Guest guest Posted March 9, 2010 Report Share Posted March 9, 2010 Hi , I started on 1.5mg and I was on 10mg of Prednisone. Every 3 weeks I upped my dose with 1.5 mg and meanwhile I lowered the dose of steroids. I did strict SCD candida elimination diet at that time too - basically chicken and zucchini, green beans, avocado ones in a while. I don't recommend that severe regimen but my body just didn't tolerated anything else at that time.I noticed small change at the 5 week when I was on 3mg and on 5mg of Prednisone. When I wean off completely of steroids big changes came. For me the most important then was to wean off. Then I started adding new foods. I still have limitations but it doesn't bother me at all. I prefer to go slow and to be careful, but generally I eat meat, fish, eggs (finally), 4 or five veggies, honey, coconut flour, bananas, drink orange juice, week coffee and tea. And recently I added occasional cheese. I haven't try yogurt, but small dose of acidophilus now I can tolerate. Things are improving every day. So don't give up Yana > > > Did you start off on 4.5 mg LDN or start smaller than that? How quickly did you notice a change? > > - > UC - 1+ years > SCD - 7 months 100% strict and 4 months restricted diet. > Asacol - 5 pills a day > > > > > > > To: BTVC-SCD > From: mishkata@... > Date: Mon, 8 Mar 2010 23:17:25 +0000 > Subject: 2 years!!! SCD success ! > > > > > > > > > > > > > > > > > > > > > > > > > > > > > I made it ! I passed my 2 year mark on SCD!!! > > And I'm 6500 miles from home!!! > > I can't describe how happy I am. > > And all of this thanks to Elaine, SCD, LDN and all of guys. > > Sine the beginning of my symptoms and later my diagnosis, 3 years ago, I stopped traveling. I was insecure to go anywhere far from home or my mothers place where we go in the Summer. > > But now look at me -from Sofia to San Francisco. We celebrated my 2 year SCD birthday here in the USA and I even had a glass of red wine (legal of course). > > My SCD journey was hard, slow and I moved forward with tiny steps, but I never stopped believing that SCD will help and there will be light in the end of the tunnel. > > For all the newbies - don't be discourage if the results come slow or even if you don't see them in the beginning. My " beginning " was almost 1 1/2 year but now I eat delicious food, go to wonderful places and don't look if there is a toilet close to where I am. > > My major problem were steroids which complicated my tolerance to various foods and were hard to wean off. > > I have to say that here LDN helped a lot and now I'm on it and small dose of mesalazine which doesn't bother me. > > > > Anyway, I really want to thank you all, past and present members of the group > > to Marilyn for everything that she is and everything that she does, > > to Mara, n and Carol for never stopped reminding about LDN. > > to Gay, Kim M , Kim H (I really miss her), to Misty - for your wonderful recipes > > to Jodi always ready to encourage and sympathize. > > I'm sure I'm missing somebody, but really anyone here on that group can help with something. > > An last but absolutely not least, the diet introduced me to a wonderful friend in France - Janja. She was the first person who wrote to me and became my dear friend. > > > > So in a bad times I found good people thanks to SCD!!! > > > > Thanks again for being here! > > > > Yana > > UC, 2 years on SCD! Yay!!!! > > > > > > > > > > > > > > > > > > > _________________________________________________________________ > Your E-mail and More On-the-Go. Get Windows Live Hotmail Free. > http://clk.atdmt.com/GBL/go/201469229/direct/01/ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 9, 2010 Report Share Posted March 9, 2010 Yana: I'm super happy that you've enjoyed the recipes I've submitted. I also hit the 2 year mark Jan 5. I have felt so good these 2 years even with the setbacks. I'm super happy for you and hope you continue to have good health!!! This group has helped me achieve my SCD success and without everyone in it, I think I would have failed. From the most beginner to the most experienced, each person's failures, successes and advice has helped me to persevere. I would also like to thank everyone that contributes to the group no matter how little you think your input is. Misty > So in a bad times I found good people thanks to SCD!!! > > Thanks again for being here! > > Yana > UC, 2 years on SCD! Yay!!!! > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 9, 2010 Report Share Posted March 9, 2010 Yana: I'm super happy that you've enjoyed the recipes I've submitted. I also hit the 2 year mark Jan 5. I have felt so good these 2 years even with the setbacks. I'm super happy for you and hope you continue to have good health!!! This group has helped me achieve my SCD success and without everyone in it, I think I would have failed. From the most beginner to the most experienced, each person's failures, successes and advice has helped me to persevere. I would also like to thank everyone that contributes to the group no matter how little you think your input is. Misty > So in a bad times I found good people thanks to SCD!!! > > Thanks again for being here! > > Yana > UC, 2 years on SCD! Yay!!!! > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 10, 2010 Report Share Posted March 10, 2010 Yana, thank you for sharing your delight and joy. And from me too, thank you to Marilyn: I do not knowhow you find the time to do all you do. Cook cook cook. Plan. And write beautifully. Thank you for posting your intro article. And for your endless caring, good will and patience here. Thank you to each of you co-moderators and contributors. This is an amazing home, and I love reading your notes. Thanks for those recipes-- and information and support. Ruth > > I made it ! I passed my 2 year mark on SCD!!! > And I'm 6500 miles from home!!! > I can't describe how happy I am. > And all of this thanks to Elaine, SCD, LDN and all of guys. > Sine the beginning of my symptoms and later my diagnosis, 3 years ago, I stopped traveling. I was insecure to go anywhere far from home or my mothers place where we go in the Summer. > But now look at me -from Sofia to San Francisco. We celebrated my 2 year SCD birthday here in the USA and I even had a glass of red wine (legal of course). > My SCD journey was hard, slow and I moved forward with tiny steps, but I never stopped believing that SCD will help and there will be light in the end of the tunnel. > For all the newbies - don't be discourage if the results come slow or even if you don't see them in the beginning. My " beginning " was almost 1 1/2 year but now I eat delicious food, go to wonderful places and don't look if there is a toilet close to where I am. > My major problem were steroids which complicated my tolerance to various foods and were hard to wean off. > I have to say that here LDN helped a lot and now I'm on it and small dose of mesalazine which doesn't bother me. > > Anyway, I really want to thank you all, past and present members of the group > to Marilyn for everything that she is and everything that she does, > to Mara, n and Carol for never stopped reminding about LDN. > to Gay, Kim M , Kim H (I really miss her), to Misty - for your wonderful recipes > to Jodi always ready to encourage and sympathize. > I'm sure I'm missing somebody, but really anyone here on that group can help with something. > An last but absolutely not least, the diet introduced me to a wonderful friend in France - Janja. She was the first person who wrote to me and became my dear friend. > > So in a bad times I found good people thanks to SCD!!! > > Thanks again for being here! > > Yana > UC, 2 years on SCD! Yay!!!! > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 10, 2010 Report Share Posted March 10, 2010 Yana, thank you for sharing your delight and joy. And from me too, thank you to Marilyn: I do not knowhow you find the time to do all you do. Cook cook cook. Plan. And write beautifully. Thank you for posting your intro article. And for your endless caring, good will and patience here. Thank you to each of you co-moderators and contributors. This is an amazing home, and I love reading your notes. Thanks for those recipes-- and information and support. Ruth > > I made it ! I passed my 2 year mark on SCD!!! > And I'm 6500 miles from home!!! > I can't describe how happy I am. > And all of this thanks to Elaine, SCD, LDN and all of guys. > Sine the beginning of my symptoms and later my diagnosis, 3 years ago, I stopped traveling. I was insecure to go anywhere far from home or my mothers place where we go in the Summer. > But now look at me -from Sofia to San Francisco. We celebrated my 2 year SCD birthday here in the USA and I even had a glass of red wine (legal of course). > My SCD journey was hard, slow and I moved forward with tiny steps, but I never stopped believing that SCD will help and there will be light in the end of the tunnel. > For all the newbies - don't be discourage if the results come slow or even if you don't see them in the beginning. My " beginning " was almost 1 1/2 year but now I eat delicious food, go to wonderful places and don't look if there is a toilet close to where I am. > My major problem were steroids which complicated my tolerance to various foods and were hard to wean off. > I have to say that here LDN helped a lot and now I'm on it and small dose of mesalazine which doesn't bother me. > > Anyway, I really want to thank you all, past and present members of the group > to Marilyn for everything that she is and everything that she does, > to Mara, n and Carol for never stopped reminding about LDN. > to Gay, Kim M , Kim H (I really miss her), to Misty - for your wonderful recipes > to Jodi always ready to encourage and sympathize. > I'm sure I'm missing somebody, but really anyone here on that group can help with something. > An last but absolutely not least, the diet introduced me to a wonderful friend in France - Janja. She was the first person who wrote to me and became my dear friend. > > So in a bad times I found good people thanks to SCD!!! > > Thanks again for being here! > > Yana > UC, 2 years on SCD! Yay!!!! > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 10, 2010 Report Share Posted March 10, 2010 At 08:21 PM 3/10/2010, you wrote: And from me too, thank you to Marilyn: I do not knowhow you find the time to do all you do. Cook cook cook. Plan. And write beautifully. Thank you for posting your intro article. And for your endless caring, good will and patience here. Actually, there's one person who almost never gets thanked -- and that's my husband, Harry. He makes it possible for me to have the time to answer all the questions, does endless sinks-full of dishes, is incredibly patient when his dinner or breakfast or lunch gets delayed because I'm busy typing. He's a heckuva special guy -- the hidden support! — Marilyn New Orleans, Louisiana, USA Undiagnosed IBS since 1976, SCD since 2001 Darn Good SCD Cook No Human Children Shadow & Sunny Longhair Dachshund Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 10, 2010 Report Share Posted March 10, 2010 At 08:21 PM 3/10/2010, you wrote: And from me too, thank you to Marilyn: I do not knowhow you find the time to do all you do. Cook cook cook. Plan. And write beautifully. Thank you for posting your intro article. And for your endless caring, good will and patience here. Actually, there's one person who almost never gets thanked -- and that's my husband, Harry. He makes it possible for me to have the time to answer all the questions, does endless sinks-full of dishes, is incredibly patient when his dinner or breakfast or lunch gets delayed because I'm busy typing. He's a heckuva special guy -- the hidden support! — Marilyn New Orleans, Louisiana, USA Undiagnosed IBS since 1976, SCD since 2001 Darn Good SCD Cook No Human Children Shadow & Sunny Longhair Dachshund Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 11, 2010 Report Share Posted March 11, 2010 Yes, thanks to Harry too for all these things and for being your SCD recipe " taste tester " too. PJ > >And from me too, thank you to Marilyn: I do not knowhow you find the > >time to do all you do. Cook cook cook. Plan. And write > >beautifully. Thank you for posting your intro article. And for your > >endless caring, good will and patience here. > > Actually, there's one person who almost never > gets thanked -- and that's my husband, Harry. He > makes it possible for me to have the time to > answer all the questions, does endless sinks-full > of dishes, is incredibly patient when his dinner > or breakfast or lunch gets delayed because I'm busy typing. > > He's a heckuva special guy -- the hidden support! > > > > — Marilyn > New Orleans, Louisiana, USA > Undiagnosed IBS since 1976, SCD since 2001 > Darn Good SCD Cook > No Human Children > Shadow & Sunny Longhair Dachshund > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 11, 2010 Report Share Posted March 11, 2010 Yes, thanks to Harry too for all these things and for being your SCD recipe " taste tester " too. PJ > >And from me too, thank you to Marilyn: I do not knowhow you find the > >time to do all you do. Cook cook cook. Plan. And write > >beautifully. Thank you for posting your intro article. And for your > >endless caring, good will and patience here. > > Actually, there's one person who almost never > gets thanked -- and that's my husband, Harry. He > makes it possible for me to have the time to > answer all the questions, does endless sinks-full > of dishes, is incredibly patient when his dinner > or breakfast or lunch gets delayed because I'm busy typing. > > He's a heckuva special guy -- the hidden support! > > > > — Marilyn > New Orleans, Louisiana, USA > Undiagnosed IBS since 1976, SCD since 2001 > Darn Good SCD Cook > No Human Children > Shadow & Sunny Longhair Dachshund > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 11, 2010 Report Share Posted March 11, 2010 Hurrah for Harry! He sounds like a very special guy, indeed. Please tell him we all appreciate him even if he doesn't know it! He's a heckuva special guy -- the hidden support! — Marilyn Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 11, 2010 Report Share Posted March 11, 2010 Hurrah for Harry! He sounds like a very special guy, indeed. Please tell him we all appreciate him even if he doesn't know it! He's a heckuva special guy -- the hidden support! — Marilyn Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 11, 2010 Report Share Posted March 11, 2010 Hurrah for Harry! He sounds like a very special guy, indeed. Please tell him we all appreciate him even if he doesn't know it!I second that! Thanks Harry! =D Peace =)Alyssa 16 yo UC April 2008, dx Sept 2008SCD June 2009 (restarted)Azathioprine 50 mg 1x per dayPrednisone 40 mg 1x per day Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 11, 2010 Report Share Posted March 11, 2010 Hurrah for Harry! He sounds like a very special guy, indeed. Please tell him we all appreciate him even if he doesn't know it!I second that! Thanks Harry! =D Peace =)Alyssa 16 yo UC April 2008, dx Sept 2008SCD June 2009 (restarted)Azathioprine 50 mg 1x per dayPrednisone 40 mg 1x per day Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 11, 2010 Report Share Posted March 11, 2010 You know Marilyn, as they say, behind every great woman always stands a great man! And what can we really do if there weren't our loved ones to support us. Salute for Harry! Yana > >And from me too, thank you to Marilyn: I do not knowhow you find the > >time to do all you do. Cook cook cook. Plan. And write > >beautifully. Thank you for posting your intro article. And for your > >endless caring, good will and patience here. > > Actually, there's one person who almost never > gets thanked -- and that's my husband, Harry. He > makes it possible for me to have the time to > answer all the questions, does endless sinks-full > of dishes, is incredibly patient when his dinner > or breakfast or lunch gets delayed because I'm busy typing. > > He's a heckuva special guy -- the hidden support! > > > > — Marilyn > New Orleans, Louisiana, USA > Undiagnosed IBS since 1976, SCD since 2001 > Darn Good SCD Cook > No Human Children > Shadow & Sunny Longhair Dachshund > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 11, 2010 Report Share Posted March 11, 2010 You know Marilyn, as they say, behind every great woman always stands a great man! And what can we really do if there weren't our loved ones to support us. Salute for Harry! Yana > >And from me too, thank you to Marilyn: I do not knowhow you find the > >time to do all you do. Cook cook cook. Plan. And write > >beautifully. Thank you for posting your intro article. And for your > >endless caring, good will and patience here. > > Actually, there's one person who almost never > gets thanked -- and that's my husband, Harry. He > makes it possible for me to have the time to > answer all the questions, does endless sinks-full > of dishes, is incredibly patient when his dinner > or breakfast or lunch gets delayed because I'm busy typing. > > He's a heckuva special guy -- the hidden support! > > > > — Marilyn > New Orleans, Louisiana, USA > Undiagnosed IBS since 1976, SCD since 2001 > Darn Good SCD Cook > No Human Children > Shadow & Sunny Longhair Dachshund > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 11, 2010 Report Share Posted March 11, 2010 Yay Harry! Let's clone Harry! Let's clone Harry! Let's clone Harry! Thank you Harry for supporting us by supporting Marilyn. > >And from me too, thank you to Marilyn: I do not knowhow you find the > >time to do all you do. Cook cook cook. Plan. And write > >beautifully. Thank you for posting your intro article. And for your > >endless caring, good will and patience here. > > Actually, there's one person who almost never > gets thanked -- and that's my husband, Harry. He > makes it possible for me to have the time to > answer all the questions, does endless sinks-full > of dishes, is incredibly patient when his dinner > or breakfast or lunch gets delayed because I'm busy typing. > > He's a heckuva special guy -- the hidden support! > > > > — Marilyn > New Orleans, Louisiana, USA > Undiagnosed IBS since 1976, SCD since 2001 > Darn Good SCD Cook > No Human Children > Shadow & Sunny Longhair Dachshund > Back to top Reply to sender | Reply to group | Reply via web post Messages in this topic (19) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 11, 2010 Report Share Posted March 11, 2010 Yay Harry! Let's clone Harry! Let's clone Harry! Let's clone Harry! Thank you Harry for supporting us by supporting Marilyn. > >And from me too, thank you to Marilyn: I do not knowhow you find the > >time to do all you do. Cook cook cook. Plan. And write > >beautifully. Thank you for posting your intro article. And for your > >endless caring, good will and patience here. > > Actually, there's one person who almost never > gets thanked -- and that's my husband, Harry. He > makes it possible for me to have the time to > answer all the questions, does endless sinks-full > of dishes, is incredibly patient when his dinner > or breakfast or lunch gets delayed because I'm busy typing. > > He's a heckuva special guy -- the hidden support! > > > > — Marilyn > New Orleans, Louisiana, USA > Undiagnosed IBS since 1976, SCD since 2001 > Darn Good SCD Cook > No Human Children > Shadow & Sunny Longhair Dachshund > Back to top Reply to sender | Reply to group | Reply via web post Messages in this topic (19) Quote Link to comment Share on other sites More sharing options...
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