Re: Continued blood loss with UC on diet - how long is normal?

[Guest guest]

Amelia,

Thanks for the info about your husband. It is good to know I am not alone, and

that even if I keep bleeding for a while, I may still be healing, just taking

time.

Does the yogurt help with candiditis? I'm pretty sure I had it since I had

thrush after starting prednisone, and I suspected I had it years ago but no one

would diagnose it.

I did start the epsom salt baths, and they do help I think! Aches and pains are

reduced a lot! It is wonderful to be able to lay down comfortably for the first

time in a long time. The violent thoughts and inability to focus, etc. is all

getting better (except certain times of day! I get really angry for a couple

hours and then it's okay again).

Thanks so much for your help.

Kat

>

> Kat,

>

> My husband's bleeding went on for a very long time. I think it was well over

a year to a year and a half with only brief periods of no bleeding mixed in.

For some, it is one of the last things to go. Sounds like you are already

making good progress. I would try introducing the yogurt soon. With all the

anitbiotics and the prednisone for such long periods I think it is possible you

have a yeast/Candida problem. It also sounds like you are having quite a bit of

die-off. Take epsom salt baths (2 cups in a bath of warm water up to your

navel) and soak for about 15 minutes. It will help with the detox.

http://www.epsomsaltcouncil.org/health_benefits.htm

>

> Hang in there,

>

> Amelia

> Husband UC 9 years, SCD 20 months

> LDN 3 mg

>

>

>

>

> ________________________________

>

> To: BTVC-SCD

> Sent: Fri, February 19, 2010 3:59:45 AM

> Subject: Continued blood loss with UC on diet - how long is normal?

>

>

> Hello,

>

> This is my first post here, so sorry if this is too much detail, but I feel a

little lost about what is happening and I dont' know how much information is

helpful for anwering my questions. Thank to everyone who reads this!!

>

> Here is a brief paragraph about my history. I had painful bloating/distention

from 6 rounds of antibiotics in 8 months, then started bleeding after the last

round in June 09, at which time I was diagnosed with UC. I tried various dietary

changes and avoided medicine until December 09 when I had a blood transfusion

and started prednazone and mesalamine. The prednazone didnt' seem to help that

much and has caused lots of painful side effects, but mesalamine stopped the

bleeding (at that point it was 8-12/day most with blood) and I was very anemic.

Turns out I am allergic to mesalamine, so I went off of that in mid-January

right after starting to eat only SCD legal foods. I was on allegra for the drug

rash, but when I stopped that the bleeding returned in much smaller quantities.

I continued to only go 3ish times/day, less urgency, minimal pain by comparison,

and less bloating/gas.

>

> (I had also been experiencing schizophrenic symptoms that increased gradually

since the first round of antibiotics, which I had to mentally turn off, and

which have subsided since the transfusion and introduction of the diet.)

>

> I just restarted with the actual beginner's diet last week and did that for 5

days (turns out the DCCC I bought for it was not legal and contained sugar). I

ate a bunch of bananas for a day, because I was getting really fatigued and

headachy from almost no carbs for so long. Then I ate only legal cheese/chicken

soup for most of the day to restart the diet and then added in squash and

spinach, which seemed to settle with me okay.

>

> I realized bananas are not so good for me in large quantities - they cause

burning. And cheese might not be good at all (gassy, bloating), so I stopped

both, and seem to be doing better today. Mostly formed stools! But still

bleeding since mid-January.

>

> I was wondering how long it takes people to get better from the bleeding? My

gastroenterologist had not heard of the diet - but said I could give her info

about it! - and wanted me start another drug, which would take a long time to

work and has many side effects. I would like to avoid medications if possible. I

am just now finishing my taper with prednazone, and it is literally hell coming

off of it.

>

> I guess another question I have for people is, what do you experience when

starting the diet and/or coming down from prednisone? I have had aches, joint

pain, headaches, anger, fits of crying that last up to half-an-hour, inability

to concentrate, fatigue (hard to walk up stairs), difficulty sleeping, violent

thoughts, feeling feverish, and my planterfaciitis has come back after a couple

years without it (thanks to yoga!). If all this is normal, then that's great. I

just feel at a loss about what is happening to me. (I read that detoxing by

starving out bacteria can cause some of this....but it feels very extreme!)

>

> I guess one more question is, in your experience, is eating a lot of red meat

(particularly beef) okay for a while in the beginning? That seems to settle best

with me, and the fat in it satisfies really really bad fat cravings I've been

having. Tried peanut butter once but I think that is too harsh.

>

> Thanks to anyone who has any input on one (or all!) of my questions. I have a

great naturopathic doctor, but I feel feedback from people going through this

would be really helpful.

>

> Kat

>

> 27 years old

>

> Diagnosed UC June '09

>

> Meds: end of taper with prednazone

>

> SCD foods only: Jan '10

> Restart at beginning of diet Feb. '10

>

[Guest guest]

Hi ,

Thanks. Yeah, I'm taking rhodiola to help my body adapt to making more cortisol,

and I have energy again during the day and I am experiencing less of the weird

die-off/prednisone withdrawal symptoms. Glad to know the cravings will go down

too! Lately I keep thinking about sugary things, which I know are forbidden. It

does get easier. I started taking epsom salt baths and those help I think. Plus

time.

Kat

>

> Hi Kat

> Sorry you've had such a rough year :/ but I'm glad you found SCD.  It will

help.

>

> My son had to take a lot of steroids over the past few years and most of the

current issues you describe sound like they could be from the prednisone. 

It's possible for some of it to be die-off or detox reactions as well, but my

guess would be those awful steroids. 

>

> It sounds like you're very tuned-in to your body to know what's working for

you and what's not. Congratulations!  That's a big step.  Steroids cause lots

of cravings and I can understand why the red meat would be quite satisfying

right now.  Your cravings will probably balance out more after you're off the

steroids.   

>

> I've never tried it myself, but several folks have recommended vitamin E

enema's to help with UC and bleeding

> http://curezone.com/forums/fm.asp?i=67345

> ..· ´¨¨)) -:¦:-Hope you're feeling better soon

> ¸.·´ .·´¨¨))

> ((¸¸.·´ ..·´ -:¦:-

> -:¦:- ((¸¸.·´*

>

>

>

>

> ________________________________

>

> To: BTVC-SCD

> Sent: Thu, February 18, 2010 9:59:45 PM

> Subject: Continued blood loss with UC on diet - how long is normal?

>

>  

> Hello,

>

> This is my first post here, so sorry if this is too much detail, but I feel a

little lost about what is happening and I dont' know how much information is

helpful for anwering my questions. Thank to everyone who reads this!!

>

> Here is a brief paragraph about my history. I had painful bloating/distention

from 6 rounds of antibiotics in 8 months, then started bleeding after the last

round in June 09, at which time I was diagnosed with UC. I tried various dietary

changes and avoided medicine until December 09 when I had a blood transfusion

and started prednazone and mesalamine. The prednazone didnt' seem to help that

much and has caused lots of painful side effects, but mesalamine stopped the

bleeding (at that point it was 8-12/day most with blood) and I was very anemic.

Turns out I am allergic to mesalamine, so I went off of that in mid-January

right after starting to eat only SCD legal foods. I was on allegra for the drug

rash, but when I stopped that the bleeding returned in much smaller quantities.

I continued to only go 3ish times/day, less urgency, minimal pain by comparison,

and less bloating/gas.

>

> (I had also been experiencing schizophrenic symptoms that increased gradually

since the first round of antibiotics, which I had to mentally turn off, and

which have subsided since the transfusion and introduction of the diet.)

>

> I just restarted with the actual beginner's diet last week and did that for 5

days (turns out the DCCC I bought for it was not legal and contained sugar). I

ate a bunch of bananas for a day, because I was getting really fatigued and

headachy from almost no carbs for so long. Then I ate only legal cheese/chicken

soup for most of the day to restart the diet and then added in squash and

spinach, which seemed to settle with me okay.

>

> I realized bananas are not so good for me in large quantities - they cause

burning. And cheese might not be good at all (gassy, bloating), so I stopped

both, and seem to be doing better today. Mostly formed stools! But still

bleeding since mid-January.

>

> I was wondering how long it takes people to get better from the bleeding? My

gastroenterologist had not heard of the diet - but said I could give her info

about it! - and wanted me start another drug, which would take a long time to

work and has many side effects. I would like to avoid medications if possible. I

am just now finishing my taper with prednazone, and it is literally hell coming

off of it.

>

> I guess another question I have for people is, what do you experience when

starting the diet and/or coming down from prednisone? I have had aches, joint

pain, headaches, anger, fits of crying that last up to half-an-hour, inability

to concentrate, fatigue (hard to walk up stairs), difficulty sleeping, violent

thoughts, feeling feverish, and my planterfaciitis has come back after a couple

years without it (thanks to yoga!). If all this is normal, then that's great. I

just feel at a loss about what is happening to me. (I read that detoxing by

starving out bacteria can cause some of this....but it feels very extreme!)

>

> I guess one more question is, in your experience, is eating a lot of red meat

(particularly beef) okay for a while in the beginning? That seems to settle best

with me, and the fat in it satisfies really really bad fat cravings I've been

having. Tried peanut butter once but I think that is too harsh.

>

> Thanks to anyone who has any input on one (or all!) of my questions. I have a

great naturopathic doctor, but I feel feedback from people going through this

would be really helpful.

>

> Kat

>

> 27 years old

>

> Diagnosed UC June '09

>

> Meds: end of taper with prednazone

>

> SCD foods only: Jan '10

> Restart at beginning of diet Feb. '10

>

[Guest guest]

Hi ,

Thanks. Yeah, I'm taking rhodiola to help my body adapt to making more cortisol,

and I have energy again during the day and I am experiencing less of the weird

die-off/prednisone withdrawal symptoms. Glad to know the cravings will go down

too! Lately I keep thinking about sugary things, which I know are forbidden. It

does get easier. I started taking epsom salt baths and those help I think. Plus

time.

Kat

>

> Hi Kat

> Sorry you've had such a rough year :/ but I'm glad you found SCD.  It will

help.

>

> My son had to take a lot of steroids over the past few years and most of the

current issues you describe sound like they could be from the prednisone. 

It's possible for some of it to be die-off or detox reactions as well, but my

guess would be those awful steroids. 

>

> It sounds like you're very tuned-in to your body to know what's working for

you and what's not. Congratulations!  That's a big step.  Steroids cause lots

of cravings and I can understand why the red meat would be quite satisfying

right now.  Your cravings will probably balance out more after you're off the

steroids.   

>

> I've never tried it myself, but several folks have recommended vitamin E

enema's to help with UC and bleeding

> http://curezone.com/forums/fm.asp?i=67345

> ..· ´¨¨)) -:¦:-Hope you're feeling better soon

> ¸.·´ .·´¨¨))

> ((¸¸.·´ ..·´ -:¦:-

> -:¦:- ((¸¸.·´*

>

>

>

>

> ________________________________

>

> To: BTVC-SCD

> Sent: Thu, February 18, 2010 9:59:45 PM

> Subject: Continued blood loss with UC on diet - how long is normal?

>

>  

> Hello,

>

> This is my first post here, so sorry if this is too much detail, but I feel a

little lost about what is happening and I dont' know how much information is

helpful for anwering my questions. Thank to everyone who reads this!!

>

> Here is a brief paragraph about my history. I had painful bloating/distention

from 6 rounds of antibiotics in 8 months, then started bleeding after the last

round in June 09, at which time I was diagnosed with UC. I tried various dietary

changes and avoided medicine until December 09 when I had a blood transfusion

and started prednazone and mesalamine. The prednazone didnt' seem to help that

much and has caused lots of painful side effects, but mesalamine stopped the

bleeding (at that point it was 8-12/day most with blood) and I was very anemic.

Turns out I am allergic to mesalamine, so I went off of that in mid-January

right after starting to eat only SCD legal foods. I was on allegra for the drug

rash, but when I stopped that the bleeding returned in much smaller quantities.

I continued to only go 3ish times/day, less urgency, minimal pain by comparison,

and less bloating/gas.

>

> (I had also been experiencing schizophrenic symptoms that increased gradually

since the first round of antibiotics, which I had to mentally turn off, and

which have subsided since the transfusion and introduction of the diet.)

>

> I just restarted with the actual beginner's diet last week and did that for 5

days (turns out the DCCC I bought for it was not legal and contained sugar). I

ate a bunch of bananas for a day, because I was getting really fatigued and

headachy from almost no carbs for so long. Then I ate only legal cheese/chicken

soup for most of the day to restart the diet and then added in squash and

spinach, which seemed to settle with me okay.

>

> I realized bananas are not so good for me in large quantities - they cause

burning. And cheese might not be good at all (gassy, bloating), so I stopped

both, and seem to be doing better today. Mostly formed stools! But still

bleeding since mid-January.

>

> I was wondering how long it takes people to get better from the bleeding? My

gastroenterologist had not heard of the diet - but said I could give her info

about it! - and wanted me start another drug, which would take a long time to

work and has many side effects. I would like to avoid medications if possible. I

am just now finishing my taper with prednazone, and it is literally hell coming

off of it.

>

> I guess another question I have for people is, what do you experience when

starting the diet and/or coming down from prednisone? I have had aches, joint

pain, headaches, anger, fits of crying that last up to half-an-hour, inability

to concentrate, fatigue (hard to walk up stairs), difficulty sleeping, violent

thoughts, feeling feverish, and my planterfaciitis has come back after a couple

years without it (thanks to yoga!). If all this is normal, then that's great. I

just feel at a loss about what is happening to me. (I read that detoxing by

starving out bacteria can cause some of this....but it feels very extreme!)

>

> I guess one more question is, in your experience, is eating a lot of red meat

(particularly beef) okay for a while in the beginning? That seems to settle best

with me, and the fat in it satisfies really really bad fat cravings I've been

having. Tried peanut butter once but I think that is too harsh.

>

> Thanks to anyone who has any input on one (or all!) of my questions. I have a

great naturopathic doctor, but I feel feedback from people going through this

would be really helpful.

>

> Kat

>

> 27 years old

>

> Diagnosed UC June '09

>

> Meds: end of taper with prednazone

>

> SCD foods only: Jan '10

> Restart at beginning of diet Feb. '10

>

[Guest guest]

Stacie,

Thanks for so much information. I am concerned that I was coming off too quickly

but my naturopath said I was handling it well and that the sooner the better.

However, since my bleeding seems to be getting worse again lately (I'm done as

of today with prednisone having started at 40mg/daily orally), I am concerned

that I'll just have to get on another med or back on prednisone again. My

gastroenterologist warned me that coming down might cause another flair, but the

next available med didn' sound too promising. It was mesalamine I was allergic

to, not asacol. I'm not familiar with that one.

I do feel I am much more tuned into what is motivating my behavior and feelings

now, but I just want this to be done! I have had several years of different

autoimmune disorders and feel like I lost my '20s to them, so I want to get

better! But yes, going through this is a tremendous source of knowledge about

myself and human strength, and how to accept help from others, and what my

priorities in life are (living coming first!).

Thanks for all the info about being on/coming off prednisone. I totally believe

you almost stabbed someone with a pencil. I have been close!

Kat

> > I guess another question I have for people is, what do you experience when

starting the diet and/or coming down from prednisone? I have had aches, joint

pain, headaches, anger, fits of crying that last up to half-an-hour, inability

to concentrate, fatigue (hard to walk up stairs), difficulty sleeping, violent

thoughts, feeling feverish, and my planterfaciitis has come back after a couple

years without it (thanks to yoga!). If all this is normal, then that's great. I

just feel at a loss about what is happening to me. (I read that detoxing by

starving out bacteria can cause some of this....but it feels very extreme!)

> >

>

[Guest guest]

Stacie,

Thanks for so much information. I am concerned that I was coming off too quickly

but my naturopath said I was handling it well and that the sooner the better.

However, since my bleeding seems to be getting worse again lately (I'm done as

of today with prednisone having started at 40mg/daily orally), I am concerned

that I'll just have to get on another med or back on prednisone again. My

gastroenterologist warned me that coming down might cause another flair, but the

next available med didn' sound too promising. It was mesalamine I was allergic

to, not asacol. I'm not familiar with that one.

I do feel I am much more tuned into what is motivating my behavior and feelings

now, but I just want this to be done! I have had several years of different

autoimmune disorders and feel like I lost my '20s to them, so I want to get

better! But yes, going through this is a tremendous source of knowledge about

myself and human strength, and how to accept help from others, and what my

priorities in life are (living coming first!).

Thanks for all the info about being on/coming off prednisone. I totally believe

you almost stabbed someone with a pencil. I have been close!

Kat

> > I guess another question I have for people is, what do you experience when

starting the diet and/or coming down from prednisone? I have had aches, joint

pain, headaches, anger, fits of crying that last up to half-an-hour, inability

to concentrate, fatigue (hard to walk up stairs), difficulty sleeping, violent

thoughts, feeling feverish, and my planterfaciitis has come back after a couple

years without it (thanks to yoga!). If all this is normal, then that's great. I

just feel at a loss about what is happening to me. (I read that detoxing by

starving out bacteria can cause some of this....but it feels very extreme!)

> >

>

[Guest guest]

On the planter faciitis, my thoughts are that I actually had some colitis-like

stuff going on when I was 12 that never completely went away. I had excruciating

pain going to the bathroom and chronic constipation since then, plus

halucinations. I got planter faciitis then, but i also had hips that were

misaligned - no one else noticed this but I did! And one side of my face that

was always measured to be lower than the other. Weird unrelated things right?

Except that after extensive body work and 1.5 years of yoga after 2 car

accidents, the faciitis, hip pain, back pain, neck pain, headaches, hair loss,

knee pain, etc. was all going away. With the ulcerative colitis, it all came

back - bam. All at once. I always feel like I am being " mushed " out of shape by

the internal swelling, and that my facial tissue gets taught, and restricts

blood flow to extremities, as well as making joints hurt because they are no

longer in positions to support the organism, being mushed out of place and all.

That's my theory! It would make sense that your night brace would have helped.

Yoga is the best thing for me, and exercise and getting enough sleep so that the

central nervous system has a chance to be repaired.

I really admire you! I was crawling for a while too and finally hospitalized

after arguments from me that it wasn't necessary - I'm not sure if it was the

anemia or inability to ask for help that was a stronger influence on that.

I am curious - you said you have been on prednisone for 17 years now! I am

bleeding more as I go off of it, while on the diet. I am afraid I may have to go

back on it again...and I am afraid of course of things not working. And I am

afraid of the effects of prednisone making my concentration too bad to finish my

schoolwork, losing my financial aid and having to quit school a second time due

to illness. My boyfriend left me because I was sick and didn't have an athletic

body anymore, and I am afraid of being sick for a long time and having to miss

out on life because of it.

How have you coped with your illness? Sometimes I get so upset at each

disappointment - each time I thought I was getting better and I wasn't. It is so

hard sometimes to keep trying to push my body to the maximum it can handle so

that I can continue doing what I have to do have money to buy food and pay rent,

and I let go of having a social life after just barely feeling able to have one

after many years of other illnesses.

Any advice would help. Maybe this is another thread. I feel silly for asking

this stuff but it just feels hard.

Kat

>

> WOW. I finally feel kind of normal reading the responses to this email. I've

been on prednisone for all 17 years of my disease and am hoping to get off of it

with SCD!

>

> Kat- 2 things really struck a chord with me-

> 1. That your body does well with meat. Me too! I was never a big meat eater

before the diet. I still don't really love beef, but I eat a lot of buffalo. I

have fantastic days when I eat meatloaf or burgers. Crazy.

> 2. Your recurrence of plantar faciitis... I always get strange side effects

from the disease and medications. I've had everything from arthritis to

cataracts. But about 2 months ago I got diagnosed with plantar faciitis... only

after a week of crawling on my hands and knees at night from the pain and one

emergency room trip later... FYI- I've been stretching a lot and am convinced

the night brace I used helped it go away.

>

> As for " normal " predisone side effects, DITTO ON EVERYTHING EVERYONE SAID!!!

Fatigue, depression, insomnia, night sweats, " moon face " , " buffalo hump " , hunger,

weight gain... it's like going through puberty for eternity. Because going to

the bathroom 15 times a day isn't embarrassing enough, why not have a big fat

face to go with it?!?!?!

>

> Cheers to having people to share this with. GO SCD!!!

> -Joanna

> SCD 9/2009, Crohn's 1992

>

[Guest guest]

On the planter faciitis, my thoughts are that I actually had some colitis-like

stuff going on when I was 12 that never completely went away. I had excruciating

pain going to the bathroom and chronic constipation since then, plus

halucinations. I got planter faciitis then, but i also had hips that were

misaligned - no one else noticed this but I did! And one side of my face that

was always measured to be lower than the other. Weird unrelated things right?

Except that after extensive body work and 1.5 years of yoga after 2 car

accidents, the faciitis, hip pain, back pain, neck pain, headaches, hair loss,

knee pain, etc. was all going away. With the ulcerative colitis, it all came

back - bam. All at once. I always feel like I am being " mushed " out of shape by

the internal swelling, and that my facial tissue gets taught, and restricts

blood flow to extremities, as well as making joints hurt because they are no

longer in positions to support the organism, being mushed out of place and all.

That's my theory! It would make sense that your night brace would have helped.

Yoga is the best thing for me, and exercise and getting enough sleep so that the

central nervous system has a chance to be repaired.

I really admire you! I was crawling for a while too and finally hospitalized

after arguments from me that it wasn't necessary - I'm not sure if it was the

anemia or inability to ask for help that was a stronger influence on that.

I am curious - you said you have been on prednisone for 17 years now! I am

bleeding more as I go off of it, while on the diet. I am afraid I may have to go

back on it again...and I am afraid of course of things not working. And I am

afraid of the effects of prednisone making my concentration too bad to finish my

schoolwork, losing my financial aid and having to quit school a second time due

to illness. My boyfriend left me because I was sick and didn't have an athletic

body anymore, and I am afraid of being sick for a long time and having to miss

out on life because of it.

How have you coped with your illness? Sometimes I get so upset at each

disappointment - each time I thought I was getting better and I wasn't. It is so

hard sometimes to keep trying to push my body to the maximum it can handle so

that I can continue doing what I have to do have money to buy food and pay rent,

and I let go of having a social life after just barely feeling able to have one

after many years of other illnesses.

Any advice would help. Maybe this is another thread. I feel silly for asking

this stuff but it just feels hard.

Kat

>

> WOW. I finally feel kind of normal reading the responses to this email. I've

been on prednisone for all 17 years of my disease and am hoping to get off of it

with SCD!

>

> Kat- 2 things really struck a chord with me-

> 1. That your body does well with meat. Me too! I was never a big meat eater

before the diet. I still don't really love beef, but I eat a lot of buffalo. I

have fantastic days when I eat meatloaf or burgers. Crazy.

> 2. Your recurrence of plantar faciitis... I always get strange side effects

from the disease and medications. I've had everything from arthritis to

cataracts. But about 2 months ago I got diagnosed with plantar faciitis... only

after a week of crawling on my hands and knees at night from the pain and one

emergency room trip later... FYI- I've been stretching a lot and am convinced

the night brace I used helped it go away.

>

> As for " normal " predisone side effects, DITTO ON EVERYTHING EVERYONE SAID!!!

Fatigue, depression, insomnia, night sweats, " moon face " , " buffalo hump " , hunger,

weight gain... it's like going through puberty for eternity. Because going to

the bathroom 15 times a day isn't embarrassing enough, why not have a big fat

face to go with it?!?!?!

>

> Cheers to having people to share this with. GO SCD!!!

> -Joanna

> SCD 9/2009, Crohn's 1992

>

[Guest guest]

Hi Kat

Sorry to say but that is just plain wrong naturopath said about prednisone. Prednisone does not affect thyroid. If you have suspected you havea thyroid problem should get tested. It is a sad thing but Endo's do have a clue when it comes to thyroid disease. Your symptoms below sound a lot like thyroid and adrenal. The longer we leave our thyroid without treatment the worse it gets.http://www.stopthethyroidmadness.com/long-and-pathetic/

http://www.stopthethyroidmadness.com/thyroid-depression-mental-health/

http://www.stopthethyroidmadness.com/tsh-why-its-useless/

http://www.stopthethyroidmadness.com/ferritin/

http://www.stopthethyroidmadness.com/t4-only-meds-dont-work/

Do you have any thyroid labs. You can post them to me offline if you want to.

Sky

To: BTVC-SCD Sent: Sun, 21 February, 2010 7:06:09 AMSubject: Re: Continued blood loss with UC on diet - how long is normal?

I have had autoimmune disorders since I was born, but I lost my hair for four years until last year - was constantly fatigued, depressed, anxious, weird heart things, constantly had/continue to have layer of fat everywhere despite lots of exercise. I will see what the results show from the blood test soon. Thanks for your thoughts.I'll also check out the link and ask my naturopath about it.Kat> > ____________ _________ _________ __> Switch to: Text-Only, Daily Digest • Unsubscribe • Terms of Use

..

[Guest guest]

Hi Kat

Sorry to say but that is just plain wrong naturopath said about prednisone. Prednisone does not affect thyroid. If you have suspected you havea thyroid problem should get tested. It is a sad thing but Endo's do have a clue when it comes to thyroid disease. Your symptoms below sound a lot like thyroid and adrenal. The longer we leave our thyroid without treatment the worse it gets.http://www.stopthethyroidmadness.com/long-and-pathetic/

http://www.stopthethyroidmadness.com/thyroid-depression-mental-health/

http://www.stopthethyroidmadness.com/tsh-why-its-useless/

http://www.stopthethyroidmadness.com/ferritin/

http://www.stopthethyroidmadness.com/t4-only-meds-dont-work/

Do you have any thyroid labs. You can post them to me offline if you want to.

Sky

To: BTVC-SCD Sent: Sun, 21 February, 2010 7:06:09 AMSubject: Re: Continued blood loss with UC on diet - how long is normal?

I have had autoimmune disorders since I was born, but I lost my hair for four years until last year - was constantly fatigued, depressed, anxious, weird heart things, constantly had/continue to have layer of fat everywhere despite lots of exercise. I will see what the results show from the blood test soon. Thanks for your thoughts.I'll also check out the link and ask my naturopath about it.Kat> > ____________ _________ _________ __> Switch to: Text-Only, Daily Digest • Unsubscribe • Terms of Use

..

[Guest guest]

At 02:02 PM 2/20/2010, you wrote:

If you're not absorbing

nutrition you may have to double up on doses of iron and other vitamins

like B (and a little bit of C, although it is acidic) in order to absorb

the iron better.

Iron supplements can be bad news when one has gut issues -- it feeds the

bad bacteria. Some people go with infusions to by-pass the gut, others

manage with cooking in cast iron, with liver (bleh!), and with green

smoothies.

Interestingly, added C, is tolerated, can help tissues heal.

I use quercetin, myself, for allergies and other inflammation issues.

Bromelain, derived from pineapple, is a digestive aid when taken with

food, and an anti-inflammatory when taken on an empty stomach.

—

Marilyn

New

Orleans, Louisiana, USA

Undiagnosed IBS since 1976, SCD since 2001

Darn Good SCD Cook

No Human Children

Shadow & Sunny Longhair Dachshund

[Guest guest]

At 02:02 PM 2/20/2010, you wrote:

If you're not absorbing

nutrition you may have to double up on doses of iron and other vitamins

like B (and a little bit of C, although it is acidic) in order to absorb

the iron better.

Iron supplements can be bad news when one has gut issues -- it feeds the

bad bacteria. Some people go with infusions to by-pass the gut, others

manage with cooking in cast iron, with liver (bleh!), and with green

smoothies.

Interestingly, added C, is tolerated, can help tissues heal.

I use quercetin, myself, for allergies and other inflammation issues.

Bromelain, derived from pineapple, is a digestive aid when taken with

food, and an anti-inflammatory when taken on an empty stomach.

—

Marilyn

New

Orleans, Louisiana, USA

Undiagnosed IBS since 1976, SCD since 2001

Darn Good SCD Cook

No Human Children

Shadow & Sunny Longhair Dachshund

[Guest guest]

Kat,"Does the yogurt help with candiditis?"Yes the yogurt will help with that. Sometimes, though, if it has been going on for a long time, something stronger might be needed. If you find that you still have issues, I would read over the Candida files on this group's site to help you with it. I also know that s. boulardii (a beneficial, non-colonizing yeast) is really for Candida as well. I know it seems odd a yeast fighting a yeast, but that is what it does! AmeliaHusband UC 9 years, SCD 20 monthsLDN 3 mgTo: BTVC-SCD Sent: Mon, February 22, 2010 5:28:02 AMSubject: Re: Continued blood loss with UC on diet - how long is normal?

Amelia,

Thanks for the info about your husband. It is good to know I am not alone, and that even if I keep bleeding for a while, I may still be healing, just taking time.

Does the yogurt help with candiditis? I'm pretty sure I had it since I had thrush after starting prednisone, and I suspected I had it years ago but no one would diagnose it.

I did start the epsom salt baths, and they do help I think! Aches and pains are reduced a lot! It is wonderful to be able to lay down comfortably for the first time in a long time. The violent thoughts and inability to focus, etc. is all getting better (except certain times of day! I get really angry for a couple hours and then it's okay again).

Thanks so much for your help.

Kat

>

> Kat,

>

> My husband's bleeding went on for a very long time. I think it was well over a year to a year and a half with only brief periods of no bleeding mixed in. For some, it is one of the last things to go. Sounds like you are already making good progress. I would try introducing the yogurt soon. With all the anitbiotics and the prednisone for such long periods I think it is possible you have a yeast/Candida problem. It also sounds like you are having quite a bit of die-off. Take epsom salt baths (2 cups in a bath of warm water up to your navel) and soak for about 15 minutes. It will help with the detox. http://www.epsomsal tcouncil. org/health_ benefits. htm

>

> Hang in there,

>

> Amelia

> Husband UC 9 years, SCD 20 months

> LDN 3 mg

>

>

>

>

> ____________ _________ _________ __

> From: evenstrangerquark <evenstrangerquark@ ...>

> To: BTVC-SCD@yahoogroup s.com

> Sent: Fri, February 19, 2010 3:59:45 AM

> Subject: Continued blood loss with UC on diet - how long is normal?

>

>

> Hello,

>

> This is my first post here, so sorry if this is too much detail, but I feel a little lost about what is happening and I dont' know how much information is helpful for anwering my questions. Thank to everyone who reads this!!

>

> Here is a brief paragraph about my history. I had painful bloating/distention from 6 rounds of antibiotics in 8 months, then started bleeding after the last round in June 09, at which time I was diagnosed with UC. I tried various dietary changes and avoided medicine until December 09 when I had a blood transfusion and started prednazone and mesalamine. The prednazone didnt' seem to help that much and has caused lots of painful side effects, but mesalamine stopped the bleeding (at that point it was 8-12/day most with blood) and I was very anemic. Turns out I am allergic to mesalamine, so I went off of that in mid-January right after starting to eat only SCD legal foods. I was on allegra for the drug rash, but when I stopped that the bleeding returned in much smaller quantities. I continued to only go 3ish times/day, less urgency, minimal pain by comparison, and less bloating/gas.

>

> (I had also been experiencing schizophrenic symptoms that increased gradually since the first round of antibiotics, which I had to mentally turn off, and which have subsided since the transfusion and introduction of the diet.)

>

> I just restarted with the actual beginner's diet last week and did that for 5 days (turns out the DCCC I bought for it was not legal and contained sugar). I ate a bunch of bananas for a day, because I was getting really fatigued and headachy from almost no carbs for so long. Then I ate only legal cheese/chicken soup for most of the day to restart the diet and then added in squash and spinach, which seemed to settle with me okay.

>

> I realized bananas are not so good for me in large quantities - they cause burning. And cheese might not be good at all (gassy, bloating), so I stopped both, and seem to be doing better today. Mostly formed stools! But still bleeding since mid-January.

>

> I was wondering how long it takes people to get better from the bleeding? My gastroenterologist had not heard of the diet - but said I could give her info about it! - and wanted me start another drug, which would take a long time to work and has many side effects. I would like to avoid medications if possible. I am just now finishing my taper with prednazone, and it is literally hell coming off of it.

>

> I guess another question I have for people is, what do you experience when starting the diet and/or coming down from prednisone? I have had aches, joint pain, headaches, anger, fits of crying that last up to half-an-hour, inability to concentrate, fatigue (hard to walk up stairs), difficulty sleeping, violent thoughts, feeling feverish, and my planterfaciitis has come back after a couple years without it (thanks to yoga!). If all this is normal, then that's great. I just feel at a loss about what is happening to me. (I read that detoxing by starving out bacteria can cause some of this....but it feels very extreme!)

>

> I guess one more question is, in your experience, is eating a lot of red meat (particularly beef) okay for a while in the beginning? That seems to settle best with me, and the fat in it satisfies really really bad fat cravings I've been having. Tried peanut butter once but I think that is too harsh.

>

> Thanks to anyone who has any input on one (or all!) of my questions. I have a great naturopathic doctor, but I feel feedback from people going through this would be really helpful.

>

> Kat

>

> 27 years old

>

> Diagnosed UC June '09

>

> Meds: end of taper with prednazone

>

> SCD foods only: Jan '10

> Restart at beginning of diet Feb. '10

>

[Guest guest]

Kat,"Does the yogurt help with candiditis?"Yes the yogurt will help with that. Sometimes, though, if it has been going on for a long time, something stronger might be needed. If you find that you still have issues, I would read over the Candida files on this group's site to help you with it. I also know that s. boulardii (a beneficial, non-colonizing yeast) is really for Candida as well. I know it seems odd a yeast fighting a yeast, but that is what it does! AmeliaHusband UC 9 years, SCD 20 monthsLDN 3 mgTo: BTVC-SCD Sent: Mon, February 22, 2010 5:28:02 AMSubject: Re: Continued blood loss with UC on diet - how long is normal?

Amelia,

Thanks for the info about your husband. It is good to know I am not alone, and that even if I keep bleeding for a while, I may still be healing, just taking time.

Does the yogurt help with candiditis? I'm pretty sure I had it since I had thrush after starting prednisone, and I suspected I had it years ago but no one would diagnose it.

I did start the epsom salt baths, and they do help I think! Aches and pains are reduced a lot! It is wonderful to be able to lay down comfortably for the first time in a long time. The violent thoughts and inability to focus, etc. is all getting better (except certain times of day! I get really angry for a couple hours and then it's okay again).

Thanks so much for your help.

Kat

>

> Kat,

>

> My husband's bleeding went on for a very long time. I think it was well over a year to a year and a half with only brief periods of no bleeding mixed in. For some, it is one of the last things to go. Sounds like you are already making good progress. I would try introducing the yogurt soon. With all the anitbiotics and the prednisone for such long periods I think it is possible you have a yeast/Candida problem. It also sounds like you are having quite a bit of die-off. Take epsom salt baths (2 cups in a bath of warm water up to your navel) and soak for about 15 minutes. It will help with the detox. http://www.epsomsal tcouncil. org/health_ benefits. htm

>

> Hang in there,

>

> Amelia

> Husband UC 9 years, SCD 20 months

> LDN 3 mg

>

>

>

>

> ____________ _________ _________ __

> From: evenstrangerquark <evenstrangerquark@ ...>

> To: BTVC-SCD@yahoogroup s.com

> Sent: Fri, February 19, 2010 3:59:45 AM

> Subject: Continued blood loss with UC on diet - how long is normal?

>

>

> Hello,

>

> This is my first post here, so sorry if this is too much detail, but I feel a little lost about what is happening and I dont' know how much information is helpful for anwering my questions. Thank to everyone who reads this!!

>

> Here is a brief paragraph about my history. I had painful bloating/distention from 6 rounds of antibiotics in 8 months, then started bleeding after the last round in June 09, at which time I was diagnosed with UC. I tried various dietary changes and avoided medicine until December 09 when I had a blood transfusion and started prednazone and mesalamine. The prednazone didnt' seem to help that much and has caused lots of painful side effects, but mesalamine stopped the bleeding (at that point it was 8-12/day most with blood) and I was very anemic. Turns out I am allergic to mesalamine, so I went off of that in mid-January right after starting to eat only SCD legal foods. I was on allegra for the drug rash, but when I stopped that the bleeding returned in much smaller quantities. I continued to only go 3ish times/day, less urgency, minimal pain by comparison, and less bloating/gas.

>

> (I had also been experiencing schizophrenic symptoms that increased gradually since the first round of antibiotics, which I had to mentally turn off, and which have subsided since the transfusion and introduction of the diet.)

>

> I just restarted with the actual beginner's diet last week and did that for 5 days (turns out the DCCC I bought for it was not legal and contained sugar). I ate a bunch of bananas for a day, because I was getting really fatigued and headachy from almost no carbs for so long. Then I ate only legal cheese/chicken soup for most of the day to restart the diet and then added in squash and spinach, which seemed to settle with me okay.

>

> I realized bananas are not so good for me in large quantities - they cause burning. And cheese might not be good at all (gassy, bloating), so I stopped both, and seem to be doing better today. Mostly formed stools! But still bleeding since mid-January.

>

> I was wondering how long it takes people to get better from the bleeding? My gastroenterologist had not heard of the diet - but said I could give her info about it! - and wanted me start another drug, which would take a long time to work and has many side effects. I would like to avoid medications if possible. I am just now finishing my taper with prednazone, and it is literally hell coming off of it.

>

> I guess another question I have for people is, what do you experience when starting the diet and/or coming down from prednisone? I have had aches, joint pain, headaches, anger, fits of crying that last up to half-an-hour, inability to concentrate, fatigue (hard to walk up stairs), difficulty sleeping, violent thoughts, feeling feverish, and my planterfaciitis has come back after a couple years without it (thanks to yoga!). If all this is normal, then that's great. I just feel at a loss about what is happening to me. (I read that detoxing by starving out bacteria can cause some of this....but it feels very extreme!)

>

> I guess one more question is, in your experience, is eating a lot of red meat (particularly beef) okay for a while in the beginning? That seems to settle best with me, and the fat in it satisfies really really bad fat cravings I've been having. Tried peanut butter once but I think that is too harsh.

>

> Thanks to anyone who has any input on one (or all!) of my questions. I have a great naturopathic doctor, but I feel feedback from people going through this would be really helpful.

>

> Kat

>

> 27 years old

>

> Diagnosed UC June '09

>

> Meds: end of taper with prednazone

>

> SCD foods only: Jan '10

> Restart at beginning of diet Feb. '10

>

[Guest guest]

> Hi ,

>

> Thanks. Yeah, I'm taking rhodiola to help my body adapt to making more

cortisol, and I have energy again during the day and I am experiencing less of

the weird die-off/prednisone withdrawal symptoms. Glad to know the cravings will

go down too! Lately I keep thinking about sugary things, which I know are

forbidden.

That's just the bacteria/yeast pinging your brain to feed them by reminding

you of sugar. That's their survival mechanism. They're manipulative little

buggers.

The gut and brain are attached by more neural pathways than

any other parts of the body - and IME, our little friends have learned to take

advantage of that.

Mara

[Guest guest]

> Hi ,

>

> Thanks. Yeah, I'm taking rhodiola to help my body adapt to making more

cortisol, and I have energy again during the day and I am experiencing less of

the weird die-off/prednisone withdrawal symptoms. Glad to know the cravings will

go down too! Lately I keep thinking about sugary things, which I know are

forbidden.

That's just the bacteria/yeast pinging your brain to feed them by reminding

you of sugar. That's their survival mechanism. They're manipulative little

buggers.

The gut and brain are attached by more neural pathways than

any other parts of the body - and IME, our little friends have learned to take

advantage of that.

Mara

[Guest guest]

> Hi Kat>> Sorry to say but that is just plain wrong naturopath said about > prednisone. Prednisone does not affect thyroid. Yes, it does/can. Even my GP told me that. All steroids can affect the thyroid. Prolonged use shuts down your adrenal glands, which in turn effects your thyroid.Please read this: >When there isn't enough thyroid hormone, the body reacts in many different ways. Higher TSH levels and hair loss are some of the signs of a low thyroid hormone. TSH is the signal for the thyroid >to release the thyroid hormone. In hypothyroidism there is only a small amount thyroid hormone to release. The body wants more thyroid hormone, so it releases lots of TSH in an effort to get >enough thyroid hormone. >>Prednisone or other corticosteroids can sometimes cause hypothyroidism or make it worse. There are a couple different ways that prednisone does this. First, normal doses of prednisone can stop >TSH secretion, leading to less thyroid hormone in the body. Second, the thyroid hormone comes in two forms. The less active form is released from the thyroid. It is then converted in the body to >the more active form. High doses of prednisone can slow the conversion of the hormone to the more active form. Both of these could result in hair loss or other symptoms that look like >hypothyroidism. >The hypothyroidism or hyperthyroidism can also affect prednisone. People with hyperthyroidism may need to increase the dose of prednisone, while people with hypothyroidism may not need as >big of a dose. >>There are several medications that are normally used to treat people with hypothyroidism. Any questions about supplementing the thyroid hormone should be addressed with a doctor or >pharmacist. Endocrinologists specialize in problems with the thyroid, but many primary care physicians can help with this problem as well. >>Submitted by Kathleen , PharmD Candidate>The Ohio State University College of PharmacyAnd this from a study with dogs: >The short-term effects of prednisone and phenobarbital on serum total thyroxine (tT4), free thyroxine (fT4), and thyroid stimulating hormone (TSH) were evaluated in euthyroid dogs. Twenty-six >beagles were randomly divided into 3 groups receiving, respectively, a placebo, prednisone (1.2 to 2 mg/kg body weight, per os, every 12 hours for 3 weeks), or phenobarbital (1.8 to 3 mg/kg body >weight for 1 week, then 2.7 to 4.5 mg/kg body weight, per os, every 12 hours for 2 weeks). Blood samples taken over a 6-week period were assayed for serum tT4, fT4, and TSH. Phenobarbital >therapy in our study did not affect serum tT4, fT4, or TSH concentrations. Prednisone therapy, however, significantly decreased serum tT4 and fT4, but did not affect serum TSH concentrations.n-- Now available. A fine gift for cat lovers:Confessions of a Cataholic: My Life With the 10 Cats Who Caused My Addictionby n Van Tilwww.wordpowerpublishing.com ; signed copies; free shipping in U.S., reduced shipping elsewhere

[Guest guest]

> Hi Kat>> Sorry to say but that is just plain wrong naturopath said about > prednisone. Prednisone does not affect thyroid. Yes, it does/can. Even my GP told me that. All steroids can affect the thyroid. Prolonged use shuts down your adrenal glands, which in turn effects your thyroid.Please read this: >When there isn't enough thyroid hormone, the body reacts in many different ways. Higher TSH levels and hair loss are some of the signs of a low thyroid hormone. TSH is the signal for the thyroid >to release the thyroid hormone. In hypothyroidism there is only a small amount thyroid hormone to release. The body wants more thyroid hormone, so it releases lots of TSH in an effort to get >enough thyroid hormone. >>Prednisone or other corticosteroids can sometimes cause hypothyroidism or make it worse. There are a couple different ways that prednisone does this. First, normal doses of prednisone can stop >TSH secretion, leading to less thyroid hormone in the body. Second, the thyroid hormone comes in two forms. The less active form is released from the thyroid. It is then converted in the body to >the more active form. High doses of prednisone can slow the conversion of the hormone to the more active form. Both of these could result in hair loss or other symptoms that look like >hypothyroidism. >The hypothyroidism or hyperthyroidism can also affect prednisone. People with hyperthyroidism may need to increase the dose of prednisone, while people with hypothyroidism may not need as >big of a dose. >>There are several medications that are normally used to treat people with hypothyroidism. Any questions about supplementing the thyroid hormone should be addressed with a doctor or >pharmacist. Endocrinologists specialize in problems with the thyroid, but many primary care physicians can help with this problem as well. >>Submitted by Kathleen , PharmD Candidate>The Ohio State University College of PharmacyAnd this from a study with dogs: >The short-term effects of prednisone and phenobarbital on serum total thyroxine (tT4), free thyroxine (fT4), and thyroid stimulating hormone (TSH) were evaluated in euthyroid dogs. Twenty-six >beagles were randomly divided into 3 groups receiving, respectively, a placebo, prednisone (1.2 to 2 mg/kg body weight, per os, every 12 hours for 3 weeks), or phenobarbital (1.8 to 3 mg/kg body >weight for 1 week, then 2.7 to 4.5 mg/kg body weight, per os, every 12 hours for 2 weeks). Blood samples taken over a 6-week period were assayed for serum tT4, fT4, and TSH. Phenobarbital >therapy in our study did not affect serum tT4, fT4, or TSH concentrations. Prednisone therapy, however, significantly decreased serum tT4 and fT4, but did not affect serum TSH concentrations.n-- Now available. A fine gift for cat lovers:Confessions of a Cataholic: My Life With the 10 Cats Who Caused My Addictionby n Van Tilwww.wordpowerpublishing.com ; signed copies; free shipping in U.S., reduced shipping elsewhere

[Guest guest]

Kat -

Asacol is just a brand name for Mesalamine so you'd be allergic to it too. I

think people who have problems with Asacol(mesalamine) often turn to asulfadine

to help with their UC/CD. I think most people say that they have better luck on

that drug. I didn't; it worked for a while and then I got worse.

With the prednisone, I almost always had to start out at 60 mgs if I got sick

because anything less and my body...oh, I don't know...it just kind of adjusted

to that dose so that I would get the side effects but not the healing benefits.

I was on all sorts of varying doses for 11 years. I think a fair amount of that

time I was just kept on 2.5 mgs which is a really small dose and I didn't have

any of the side effects at that level. Unfortunately every time they tried to

get me off, I'd just flare again....and I'd flare if I was being dropped too

quickly. I think there's a balance that everyone needs to find in terms of how

long you're on the steroid. Obviously it's best to get off it as quick as

possible but you have to be really careful that you're not coming off too

quickly and then flaring right back up again.

I completely understand wanting to be off it and wanting your life back. I

started on it when I was 16 and my body changed so dramatically in such a short

period of time that I'm still very self conscious. No one was particularly

unkind to me about it but I was stared at all the time and there were so many

other issues with UC that I've never really completely overcome. It's part of

why I like groups like this because people outside of the experience just don't

get it (not that I would want anyone else to have to go through this!).

I'm glad to hear that you're learning how to accept help. I'm constantly having

to relearn that lesson. I push myself, whether it's UC related or injury

related. I push my body occasionally too much and being able to sit back and

say " okay. I need to slow down and rest because that's what will help me get

better in the long run " is a really important lesson to learn.

Stacey

> > > I guess another question I have for people is, what do you experience when

starting the diet and/or coming down from prednisone? I have had aches, joint

pain, headaches, anger, fits of crying that last up to half-an-hour, inability

to concentrate, fatigue (hard to walk up stairs), difficulty sleeping, violent

thoughts, feeling feverish, and my planterfaciitis has come back after a couple

years without it (thanks to yoga!). If all this is normal, then that's great. I

just feel at a loss about what is happening to me. (I read that detoxing by

starving out bacteria can cause some of this....but it feels very extreme!)

> > >

> >

>

[Guest guest]

Kat -

Asacol is just a brand name for Mesalamine so you'd be allergic to it too. I

think people who have problems with Asacol(mesalamine) often turn to asulfadine

to help with their UC/CD. I think most people say that they have better luck on

that drug. I didn't; it worked for a while and then I got worse.

With the prednisone, I almost always had to start out at 60 mgs if I got sick

because anything less and my body...oh, I don't know...it just kind of adjusted

to that dose so that I would get the side effects but not the healing benefits.

I was on all sorts of varying doses for 11 years. I think a fair amount of that

time I was just kept on 2.5 mgs which is a really small dose and I didn't have

any of the side effects at that level. Unfortunately every time they tried to

get me off, I'd just flare again....and I'd flare if I was being dropped too

quickly. I think there's a balance that everyone needs to find in terms of how

long you're on the steroid. Obviously it's best to get off it as quick as

possible but you have to be really careful that you're not coming off too

quickly and then flaring right back up again.

I completely understand wanting to be off it and wanting your life back. I

started on it when I was 16 and my body changed so dramatically in such a short

period of time that I'm still very self conscious. No one was particularly

unkind to me about it but I was stared at all the time and there were so many

other issues with UC that I've never really completely overcome. It's part of

why I like groups like this because people outside of the experience just don't

get it (not that I would want anyone else to have to go through this!).

I'm glad to hear that you're learning how to accept help. I'm constantly having

to relearn that lesson. I push myself, whether it's UC related or injury

related. I push my body occasionally too much and being able to sit back and

say " okay. I need to slow down and rest because that's what will help me get

better in the long run " is a really important lesson to learn.

Stacey

> > > I guess another question I have for people is, what do you experience when

starting the diet and/or coming down from prednisone? I have had aches, joint

pain, headaches, anger, fits of crying that last up to half-an-hour, inability

to concentrate, fatigue (hard to walk up stairs), difficulty sleeping, violent

thoughts, feeling feverish, and my planterfaciitis has come back after a couple

years without it (thanks to yoga!). If all this is normal, then that's great. I

just feel at a loss about what is happening to me. (I read that detoxing by

starving out bacteria can cause some of this....but it feels very extreme!)

> > >

> >

>

[Guest guest]

> Sorry to say but that is just plain wrong naturopath said about prednisone.

Prednisone does not affect thyroid.

I can't find the original post from what the naturopath said... but maybe s/he

was thinking of the adrenal/thyroid connection? Prednisone does affect the

adrenal glands... when you taper down to 5mg of prednisone, you have to be sure

that your adrenal glands are producing natural cortisol because the prednisone

is no longer are providing enough corticosteroid to keep your body functioning

properly. Just a thought.

-Joanna

SCD 9/2009, Crohn's 1992

[Guest guest]

> Sorry to say but that is just plain wrong naturopath said about prednisone.

Prednisone does not affect thyroid.

I can't find the original post from what the naturopath said... but maybe s/he

was thinking of the adrenal/thyroid connection? Prednisone does affect the

adrenal glands... when you taper down to 5mg of prednisone, you have to be sure

that your adrenal glands are producing natural cortisol because the prednisone

is no longer are providing enough corticosteroid to keep your body functioning

properly. Just a thought.

-Joanna

SCD 9/2009, Crohn's 1992

[Guest guest]

HI Kat,

I totally agree that you likely have thyroid and andrenal problems.

Sounds a lot like thyroid and after years of illness one should always

suspect adrenal exhaustion. And... as has been said before here....

take the meds you need until you are stronger and can wean off them. In

the long run it will work better and you will be less

miserable.

Hi Kat

Sorry to say but that is just plain wrong naturopath said about

prednisone. Prednisone does not affect thyroid. If you have suspected you

havea thyroid problem should get tested. It is a sad thing but Endo's

do have a clue when it comes to thyroid disease.  Your symptoms below

sound a lot like thyroid and adrenal. The longer we leave our thyroid

without treatment the worse it gets.

[Guest guest]

HI Kat,

I totally agree that you likely have thyroid and andrenal problems.

Sounds a lot like thyroid and after years of illness one should always

suspect adrenal exhaustion. And... as has been said before here....

take the meds you need until you are stronger and can wean off them. In

the long run it will work better and you will be less

miserable.

Hi Kat

Sorry to say but that is just plain wrong naturopath said about

prednisone. Prednisone does not affect thyroid. If you have suspected you

havea thyroid problem should get tested. It is a sad thing but Endo's

do have a clue when it comes to thyroid disease.  Your symptoms below

sound a lot like thyroid and adrenal. The longer we leave our thyroid

without treatment the worse it gets.

[Guest guest]

Hi ,

Yeah, I actually had it wrong about the adrenals vr. thyroid. The naturopath

said adrenals the next time we talked. We just talked about everything at once

so I got them confused!

It makes sense. I have been sick a long time. I don't know if the two functions

would affect UC but it seems like they would.

Thanks for the help!

Kat

>

> HI Kat,

> I totally agree that you likely have thyroid and

> andrenal problems. Sounds a lot like thyroid and

> after years of illness one should always suspect

> adrenal exhaustion. And... as has been said

> before here.... take the meds you need until you

> are stronger and can wean off them. In the long

> run it will work better and you will be less miserable.

>

>

>

>

> Hi Kat

>

> Sorry to say but that is just plain wrong

> naturopath said about prednisone. Prednisone does

> not affect thyroid. If you have suspected you

> havea thyroid problem should get tested. It is

> a sad thing but Endo's do have a clue when it

> comes to thyroid disease.  Your symptoms below

> sound a lot like thyroid and adrenal. The longer

> we leave our thyroid without treatment the worse it gets.

>

[Guest guest]

Hi ,

Yeah, I actually had it wrong about the adrenals vr. thyroid. The naturopath

said adrenals the next time we talked. We just talked about everything at once

so I got them confused!

It makes sense. I have been sick a long time. I don't know if the two functions

would affect UC but it seems like they would.

Thanks for the help!

Kat

>

> HI Kat,

> I totally agree that you likely have thyroid and

> andrenal problems. Sounds a lot like thyroid and

> after years of illness one should always suspect

> adrenal exhaustion. And... as has been said

> before here.... take the meds you need until you

> are stronger and can wean off them. In the long

> run it will work better and you will be less miserable.

>

>

>

>

> Hi Kat

>

> Sorry to say but that is just plain wrong

> naturopath said about prednisone. Prednisone does

> not affect thyroid. If you have suspected you

> havea thyroid problem should get tested. It is

> a sad thing but Endo's do have a clue when it

> comes to thyroid disease.  Your symptoms below

> sound a lot like thyroid and adrenal. The longer

> we leave our thyroid without treatment the worse it gets.

>