Guest guest Posted September 23, 2001 Report Share Posted September 23, 2001 Hallo Donna !!! It was so nice to hear from you again. I hope you Rp is doing ok. Donna may I take a moment of your time and try to answer your post to the group and explain what this Support group is. We are here to chare our good times and bad times in our life's because of the RP. We need to talk about anything that is bothering us either because of the medicine or what ever. By us talking to each other we also talk about RP quit a lot and therefore we learn from each other about this darn RP. Now grand you we are NO Drs. But since everyone has RP here we have to rely on each other to learn because most DRS do not know much.But as you know a good laugh a day also helps us with life. And yes you are so right we all became good friends her and really think of each other as a family member ratter then a RP patient. And yes we all are looking for RP information that is why we formed the Foundation. As you know we just now became Tax exempt. And none of us are professional in this field. So it is taking a little time for us to get it of the ground. And yes we do hope to have a site with all the latest RP information there too. But we do need more volunteers because we can not do it alone. So I will ask you is there anyway you would or could help with our goal here??? would you be interests in being a part of research team to find the latest Information about RP ??? Then once we get this going then all the People can go there to learn about RP if the do not like to be in a support group that treats the whole person and not just RP. Please let us know we sure could use everyone's help. I thank you for your time. Love Heidi Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 23, 2001 Report Share Posted September 23, 2001 Hallo Donna !!! It was so nice to hear from you again. I hope you Rp is doing ok. Donna may I take a moment of your time and try to answer your post to the group and explain what this Support group is. We are here to chare our good times and bad times in our life's because of the RP. We need to talk about anything that is bothering us either because of the medicine or what ever. By us talking to each other we also talk about RP quit a lot and therefore we learn from each other about this darn RP. Now grand you we are NO Drs. But since everyone has RP here we have to rely on each other to learn because most DRS do not know much.But as you know a good laugh a day also helps us with life. And yes you are so right we all became good friends her and really think of each other as a family member ratter then a RP patient. And yes we all are looking for RP information that is why we formed the Foundation. As you know we just now became Tax exempt. And none of us are professional in this field. So it is taking a little time for us to get it of the ground. And yes we do hope to have a site with all the latest RP information there too. But we do need more volunteers because we can not do it alone. So I will ask you is there anyway you would or could help with our goal here??? would you be interests in being a part of research team to find the latest Information about RP ??? Then once we get this going then all the People can go there to learn about RP if the do not like to be in a support group that treats the whole person and not just RP. Please let us know we sure could use everyone's help. I thank you for your time. Love Heidi Quote Link to comment Share on other sites More sharing options...
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