Guest guest Posted September 30, 2001 Report Share Posted September 30, 2001 Margaret, I found a couple of Hobbs posts... If you go to the group site and in the archives type the post number....They are 32922 and32921. If that doesn't work, I will send them to you... Just let me know... A lot of your symptoms sound like fibro, but the pred can do the same thing... I never know what pain is from what disease. LOl Just a guessing game I guess. I would definately have your blood sugar checked and also have your eyes checked too. Sorry you are having such a bad time... Hope you are feeling better soon and your drs. will start listening. (When you find one, let me know) lol So glad you are asking alot of questions... By reading s posts, it made me remember a lot of things I had forgotten (brain fog). Keep asking and we will keep learning. hugs Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 30, 2001 Report Share Posted September 30, 2001 Margaret, I found a couple of Hobbs posts... If you go to the group site and in the archives type the post number....They are 32922 and32921. If that doesn't work, I will send them to you... Just let me know... A lot of your symptoms sound like fibro, but the pred can do the same thing... I never know what pain is from what disease. LOl Just a guessing game I guess. I would definately have your blood sugar checked and also have your eyes checked too. Sorry you are having such a bad time... Hope you are feeling better soon and your drs. will start listening. (When you find one, let me know) lol So glad you are asking alot of questions... By reading s posts, it made me remember a lot of things I had forgotten (brain fog). Keep asking and we will keep learning. hugs Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 30, 2001 Report Share Posted September 30, 2001 Hi everyone. I am trying to keep up with the different emails...it is hard, but I am enjoying reading. Thanks for the input on the hand weakness as well as flares. I have been experiencing flares also, and wondered what was considered a flare and what wasn't. I notice whenever I get upset my ear starts burning and itching and will turn red--when compared with my other one, but it does not swell up. I have also felt something similar with my nose, almost like some shoved a bunch of pepper up it...it is a painful, wanting to sneeze, type feeling. And my scalp--my goodness. I don't even want to wash or brush my hair!!! I also feel the same burning sensation in my back, and am not sure if it is muscle, spinal column, hip, or kidney...because it is all down in the lumbar area...Do the flares continue even when on medication? or does it mean that you aren't on high enough doses? Also, I would really appreciate any info you have on the lifting while on prednisone--I think I will email , also, to see if she still has that article. I have been very weak and very jittery for over a week now. It started when my back went out, and I couldn't go up and down the stairs...then the Vicodin--but that should have worn off now...and I have just been so weak it is ridiculuous...I don't want to get out of bed...it also isn't just my hands, but my whole body, and most of the time I can't do much. My doctor, my PCM, recommended a walker...my rheumy gave me pain killers and muscle relaxers that I can't take because I am already jittery enough.... Has anyone experienced blood sugar problems while on prednisone? I have heard that it can cause diabetes...and wonder if that isn't what I am feeling. I was told by someone that I should be checking my blood sugar, but none of my doctors indicated that to me. I told them I was hypoglycemic, and maybe they figured it wasn't a big deal...I don't know. All I know is that I can't even get a referral to an eye doctor and I wear glasses!!! I do appreciate all the responses...thanks a bunch. I hope everyone is doing well...take care. Margaret Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 30, 2001 Report Share Posted September 30, 2001 Hi everyone. I am trying to keep up with the different emails...it is hard, but I am enjoying reading. Thanks for the input on the hand weakness as well as flares. I have been experiencing flares also, and wondered what was considered a flare and what wasn't. I notice whenever I get upset my ear starts burning and itching and will turn red--when compared with my other one, but it does not swell up. I have also felt something similar with my nose, almost like some shoved a bunch of pepper up it...it is a painful, wanting to sneeze, type feeling. And my scalp--my goodness. I don't even want to wash or brush my hair!!! I also feel the same burning sensation in my back, and am not sure if it is muscle, spinal column, hip, or kidney...because it is all down in the lumbar area...Do the flares continue even when on medication? or does it mean that you aren't on high enough doses? Also, I would really appreciate any info you have on the lifting while on prednisone--I think I will email , also, to see if she still has that article. I have been very weak and very jittery for over a week now. It started when my back went out, and I couldn't go up and down the stairs...then the Vicodin--but that should have worn off now...and I have just been so weak it is ridiculuous...I don't want to get out of bed...it also isn't just my hands, but my whole body, and most of the time I can't do much. My doctor, my PCM, recommended a walker...my rheumy gave me pain killers and muscle relaxers that I can't take because I am already jittery enough.... Has anyone experienced blood sugar problems while on prednisone? I have heard that it can cause diabetes...and wonder if that isn't what I am feeling. I was told by someone that I should be checking my blood sugar, but none of my doctors indicated that to me. I told them I was hypoglycemic, and maybe they figured it wasn't a big deal...I don't know. All I know is that I can't even get a referral to an eye doctor and I wear glasses!!! I do appreciate all the responses...thanks a bunch. I hope everyone is doing well...take care. Margaret Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 30, 2001 Report Share Posted September 30, 2001 Margaret, I developed Diabetes after being on high doses of Pred. Your doctor should be checking this.. Sandy Has anyone experienced blood sugar problems while on prednisone? I haveheard that it can cause diabetes...and wonder if that isn't what I amfeeling. I was told by someone that I should be checking my blood sugar,but none of my doctors indicated that to me. I told them I washypoglycemic, and maybe they figured it wasn't a big deal...I don't know.All I know is that I can't even get a referral to an eye doctor and Iwear glasses!!!I do appreciate all the responses...thanks a bunch. I hope everyone isdoing well...take care.Margaret DISCLAIMER!!WE ARE NOT MEDICAL PROFESSIONALS, THEREFORE ANY INFORMATION THAT IS RECEIVED HERE IS FROM EXPERIENCE ONLY. PLEASE CONSULT WITH YOUR DOCTOR BEFORE TRYING ANYTHING THAT IS SUGGESTED. WE ARE NOT A SUBSTITUTE FOR YOUR PHYSICIAN AND ARE NOT TRYING TO BE. REMEMBER EVERYONE IS DIFFERENT AND TREATMENT MAYBE DIFFERENT FOR MANY OF US. THANK YOU Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 30, 2001 Report Share Posted September 30, 2001 Margaret, I developed Diabetes after being on high doses of Pred. Your doctor should be checking this.. Sandy Has anyone experienced blood sugar problems while on prednisone? I haveheard that it can cause diabetes...and wonder if that isn't what I amfeeling. I was told by someone that I should be checking my blood sugar,but none of my doctors indicated that to me. I told them I washypoglycemic, and maybe they figured it wasn't a big deal...I don't know.All I know is that I can't even get a referral to an eye doctor and Iwear glasses!!!I do appreciate all the responses...thanks a bunch. I hope everyone isdoing well...take care.Margaret DISCLAIMER!!WE ARE NOT MEDICAL PROFESSIONALS, THEREFORE ANY INFORMATION THAT IS RECEIVED HERE IS FROM EXPERIENCE ONLY. PLEASE CONSULT WITH YOUR DOCTOR BEFORE TRYING ANYTHING THAT IS SUGGESTED. WE ARE NOT A SUBSTITUTE FOR YOUR PHYSICIAN AND ARE NOT TRYING TO BE. REMEMBER EVERYONE IS DIFFERENT AND TREATMENT MAYBE DIFFERENT FOR MANY OF US. THANK YOU Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 1, 2001 Report Share Posted October 1, 2001 Hi, I got type II diabetes while I was in a major flare. Not on Pred or any meds at that time. Sorry can't help you on that one...I'm sure someone can...Sue Marth Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 1, 2001 Report Share Posted October 1, 2001 Hi, I got type II diabetes while I was in a major flare. Not on Pred or any meds at that time. Sorry can't help you on that one...I'm sure someone can...Sue Marth Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 1, 2001 Report Share Posted October 1, 2001 .. And my scalp--my goodness. I don't even want to wash or brush my hair!!! I also feel the same burning sensation in my back, and am not sure if it is muscle, spinal column, hip, or When I had my first big flare, I had a very tender scalp, with very bad headaches. Since that one time I have not experienced it to any significant degree. I am not glad that you have this, but I am glad to know that someone else had this as I never knew if it was connected to RP. Do you have vasculitis? I also have Cryoglobulinemia, a type of vasculitis. Hope you feel better soon Donna Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 1, 2001 Report Share Posted October 1, 2001 .. And my scalp--my goodness. I don't even want to wash or brush my hair!!! I also feel the same burning sensation in my back, and am not sure if it is muscle, spinal column, hip, or When I had my first big flare, I had a very tender scalp, with very bad headaches. Since that one time I have not experienced it to any significant degree. I am not glad that you have this, but I am glad to know that someone else had this as I never knew if it was connected to RP. Do you have vasculitis? I also have Cryoglobulinemia, a type of vasculitis. Hope you feel better soon Donna Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 1, 2001 Report Share Posted October 1, 2001 ..Donna, I get the headaches with the tender spots on my scalp. I also have Vasculitis. Could you tell me what Cryoglobulinemia is? Thanks, Sandy When I had my first big flare, I had a very tender scalp, with very bad headaches. Since that one time I have not experienced it to any significant degree. I am not glad that you have this, but I am glad to know that someone else had this as I never knew if it was connected to RP. Do you have vasculitis? I also have Cryoglobulinemia, a type of vasculitis. Hope you feel better soon Donna DISCLAIMER!!WE ARE NOT MEDICAL PROFESSIONALS, THEREFORE ANY INFORMATION THAT IS RECEIVED HERE IS FROM EXPERIENCE ONLY. PLEASE CONSULT WITH YOUR DOCTOR BEFORE TRYING ANYTHING THAT IS SUGGESTED. WE ARE NOT A SUBSTITUTE FOR YOUR PHYSICIAN AND ARE NOT TRYING TO BE. REMEMBER EVERYONE IS DIFFERENT AND TREATMENT MAYBE DIFFERENT FOR MANY OF US. THANK YOU Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 1, 2001 Report Share Posted October 1, 2001 ..Donna, I get the headaches with the tender spots on my scalp. I also have Vasculitis. Could you tell me what Cryoglobulinemia is? Thanks, Sandy When I had my first big flare, I had a very tender scalp, with very bad headaches. Since that one time I have not experienced it to any significant degree. I am not glad that you have this, but I am glad to know that someone else had this as I never knew if it was connected to RP. Do you have vasculitis? I also have Cryoglobulinemia, a type of vasculitis. Hope you feel better soon Donna DISCLAIMER!!WE ARE NOT MEDICAL PROFESSIONALS, THEREFORE ANY INFORMATION THAT IS RECEIVED HERE IS FROM EXPERIENCE ONLY. PLEASE CONSULT WITH YOUR DOCTOR BEFORE TRYING ANYTHING THAT IS SUGGESTED. WE ARE NOT A SUBSTITUTE FOR YOUR PHYSICIAN AND ARE NOT TRYING TO BE. REMEMBER EVERYONE IS DIFFERENT AND TREATMENT MAYBE DIFFERENT FOR MANY OF US. THANK YOU Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.