Guest guest Posted September 25, 2001 Report Share Posted September 25, 2001 In a message dated 09/25/2001 4:28:37 AM Central Daylight Time, Rpolychondritis writes: << First, I would like to warn anyone going on Dapsone to be SURE that your doctor is checking your blood frequently. I was put on it this summer starting at 25 mg. and worked up to 100 mg. By time I had been on this drug for two months, I became extremely anemic (dangerously so) and stopped taking it. I went to my doctor who felt a little alarmed also. He realized he should have been checking it. I stopped taking it and am now taking only prednisone. >> Dagny, Great information. I have been on Dapsone, 100 mg. daily, since being diagnosed with RP in '97. My blood work always shows me as anemic, however my rheumy never seems concerned. I asked her about taking iron supplements, but she said the anemia isn't due to iron deficiency. Go figure. ANYway, recently I asked her to take me off the Dapsone, it had stopped working for me anyway, and put me on Imuran. She did; I haven't noticed great improvements, but it has only been a couple of weeks and she said it could take 3 - 6 months plus I've had a little stress lately, so that's not helping the RP either. Ugh! Hope you are doing well. Love, T. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 25, 2001 Report Share Posted September 25, 2001 In a message dated 09/25/2001 4:28:37 AM Central Daylight Time, Rpolychondritis writes: << First, I would like to warn anyone going on Dapsone to be SURE that your doctor is checking your blood frequently. I was put on it this summer starting at 25 mg. and worked up to 100 mg. By time I had been on this drug for two months, I became extremely anemic (dangerously so) and stopped taking it. I went to my doctor who felt a little alarmed also. He realized he should have been checking it. I stopped taking it and am now taking only prednisone. >> Dagny, Great information. I have been on Dapsone, 100 mg. daily, since being diagnosed with RP in '97. My blood work always shows me as anemic, however my rheumy never seems concerned. I asked her about taking iron supplements, but she said the anemia isn't due to iron deficiency. Go figure. ANYway, recently I asked her to take me off the Dapsone, it had stopped working for me anyway, and put me on Imuran. She did; I haven't noticed great improvements, but it has only been a couple of weeks and she said it could take 3 - 6 months plus I've had a little stress lately, so that's not helping the RP either. Ugh! Hope you are doing well. Love, T. Quote Link to comment Share on other sites More sharing options...
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