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RE: Digest Number 2026

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In a message dated 09/21/2001 9:06:34 AM Central Daylight Time,

Rpolychondritis writes:

<< Ann, I experienced hair loss when I was on metho

> and also Imuran.. >>

I'm on Imuran and not experiencing hair loss YET. But has anyone taking

Imuran noticed they lose the ability to remember certain words and people's

names? I can usually come up with it but it takes 3 or 4 minutes. Really

embarrassing. Just started the last couple of weeks. I DON'T LIKE IT!!!

Love,

T

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In a message dated 09/21/2001 9:06:34 AM Central Daylight Time,

Rpolychondritis writes:

<< Ann, I experienced hair loss when I was on metho

> and also Imuran.. >>

I'm on Imuran and not experiencing hair loss YET. But has anyone taking

Imuran noticed they lose the ability to remember certain words and people's

names? I can usually come up with it but it takes 3 or 4 minutes. Really

embarrassing. Just started the last couple of weeks. I DON'T LIKE IT!!!

Love,

T

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In a message dated 9/21/01 11:50:29 PM Pacific Daylight Time,

OneSuperMema@... writes:

<< But has anyone taking

Imuran noticed they lose the ability to remember certain words and people's

names? I can usually come up with it but it takes 3 or 4 minutes. Really

embarrassing. Just started the last couple of weeks. I DON'T LIKE IT!!! >>

, I've had this for over 15 years.... Was told it was associated with

fibro... I think I'm just brain dead....LOL

How are you doing other wise? I know you are worried about your son.....so

am I... Please know I'm thinking of you.... Take care and enjoy your

weekend.

hugs

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In a message dated 9/21/01 11:50:29 PM Pacific Daylight Time,

OneSuperMema@... writes:

<< But has anyone taking

Imuran noticed they lose the ability to remember certain words and people's

names? I can usually come up with it but it takes 3 or 4 minutes. Really

embarrassing. Just started the last couple of weeks. I DON'T LIKE IT!!! >>

, I've had this for over 15 years.... Was told it was associated with

fibro... I think I'm just brain dead....LOL

How are you doing other wise? I know you are worried about your son.....so

am I... Please know I'm thinking of you.... Take care and enjoy your

weekend.

hugs

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In a message dated 09/21/2001 9:06:34 AM Central Daylight Time,

Rpolychondritis writes:

<< , count me in to be praying for your son. >>

Sharon,

Thank you for your prayers and concern. I really appreciate it. How are you

doing? I think of you so often, but just never seem to find the few minutes

it takes to write. Did Glenda give you the hug I sent you?????

Love you,

T.

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In a message dated 09/21/2001 9:06:34 AM Central Daylight Time,

Rpolychondritis writes:

<< , count me in to be praying for your son. >>

Sharon,

Thank you for your prayers and concern. I really appreciate it. How are you

doing? I think of you so often, but just never seem to find the few minutes

it takes to write. Did Glenda give you the hug I sent you?????

Love you,

T.

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--- OneSuperMema@... wrote:

> In a message dated 09/21/2001 9:06:34 AM Central

> Daylight Time,

> Rpolychondritis writes:

>

> << , count me in to be praying for your son. >>

> Sharon,

> Thank you for your prayers and concern. I really

> appreciate it. How are you

> doing? I think of you so often, but just never seem

> to find the few minutes

> it takes to write. Did Glenda give you the hug I

> sent you?????

> Love you,

> T.

>

Hi ,

I've been thinking about you a lot lately also. Loved

seeing the pix of you and everyone else at the

reunion. How are you doing now? You go first! I'm

o.k. Got my Enbrel on Thurs and took my first shot on

Friday. Gosh, now I understand why my doc and the

pharmacy thought that our HMO wouldn't cover the cost!

It's ridiculous and for the price...it had just

better work. My ears have been giving me such fits

that I have wanted to hack them off my head. The

lesions are finally starting to heal now. Arthritis

has been getting in on the act, and even my eyes

sorta' did their thing again also. Not a good month.

But---things are going to get better now! I refuse to

let this get me down too low. Too much to do...too

many people relying on me to give in! I know that you

know the feeling.

I know Glenda has tried to call me since she's been

home, but it is very hard to get me on the phone. So,

no hug yet, not even a phone hug. Plus, with the way

my ears have been, talking on the phone is a

pain--literally.

How is your little Trooper? I think of him a lot.

Take care , and hopefully better days are ahead

for you.

Love, Sharon

=====

__________________________________________________

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--- OneSuperMema@... wrote:

> In a message dated 09/21/2001 9:06:34 AM Central

> Daylight Time,

> Rpolychondritis writes:

>

> << , count me in to be praying for your son. >>

> Sharon,

> Thank you for your prayers and concern. I really

> appreciate it. How are you

> doing? I think of you so often, but just never seem

> to find the few minutes

> it takes to write. Did Glenda give you the hug I

> sent you?????

> Love you,

> T.

>

Hi ,

I've been thinking about you a lot lately also. Loved

seeing the pix of you and everyone else at the

reunion. How are you doing now? You go first! I'm

o.k. Got my Enbrel on Thurs and took my first shot on

Friday. Gosh, now I understand why my doc and the

pharmacy thought that our HMO wouldn't cover the cost!

It's ridiculous and for the price...it had just

better work. My ears have been giving me such fits

that I have wanted to hack them off my head. The

lesions are finally starting to heal now. Arthritis

has been getting in on the act, and even my eyes

sorta' did their thing again also. Not a good month.

But---things are going to get better now! I refuse to

let this get me down too low. Too much to do...too

many people relying on me to give in! I know that you

know the feeling.

I know Glenda has tried to call me since she's been

home, but it is very hard to get me on the phone. So,

no hug yet, not even a phone hug. Plus, with the way

my ears have been, talking on the phone is a

pain--literally.

How is your little Trooper? I think of him a lot.

Take care , and hopefully better days are ahead

for you.

Love, Sharon

=====

__________________________________________________

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T., I'm not on Imuran, But I can't remember words or peoples names.

Shoot half the time I can't remember my own name. And if you think that's

scary. I was going to my sons house a couple of weeks ago. Only five miles

away. And for awhile I forgot how to get there. Took a wrong turn. So now my

husband has a hissy if I go out on my own. Ann

Re: Digest Number 2026

In a message dated 09/21/2001 9:06:34 AM Central Daylight Time,

Rpolychondritis writes:

<< Ann, I experienced hair loss when I was on metho

> and also Imuran.. >>

I'm on Imuran and not experiencing hair loss YET. But has anyone taking

Imuran noticed they lose the ability to remember certain words and people's

names? I can usually come up with it but it takes 3 or 4 minutes. Really

embarrassing. Just started the last couple of weeks. I DON'T LIKE IT!!!

Love,

T

DISCLAIMER!!

WE ARE NOT MEDICAL PROFESSIONALS, THEREFORE ANY INFORMATION THAT IS RECEIVED

HERE IS FROM EXPERIENCE ONLY. PLEASE CONSULT WITH YOUR DOCTOR BEFORE TRYING

ANYTHING THAT IS SUGGESTED. WE ARE NOT A SUBSTITUTE FOR YOUR PHYSICIAN AND

ARE NOT TRYING TO BE. REMEMBER EVERYONE IS DIFFERENT AND TREATMENT MAYBE

DIFFERENT FOR MANY OF US. THANK YOU

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T., I'm not on Imuran, But I can't remember words or peoples names.

Shoot half the time I can't remember my own name. And if you think that's

scary. I was going to my sons house a couple of weeks ago. Only five miles

away. And for awhile I forgot how to get there. Took a wrong turn. So now my

husband has a hissy if I go out on my own. Ann

Re: Digest Number 2026

In a message dated 09/21/2001 9:06:34 AM Central Daylight Time,

Rpolychondritis writes:

<< Ann, I experienced hair loss when I was on metho

> and also Imuran.. >>

I'm on Imuran and not experiencing hair loss YET. But has anyone taking

Imuran noticed they lose the ability to remember certain words and people's

names? I can usually come up with it but it takes 3 or 4 minutes. Really

embarrassing. Just started the last couple of weeks. I DON'T LIKE IT!!!

Love,

T

DISCLAIMER!!

WE ARE NOT MEDICAL PROFESSIONALS, THEREFORE ANY INFORMATION THAT IS RECEIVED

HERE IS FROM EXPERIENCE ONLY. PLEASE CONSULT WITH YOUR DOCTOR BEFORE TRYING

ANYTHING THAT IS SUGGESTED. WE ARE NOT A SUBSTITUTE FOR YOUR PHYSICIAN AND

ARE NOT TRYING TO BE. REMEMBER EVERYONE IS DIFFERENT AND TREATMENT MAYBE

DIFFERENT FOR MANY OF US. THANK YOU

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In a message dated 09/22/2001 1:57:26 AM Central Daylight Time,

RCColloran@... writes:

<< lose the ability to remember certain words and people's

names? I can usually come up with it but it takes 3 or 4 minutes. >>

According to my Neurologist, it's caused by aging! I am going to get a new

dr immediately. My best friend says the same thing, I kept blaming my

strokes, she says I'm just getting old! Bah! Love, Judy

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In a message dated 09/22/2001 1:57:26 AM Central Daylight Time,

RCColloran@... writes:

<< lose the ability to remember certain words and people's

names? I can usually come up with it but it takes 3 or 4 minutes. >>

According to my Neurologist, it's caused by aging! I am going to get a new

dr immediately. My best friend says the same thing, I kept blaming my

strokes, she says I'm just getting old! Bah! Love, Judy

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In a message dated 09/22/2001 9:18:11 PM Central Daylight Time,

mokie@... writes:

<< Only five miles

away. And for awhile I forgot how to get there. Took a wrong turn. So now my

husband has a hissy if I go out on my own. Ann >>

Ann, let him have a hissy fit, we can't give up our independence. So if you

get lost (and I did all the time BEFORE RP), you'll find new scenery and

houses to look at. I let my husband drive too often, cause I'm afraid that

I'll hit something or worse yet, someone. But I have to just be extra

careful and take my time, and I usually get there...eventually. Don't worry

about it, there's not much you can do anyway, so relax and go with it!

Love,Judy

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In a message dated 09/22/2001 9:18:11 PM Central Daylight Time,

mokie@... writes:

<< Only five miles

away. And for awhile I forgot how to get there. Took a wrong turn. So now my

husband has a hissy if I go out on my own. Ann >>

Ann, let him have a hissy fit, we can't give up our independence. So if you

get lost (and I did all the time BEFORE RP), you'll find new scenery and

houses to look at. I let my husband drive too often, cause I'm afraid that

I'll hit something or worse yet, someone. But I have to just be extra

careful and take my time, and I usually get there...eventually. Don't worry

about it, there's not much you can do anyway, so relax and go with it!

Love,Judy

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