Guest guest Posted September 9, 2001 Report Share Posted September 9, 2001 In a message dated 9/9/01 8:17:23 PM Pacific Daylight Time, OneSuperMema@... writes: << I am fatigued ALL the time, but hopefully that will get better. I take Pepcid AC, but Ms. Heidi has informed me that she will pester me until I go to my PCP and get on a better stomach protector. >> , Miss Heidi is right... You do need something stronger than pepcid... and remember that Imuran might make you more tired.... It did me, but it should pass as Glenda says. LOL I " m so sorry about your flare... Hopefully the pred will kick in and the Imuran will to and you will be set.. Glad that your dr believed you this time... Why don't you take Heidi with you to your appts. LOL Wouldn't have to worry bout a thing.. Believe me... I wish I was in Ok right now... Gosh I hated to leave... You are in my thoughts girl.... if you need me I'm always here... love ya Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 9, 2001 Report Share Posted September 9, 2001 In a message dated 9/9/01 8:17:23 PM Pacific Daylight Time, OneSuperMema@... writes: << I am fatigued ALL the time, but hopefully that will get better. I take Pepcid AC, but Ms. Heidi has informed me that she will pester me until I go to my PCP and get on a better stomach protector. >> , Miss Heidi is right... You do need something stronger than pepcid... and remember that Imuran might make you more tired.... It did me, but it should pass as Glenda says. LOL I " m so sorry about your flare... Hopefully the pred will kick in and the Imuran will to and you will be set.. Glad that your dr believed you this time... Why don't you take Heidi with you to your appts. LOL Wouldn't have to worry bout a thing.. Believe me... I wish I was in Ok right now... Gosh I hated to leave... You are in my thoughts girl.... if you need me I'm always here... love ya Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 9, 2001 Report Share Posted September 9, 2001 --- OneSuperMema@... wrote: > Hi Group! > As several of you know, I started in a flare the day > of the picnic. The past > week has been miserable, as all of you that have RP > can imagine. Finally > went to my Rheumy last Friday. She gave me an > injection of 80 mg. > Prednisone. She took me off of Dapsone and put me > on Imuran. She gave me > Ultram for the pain, and did several lab tests. I > felt a little better > Saturday, but then today am really hurting again. > However, she did tell me > not to expect much in the way of results for at > least 3 months. I really > hope the Imuran works better than the Dapsone. My > flares had gotten more > frequent and lasted much longer. I am fatigued ALL > the time, but hopefully > that will get better. I take Pepcid AC, but Ms. > Heidi has informed me that > she will pester me until I go to my PCP and get on a > better stomach > protector. I KNOW why Don doesn't have flares. > That RP is afraid of having > to deal with our Heidi. LOL Just thought I'd > update you on my appt. If you > remember, my rheumy is the one that refuses to > believe I'm in a flare if my > ears aren't flaming red. Well, she took one look > this time and knew I was > having trouble. (Of course, my ears WERE very much > red....still are.) > > Again, I can't tell you how much I enjoyed the Okie > weekend with all of you. > Believe me, Oklahoma just isn't the same since you > left. > > Love you, > T. > Oh, - hope you feel better soon. I must say Oklahoma was such a positive experience for me. It was great to meet you and the others, although I have felt totally wiped out since we got back!!! Take care, love Liz __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 9, 2001 Report Share Posted September 9, 2001 --- OneSuperMema@... wrote: > Hi Group! > As several of you know, I started in a flare the day > of the picnic. The past > week has been miserable, as all of you that have RP > can imagine. Finally > went to my Rheumy last Friday. She gave me an > injection of 80 mg. > Prednisone. She took me off of Dapsone and put me > on Imuran. She gave me > Ultram for the pain, and did several lab tests. I > felt a little better > Saturday, but then today am really hurting again. > However, she did tell me > not to expect much in the way of results for at > least 3 months. I really > hope the Imuran works better than the Dapsone. My > flares had gotten more > frequent and lasted much longer. I am fatigued ALL > the time, but hopefully > that will get better. I take Pepcid AC, but Ms. > Heidi has informed me that > she will pester me until I go to my PCP and get on a > better stomach > protector. I KNOW why Don doesn't have flares. > That RP is afraid of having > to deal with our Heidi. LOL Just thought I'd > update you on my appt. If you > remember, my rheumy is the one that refuses to > believe I'm in a flare if my > ears aren't flaming red. Well, she took one look > this time and knew I was > having trouble. (Of course, my ears WERE very much > red....still are.) > > Again, I can't tell you how much I enjoyed the Okie > weekend with all of you. > Believe me, Oklahoma just isn't the same since you > left. > > Love you, > T. > Oh, - hope you feel better soon. I must say Oklahoma was such a positive experience for me. It was great to meet you and the others, although I have felt totally wiped out since we got back!!! Take care, love Liz __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 10, 2001 Report Share Posted September 10, 2001 Hi ! I am new to the group but have dealt with RP for about 14 years. Imuran is my drug of choice for containing flares. Once in a while I need Prednisone for a specific problem (hearing loss, nasal flare, lung problems). My Rheumy is trying to keep me off from daily steroid meds. I hope you do fine! Thinking of you. Marilyn Romagni Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 10, 2001 Report Share Posted September 10, 2001 Hi ! I am new to the group but have dealt with RP for about 14 years. Imuran is my drug of choice for containing flares. Once in a while I need Prednisone for a specific problem (hearing loss, nasal flare, lung problems). My Rheumy is trying to keep me off from daily steroid meds. I hope you do fine! Thinking of you. Marilyn Romagni Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 10, 2001 Report Share Posted September 10, 2001 In a message dated 9/10/01 5:57:52 PM Pacific Daylight Time, MRoma37617@... writes: << My Rheumy is trying to keep me off from daily steroid meds. >> R, I wish more drs. would use this theory.... No one ever tells us what damage can be done by the steroids... sounds like you have a great dr.... Glad the the Imuan is working for you... We all have to hunt and peck til we come up with a med that will do the trick for us... Funny that we are all so different. hugs Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 10, 2001 Report Share Posted September 10, 2001 In a message dated 9/10/01 5:57:52 PM Pacific Daylight Time, MRoma37617@... writes: << My Rheumy is trying to keep me off from daily steroid meds. >> R, I wish more drs. would use this theory.... No one ever tells us what damage can be done by the steroids... sounds like you have a great dr.... Glad the the Imuan is working for you... We all have to hunt and peck til we come up with a med that will do the trick for us... Funny that we are all so different. hugs Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 11, 2001 Report Share Posted September 11, 2001 T. Sorry to hear you are flaring. I hope the Imuran works for you. I miss you and I want you to know how much I appreciate what you did to help make the weekend so great. BTW, loved the potato salad. Love Ya, Sandy Hi Group!As several of you know, I started in a flare the day of the picnic. The past week has been miserable, as all of you that have RP can imagine. Finally went to my Rheumy last Friday. She gave me an injection of 80 mg. Prednisone. She took me off of Dapsone and put me on Imuran. She gave me Ultram for the pain, and did several lab tests. I felt a little better Saturday, but then today am really hurting again. However, she did tell me not to expect much in the way of results for at least 3 months. I really hope the Imuran works better than the Dapsone. My flares had gotten more frequent and lasted much longer. I am fatigued ALL the time, but hopefully that will get better. I take Pepcid AC, but Ms. Heidi has informed me that she will pester me until I go to my PCP and get on a better stomach protector. I KNOW why Don doesn't have flares. That RP is afraid of having to deal with our Heidi. LOL Just thought I'd update you on my appt. If you remember, my rheumy is the one that refuses to believe I'm in a flare if my ears aren't flaming red. Well, she took one look this time and knew I was having trouble. (Of course, my ears WERE very much red....still are.)Again, I can't tell you how much I enjoyed the Okie weekend with all of you. Believe me, Oklahoma just isn't the same since you left. Love you, T.DISCLAIMER!!WE ARE NOT MEDICAL PROFESSIONALS, THEREFORE ANY INFORMATION THAT IS RECEIVED HERE IS FROM EXPERIENCE ONLY. PLEASE CONSULT WITH YOUR DOCTOR BEFORE TRYING ANYTHING THAT IS SUGGESTED. WE ARE NOT A SUBSTITUTE FOR YOUR PHYSICIAN AND ARE NOT TRYING TO BE. REMEMBER EVERYONE IS DIFFERENT AND TREATMENT MAYBE DIFFERENT FOR MANY OF US. THANK YOU Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 11, 2001 Report Share Posted September 11, 2001 T. Sorry to hear you are flaring. I hope the Imuran works for you. I miss you and I want you to know how much I appreciate what you did to help make the weekend so great. BTW, loved the potato salad. Love Ya, Sandy Hi Group!As several of you know, I started in a flare the day of the picnic. The past week has been miserable, as all of you that have RP can imagine. Finally went to my Rheumy last Friday. She gave me an injection of 80 mg. Prednisone. She took me off of Dapsone and put me on Imuran. She gave me Ultram for the pain, and did several lab tests. I felt a little better Saturday, but then today am really hurting again. However, she did tell me not to expect much in the way of results for at least 3 months. I really hope the Imuran works better than the Dapsone. My flares had gotten more frequent and lasted much longer. I am fatigued ALL the time, but hopefully that will get better. I take Pepcid AC, but Ms. Heidi has informed me that she will pester me until I go to my PCP and get on a better stomach protector. I KNOW why Don doesn't have flares. That RP is afraid of having to deal with our Heidi. LOL Just thought I'd update you on my appt. If you remember, my rheumy is the one that refuses to believe I'm in a flare if my ears aren't flaming red. Well, she took one look this time and knew I was having trouble. (Of course, my ears WERE very much red....still are.)Again, I can't tell you how much I enjoyed the Okie weekend with all of you. Believe me, Oklahoma just isn't the same since you left. Love you, T.DISCLAIMER!!WE ARE NOT MEDICAL PROFESSIONALS, THEREFORE ANY INFORMATION THAT IS RECEIVED HERE IS FROM EXPERIENCE ONLY. PLEASE CONSULT WITH YOUR DOCTOR BEFORE TRYING ANYTHING THAT IS SUGGESTED. WE ARE NOT A SUBSTITUTE FOR YOUR PHYSICIAN AND ARE NOT TRYING TO BE. REMEMBER EVERYONE IS DIFFERENT AND TREATMENT MAYBE DIFFERENT FOR MANY OF US. THANK YOU Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 17, 2001 Report Share Posted September 17, 2001 In a message dated 09/09/2001 10:17:32 PM Central Daylight Time, OneSuperMema@... writes: << Again, I can't tell you how much I enjoyed the Okie weekend with all of you. Believe me, Oklahoma just isn't the same since you left. >> T, I'm so sorry to hear that you are flaring again. I was worried that we all might start after OK, the excitement and the stress of getting there (but you were already there....go figure!). Does your rheumy have you on pred, at least that could help with the pain and aches. I'll keep you in my prayers and send lots of love over the net to you...There, does that help? Take care, sweetie. Love, Judy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 17, 2001 Report Share Posted September 17, 2001 In a message dated 09/09/2001 10:17:32 PM Central Daylight Time, OneSuperMema@... writes: << Again, I can't tell you how much I enjoyed the Okie weekend with all of you. Believe me, Oklahoma just isn't the same since you left. >> T, I'm so sorry to hear that you are flaring again. I was worried that we all might start after OK, the excitement and the stress of getting there (but you were already there....go figure!). Does your rheumy have you on pred, at least that could help with the pain and aches. I'll keep you in my prayers and send lots of love over the net to you...There, does that help? Take care, sweetie. Love, Judy Quote Link to comment Share on other sites More sharing options...
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