel a little lost about what is happening and I dont' know how much information is helpful for anwering my questions. Thank to everyone who reads this!!

Here is a brief paragraph about my history. I had painful bloating/distention from 6 rounds of antibiotics in 8 months, then started bleeding after the last round in June 09, at which time I was diagnosed with UC. I tried various dietary changes and avoided medicine until December 09 when I had a blood transfusion and started prednazone and mesalamine. The prednazone didnt' seem to help that much and has caused lots of painful side effects, but mesalamine stopped the bleeding (at that point it was 8-12/day most with blood) and I was very anemic. Turns out I am allergic to mesalamine, so I went off of that in mid-January right after starting to eat only SCD legal foods. I was on allegra for the drug rash, but when I stopped that the bleeding returned in much smaller quantities. I continued to only go 3ish times/day, less urgency, minimal pain by comparison, and less bloating/gas.

(I had also been experiencing schizophrenic symptoms that increased gradually since the first round of antibiotics, which I had to mentally turn off, and which have subsided since the transfusion and introduction of the diet.)

I just restarted with the actual beginner's diet last week and did that for 5 days (turns out the DCCC I bought for it was not legal and contained sugar). I ate a bunch of bananas for a day, because I was getting really fatigued and headachy from almost no carbs for so long. Then I ate only legal cheese/chicken soup for most of the day to restart the diet and then added in squash and spinach, which seemed to settle with me okay.

I realized bananas are not so good for me in large quantities - they cause burning. And cheese might not be good at all (gassy, bloating), so I stopped both, and seem to be doing better today. Mostly formed stools! But still bleeding since mid-January.

I was wondering how long it takes people to get better from the bleeding? My gastroenterologist had not heard of the diet - but said I could give her info about it! - and wanted me start another drug, which would take a long time to work and has many side effects. I would like to avoid medications if possible. I am just now finishing my taper with prednazone, and it is literally hell coming off of it.

I guess another question I have for people is, what do you experience when starting the diet and/or coming down from prednisone? I have had aches, joint pain, headaches, anger, fits of crying that last up to half-an-hour, inability to concentrate, fatigue (hard to walk up stairs), difficulty sleeping, violent thoughts, feeling feverish, and my planterfaciitis has come back after a couple years without it (thanks to yoga!). If all this is normal, then that's great. I just feel at a loss about what is happening to me. (I read that detoxing by starving out bacteria can cause some of this....but it feels very extreme!)

I guess one more question is, in your experience, is eating a lot of red meat (particularly beef) okay for a while in the beginning? That seems to settle best with me, and the fat in it satisfies really really bad fat cravings I've been having. Tried peanut butter once but I think that is too harsh.

Thanks to anyone who has any input on one (or all!) of my questions. I have a great naturopathic doctor, but I feel feedback from people going through this would be really helpful.

Kat

27 years old

Diagnosed UC June '09

Meds: end of taper with prednazone

SCD foods only: Jan '10

Restart at beginning of diet Feb. '10

[Guest guest]

Kat,My husband's bleeding went on for a very long time. I think it was well over a year to a year and a half with only brief periods of no bleeding mixed in. For some, it is one of the last things to go. Sounds like you are already making good progress. I would try introducing the yogurt soon. With all the anitbiotics and the prednisone for such long periods I think it is possible you have a yeast/Candida problem. It also sounds like you are having quite a bit of die-off. Take epsom salt baths (2 cups in a bath of warm water up to your navel) and soak for about 15 minutes. It will help with the detox. http://www.epsomsaltcouncil.org/health_benefits.htmHang in there, AmeliaHusband UC 9 years, SCD 20 monthsLDN 3 mgTo: BTVC-SCD Sent: Fri, February 19, 2010 3:59:45 AMSubject: Continued blood loss with UC on diet - how long is normal?

Hello,

This is my first post here, so sorry if this is too much detail, but I feel a little lost about what is happening and I dont' know how much information is helpful for anwering my questions. Thank to everyone who reads this!!

Here is a brief paragraph about my history. I had painful bloating/distention from 6 rounds of antibiotics in 8 months, then started bleeding after the last round in June 09, at which time I was diagnosed with UC. I tried various dietary changes and avoided medicine until December 09 when I had a blood transfusion and started prednazone and mesalamine. The prednazone didnt' seem to help that much and has caused lots of painful side effects, but mesalamine stopped the bleeding (at that point it was 8-12/day most with blood) and I was very anemic. Turns out I am allergic to mesalamine, so I went off of that in mid-January right after starting to eat only SCD legal foods. I was on allegra for the drug rash, but when I stopped that the bleeding returned in much smaller quantities. I continued to only go 3ish times/day, less urgency, minimal pain by comparison, and less bloating/gas.

(I had also been experiencing schizophrenic symptoms that increased gradually since the first round of antibiotics, which I had to mentally turn off, and which have subsided since the transfusion and introduction of the diet.)

I just restarted with the actual beginner's diet last week and did that for 5 days (turns out the DCCC I bought for it was not legal and contained sugar). I ate a bunch of bananas for a day, because I was getting really fatigued and headachy from almost no carbs for so long. Then I ate only legal cheese/chicken soup for most of the day to restart the diet and then added in squash and spinach, which seemed to settle with me okay.

I realized bananas are not so good for me in large quantities - they cause burning. And cheese might not be good at all (gassy, bloating), so I stopped both, and seem to be doing better today. Mostly formed stools! But still bleeding since mid-January.

I was wondering how long it takes people to get better from the bleeding? My gastroenterologist had not heard of the diet - but said I could give her info about it! - and wanted me start another drug, which would take a long time to work and has many side effects. I would like to avoid medications if possible. I am just now finishing my taper with prednazone, and it is literally hell coming off of it.

I guess another question I have for people is, what do you experience when starting the diet and/or coming down from prednisone? I have had aches, joint pain, headaches, anger, fits of crying that last up to half-an-hour, inability to concentrate, fatigue (hard to walk up stairs), difficulty sleeping, violent thoughts, feeling feverish, and my planterfaciitis has come back after a couple years without it (thanks to yoga!). If all this is normal, then that's great. I just feel at a loss about what is happening to me. (I read that detoxing by starving out bacteria can cause some of this....but it feels very extreme!)

I guess one more question is, in your experience, is eating a lot of red meat (particularly beef) okay for a while in the beginning? That seems to settle best with me, and the fat in it satisfies really really bad fat cravings I've been having. Tried peanut butter once but I think that is too harsh.

Thanks to anyone who has any input on one (or all!) of my questions. I have a great naturopathic doctor, but I feel feedback from people going through this would be really helpful.

Kat

27 years old

Diagnosed UC June '09

Meds: end of taper with prednazone

SCD foods only: Jan '10

Restart at beginning of diet Feb. '10

[Guest guest]

Kat,

I can answer some prednisone questions . When you're on, and coming off of

prednisone, there's a huge slew of symptoms that you can potentially experience.

How intense the side effects often depends on how much you were taking at any

one time. I found that if I weened more slowly off of the drug, the side

effects weren't as bad....but then again, I was on it for 11 years so I got

pretty used to the symptoms. At the higher doses I experienced pretty much

everything you listed:

joint pain and head aches - because your body is retaining water in the joints

and cheeks. It also lowers your bone density so be sure to have that checked

and that you're getting enough calcium.

anger/violent thoughts - I nearly stabbed someone with a pencil, I kid you not.

depression - I was never going to kill myself but there were some thoughts in

that general area.

fatigue - though I think it was more related to how sick I'd been. I did have

trouble getting upstairs (which was inconvenient as my room was upstairs) but I

think that was less fatigue and more related to the steroid's effect on my

joints.

Insomnia - like you wouldn't believe!

Feverish/night sweats - seriously...it sucks to wake up drenched in sweat,

doesn't it?

Weight gain/Moon Face/Buffalo Hump - from the water retention...who comes UP

with these horrible names?

Constantly hungry - because clearly my body wants to gain MORE weight /sarcasm

Inability to concentrate - it made high school extraordinarily difficult. I

even had the added issue of falling asleep when trying to do homework.

Diluted sense of taste - everything was so bland until I started weening off it.

Lovely scars running all over my body from where my skin was stretched too much.

Loose skin that won't go away because my skin just stretched too much.

Memory loss - my memory isn't half of what it used to be now.

Mainly I experienced all that stuff when I was on the higher doses (above 20 mgs

at least). It wasn't fun at all. And when I switched from IV steriods to oral

I went through a 3 day period of excruciating pain in my knees. However, it did

help me get better. I'm surprised you thought the asacol was doing something

when the prednisone wasn't since it's always helped me. Asacol has always been

a maintenance drug. Ah well . Anyway, it sucks but it IS temporary (well,

okay for me the scars & skin stuff wasn't but everything else was!).

I'm *almost* glad that I went through it only because I'm now significantly more

in-tune with my body/mind. I'm better able to tell if my mood is being affected

by hunger or meds or another outside influence and I'm able to be sure that I'm

not going to snap at someone who doesn't deserve it. I don't know if you're

experiencing die off or not but it sounds like it's just the side effects of the

drug (from what I've experienced anyway). I just hope that they're not weening

you too quickly. Every time I got off too soon I'd just flare up again.

Hehe....but then again it took 11 years, SCD and switching to Lialda before I

was finally able to ween off completely.

The side effects are horrible, they'll make you feel crazy. But they are

temporary. You're doing an amazing thing by being on the diet while on the meds

and I hope that you get off them soon and feel drastically better!

Stacey

> I guess another question I have for people is, what do you experience when

starting the diet and/or coming down from prednisone? I have had aches, joint

pain, headaches, anger, fits of crying that last up to half-an-hour, inability

to concentrate, fatigue (hard to walk up stairs), difficulty sleeping, violent

thoughts, feeling feverish, and my planterfaciitis has come back after a couple

years without it (thanks to yoga!). If all this is normal, then that's great. I

just feel at a loss about what is happening to me. (I read that detoxing by

starving out bacteria can cause some of this....but it feels very extreme!)

>

[Guest guest]

Kat,

I can answer some prednisone questions . When you're on, and coming off of

prednisone, there's a huge slew of symptoms that you can potentially experience.

How intense the side effects often depends on how much you were taking at any

one time. I found that if I weened more slowly off of the drug, the side

effects weren't as bad....but then again, I was on it for 11 years so I got

pretty used to the symptoms. At the higher doses I experienced pretty much

everything you listed:

joint pain and head aches - because your body is retaining water in the joints

and cheeks. It also lowers your bone density so be sure to have that checked

and that you're getting enough calcium.

anger/violent thoughts - I nearly stabbed someone with a pencil, I kid you not.

depression - I was never going to kill myself but there were some thoughts in

that general area.

fatigue - though I think it was more related to how sick I'd been. I did have

trouble getting upstairs (which was inconvenient as my room was upstairs) but I

think that was less fatigue and more related to the steroid's effect on my

joints.

Insomnia - like you wouldn't believe!

Feverish/night sweats - seriously...it sucks to wake up drenched in sweat,

doesn't it?

Weight gain/Moon Face/Buffalo Hump - from the water retention...who comes UP

with these horrible names?

Constantly hungry - because clearly my body wants to gain MORE weight /sarcasm

Inability to concentrate - it made high school extraordinarily difficult. I

even had the added issue of falling asleep when trying to do homework.

Diluted sense of taste - everything was so bland until I started weening off it.

Lovely scars running all over my body from where my skin was stretched too much.

Loose skin that won't go away because my skin just stretched too much.

Memory loss - my memory isn't half of what it used to be now.

Mainly I experienced all that stuff when I was on the higher doses (above 20 mgs

at least). It wasn't fun at all. And when I switched from IV steriods to oral

I went through a 3 day period of excruciating pain in my knees. However, it did

help me get better. I'm surprised you thought the asacol was doing something

when the prednisone wasn't since it's always helped me. Asacol has always been

a maintenance drug. Ah well . Anyway, it sucks but it IS temporary (well,

okay for me the scars & skin stuff wasn't but everything else was!).

I'm *almost* glad that I went through it only because I'm now significantly more

in-tune with my body/mind. I'm better able to tell if my mood is being affected

by hunger or meds or another outside influence and I'm able to be sure that I'm

not going to snap at someone who doesn't deserve it. I don't know if you're

experiencing die off or not but it sounds like it's just the side effects of the

drug (from what I've experienced anyway). I just hope that they're not weening

you too quickly. Every time I got off too soon I'd just flare up again.

Hehe....but then again it took 11 years, SCD and switching to Lialda before I

was finally able to ween off completely.

The side effects are horrible, they'll make you feel crazy. But they are

temporary. You're doing an amazing thing by being on the diet while on the meds

and I hope that you get off them soon and feel drastically better!

Stacey

> I guess another question I have for people is, what do you experience when

starting the diet and/or coming down from prednisone? I have had aches, joint

pain, headaches, anger, fits of crying that last up to half-an-hour, inability

to concentrate, fatigue (hard to walk up stairs), difficulty sleeping, violent

thoughts, feeling feverish, and my planterfaciitis has come back after a couple

years without it (thanks to yoga!). If all this is normal, then that's great. I

just feel at a loss about what is happening to me. (I read that detoxing by

starving out bacteria can cause some of this....but it feels very extreme!)

>

[Guest guest]

> Kat,

> I can answer some prednisone questions . When you're on, and coming off of

prednisone, there's a huge slew of symptoms that you can potentially experience.

How intense the side effects often depends on how much you were taking at any

one time. I found that if I weened more slowly off of the drug, the side

effects weren't as bad....but then again, I was on it for 11 years so I got

pretty used to the symptoms. At the higher doses I experienced pretty much

everything you listed:

>

> joint pain and head aches - because your body is retaining water in the joints

and cheeks. It also lowers your bone density so be sure to have that checked

and that you're getting enough calcium.

> anger/violent thoughts - I nearly stabbed someone with a pencil, I kid you

not.

> depression - I was never going to kill myself but there were some thoughts in

that general area.

> fatigue - though I think it was more related to how sick I'd been. I did have

trouble getting upstairs (which was inconvenient as my room was upstairs) but I

think that was less fatigue and more related to the steroid's effect on my

joints.

> Insomnia - like you wouldn't believe!

nightly benadryls - otherwise impossible to sleep.

> Feverish/night sweats - seriously...it sucks to wake up drenched in sweat,

doesn't it?

I had that, too.

> Weight gain/Moon Face/Buffalo Hump - from the water retention...who comes UP

with these horrible names?

yep to weight gain - and that was only in 3 weeks. And beginning of puffy,

scary face.

> Constantly hungry - because clearly my body wants to gain MORE weight /sarcasm

Also, my muscles all over were more pliant - which meant that my stomach was

too, which

meant, not only constant hunger, but I could eat way more, too, because normal

limits

of feeling full did not apply - lovely!

> Inability to concentrate - it made high school extraordinarily difficult. I

even had the added issue of falling asleep when trying to do homework.

yep - and sometimes I felt like I was sitting in the middle of a whirlwind -

trying to be the still center.

But it is all this swirling energy that is not really useful for anything

(except eating, heh!) because

it is so hard to direct or channel.

> Diluted sense of taste - everything was so bland until I started weening off

it.

yeah - everything tasted wrong until I started on the lower dose. That was

another

reason you wanted to eat, to see if anything could taste right.

Also, balance was all wrong, which made doing things like inversions in yoga

rather

an adventure. Although doing yoga was probably the thing that kept me sanest.

Very poor impulse control.

Mara

[Guest guest]

> Kat,

> I can answer some prednisone questions . When you're on, and coming off of

prednisone, there's a huge slew of symptoms that you can potentially experience.

How intense the side effects often depends on how much you were taking at any

one time. I found that if I weened more slowly off of the drug, the side

effects weren't as bad....but then again, I was on it for 11 years so I got

pretty used to the symptoms. At the higher doses I experienced pretty much

everything you listed:

>

> joint pain and head aches - because your body is retaining water in the joints

and cheeks. It also lowers your bone density so be sure to have that checked

and that you're getting enough calcium.

> anger/violent thoughts - I nearly stabbed someone with a pencil, I kid you

not.

> depression - I was never going to kill myself but there were some thoughts in

that general area.

> fatigue - though I think it was more related to how sick I'd been. I did have

trouble getting upstairs (which was inconvenient as my room was upstairs) but I

think that was less fatigue and more related to the steroid's effect on my

joints.

> Insomnia - like you wouldn't believe!

nightly benadryls - otherwise impossible to sleep.

> Feverish/night sweats - seriously...it sucks to wake up drenched in sweat,

doesn't it?

I had that, too.

> Weight gain/Moon Face/Buffalo Hump - from the water retention...who comes UP

with these horrible names?

yep to weight gain - and that was only in 3 weeks. And beginning of puffy,

scary face.

> Constantly hungry - because clearly my body wants to gain MORE weight /sarcasm

Also, my muscles all over were more pliant - which meant that my stomach was

too, which

meant, not only constant hunger, but I could eat way more, too, because normal

limits

of feeling full did not apply - lovely!

> Inability to concentrate - it made high school extraordinarily difficult. I

even had the added issue of falling asleep when trying to do homework.

yep - and sometimes I felt like I was sitting in the middle of a whirlwind -

trying to be the still center.

But it is all this swirling energy that is not really useful for anything

(except eating, heh!) because

it is so hard to direct or channel.

> Diluted sense of taste - everything was so bland until I started weening off

it.

yeah - everything tasted wrong until I started on the lower dose. That was

another

reason you wanted to eat, to see if anything could taste right.

Also, balance was all wrong, which made doing things like inversions in yoga

rather

an adventure. Although doing yoga was probably the thing that kept me sanest.

Very poor impulse control.

Mara

[Guest guest]

WOW. I finally feel kind of normal reading the responses to this email. I've

been on prednisone for all 17 years of my disease and am hoping to get off of it

with SCD!

Kat- 2 things really struck a chord with me-

1. That your body does well with meat. Me too! I was never a big meat eater

before the diet. I still don't really love beef, but I eat a lot of buffalo. I

have fantastic days when I eat meatloaf or burgers. Crazy.

2. Your recurrence of plantar faciitis... I always get strange side effects from

the disease and medications. I've had everything from arthritis to cataracts.

But about 2 months ago I got diagnosed with plantar faciitis... only after a

week of crawling on my hands and knees at night from the pain and one emergency

room trip later... FYI- I've been stretching a lot and am convinced the night

brace I used helped it go away.

As for " normal " predisone side effects, DITTO ON EVERYTHING EVERYONE SAID!!!

Fatigue, depression, insomnia, night sweats, " moon face " , " buffalo hump " , hunger,

weight gain... it's like going through puberty for eternity. Because going to

the bathroom 15 times a day isn't embarrassing enough, why not have a big fat

face to go with it?!?!?!

Cheers to having people to share this with. GO SCD!!!

-Joanna

SCD 9/2009, Crohn's 1992

[Guest guest]

WOW. I finally feel kind of normal reading the responses to this email. I've

been on prednisone for all 17 years of my disease and am hoping to get off of it

with SCD!

Kat- 2 things really struck a chord with me-

1. That your body does well with meat. Me too! I was never a big meat eater

before the diet. I still don't really love beef, but I eat a lot of buffalo. I

have fantastic days when I eat meatloaf or burgers. Crazy.

2. Your recurrence of plantar faciitis... I always get strange side effects from

the disease and medications. I've had everything from arthritis to cataracts.

But about 2 months ago I got diagnosed with plantar faciitis... only after a

week of crawling on my hands and knees at night from the pain and one emergency

room trip later... FYI- I've been stretching a lot and am convinced the night

brace I used helped it go away.

As for " normal " predisone side effects, DITTO ON EVERYTHING EVERYONE SAID!!!

Fatigue, depression, insomnia, night sweats, " moon face " , " buffalo hump " , hunger,

weight gain... it's like going through puberty for eternity. Because going to

the bathroom 15 times a day isn't embarrassing enough, why not have a big fat

face to go with it?!?!?!

Cheers to having people to share this with. GO SCD!!!

-Joanna

SCD 9/2009, Crohn's 1992

[Guest guest]

After starting a medicine for thrush (still have it! suspected I had cadiditis

for years now but no one would believe me), I broke out in a " drug rash, " which

continued to worsen after going off the thrush medicine. Since the thrush

medicine's molecules are too large to be absorbed into the body (of course, this

not account for open lesions in digestion), and the mesalamine does get absorbed

into the body, my gastroenterologist go the opinion of another doc, who said

let's take her off the mesalamine. I did that and the drug rash symptoms

continued to get worse for a couple weeks (as to be expected) and then got

better. Along with these symptoms much of the swelling in my abdominal area went

away too. I was on allegra to stop the rash, since it was like have a burning

red, dry puffy soar all over your body for a few weeks, and when I went off of

that the bleeding came back.

I have thought that maybe antihistamines could be helpful in the future to

control bleeding, but have not suggested this to anyone yet. Currently I am on

quercetin - which stopped histamine-containing white blood cells from being so

hair-trigger-response - as well as a different thrush medicine.

I'm not sure if an allergic reaction could cause anemia. One thing my naturopath

told me is the the body can also sequester iron during a bacterial infection

because bacteria feed on the iron too - they love it - so the anemia can become

worse even if there is technically more iron in the body itself. I suppose any

drug that interferes in some way with iron absorbtion or utilization would

induce anemia too. I'd do some research into the drug, but also look at more

obvious symptoms like blood loss through heavy menstruation, or bleeding. If

you're not absorbing nutrition you may have to double up on doses of iron and

other vitamins like B (and a little bit of C, although it is acidic) in order to

absorb the iron better.

Kat

>

> >

> >

> > Hello,

> >

> > This is my first post here, so sorry if this is too much detail, but I feel

> > a little lost about what is happening and I dont' know how much information

> > is helpful for anwering my questions. Thank to everyone who reads this!!

> >

> > Here is a brief paragraph about my history. I had painful

> > bloating/distention from 6 rounds of antibiotics in 8 months, then started

> > bleeding after the last round in June 09, at which time I was diagnosed with

> > UC. I tried various dietary changes and avoided medicine until December 09

> > when I had a blood transfusion and started prednazone and mesalamine. The

> > prednazone didnt' seem to help that much and has caused lots of painful side

> > effects, but mesalamine stopped the bleeding (at that point it was 8-12/day

> > most with blood) and I was very anemic. Turns out I am allergic to

> > mesalamine, so I went off of that in mid-January right after starting to eat

> > only SCD legal foods. I was on allegra for the drug rash, but when I stopped

> > that the bleeding returned in much smaller quantities. I continued to only

> > go 3ish times/day, less urgency, minimal pain by comparison, and less

> > bloating/gas.

> >

> > (I had also been experiencing schizophrenic symptoms that increased

> > gradually since the first round of antibiotics, which I had to mentally turn

> > off, and which have subsided since the transfusion and introduction of the

> > diet.)

> >

> > I just restarted with the actual beginner's diet last week and did that for

> > 5 days (turns out the DCCC I bought for it was not legal and contained

> > sugar). I ate a bunch of bananas for a day, because I was getting really

> > fatigued and headachy from almost no carbs for so long. Then I ate only

> > legal cheese/chicken soup for most of the day to restart the diet and then

> > added in squash and spinach, which seemed to settle with me okay.

> >

> > I realized bananas are not so good for me in large quantities - they cause

> > burning. And cheese might not be good at all (gassy, bloating), so I stopped

> > both, and seem to be doing better today. Mostly formed stools! But still

> > bleeding since mid-January.

> >

> > I was wondering how long it takes people to get better from the bleeding?

> > My gastroenterologist had not heard of the diet - but said I could give her

> > info about it! - and wanted me start another drug, which would take a long

> > time to work and has many side effects. I would like to avoid medications if

> > possible. I am just now finishing my taper with prednazone, and it is

> > literally hell coming off of it.

> >

> > I guess another question I have for people is, what do you experience when

> > starting the diet and/or coming down from prednisone? I have had aches,

> > joint pain, headaches, anger, fits of crying that last up to half-an-hour,

> > inability to concentrate, fatigue (hard to walk up stairs), difficulty

> > sleeping, violent thoughts, feeling feverish, and my planterfaciitis has

> > come back after a couple years without it (thanks to yoga!). If all this is

> > normal, then that's great. I just feel at a loss about what is happening to

> > me. (I read that detoxing by starving out bacteria can cause some of

> > this....but it feels very extreme!)

> >

> > I guess one more question is, in your experience, is eating a lot of red

> > meat (particularly beef) okay for a while in the beginning? That seems to

> > settle best with me, and the fat in it satisfies really really bad fat

> > cravings I've been having. Tried peanut butter once but I think that is too

> > harsh.

> >

> > Thanks to anyone who has any input on one (or all!) of my questions. I have

> > a great naturopathic doctor, but I feel feedback from people going through

> > this would be really helpful.

> >

> > Kat

> >

> > 27 years old

> >

> > Diagnosed UC June '09

> >

> > Meds: end of taper with prednazone

> >

> > SCD foods only: Jan '10

> > Restart at beginning of diet Feb. '10

> >

> >

> >

>

[Guest guest]

After starting a medicine for thrush (still have it! suspected I had cadiditis

for years now but no one would believe me), I broke out in a " drug rash, " which

continued to worsen after going off the thrush medicine. Since the thrush

medicine's molecules are too large to be absorbed into the body (of course, this

not account for open lesions in digestion), and the mesalamine does get absorbed

into the body, my gastroenterologist go the opinion of another doc, who said

let's take her off the mesalamine. I did that and the drug rash symptoms

continued to get worse for a couple weeks (as to be expected) and then got

better. Along with these symptoms much of the swelling in my abdominal area went

away too. I was on allegra to stop the rash, since it was like have a burning

red, dry puffy soar all over your body for a few weeks, and when I went off of

that the bleeding came back.

I have thought that maybe antihistamines could be helpful in the future to

control bleeding, but have not suggested this to anyone yet. Currently I am on

quercetin - which stopped histamine-containing white blood cells from being so

hair-trigger-response - as well as a different thrush medicine.

I'm not sure if an allergic reaction could cause anemia. One thing my naturopath

told me is the the body can also sequester iron during a bacterial infection

because bacteria feed on the iron too - they love it - so the anemia can become

worse even if there is technically more iron in the body itself. I suppose any

drug that interferes in some way with iron absorbtion or utilization would

induce anemia too. I'd do some research into the drug, but also look at more

obvious symptoms like blood loss through heavy menstruation, or bleeding. If

you're not absorbing nutrition you may have to double up on doses of iron and

other vitamins like B (and a little bit of C, although it is acidic) in order to

absorb the iron better.

Kat

>

> >

> >

> > Hello,

> >

> > This is my first post here, so sorry if this is too much detail, but I feel

> > a little lost about what is happening and I dont' know how much information

> > is helpful for anwering my questions. Thank to everyone who reads this!!

> >

> > Here is a brief paragraph about my history. I had painful

> > bloating/distention from 6 rounds of antibiotics in 8 months, then started

> > bleeding after the last round in June 09, at which time I was diagnosed with

> > UC. I tried various dietary changes and avoided medicine until December 09

> > when I had a blood transfusion and started prednazone and mesalamine. The

> > prednazone didnt' seem to help that much and has caused lots of painful side

> > effects, but mesalamine stopped the bleeding (at that point it was 8-12/day

> > most with blood) and I was very anemic. Turns out I am allergic to

> > mesalamine, so I went off of that in mid-January right after starting to eat

> > only SCD legal foods. I was on allegra for the drug rash, but when I stopped

> > that the bleeding returned in much smaller quantities. I continued to only

> > go 3ish times/day, less urgency, minimal pain by comparison, and less

> > bloating/gas.

> >

> > (I had also been experiencing schizophrenic symptoms that increased

> > gradually since the first round of antibiotics, which I had to mentally turn

> > off, and which have subsided since the transfusion and introduction of the

> > diet.)

> >

> > I just restarted with the actual beginner's diet last week and did that for

> > 5 days (turns out the DCCC I bought for it was not legal and contained

> > sugar). I ate a bunch of bananas for a day, because I was getting really

> > fatigued and headachy from almost no carbs for so long. Then I ate only

> > legal cheese/chicken soup for most of the day to restart the diet and then

> > added in squash and spinach, which seemed to settle with me okay.

> >

> > I realized bananas are not so good for me in large quantities - they cause

> > burning. And cheese might not be good at all (gassy, bloating), so I stopped

> > both, and seem to be doing better today. Mostly formed stools! But still

> > bleeding since mid-January.

> >

> > I was wondering how long it takes people to get better from the bleeding?

> > My gastroenterologist had not heard of the diet - but said I could give her

> > info about it! - and wanted me start another drug, which would take a long

> > time to work and has many side effects. I would like to avoid medications if

> > possible. I am just now finishing my taper with prednazone, and it is

> > literally hell coming off of it.

> >

> > I guess another question I have for people is, what do you experience when

> > starting the diet and/or coming down from prednisone? I have had aches,

> > joint pain, headaches, anger, fits of crying that last up to half-an-hour,

> > inability to concentrate, fatigue (hard to walk up stairs), difficulty

> > sleeping, violent thoughts, feeling feverish, and my planterfaciitis has

> > come back after a couple years without it (thanks to yoga!). If all this is

> > normal, then that's great. I just feel at a loss about what is happening to

> > me. (I read that detoxing by starving out bacteria can cause some of

> > this....but it feels very extreme!)

> >

> > I guess one more question is, in your experience, is eating a lot of red

> > meat (particularly beef) okay for a while in the beginning? That seems to

> > settle best with me, and the fat in it satisfies really really bad fat

> > cravings I've been having. Tried peanut butter once but I think that is too

> > harsh.

> >

> > Thanks to anyone who has any input on one (or all!) of my questions. I have

> > a great naturopathic doctor, but I feel feedback from people going through

> > this would be really helpful.

> >

> > Kat

> >

> > 27 years old

> >

> > Diagnosed UC June '09

> >

> > Meds: end of taper with prednazone

> >

> > SCD foods only: Jan '10

> > Restart at beginning of diet Feb. '10

> >

> >

> >

>

[Guest guest]

Thanks. Yeah, my naturopath wanted to wait until I was off of the prednisone

before testing my thyroid. I think prednisone must affect its function. But

yeah, I have suspected weird thyroid function as well as candiditis for years

now. Another naturopath suspected it a three years ago but when I saw an

endocrinologist, he said my levels were " within normal range " according to Group

Health, my HMO. Of course, they also told me my vitamin D levels were normal

when all the naturopaths I have seen have looked at the same numbers and said

they were very low and prescribed big doses off it as a suppliment.

I have had autoimmune disorders since I was born, but I lost my hair for four

years until last year - was constantly fatigued, depressed, anxious, weird heart

things, constantly had/continue to have layer of fat everywhere despite lots of

exercise. I will see what the results show from the blood test soon. Thanks for

your thoughts.

I'll also check out the link and ask my naturopath about it.

Kat

>

> Hi Kat

>

> With being anemic in the past have you checked your thyroid?

> Also you should look into this for your UC

> http://www.lowdosenaltrexone.org/

> The good thing about this is that it does not supress your immune system.

>

> Sky

>

>

> ________________________________

>

> To: BTVC-SCD

> Sent: Fri, 19 February, 2010 1:59:45 PM

> Subject: Continued blood loss with UC on diet - how long is normal?

>

>  

> Hello,

>

> This is my first post here, so sorry if this is too much detail, but I feel a

little lost about what is happening and I dont' know how much information is

helpful for anwering my questions. Thank to everyone who reads this!!

>

> Here is a brief paragraph about my history. I had painful bloating/distention

from 6 rounds of antibiotics in 8 months, then started bleeding after the last

round in June 09, at which time I was diagnosed with UC. I tried various dietary

changes and avoided medicine until December 09 when I had a blood transfusion

and started prednazone and mesalamine. The prednazone didnt' seem to help that

much and has caused lots of painful side effects, but mesalamine stopped the

bleeding (at that point it was 8-12/day most with blood) and I was very anemic.

Turns out I am allergic to mesalamine, so I went off of that in mid-January

right after starting to eat only SCD legal foods. I was on allegra for the drug

rash, but when I stopped that the bleeding returned in much smaller quantities.

I continued to only go 3ish times/day, less urgency, minimal pain by comparison,

and less bloating/gas.

>

> (I had also been experiencing schizophrenic symptoms that increased gradually

since the first round of antibiotics, which I had to mentally turn off, and

which have subsided since the transfusion and introduction of the diet.)

>

> I just restarted with the actual beginner's diet last week and did that for 5

days (turns out the DCCC I bought for it was not legal and contained sugar). I

ate a bunch of bananas for a day, because I was getting really fatigued and

headachy from almost no carbs for so long. Then I ate only legal cheese/chicken

soup for most of the day to restart the diet and then added in squash and

spinach, which seemed to settle with me okay.

>

> I realized bananas are not so good for me in large quantities - they cause

burning. And cheese might not be good at all (gassy, bloating), so I stopped

both, and seem to be doing better today. Mostly formed stools! But still

bleeding since mid-January.

>

> I was wondering how long it takes people to get better from the bleeding? My

gastroenterologist had not heard of the diet - but said I could give her info

about it! - and wanted me start another drug, which would take a long time to

work and has many side effects. I would like to avoid medications if possible. I

am just now finishing my taper with prednazone, and it is literally hell coming

off of it.

>

> I guess another question I have for people is, what do you experience when

starting the diet and/or coming down from prednisone? I have had aches, joint

pain, headaches, anger, fits of crying that last up to half-an-hour, inability

to concentrate, fatigue (hard to walk up stairs), difficulty sleeping, violent

thoughts, feeling feverish, and my planterfaciitis has come back after a couple

years without it (thanks to yoga!). If all this is normal, then that's great. I

just feel at a loss about what is happening to me. (I read that detoxing by

starving out bacteria can cause some of this....but it feels very extreme!)

>

> I guess one more question is, in your experience, is eating a lot of red meat

(particularly beef) okay for a while in the beginning? That seems to settle best

with me, and the fat in it satisfies really really bad fat cravings I've been

having. Tried peanut butter once but I think that is too harsh.

>

> Thanks to anyone who has any input on one (or all!) of my questions. I have a

great naturopathic doctor, but I feel feedback from people going through this

would be really helpful.

>

> Kat

>

> 27 years old

>

> Diagnosed UC June '09

>

> Meds: end of taper with prednazone

>

> SCD foods only: Jan '10

> Restart at beginning of diet Feb. '10

>

>

>

>

>

>

________________________________________________________________________________\

__

> Yahoo!7: Catch-up on your favourite Channel 7 TV shows easily, legally, and

for free at PLUS7. www.tv.yahoo.com.au/plus7

>

[Guest guest]

Thanks. Yeah, my naturopath wanted to wait until I was off of the prednisone

before testing my thyroid. I think prednisone must affect its function. But

yeah, I have suspected weird thyroid function as well as candiditis for years

now. Another naturopath suspected it a three years ago but when I saw an

endocrinologist, he said my levels were " within normal range " according to Group

Health, my HMO. Of course, they also told me my vitamin D levels were normal

when all the naturopaths I have seen have looked at the same numbers and said

they were very low and prescribed big doses off it as a suppliment.

I have had autoimmune disorders since I was born, but I lost my hair for four

years until last year - was constantly fatigued, depressed, anxious, weird heart

things, constantly had/continue to have layer of fat everywhere despite lots of

exercise. I will see what the results show from the blood test soon. Thanks for

your thoughts.

I'll also check out the link and ask my naturopath about it.

Kat

>

> Hi Kat

>

> With being anemic in the past have you checked your thyroid?

> Also you should look into this for your UC

> http://www.lowdosenaltrexone.org/

> The good thing about this is that it does not supress your immune system.

>

> Sky

>

>

> ________________________________

>

> To: BTVC-SCD

> Sent: Fri, 19 February, 2010 1:59:45 PM

> Subject: Continued blood loss with UC on diet - how long is normal?

>

>  

> Hello,

>

> This is my first post here, so sorry if this is too much detail, but I feel a

little lost about what is happening and I dont' know how much information is

helpful for anwering my questions. Thank to everyone who reads this!!

>

> Here is a brief paragraph about my history. I had painful bloating/distention

from 6 rounds of antibiotics in 8 months, then started bleeding after the last

round in June 09, at which time I was diagnosed with UC. I tried various dietary

changes and avoided medicine until December 09 when I had a blood transfusion

and started prednazone and mesalamine. The prednazone didnt' seem to help that

much and has caused lots of painful side effects, but mesalamine stopped the

bleeding (at that point it was 8-12/day most with blood) and I was very anemic.

Turns out I am allergic to mesalamine, so I went off of that in mid-January

right after starting to eat only SCD legal foods. I was on allegra for the drug

rash, but when I stopped that the bleeding returned in much smaller quantities.

I continued to only go 3ish times/day, less urgency, minimal pain by comparison,

and less bloating/gas.

>

> (I had also been experiencing schizophrenic symptoms that increased gradually

since the first round of antibiotics, which I had to mentally turn off, and

which have subsided since the transfusion and introduction of the diet.)

>

> I just restarted with the actual beginner's diet last week and did that for 5

days (turns out the DCCC I bought for it was not legal and contained sugar). I

ate a bunch of bananas for a day, because I was getting really fatigued and

headachy from almost no carbs for so long. Then I ate only legal cheese/chicken

soup for most of the day to restart the diet and then added in squash and

spinach, which seemed to settle with me okay.

>

> I realized bananas are not so good for me in large quantities - they cause

burning. And cheese might not be good at all (gassy, bloating), so I stopped

both, and seem to be doing better today. Mostly formed stools! But still

bleeding since mid-January.

>

> I was wondering how long it takes people to get better from the bleeding? My

gastroenterologist had not heard of the diet - but said I could give her info

about it! - and wanted me start another drug, which would take a long time to

work and has many side effects. I would like to avoid medications if possible. I

am just now finishing my taper with prednazone, and it is literally hell coming

off of it.

>

> I guess another question I have for people is, what do you experience when

starting the diet and/or coming down from prednisone? I have had aches, joint

pain, headaches, anger, fits of crying that last up to half-an-hour, inability

to concentrate, fatigue (hard to walk up stairs), difficulty sleeping, violent

thoughts, feeling feverish, and my planterfaciitis has come back after a couple

years without it (thanks to yoga!). If all this is normal, then that's great. I

just feel at a loss about what is happening to me. (I read that detoxing by

starving out bacteria can cause some of this....but it feels very extreme!)

>

> I guess one more question is, in your experience, is eating a lot of red meat

(particularly beef) okay for a while in the beginning? That seems to settle best

with me, and the fat in it satisfies really really bad fat cravings I've been

having. Tried peanut butter once but I think that is too harsh.

>

> Thanks to anyone who has any input on one (or all!) of my questions. I have a

great naturopathic doctor, but I feel feedback from people going through this

would be really helpful.

>

> Kat

>

> 27 years old

>

> Diagnosed UC June '09

>

> Meds: end of taper with prednazone

>

> SCD foods only: Jan '10

> Restart at beginning of diet Feb. '10

>

>

>

>

>

>

________________________________________________________________________________\

__

> Yahoo!7: Catch-up on your favourite Channel 7 TV shows easily, legally, and

for free at PLUS7. www.tv.yahoo.com.au/plus7

>

[Guest guest]

> After starting a medicine for thrush (still have it! suspected I had cadiditis

for years now but no one would believe me), I broke out in a " drug rash, " which

continued to worsen after going off the thrush medicine. Since the thrush

medicine's molecules are too large to be absorbed into the body (of course, this

not account for open lesions in digestion), and the mesalamine does get absorbed

into the body, my gastroenterologist go the opinion of another doc, who said

let's take her off the mesalamine. I did that and the drug rash symptoms

continued to get worse for a couple weeks (as to be expected) and then got

better. Along with these symptoms much of the swelling in my abdominal area went

away too. I was on allegra to stop the rash, since it was like have a burning

red, dry puffy soar all over your body for a few weeks, and when I went off of

that the bleeding came back.

>

> I have thought that maybe antihistamines could be helpful in the future to

control bleeding, but have not suggested this to anyone yet.

If it worked, that would just be a way of controlling the symptoms, not getting

rid of the root cause.

> Currently I am on quercetin - which stopped histamine-containing white blood

cells from being so hair-trigger-response - as well as a different thrush

medicine.

I'm unfamiliar with quercetin - just looked it up and read about it - how is

that working

out for you?

>

> I'm not sure if an allergic reaction could cause anemia.

Menstrual age females often have some level of anemia, because the " normative "

levels

were determined based on the male bell curve.

Also - you are bleeding - so anemia follows along with that.

> One thing my naturopath told me is the the body can also sequester iron during

a bacterial infection because bacteria feed on the iron too - they love it - so

the anemia can become worse even if there is technically more iron in the body

itself.

That is very interesting. I bet they use it to help build their

biofilm condominium structures.

> I suppose any drug that interferes in some way with iron absorbtion or

utilization would induce anemia too. I'd do some research into the drug, but

also look at more obvious symptoms like blood loss through heavy menstruation,

or bleeding. If you're not absorbing nutrition you may have to double up on

doses of iron

Iron pills are discouraged on SCD because they can cause gut irritation.

People with very low iron take it through IVs.

I've forgotten if someone has yet suggested the Vitamin E enema to you to help

stop the bleeding. In your case, though, given your range of sensitivities, I

would definitely start out with a very small dose, if you are interested in it:

http://curezone.com/forums/fm.asp?i=67345

And also, just seconding Sky in suggesting the low dose naltrexone, which

is great for auto-immune conditions.

And if beef and beef fat is what is working best for you at the moment, go

with it. You could also make beef bone soup for intro, which is delicious.

Have you tried ghee/butter or coconut oil for alternate healthy fats?

Mara

[Guest guest]

> After starting a medicine for thrush (still have it! suspected I had cadiditis

for years now but no one would believe me), I broke out in a " drug rash, " which

continued to worsen after going off the thrush medicine. Since the thrush

medicine's molecules are too large to be absorbed into the body (of course, this

not account for open lesions in digestion), and the mesalamine does get absorbed

into the body, my gastroenterologist go the opinion of another doc, who said

let's take her off the mesalamine. I did that and the drug rash symptoms

continued to get worse for a couple weeks (as to be expected) and then got

better. Along with these symptoms much of the swelling in my abdominal area went

away too. I was on allegra to stop the rash, since it was like have a burning

red, dry puffy soar all over your body for a few weeks, and when I went off of

that the bleeding came back.

>

> I have thought that maybe antihistamines could be helpful in the future to

control bleeding, but have not suggested this to anyone yet.

If it worked, that would just be a way of controlling the symptoms, not getting

rid of the root cause.

> Currently I am on quercetin - which stopped histamine-containing white blood

cells from being so hair-trigger-response - as well as a different thrush

medicine.

I'm unfamiliar with quercetin - just looked it up and read about it - how is

that working

out for you?

>

> I'm not sure if an allergic reaction could cause anemia.

Menstrual age females often have some level of anemia, because the " normative "

levels

were determined based on the male bell curve.

Also - you are bleeding - so anemia follows along with that.

> One thing my naturopath told me is the the body can also sequester iron during

a bacterial infection because bacteria feed on the iron too - they love it - so

the anemia can become worse even if there is technically more iron in the body

itself.

That is very interesting. I bet they use it to help build their

biofilm condominium structures.

> I suppose any drug that interferes in some way with iron absorbtion or

utilization would induce anemia too. I'd do some research into the drug, but

also look at more obvious symptoms like blood loss through heavy menstruation,

or bleeding. If you're not absorbing nutrition you may have to double up on

doses of iron

Iron pills are discouraged on SCD because they can cause gut irritation.

People with very low iron take it through IVs.

I've forgotten if someone has yet suggested the Vitamin E enema to you to help

stop the bleeding. In your case, though, given your range of sensitivities, I

would definitely start out with a very small dose, if you are interested in it:

http://curezone.com/forums/fm.asp?i=67345

And also, just seconding Sky in suggesting the low dose naltrexone, which

is great for auto-immune conditions.

And if beef and beef fat is what is working best for you at the moment, go

with it. You could also make beef bone soup for intro, which is delicious.

Have you tried ghee/butter or coconut oil for alternate healthy fats?

Mara

[Guest guest]

> I'm unfamiliar with quercetin - just looked it up and read about it - how is

that working

> out for you?

I dont' feel like I have a way of knowing. I started just after I started

bleeding again after stopping allegra. Some things have been better. Some worse.

But I have also restarted the diet since then, and tried different foods, etc.

So no way of knowing.

> Iron pills are discouraged on SCD because they can cause gut irritation.

> People with very low iron take it through IVs.

Wow. I read that in the book, or somewhere. I told my naturopath about it and

she said when my feritin levels are back up then we could think about not using

the iron pills. I am taking gentle iron (25 mg iron) 2-3 times/day. I was

concerned that it would feed the bacteria, but I also don't want to become more

anemic. I am just now not seeing weird black things in my vision moving all the

time and able to walk up stairs ok most of the time. I would be all for another

blood transfusion if it was necessary. Do you (or anyone else) know how bad it

is to be taking iron?

I haven't tried the butters or vitamin E enemas, or the naltrexone. I'll look

into those. I am taking vitamin E every day at 400IU I think, plus cod liver

oil, primrose oil, rhodiola (an adaptogen that works on cortisol regulation),

and a bunch of vitamin B, D, A, multivitamins, biotin (for hair loss), and I

think more things I can't remember right now.

Thanks for all the information. I am not eating dairy right now, which has

decreased bloating I think but not helped with the bleeding. I will start the

homemake yogurt soon and see if that helps.

Kat

>

> > After starting a medicine for thrush (still have it! suspected I had

cadiditis for years now but no one would believe me), I broke out in a " drug

rash, " which continued to worsen after going off the thrush medicine. Since the

thrush medicine's molecules are too large to be absorbed into the body (of

course, this not account for open lesions in digestion), and the mesalamine does

get absorbed into the body, my gastroenterologist go the opinion of another doc,

who said let's take her off the mesalamine. I did that and the drug rash

symptoms continued to get worse for a couple weeks (as to be expected) and then

got better. Along with these symptoms much of the swelling in my abdominal area

went away too. I was on allegra to stop the rash, since it was like have a

burning red, dry puffy soar all over your body for a few weeks, and when I went

off of that the bleeding came back.

> >

> > I have thought that maybe antihistamines could be helpful in the future to

control bleeding, but have not suggested this to anyone yet.

>

> If it worked, that would just be a way of controlling the symptoms, not

getting rid of the root cause.

>

> > Currently I am on quercetin - which stopped histamine-containing white blood

cells from being so hair-trigger-response - as well as a different thrush

medicine.

>

> I'm unfamiliar with quercetin - just looked it up and read about it - how is

that working

> out for you?

>

> >

> > I'm not sure if an allergic reaction could cause anemia.

>

> Menstrual age females often have some level of anemia, because the " normative "

levels

> were determined based on the male bell curve.

>

> Also - you are bleeding - so anemia follows along with that.

>

> > One thing my naturopath told me is the the body can also sequester iron

during a bacterial infection because bacteria feed on the iron too - they love

it - so the anemia can become worse even if there is technically more iron in

the body itself.

>

> That is very interesting. I bet they use it to help build their

> biofilm condominium structures.

>

> > I suppose any drug that interferes in some way with iron absorbtion or

utilization would induce anemia too. I'd do some research into the drug, but

also look at more obvious symptoms like blood loss through heavy menstruation,

or bleeding. If you're not absorbing nutrition you may have to double up on

doses of iron

>

> Iron pills are discouraged on SCD because they can cause gut irritation.

> People with very low iron take it through IVs.

>

> I've forgotten if someone has yet suggested the Vitamin E enema to you to help

> stop the bleeding. In your case, though, given your range of sensitivities, I

> would definitely start out with a very small dose, if you are interested in

it:

>

> http://curezone.com/forums/fm.asp?i=67345

>

> And also, just seconding Sky in suggesting the low dose naltrexone, which

> is great for auto-immune conditions.

>

> And if beef and beef fat is what is working best for you at the moment, go

> with it. You could also make beef bone soup for intro, which is delicious.

>

> Have you tried ghee/butter or coconut oil for alternate healthy fats?

>

> Mara

>

[Guest guest]

> I'm unfamiliar with quercetin - just looked it up and read about it - how is

that working

> out for you?

I dont' feel like I have a way of knowing. I started just after I started

bleeding again after stopping allegra. Some things have been better. Some worse.

But I have also restarted the diet since then, and tried different foods, etc.

So no way of knowing.

> Iron pills are discouraged on SCD because they can cause gut irritation.

> People with very low iron take it through IVs.

Wow. I read that in the book, or somewhere. I told my naturopath about it and

she said when my feritin levels are back up then we could think about not using

the iron pills. I am taking gentle iron (25 mg iron) 2-3 times/day. I was

concerned that it would feed the bacteria, but I also don't want to become more

anemic. I am just now not seeing weird black things in my vision moving all the

time and able to walk up stairs ok most of the time. I would be all for another

blood transfusion if it was necessary. Do you (or anyone else) know how bad it

is to be taking iron?

I haven't tried the butters or vitamin E enemas, or the naltrexone. I'll look

into those. I am taking vitamin E every day at 400IU I think, plus cod liver

oil, primrose oil, rhodiola (an adaptogen that works on cortisol regulation),

and a bunch of vitamin B, D, A, multivitamins, biotin (for hair loss), and I

think more things I can't remember right now.

Thanks for all the information. I am not eating dairy right now, which has

decreased bloating I think but not helped with the bleeding. I will start the

homemake yogurt soon and see if that helps.

Kat

>

> > After starting a medicine for thrush (still have it! suspected I had

cadiditis for years now but no one would believe me), I broke out in a " drug

rash, " which continued to worsen after going off the thrush medicine. Since the

thrush medicine's molecules are too large to be absorbed into the body (of

course, this not account for open lesions in digestion), and the mesalamine does

get absorbed into the body, my gastroenterologist go the opinion of another doc,

who said let's take her off the mesalamine. I did that and the drug rash

symptoms continued to get worse for a couple weeks (as to be expected) and then

got better. Along with these symptoms much of the swelling in my abdominal area

went away too. I was on allegra to stop the rash, since it was like have a

burning red, dry puffy soar all over your body for a few weeks, and when I went

off of that the bleeding came back.

> >

> > I have thought that maybe antihistamines could be helpful in the future to

control bleeding, but have not suggested this to anyone yet.

>

> If it worked, that would just be a way of controlling the symptoms, not

getting rid of the root cause.

>

> > Currently I am on quercetin - which stopped histamine-containing white blood

cells from being so hair-trigger-response - as well as a different thrush

medicine.

>

> I'm unfamiliar with quercetin - just looked it up and read about it - how is

that working

> out for you?

>

> >

> > I'm not sure if an allergic reaction could cause anemia.

>

> Menstrual age females often have some level of anemia, because the " normative "

levels

> were determined based on the male bell curve.

>

> Also - you are bleeding - so anemia follows along with that.

>

> > One thing my naturopath told me is the the body can also sequester iron

during a bacterial infection because bacteria feed on the iron too - they love

it - so the anemia can become worse even if there is technically more iron in

the body itself.

>

> That is very interesting. I bet they use it to help build their

> biofilm condominium structures.

>

> > I suppose any drug that interferes in some way with iron absorbtion or

utilization would induce anemia too. I'd do some research into the drug, but

also look at more obvious symptoms like blood loss through heavy menstruation,

or bleeding. If you're not absorbing nutrition you may have to double up on

doses of iron

>

> Iron pills are discouraged on SCD because they can cause gut irritation.

> People with very low iron take it through IVs.

>

> I've forgotten if someone has yet suggested the Vitamin E enema to you to help

> stop the bleeding. In your case, though, given your range of sensitivities, I

> would definitely start out with a very small dose, if you are interested in

it:

>

> http://curezone.com/forums/fm.asp?i=67345

>

> And also, just seconding Sky in suggesting the low dose naltrexone, which

> is great for auto-immune conditions.

>

> And if beef and beef fat is what is working best for you at the moment, go

> with it. You could also make beef bone soup for intro, which is delicious.

>

> Have you tried ghee/butter or coconut oil for alternate healthy fats?

>

> Mara

>

[Guest guest]

Amelia,

Thanks for the info about your husband. It is good to know I am not alone, and

that even if I keep bleeding for a while, I may still be healing, just taking

time.

Does the yogurt help with candiditis? I'm pretty sure I had it since I had

thrush after starting prednisone, and I suspected I had it years ago but no one

would diagnose it.

I did start the epsom salt baths, and they do help I think! Aches and pains are

reduced a lot! It is wonderful to be able to lay down comfortably for the first

time in a long time. The violent thoughts and inability to focus, etc. is all

getting better (except certain times of day! I get really angry for a couple

hours and then it's okay again).

Thanks so much for your help.

Kat

>

> Kat,

>

> My husband's bleeding went on for a very long time. I think it was well over

a year to a year and a half with only brief periods of no bleeding mixed in.

For some, it is one of the last things to go. Sounds like you are already

making good progress. I would try introducing the yogurt soon. With all the

anitbiotics and the prednisone for such long periods I think it is possible you

have a yeast/Candida problem. It also sounds like you are having quite a bit of

die-off. Take epsom salt baths (2 cups in a bath of warm water up to your

navel) and soak for about 15 minutes. It will help with the detox.

http://www.epsomsaltcouncil.org/health_benefits.htm

>

> Hang in there,

>

> Amelia

> Husband UC 9 years, SCD 20 months

> LDN 3 mg

>

>

>

>

> ________________________________

>

> To: BTVC-SCD

> Sent: Fri, February 19, 2010 3:59:45 AM

> Subject: Continued blood loss with UC on diet - how long is normal?

>

>

> Hello,

>

> This is my first post here, so sorry if this is too much detail, but I feel a

little lost about what is happening and I dont' know how much information is

helpful for anwering my questions. Thank to everyone who reads this!!

>

> Here is a brief paragraph about my history. I had painful bloating/distention

from 6 rounds of antibiotics in 8 months, then started bleeding after the last

round in June 09, at which time I was diagnosed with UC. I tried various dietary

changes and avoided medicine until December 09 when I had a blood transfusion

and started prednazone and mesalamine. The prednazone didnt' seem to help that

much and has caused lots of painful side effects, but mesalamine stopped the

bleeding (at that point it was 8-12/day most with blood) and I was very anemic.

Turns out I am allergic to mesalamine, so I went off of that in mid-January

right after starting to eat only SCD legal foods. I was on allegra for the drug

rash, but when I stopped that the bleeding returned in much smaller quantities.

I continued to only go 3ish times/day, less urgency, minimal pain by comparison,

and less bloating/gas.

>

> (I had also been experiencing schizophrenic symptoms that increased gradually

since the first round of antibiotics, which I had to mentally turn off, and

which have subsided since the transfusion and introduction of the diet.)

>

> I just restarted with the actual beginner's diet last week and did that for 5

days (turns out the DCCC I bought for it was not legal and contained sugar). I

ate a bunch of bananas for a day, because I was getting really fatigued and

headachy from almost no carbs for so long. Then I ate only legal cheese/chicken

soup for most of the day to restart the diet and then added in squash and

spinach, which seemed to settle with me okay.

>

> I realized bananas are not so good for me in large quantities - they cause

burning. And cheese might not be good at all (gassy, bloating), so I stopped

both, and seem to be doing better today. Mostly formed stools! But still

bleeding since mid-January.

>

> I was wondering how long it takes people to get better from the bleeding? My

gastroenterologist had not heard of the diet - but said I could give her info

about it! - and wanted me start another drug, which would take a long time to

work and has many side effects. I would like to avoid medications if possible. I

am just now finishing my taper with prednazone, and it is literally hell coming

off of it.

>

> I guess another question I have for people is, what do you experience when

starting the diet and/or coming down from prednisone? I have had aches, joint

pain, headaches, anger, fits of crying that last up to half-an-hour, inability

to concentrate, fatigue (hard to walk up stairs), difficulty sleeping, violent

thoughts, feeling feverish, and my planterfaciitis has come back after a couple

years without it (thanks to yoga!). If all this is normal, then that's great. I

just feel at a loss about what is happening to me. (I read that detoxing by

starving out bacteria can cause some of this....but it feels very extreme!)

>

> I guess one more question is, in your experience, is eating a lot of red meat

(particularly beef) okay for a while in the beginning? That seems to settle best

with me, and the fat in it satisfies really really bad fat cravings I've been

having. Tried peanut butter once but I think that is too harsh.

>

> Thanks to anyone who has any input on one (or all!) of my questions. I have a

great naturopathic doctor, but I feel feedback from people going through this

would be really helpful.

>

> Kat

>

> 27 years old

>

> Diagnosed UC June '09

>

> Meds: end of taper with prednazone

>

> SCD foods only: Jan '10

> Restart at beginning of diet Feb. '10

>