solving breathing problems

[Guest guest]

Dear Werner, you are such a "God send" am taking your email to my pcp this week. The mucus thing drives me nuts. I've had this "gob of gunk" in my throat for three months. Plus at least once a day I vomit mucus. My husband bought an air purifer for the bedroom yesterday and it did seem to help some. He said I didn't snore all night. Have you had any liver tests done lately? I seem to have a small tumor on my liver that can be caused by drugs. Just wondering if anybody else has run across this. Its always so great to hear from you....Take care of YOU....Sue

[Guest guest]

Dear Werner, you are such a "God send" am taking your email to my pcp this week. The mucus thing drives me nuts. I've had this "gob of gunk" in my throat for three months. Plus at least once a day I vomit mucus. My husband bought an air purifer for the bedroom yesterday and it did seem to help some. He said I didn't snore all night. Have you had any liver tests done lately? I seem to have a small tumor on my liver that can be caused by drugs. Just wondering if anybody else has run across this. Its always so great to hear from you....Take care of YOU....Sue

[Guest guest]

Hi all,

trying to come back to normal live I take üp a few points from email dated

sept, 9, before the attack:

hi ,

you had a question about inhaling after the meals. With me, I really

experienced that during the meals mucus is somehow generated or mobilized.

And by inhaling afterwards I can clear my throat efficiently. For sure it is

no reflux. But perhaps it is a very personal experience.

hi Arto,

how do you come along with Atrovent? I have no stents. In addition to

Atrovent and Sulatnol I use if nessecary (thick mucus) some diluting agents.

Ons is NAC; Acetylcystein Sodium or Mucosolvan: Ambroxol. NAC (or ACC) is

available as solution for injection. I use this solution for inhaling.

Sometimes when it takes long to clear the throat I also take a salt solution.

The reason is to get liquid into the trachea and bronchis but not to much

drugs.

meanwhile I learnt what a bronchiectasy is.

by thé way: how old are you? I ask because of the long time you live with

stents and such things.

I am still very curious on other experiences to manage breathing problems

Take care everyone

Werner

[Guest guest]

Hi all,

trying to come back to normal live I take üp a few points from email dated

sept, 9, before the attack:

hi ,

you had a question about inhaling after the meals. With me, I really

experienced that during the meals mucus is somehow generated or mobilized.

And by inhaling afterwards I can clear my throat efficiently. For sure it is

no reflux. But perhaps it is a very personal experience.

hi Arto,

how do you come along with Atrovent? I have no stents. In addition to

Atrovent and Sulatnol I use if nessecary (thick mucus) some diluting agents.

Ons is NAC; Acetylcystein Sodium or Mucosolvan: Ambroxol. NAC (or ACC) is

available as solution for injection. I use this solution for inhaling.

Sometimes when it takes long to clear the throat I also take a salt solution.

The reason is to get liquid into the trachea and bronchis but not to much

drugs.

meanwhile I learnt what a bronchiectasy is.

by thé way: how old are you? I ask because of the long time you live with

stents and such things.

I am still very curious on other experiences to manage breathing problems

Take care everyone

Werner

[Guest guest]

Hi Werner!

I still have some kind of trial period with Atrovent. I´ve taken it 1-2

times per day and I think it helps brathing.

Some docs have said, it doesn´t work in my case, but if I feel it helps,

does it matter even if the effect were " between my ears " .

Have to ask my doc about the other solutions you have mentioned.

I´m now 46 and got RP when I was 27. I have had a trach tube, since 1986,

but no stents.

A couple of weeks ago my new lugn doc made a bronchoscope, to check the need

for a stent, but there´s no need for that.

She said the pipes looked better than she expected and it´s a bit mystery,

why my breathing test values are so poor, e.g PEF is 80 - 120.

Viele Herbstgruessen!

Arto

> hi Arto,

> how do you come along with Atrovent? I have no stents. In addition to

> Atrovent and Sulatnol I use if nessecary (thick mucus) some diluting

agents.

> Ons is NAC; Acetylcystein Sodium or Mucosolvan: Ambroxol. NAC (or ACC) is

> available as solution for injection. I use this solution for inhaling.

> Sometimes when it takes long to clear the throat I also take a salt

solution.

> The reason is to get liquid into the trachea and bronchis but not to much

> drugs.

> meanwhile I learnt what a bronchiectasy is.

> by thé way: how old are you? I ask because of the long time you live with

> stents and such things.

>

> I am still very curious on other experiences to manage breathing problems

>

> Take care everyone

> Werner

>

[Guest guest]

Hi Werner!

I still have some kind of trial period with Atrovent. I´ve taken it 1-2

times per day and I think it helps brathing.

Some docs have said, it doesn´t work in my case, but if I feel it helps,

does it matter even if the effect were " between my ears " .

Have to ask my doc about the other solutions you have mentioned.

I´m now 46 and got RP when I was 27. I have had a trach tube, since 1986,

but no stents.

A couple of weeks ago my new lugn doc made a bronchoscope, to check the need

for a stent, but there´s no need for that.

She said the pipes looked better than she expected and it´s a bit mystery,

why my breathing test values are so poor, e.g PEF is 80 - 120.

Viele Herbstgruessen!

Arto

> hi Arto,

> how do you come along with Atrovent? I have no stents. In addition to

> Atrovent and Sulatnol I use if nessecary (thick mucus) some diluting

agents.

> Ons is NAC; Acetylcystein Sodium or Mucosolvan: Ambroxol. NAC (or ACC) is

> available as solution for injection. I use this solution for inhaling.

> Sometimes when it takes long to clear the throat I also take a salt

solution.

> The reason is to get liquid into the trachea and bronchis but not to much

> drugs.

> meanwhile I learnt what a bronchiectasy is.

> by thé way: how old are you? I ask because of the long time you live with

> stents and such things.

>

> I am still very curious on other experiences to manage breathing problems

>

> Take care everyone

> Werner

>