Guest guest Posted March 11, 2010 Report Share Posted March 11, 2010 Kat,That is pretty interesting about the DHEA! So would you say that the amount of DHEA required is equal to the Prednisone being taken? If you have any literature/studies links, I would be interested in reading them. If not, no worries, just curious--would like to know for a future 'just in case' scenario.AmeliaTo: BTVC-SCD Sent: Thu, March 11, 2010 7:59:06 AMSubject: Re: amazing results!!! > > Kat, you take Rhodiola? I used to take that along with Ashwaghanda and Cordyceps for my adrenals but stopped because I could not figure out if they are SCD legal. > Yeah, I'm not sure. I have the kind that is just the rhodiola plus capsule, maybe some gellatin. My naturopath prescribed it and was the one to suggest the diet, and checked all my meds to make sure they were legal. But other than that I have no idea. I haven't reacted to it adversely I don't think. I'm still bleeding so I really won't know for sure about anything until that stops. I didn't think tiny bits of things would be a big deal, but I recently reacted to (I think) a new brand of iron suppliment that my doc says is most easily absorbed, but which has both spirulina and soy products. I guess a little bit does go a long way! Or that I have an intollerance I suppose. My doc also just attended a conference where she learned about DHEA, which counters the effects of prednisone without compromising it's effectiveness. It is a precursor to testosterone, estrogen and cortisol among other things. I started it yesterday and I went from barely being able to move, pain everywhere, especially in joints from the P, to having energy all day today! I am only on 5mg P and 5mg DHEA, but the P had wiped me out to the point of blurry vision, inability to concentrate, recall or remember information, etc. Today is totally different - all that is coming back. For anyone who is feeling the icky stick side effects of prednisone, this DHEA stuff seems to work for me pretty well. Kat Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 11, 2010 Report Share Posted March 11, 2010 Kat, Iron supplements feed bad bacteria. Perhaps that is why you reacted. > > > > Kat, you take Rhodiola? I used to take that along with Ashwaghanda and Cordyceps for my adrenals but stopped because I could not figure out if they are SCD legal. > > > > Yeah, I'm not sure. I have the kind that is just the rhodiola plus capsule, maybe some gellatin. My naturopath prescribed it and was the one to suggest the diet, and checked all my meds to make sure they were legal. But other than that I have no idea. I haven't reacted to it adversely I don't think. I'm still bleeding so I really won't know for sure about anything until that stops. > > I didn't think tiny bits of things would be a big deal, but I recently reacted to (I think) a new brand of iron suppliment that my doc says is most easily absorbed, but which has both spirulina and soy products. I guess a little bit does go a long way! Or that I have an intollerance I suppose. > > My doc also just attended a conference where she learned about DHEA, which counters the effects of prednisone without compromising it's effectiveness. It is a precursor to testosterone, estrogen and cortisol among other things. I started it yesterday and I went from barely being able to move, pain everywhere, especially in joints from the P, to having energy all day today! I am only on 5mg P and 5mg DHEA, but the P had wiped me out to the point of blurry vision, inability to concentrate, recall or remember information, etc. Today is totally different - all that is coming back. For anyone who is feeling the icky stick side effects of prednisone, this DHEA stuff seems to work for me pretty well. > > Kat > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 11, 2010 Report Share Posted March 11, 2010 Kat, Iron supplements feed bad bacteria. Perhaps that is why you reacted. > > > > Kat, you take Rhodiola? I used to take that along with Ashwaghanda and Cordyceps for my adrenals but stopped because I could not figure out if they are SCD legal. > > > > Yeah, I'm not sure. I have the kind that is just the rhodiola plus capsule, maybe some gellatin. My naturopath prescribed it and was the one to suggest the diet, and checked all my meds to make sure they were legal. But other than that I have no idea. I haven't reacted to it adversely I don't think. I'm still bleeding so I really won't know for sure about anything until that stops. > > I didn't think tiny bits of things would be a big deal, but I recently reacted to (I think) a new brand of iron suppliment that my doc says is most easily absorbed, but which has both spirulina and soy products. I guess a little bit does go a long way! Or that I have an intollerance I suppose. > > My doc also just attended a conference where she learned about DHEA, which counters the effects of prednisone without compromising it's effectiveness. It is a precursor to testosterone, estrogen and cortisol among other things. I started it yesterday and I went from barely being able to move, pain everywhere, especially in joints from the P, to having energy all day today! I am only on 5mg P and 5mg DHEA, but the P had wiped me out to the point of blurry vision, inability to concentrate, recall or remember information, etc. Today is totally different - all that is coming back. For anyone who is feeling the icky stick side effects of prednisone, this DHEA stuff seems to work for me pretty well. > > Kat > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 11, 2010 Report Share Posted March 11, 2010 At 10:18 AM 3/11/2010, you wrote: I didn't think tiny bits of things would be a big deal, but I recently reacted to (I think) a new brand of iron suppliment that my doc says is most easily absorbed, but which has both spirulina and soy products. I guess a little bit does go a long way! Or that I have an intollerance I suppose. Both spirulina and soy are SCD illegal. — Marilyn New Orleans, Louisiana, USA Undiagnosed IBS since 1976, SCD since 2001 Darn Good SCD Cook No Human Children Shadow & Sunny Longhair Dachshund Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 11, 2010 Report Share Posted March 11, 2010 At 10:18 AM 3/11/2010, you wrote: I didn't think tiny bits of things would be a big deal, but I recently reacted to (I think) a new brand of iron suppliment that my doc says is most easily absorbed, but which has both spirulina and soy products. I guess a little bit does go a long way! Or that I have an intollerance I suppose. Both spirulina and soy are SCD illegal. — Marilyn New Orleans, Louisiana, USA Undiagnosed IBS since 1976, SCD since 2001 Darn Good SCD Cook No Human Children Shadow & Sunny Longhair Dachshund Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 11, 2010 Report Share Posted March 11, 2010 LOL, well, I really shouldn't complain. Arizona is great most of the time (you can't knock 300 days of sunshine a year). And the sun has finally been located and restored to its rightful place! It's even supposed to get to the 80's this week :-) Holly Crohn's SCD 12/01/08 > > > > You don't want to be in Arizona right now, because it's been cloudy and rainy for days! We've gotten more rain in the first two months of the year then we did all of last year, and all of the reservoirs are full (definitely a good thing). But I want my sunshine back! > > > > Holly > > Crohn's > > SCD 12/01/08 > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 11, 2010 Report Share Posted March 11, 2010 LOL, well, I really shouldn't complain. Arizona is great most of the time (you can't knock 300 days of sunshine a year). And the sun has finally been located and restored to its rightful place! It's even supposed to get to the 80's this week :-) Holly Crohn's SCD 12/01/08 > > > > You don't want to be in Arizona right now, because it's been cloudy and rainy for days! We've gotten more rain in the first two months of the year then we did all of last year, and all of the reservoirs are full (definitely a good thing). But I want my sunshine back! > > > > Holly > > Crohn's > > SCD 12/01/08 > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 11, 2010 Report Share Posted March 11, 2010 Amelia, I will check with my doctor and see if I can get some studies online - it would be great to share this. If I get any info I'll post it with DHEA in the title so everyone can find it. Kat > > Kat, > > That is pretty interesting about the DHEA! So would you say that the amount of DHEA required is equal to the Prednisone being taken? If you have any literature/studies links, I would be interested in reading them. If not, no worries, just curious--would like to know for a future 'just in case' scenario. > > Amelia > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 11, 2010 Report Share Posted March 11, 2010 Amelia, I will check with my doctor and see if I can get some studies online - it would be great to share this. If I get any info I'll post it with DHEA in the title so everyone can find it. Kat > > Kat, > > That is pretty interesting about the DHEA! So would you say that the amount of DHEA required is equal to the Prednisone being taken? If you have any literature/studies links, I would be interested in reading them. If not, no worries, just curious--would like to know for a future 'just in case' scenario. > > Amelia > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 11, 2010 Report Share Posted March 11, 2010 > > Kat, Iron supplements feed bad bacteria. Perhaps that is why you reacted. > > I've been taking iron supplements since December due to the continued bleeding. It has been believed by both my gastroenterologist and my naturopath that started me on SCD that the risk of feeding the bad bacteria was less than the risk of letting me get more anemic, especially since I am symptomatic of anemia even when the numbers are fairly high but not normal - fainting, fatigue, all that. I keep thinking I should stop taking the supplements, but I am still losing a little blood every day. I am eating beef, I can tolerate beef liver, but I don't know that the amount of iron in those would make up for what I am losing in my stool. The treatment plan was to keep me on the iron supplements until my anemia was totally gone (just got some ferretin levels to get up at this point - all else normal!), then stop the supplements. Do you think this is possibly a more harmful way to go? My thinking is that the faster I can kill off the bacteria the better, even if it means I have to get an iron shot - I have heard people get those - I'm a little afraid of the pain, but I can deal with it. I am worried about prolonging the battle in my guts and causing more harm. I would rather lose a little iron intake personally and instead stop bleeding, but feel weird going against what my doctor recommended, and looking at my record, the bleeding probably won't stop anyway, at least for some time. If the bacteria are not getting too much carbs anymore, will the iron really make a difference? Ack! Too many questions. Thanks everyone for helping me figure this out! Kat Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 11, 2010 Report Share Posted March 11, 2010 > > Kat, Iron supplements feed bad bacteria. Perhaps that is why you reacted. > > I've been taking iron supplements since December due to the continued bleeding. It has been believed by both my gastroenterologist and my naturopath that started me on SCD that the risk of feeding the bad bacteria was less than the risk of letting me get more anemic, especially since I am symptomatic of anemia even when the numbers are fairly high but not normal - fainting, fatigue, all that. I keep thinking I should stop taking the supplements, but I am still losing a little blood every day. I am eating beef, I can tolerate beef liver, but I don't know that the amount of iron in those would make up for what I am losing in my stool. The treatment plan was to keep me on the iron supplements until my anemia was totally gone (just got some ferretin levels to get up at this point - all else normal!), then stop the supplements. Do you think this is possibly a more harmful way to go? My thinking is that the faster I can kill off the bacteria the better, even if it means I have to get an iron shot - I have heard people get those - I'm a little afraid of the pain, but I can deal with it. I am worried about prolonging the battle in my guts and causing more harm. I would rather lose a little iron intake personally and instead stop bleeding, but feel weird going against what my doctor recommended, and looking at my record, the bleeding probably won't stop anyway, at least for some time. If the bacteria are not getting too much carbs anymore, will the iron really make a difference? Ack! Too many questions. Thanks everyone for helping me figure this out! Kat Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 11, 2010 Report Share Posted March 11, 2010 Good to hear. I wouldn't want my future home to become more Seattle-like! In weather anyway. Too many beautiful hikes to miss out on. Although your thunderstorms in the summer are spectacular...I love big skies. Think sunny thoughts for me! :-D Kat > > > > > > You don't want to be in Arizona right now, because it's been cloudy and rainy for days! We've gotten more rain in the first two months of the year then we did all of last year, and all of the reservoirs are full (definitely a good thing). But I want my sunshine back! > > > > > > Holly > > > Crohn's > > > SCD 12/01/08 > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 11, 2010 Report Share Posted March 11, 2010 Good to hear. I wouldn't want my future home to become more Seattle-like! In weather anyway. Too many beautiful hikes to miss out on. Although your thunderstorms in the summer are spectacular...I love big skies. Think sunny thoughts for me! :-D Kat > > > > > > You don't want to be in Arizona right now, because it's been cloudy and rainy for days! We've gotten more rain in the first two months of the year then we did all of last year, and all of the reservoirs are full (definitely a good thing). But I want my sunshine back! > > > > > > Holly > > > Crohn's > > > SCD 12/01/08 > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 12, 2010 Report Share Posted March 12, 2010 I would definitely suck it up and take the shot, and not have to worry about it! I am sure the shot would better absorb the iron than a damaged gut. > > > > Kat, Iron supplements feed bad bacteria. Perhaps that is why you reacted. > > > > > > I've been taking iron supplements since December due to the continued bleeding. It has been believed by both my gastroenterologist and my naturopath that started me on SCD that the risk of feeding the bad bacteria was less than the risk of letting me get more anemic, especially since I am symptomatic of anemia even when the numbers are fairly high but not normal - fainting, fatigue, all that. > > I keep thinking I should stop taking the supplements, but I am still losing a little blood every day. I am eating beef, I can tolerate beef liver, but I don't know that the amount of iron in those would make up for what I am losing in my stool. The treatment plan was to keep me on the iron supplements until my anemia was totally gone (just got some ferretin levels to get up at this point - all else normal!), then stop the supplements. > > Do you think this is possibly a more harmful way to go? My thinking is that the faster I can kill off the bacteria the better, even if it means I have to get an iron shot - I have heard people get those - I'm a little afraid of the pain, but I can deal with it. I am worried about prolonging the battle in my guts and causing more harm. I would rather lose a little iron intake personally and instead stop bleeding, but feel weird going against what my doctor recommended, and looking at my record, the bleeding probably won't stop anyway, at least for some time. If the bacteria are not getting too much carbs anymore, will the iron really make a difference? > > Ack! Too many questions. Thanks everyone for helping me figure this out! > > Kat > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 12, 2010 Report Share Posted March 12, 2010 I would definitely suck it up and take the shot, and not have to worry about it! I am sure the shot would better absorb the iron than a damaged gut. > > > > Kat, Iron supplements feed bad bacteria. Perhaps that is why you reacted. > > > > > > I've been taking iron supplements since December due to the continued bleeding. It has been believed by both my gastroenterologist and my naturopath that started me on SCD that the risk of feeding the bad bacteria was less than the risk of letting me get more anemic, especially since I am symptomatic of anemia even when the numbers are fairly high but not normal - fainting, fatigue, all that. > > I keep thinking I should stop taking the supplements, but I am still losing a little blood every day. I am eating beef, I can tolerate beef liver, but I don't know that the amount of iron in those would make up for what I am losing in my stool. The treatment plan was to keep me on the iron supplements until my anemia was totally gone (just got some ferretin levels to get up at this point - all else normal!), then stop the supplements. > > Do you think this is possibly a more harmful way to go? My thinking is that the faster I can kill off the bacteria the better, even if it means I have to get an iron shot - I have heard people get those - I'm a little afraid of the pain, but I can deal with it. I am worried about prolonging the battle in my guts and causing more harm. I would rather lose a little iron intake personally and instead stop bleeding, but feel weird going against what my doctor recommended, and looking at my record, the bleeding probably won't stop anyway, at least for some time. If the bacteria are not getting too much carbs anymore, will the iron really make a difference? > > Ack! Too many questions. Thanks everyone for helping me figure this out! > > Kat > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 12, 2010 Report Share Posted March 12, 2010 If you have to take iron, perhaps something like this would go over better: http://www.vitaminlife.com/product-exec/product_id/12118/nm/Gentle+Iron . I've read that chelated iron (or iron Ferrous Bisglycinate) is much better on the gut, and easily absorbed (less food for gut bugs). Holly Crohn's SCD 12/01/08 > > > > Kat, Iron supplements feed bad bacteria. Perhaps that is why you reacted. > > > > > > I've been taking iron supplements since December due to the continued bleeding. It has been believed by both my gastroenterologist and my naturopath that started me on SCD that the risk of feeding the bad bacteria was less than the risk of letting me get more anemic, especially since I am symptomatic of anemia even when the numbers are fairly high but not normal - fainting, fatigue, all that. > > I keep thinking I should stop taking the supplements, but I am still losing a little blood every day. I am eating beef, I can tolerate beef liver, but I don't know that the amount of iron in those would make up for what I am losing in my stool. The treatment plan was to keep me on the iron supplements until my anemia was totally gone (just got some ferretin levels to get up at this point - all else normal!), then stop the supplements. > > Do you think this is possibly a more harmful way to go? My thinking is that the faster I can kill off the bacteria the better, even if it means I have to get an iron shot - I have heard people get those - I'm a little afraid of the pain, but I can deal with it. I am worried about prolonging the battle in my guts and causing more harm. I would rather lose a little iron intake personally and instead stop bleeding, but feel weird going against what my doctor recommended, and looking at my record, the bleeding probably won't stop anyway, at least for some time. If the bacteria are not getting too much carbs anymore, will the iron really make a difference? > > Ack! Too many questions. Thanks everyone for helping me figure this out! > > Kat > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 12, 2010 Report Share Posted March 12, 2010 If you have to take iron, perhaps something like this would go over better: http://www.vitaminlife.com/product-exec/product_id/12118/nm/Gentle+Iron . I've read that chelated iron (or iron Ferrous Bisglycinate) is much better on the gut, and easily absorbed (less food for gut bugs). Holly Crohn's SCD 12/01/08 > > > > Kat, Iron supplements feed bad bacteria. Perhaps that is why you reacted. > > > > > > I've been taking iron supplements since December due to the continued bleeding. It has been believed by both my gastroenterologist and my naturopath that started me on SCD that the risk of feeding the bad bacteria was less than the risk of letting me get more anemic, especially since I am symptomatic of anemia even when the numbers are fairly high but not normal - fainting, fatigue, all that. > > I keep thinking I should stop taking the supplements, but I am still losing a little blood every day. I am eating beef, I can tolerate beef liver, but I don't know that the amount of iron in those would make up for what I am losing in my stool. The treatment plan was to keep me on the iron supplements until my anemia was totally gone (just got some ferretin levels to get up at this point - all else normal!), then stop the supplements. > > Do you think this is possibly a more harmful way to go? My thinking is that the faster I can kill off the bacteria the better, even if it means I have to get an iron shot - I have heard people get those - I'm a little afraid of the pain, but I can deal with it. I am worried about prolonging the battle in my guts and causing more harm. I would rather lose a little iron intake personally and instead stop bleeding, but feel weird going against what my doctor recommended, and looking at my record, the bleeding probably won't stop anyway, at least for some time. If the bacteria are not getting too much carbs anymore, will the iron really make a difference? > > Ack! Too many questions. Thanks everyone for helping me figure this out! > > Kat > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 12, 2010 Report Share Posted March 12, 2010 Hah, you know, that's one of the ones I had been using pre-SCD, so I continued it off and on with one that was constipating, and then this final one that had illegal ingredients, and caused D (I think). For some reason I though that if it was from vegetarian sources, it would be non-heme iron, and therefore not absorbed as much into the body...but I dont' think I have any evidence to back this up. I know it would be non-heme, but at this point all I need is ferretin, my hemoglobins are happy hemoglobins. I have no idea what is easier to absorb...I'll look into the gentle iron again. Thanks! Kat > > > > > > Kat, Iron supplements feed bad bacteria. Perhaps that is why you reacted. > > > > > > > > > > I've been taking iron supplements since December due to the continued bleeding. It has been believed by both my gastroenterologist and my naturopath that started me on SCD that the risk of feeding the bad bacteria was less than the risk of letting me get more anemic, especially since I am symptomatic of anemia even when the numbers are fairly high but not normal - fainting, fatigue, all that. > > > > I keep thinking I should stop taking the supplements, but I am still losing a little blood every day. I am eating beef, I can tolerate beef liver, but I don't know that the amount of iron in those would make up for what I am losing in my stool. The treatment plan was to keep me on the iron supplements until my anemia was totally gone (just got some ferretin levels to get up at this point - all else normal!), then stop the supplements. > > > > Do you think this is possibly a more harmful way to go? My thinking is that the faster I can kill off the bacteria the better, even if it means I have to get an iron shot - I have heard people get those - I'm a little afraid of the pain, but I can deal with it. I am worried about prolonging the battle in my guts and causing more harm. I would rather lose a little iron intake personally and instead stop bleeding, but feel weird going against what my doctor recommended, and looking at my record, the bleeding probably won't stop anyway, at least for some time. If the bacteria are not getting too much carbs anymore, will the iron really make a difference? > > > > Ack! Too many questions. Thanks everyone for helping me figure this out! > > > > Kat > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 12, 2010 Report Share Posted March 12, 2010 Hah, you know, that's one of the ones I had been using pre-SCD, so I continued it off and on with one that was constipating, and then this final one that had illegal ingredients, and caused D (I think). For some reason I though that if it was from vegetarian sources, it would be non-heme iron, and therefore not absorbed as much into the body...but I dont' think I have any evidence to back this up. I know it would be non-heme, but at this point all I need is ferretin, my hemoglobins are happy hemoglobins. I have no idea what is easier to absorb...I'll look into the gentle iron again. Thanks! Kat > > > > > > Kat, Iron supplements feed bad bacteria. Perhaps that is why you reacted. > > > > > > > > > > I've been taking iron supplements since December due to the continued bleeding. It has been believed by both my gastroenterologist and my naturopath that started me on SCD that the risk of feeding the bad bacteria was less than the risk of letting me get more anemic, especially since I am symptomatic of anemia even when the numbers are fairly high but not normal - fainting, fatigue, all that. > > > > I keep thinking I should stop taking the supplements, but I am still losing a little blood every day. I am eating beef, I can tolerate beef liver, but I don't know that the amount of iron in those would make up for what I am losing in my stool. The treatment plan was to keep me on the iron supplements until my anemia was totally gone (just got some ferretin levels to get up at this point - all else normal!), then stop the supplements. > > > > Do you think this is possibly a more harmful way to go? My thinking is that the faster I can kill off the bacteria the better, even if it means I have to get an iron shot - I have heard people get those - I'm a little afraid of the pain, but I can deal with it. I am worried about prolonging the battle in my guts and causing more harm. I would rather lose a little iron intake personally and instead stop bleeding, but feel weird going against what my doctor recommended, and looking at my record, the bleeding probably won't stop anyway, at least for some time. If the bacteria are not getting too much carbs anymore, will the iron really make a difference? > > > > Ack! Too many questions. Thanks everyone for helping me figure this out! > > > > Kat > > > Quote Link to comment Share on other sites More sharing options...
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