Guest guest Posted August 7, 2001 Report Share Posted August 7, 2001 I like how they don't mess with > much of your insides. Can someone please tell me alittle about this > surgery? > Hi Becky- Welcome to this site and congrats on your decision. Actually they " mess " with a lot of your insides, they just keep some of the most important stuff intact, like the pyloric valve and an actual portion of your stomach. Your intestines on the other hand, are rearranged to offer a malabsorptive element to the surgery. If you go to www.duodenalswitch.com there is a ton of information on this surgery and also comparisons between BPD/DS and other forms of weight loss surgery. They also have drawn pictures of what your stomach and intestines will look like after surgery. This surgery may cause you to suppliment more vitamins and minerals (depending on the patient and blood work) but in the long run I believe the side effects and quality of life and diet are ultimately better. I am still a pre-op, so you will get more real life information from the post-ops who are members of this site, but I have researched a lot and am happy with the choice to have BPD/DS instead of the RnY or other type of surgery. The people on this site are well informed and always seem willing to help answer questions, so feel free. This site has been wonderful and I hope you enjoy the people and posts as much as I have. Take care and good luck, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 7, 2001 Report Share Posted August 7, 2001 At 6:20 AM +0000 8/7/01, RebEstrad@... wrote: >Hi everyone, > >I just found this website today. I'm still waiting on approval from >my ins. co. I'm not sure what surgery I'm going to have, but the >duodenal switch sounds good to me. I like how they don't mess with >much of your insides. Ah, Becky, sorry to break the bad news, but DS DOES mess with your insides, big time. WLS--any WLS--is MAJOR surgery. This certainly includes the RnY and the DS. Having said all that, I had the DS, and I am darned glad that I did. I am down 55 pounds since May 2nd. 120 pounds to go. But, you should be well informed before you make decisions, and at this point, it appears that you are just starting out. >Can someone please tell me alittle about this >surgery? Please take a look at www.duodenalswitch.com for starters. Others on this list will doubtless tell you more than i have time at the moment to relate. Good luck in your quest. > >Becky > --Steve -- Steve Goldstein, age 61 Lap BPD/DS on May 2, 2001 Dr. Elariny, INOVA Fairfax Hospital, Virginia Starting (05/02/01) BMI = 51 BMI on 08/07 = 42 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 7, 2001 Report Share Posted August 7, 2001 Hi Becky.. Welcome! Here's some basic info on the DS: http://www.mywls.com/body_duodenal_switch/body_duodenal_switch.html. Also see the more thorough site: http://www.duodenalswitch.com to find published clinical reports, patients, surgeons and more.. Good luck to you! heidi http://www.mywls.com/discus Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 16, 2001 Report Share Posted August 16, 2001 In a message dated 8/16/01 8:23:15 PM, duodenalswitch writes: << My name is Goff. I live in southern Indiana. I have been recently aproved for a Fobi-Pouch by my insurance (BCBS of AL). My doctor, Dr. Husted in Nashville, TN, had me come to his office yesterday suggesting that I switch procedures and go to BPD/DS. The biggest thing that concerns me is the feeling of getting the " O'l bait and switch " . Something else that concers me is that in October I would be the 9th or 10th BPD/DS performed. I have a BMI of 62 and eager to recieve WLS. I wanted to thank everyone for their input and participation. All though I am probably going to be more of an observer at first all that everyone does is appreciated... >> JOHN: I WOULD BE EXTREMELY, EXTREMELY CAREFUL OF THIS. A PERSON RECENTLY PASSED AWAY AFTER FACING A SIMILAR EXPERIENCE --- He was going for the fobi pouch but Dr. Husted recommended a BPD/DS at the last moment. Larry Young was Dr. Husted's first BPD/DS and he passed away from complications. I would think that would make you his SECOND BPD/DS. ASK HIM WHAT EXPERIENCE HE HAS WITH THIS PROCEDURE ---- If you are interested in the BPD/DS, please, please -- find a more experienced surgeon! The DS is a wonderful surgery but extremely complex. I would only trust one of the top surgeons in the country to perform it on me (as I did with Dr. Gagner, the pioneer of the lap DS). I would be extremely disconcerted as well if my surgeon all of the sudden switched procedures on me, especially after his first patient passed away! I mean, this bait and switch tactic makes me feel very uncomfortable... why is he continuing to do this to patients unless he is trying to put them up against the wall and not giving them enough time to really consider their options?????? You can find out more information on Larry at his surgery page at the AMOS site (Association for Morbid Obesity) at: http://www.obesityhelp.com/morbidobesity/status.phtml?N=Y987203084 All the best, Noverr-Chin co-moderator, duodenalswitch lap ds with gallbladder removal january 25, 2001 six months post-op and still feelin' fabu! pre-op: 307 lbs/bmi 45 now: 230 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 16, 2001 Report Share Posted August 16, 2001 In a message dated 8/16/01 11:27:06 PM Eastern Daylight Time, ruisha@... writes: > Larry Young > was Dr. Husted's first BPD/DS and he passed away from complications. I > would > think that would make you his SECOND BPD/DS. I Know that Dr. Husted has done a second BPD/DS.Her name is Sherri Carver. THis is her web page. I believe she has not been released from the hospital yet, but am not positive about that. Robyn http://www.carvercentral.com/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 16, 2001 Report Share Posted August 16, 2001 In a message dated 8/16/01 6:17:04 PM Pacific Daylight Time, steve-goldstein@... writes: > You SHOULD be concerned with your high BMI and a surgeon relatively > inexperienced in the DS. High BMI's require special care and > experience. I would also find out the BMI " s he's already done...that will help you decide.... ~~* AJ *~~ Post op 7/24/01 Open BPD/DS self pay - Dr Baltasar -Alcoy Spain 07/24/01 BMI 64 - 415.1 08/06/01 BMI 59 - 390.2 -24.9 lbs!!!!!!!!!!~~~~ Check out the Bellingham Support for WLS WWW.WLSBellingham.homestead.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 16, 2001 Report Share Posted August 16, 2001 no bait and switch here.. try that Dr. Husted has found a surgery he feels is more effective. But in the end, its your choice. Me, I didn't want a Fobi.. or any kind of RnY.. just my .02, Liane > Hi, > > My name is Goff. I live in southern Indiana. I have been > recently aproved for a Fobi-Pouch by my insurance (BCBS of AL). > > My doctor, Dr. Husted in Nashville, TN, had me come to his > office yesterday suggesting that I switch procedures and go to > BPD/DS. The biggest thing that concerns me is the feeling of getting > the " O'l bait and switch " . Something else that concers me is that in > October I would be the 9th or 10th BPD/DS performed. I have a BMI of > 62 and eager to recieve WLS. > > I wanted to thank everyone for their input and participation. All > though I am probably going to be more of an observer at first all > that everyone does is appreciated... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 16, 2001 Report Share Posted August 16, 2001 At 12:21 AM +0000 8/17/01, JEGoff1@... wrote: >...Something else that concers me is that in >October I would be the 9th or 10th BPD/DS performed. I have a BMI of >62 and eager to recieve WLS. , You SHOULD be concerned with your high BMI and a surgeon relatively inexperienced in the DS. High BMI's require special care and experience. Patient #1 died, though not immediately after surgery. It shook us all up and led to long soul-searching discussions on the topic of " How could we let Larry go through this surgery as patient #1, and with his high BMI? " You might want to check with at least one more established DS surgeon and get another opinion before you proceed. Maybe others can suggest who the other surgeons that deal with high BMI patients might be. --Steve -- Steve Goldstein, age 61 Lap BPD/DS on May 2, 2001 Dr. Elariny, INOVA Fairfax Hospital, Virginia Starting (05/02/01) BMI = 51 BMI on 08/07 = 42 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 16, 2001 Report Share Posted August 16, 2001 , With your really high BMI I would consider a different surgeon if at all possible who is more experienced in doing this surgery on High BMI patients. I would be a bit nervous about being the 9th or 10th patient on this surgery. Nahodil BPD/DS Dr. Elariny INOVA Fairfax Hospital 9/27/01 (new date) Lap New to the group Hi, My name is Goff. I live in southern Indiana. I have been recently aproved for a Fobi-Pouch by my insurance (BCBS of AL). My doctor, Dr. Husted in Nashville, TN, had me come to his office yesterday suggesting that I switch procedures and go to BPD/DS. The biggest thing that concerns me is the feeling of getting the " O'l bait and switch " . Something else that concers me is that in October I would be the 9th or 10th BPD/DS performed. I have a BMI of 62 and eager to recieve WLS. I wanted to thank everyone for their input and participation. All though I am probably going to be more of an observer at first all that everyone does is appreciated... ---------------------------------------------------------------------- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 17, 2001 Report Share Posted August 17, 2001 OR... if would like to speak to Sherri Carver.. Dr. Husted's SECOND DS (BMI68)... her hospital # is 1-.. room 8313. Thus far, Boo is doing terrific. BTW.. Larry died of a pulmonary embolus.. which he could have had WITHOUT ANY SURGERY AT ALL. I think this is unfair to Dr. Husted... and much worse than anything said thus far about Dr. Ren.. this is character assasination based on ONE patient. My .02, Liane > JOHN: I WOULD BE EXTREMELY, EXTREMELY CAREFUL OF THIS. A PERSON RECENTLY > PASSED AWAY AFTER FACING A SIMILAR EXPERIENCE --- He was going for the fobi > pouch but Dr. Husted recommended a BPD/DS at the last moment. Larry Young > was Dr. Husted's first BPD/DS and he passed away from complications. I would > think that would make you his SECOND BPD/DS. ASK HIM WHAT EXPERIENCE HE HAS > WITH THIS PROCEDURE ---- I<snip> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 17, 2001 Report Share Posted August 17, 2001 At 6:39 AM +0000 8/17/01, Lili F. wrote: >... >BTW.. Larry died of a pulmonary embolus.. which he could have had >WITHOUT ANY SURGERY AT ALL. I think this is unfair to Dr. Husted... >and much worse than anything said thus far about Dr. Ren.. this is >character assasination based on ONE patient. Here's my 20¢, Liane: the issue is not so much the precise cause of death, but Dr. Husted's judgment in his apparently hasty decision to perform his very first DS on a Super-MO patient where complications could be expected. Did have filters to catch the emboli before then could get to the lungs? I am not sure if that information was disclosed. I surely don't know all the facts. And, I had not suggested that dissociate from Dr. Husted, but that he get consults with some of the " stars " of DS surgery before signing up for Dr. Husted's program. Our newly-raised collective conscious suggested at least that much to me. --Steve > >My .02, >Liane -- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 17, 2001 Report Share Posted August 17, 2001 In a message dated 8/17/01 2:40:33 AM, duodenalswitch writes: << I Know that Dr. Husted has done a second BPD/DS.Her name is Sherri Carver. THis is her web page. I believe she has not been released from the hospital yet, but am not positive about that. Robyn >> Oh, Sherri (boobunnies) -- that's RIGHT, she had Dr. Husted, too. BUT, she had ALWAYS wanted the DS (it wasn't a switcheroo decision for her). I am extremely hesitant about the situation where a surgeon switches a recommended surgery on someone right before the surgery date.... I think Sherri is doing well. She had a lot of health problems before the surgery and had to work them out before she actually got scheduled. It's been a long, hard road for her to get the surgery! In any event, I would DEFINATELY ask the surgeon about past experience and make a decision from that point. It sounded like the original poster was unaware of Dr. Husted's experience -- He may have performed more than two at this point for all I know... I do know that he is definately in the beginning stages of performing this surgery and patients should have this information when making their decision. all the best, lap ds with gallbladder removal January 25, 2001 Dr. Gagner/Mt. Sinai/NYC Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 17, 2001 Report Share Posted August 17, 2001 In a message dated 8/17/01 2:40:33 AM, duodenalswitch writes: << I Know that Dr. Husted has done a second BPD/DS.Her name is Sherri Carver. THis is her web page. I believe she has not been released from the hospital yet, but am not positive about that. Robyn >> Oh, Sherri (boobunnies) -- that's RIGHT, she had Dr. Husted, too. BUT, she had ALWAYS wanted the DS (it wasn't a switcheroo decision for her). I am extremely hesitant about the situation where a surgeon switches a recommended surgery on someone right before the surgery date.... I think Sherri is doing well. She had a lot of health problems before the surgery and had to work them out before she actually got scheduled. It's been a long, hard road for her to get the surgery! In any event, I would DEFINATELY ask the surgeon about past experience and make a decision from that point. It sounded like the original poster was unaware of Dr. Husted's experience -- He may have performed more than two at this point for all I know... I do know that he is definately in the beginning stages of performing this surgery and patients should have this information when making their decision. all the best, lap ds with gallbladder removal January 25, 2001 Dr. Gagner/Mt. Sinai/NYC Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 17, 2001 Report Share Posted August 17, 2001 > BTW.. Larry died of a pulmonary embolus.. which he could have had > WITHOUT ANY SURGERY AT ALL. I think this is unfair to Dr. Husted... > and much worse than anything said thus far about Dr. Ren.. this is > character assasination based on ONE patient. > > My .02, > Liane Hi Liane- Another way to look at this is that, as of now, 50% of Dr. Husted's patients have died. That would be as inappropriate as it is to say that the criticism is based upon a single patient's outcome. What bothered me was that Dr. Husted made his first efforts on such a high risk patient. Informed consent or not, that still bothers me. It also appears that Dr. Husted is not in a facility that is, as yet, able to provide adequate infrastructure for the MO patient. Note that neither patient was able to have the post op leak test because they were too big for the table. That's a not-so-little detail that one would expect would be worked out before surgery is performed. Granted, these are but two factors. However, they are not insignificant in my view. I'd bet that Dr. Husted has the makings of a great DS surgeon. He just plain needs more experience and must be sure that his facility has all of it's ducks lined up. Best - Nick Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 17, 2001 Report Share Posted August 17, 2001 > BTW.. Larry died of a pulmonary embolus.. which he could have had > WITHOUT ANY SURGERY AT ALL. I think this is unfair to Dr. Husted... > and much worse than anything said thus far about Dr. Ren.. this is > character assasination based on ONE patient. > > My .02, > Liane Hi Liane- Another way to look at this is that, as of now, 50% of Dr. Husted's patients have died. That would be as inappropriate as it is to say that the criticism is based upon a single patient's outcome. What bothered me was that Dr. Husted made his first efforts on such a high risk patient. Informed consent or not, that still bothers me. It also appears that Dr. Husted is not in a facility that is, as yet, able to provide adequate infrastructure for the MO patient. Note that neither patient was able to have the post op leak test because they were too big for the table. That's a not-so-little detail that one would expect would be worked out before surgery is performed. Granted, these are but two factors. However, they are not insignificant in my view. I'd bet that Dr. Husted has the makings of a great DS surgeon. He just plain needs more experience and must be sure that his facility has all of it's ducks lined up. Best - Nick Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 2, 2001 Report Share Posted December 2, 2001 Barbara You are a member! Your husband signed you up and that is all you have to do. Now if you want to join the foundation that is different. Someone will post you with more information on that if you would like. Feel free to ask all the questions you want! That is what the group is for. They are the greatest group of people you will ever have the opportunity to me. Post when ever and as much as you would like! We are here for you! Lots of LoveGlenda Yesterday is History....Tomorrow is a Mystery...Today is a Gift! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 2, 2001 Report Share Posted December 2, 2001 Barbara You are a member! Your husband signed you up and that is all you have to do. Now if you want to join the foundation that is different. Someone will post you with more information on that if you would like. Feel free to ask all the questions you want! That is what the group is for. They are the greatest group of people you will ever have the opportunity to me. Post when ever and as much as you would like! We are here for you! Lots of LoveGlenda Yesterday is History....Tomorrow is a Mystery...Today is a Gift! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 3, 2001 Report Share Posted December 3, 2001 Hi Barbara, Welcome to the group! Wow, you've been through a lot with this stuff! The RP has also affected my kidneys but my kidney involvement is much milder than yours. Shortly after I was diagnosed with RP (last November) I had a kidney biopsy that confirmed it had affected my kidneys although they are still functioning at almost 100%. Your kidney stone experience at the hospital sounds similar to mine in March. Excruciating pain in my side, went to emergency, they thought for sure it was a kidney stone but couldn't find one. I have several questions: did you ever have a recurrence of that pain? Are you seeing a nephrologist? What do your doctors do about your ribs? Is it just inflammation over time that deteriorates the rib bone? I have a lot of rib tenderness and some pain but so far my rheumatalogist hasn't not done anything except examine me for it (no tests to see if there's damage). I guess that's enough questions for one email eh? Anyway, I'm glad you're part of the group! -----Original Message-----From: Barbara Cash Sent: Sunday, December 02, 2001 7:26 PMTo: rpolychondritis Subject: new to the group Hello to all of you, My name is Barbara I am 56, married to a wonderful guy named Tony we have one daughter and one granddaughter, we are about 40 miles north of Atlanta Georgia, Tony, signed me up on this group some time ago after I was told I might have RP my MD. had never seen RP and knew nothing about it. As for me I had never heard of it, now thanks to you guys and the net I know more than I sometimes won't to I have been reading your post. I wont to thank each of you for not kicking me off, I guess I just had a hard time facing up to the truth. but now it's time, and there is so much I don't understand. Not only about RP but also this box in front of me, yes I'm new on the computer, so you will have to look over my mistakes ( I'm also a blond ). In 1989, I started having bad sinus problems, in 1992, I was in hosp. for kidney stones they never passed nor was never found on x-ray, 1993, still having trouble with sinus by now I had a sore to come on the inside of my nose, the dummy I had for a E.N.T. Dr. did what he called a biopsy in the office, and all kind of blood work. His answer was it might be Wagener's, just a short time after his biopsy in 1995, my nose fell in. 1997, more kidney problems and still having sinus, I went to a E.N.T at Emory hosp.and had a biopsy on my nose and ear, this time I was told I had RP. I ask about having my nose fixed he said it would be ok and gave me a name of a Dr. to see at Georgia Baptist hosp. He did not offer any type of treatment at this time nor did he tell me very much about it. The next week I started having awful rib pain, my regular MD. was out of town, I went to see a new MD. her answer, I had cracked a rib coughing. After two months she could not understand why I was still in so much pain, again in 2000 I had another round of rib pain, this one stayed with me for about three months, pain pills and antibiotics that is all I ever got from the DR. In Sept, of this year more rib pain, I went back to my old MD. This time after more bloodwork and test I was told I had 20 rib fractures and degenerative changes in the neck and back. I was then sent to a rheumatologist, who did more test, four weeks ago he diagnosis me with RP and started treating me for it with celebrex, Imuran, Colchicine, and pain med when I need it. At this time I have 50% kidney function along with the nose, ribs, osteoporosis and God only knows what else he is still looking and it's not looking very good to me, I will fill you in later on the rest of it. Now will some one tell me how to become a full member of the group and what your rules are ? I have lot of ?? OH, could I get a members list to? Thank God for each of you and what you are doing here. Barbara Cash 2626 Buford Hwy Cumming, Georgia 30041 (770)--887-0647 DISCLAIMER!!WE ARE NOT MEDICAL PROFESSIONALS, THEREFORE ANY INFORMATION THAT IS RECEIVED HERE IS FROM EXPERIENCE ONLY. PLEASE CONSULT WITH YOUR DOCTOR BEFORE TRYING ANYTHING THAT IS SUGGESTED. WE ARE NOT A SUBSTITUTE FOR YOUR PHYSICIAN AND ARE NOT TRYING TO BE. REMEMBER EVERYONE IS DIFFERENT AND TREATMENT MAYBE DIFFERENT FOR MANY OF US. THANK YOU Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 3, 2001 Report Share Posted December 3, 2001 Hi Barbara, Welcome to the group! Wow, you've been through a lot with this stuff! The RP has also affected my kidneys but my kidney involvement is much milder than yours. Shortly after I was diagnosed with RP (last November) I had a kidney biopsy that confirmed it had affected my kidneys although they are still functioning at almost 100%. Your kidney stone experience at the hospital sounds similar to mine in March. Excruciating pain in my side, went to emergency, they thought for sure it was a kidney stone but couldn't find one. I have several questions: did you ever have a recurrence of that pain? Are you seeing a nephrologist? What do your doctors do about your ribs? Is it just inflammation over time that deteriorates the rib bone? I have a lot of rib tenderness and some pain but so far my rheumatalogist hasn't not done anything except examine me for it (no tests to see if there's damage). I guess that's enough questions for one email eh? Anyway, I'm glad you're part of the group! -----Original Message-----From: Barbara Cash Sent: Sunday, December 02, 2001 7:26 PMTo: rpolychondritis Subject: new to the group Hello to all of you, My name is Barbara I am 56, married to a wonderful guy named Tony we have one daughter and one granddaughter, we are about 40 miles north of Atlanta Georgia, Tony, signed me up on this group some time ago after I was told I might have RP my MD. had never seen RP and knew nothing about it. As for me I had never heard of it, now thanks to you guys and the net I know more than I sometimes won't to I have been reading your post. I wont to thank each of you for not kicking me off, I guess I just had a hard time facing up to the truth. but now it's time, and there is so much I don't understand. Not only about RP but also this box in front of me, yes I'm new on the computer, so you will have to look over my mistakes ( I'm also a blond ). In 1989, I started having bad sinus problems, in 1992, I was in hosp. for kidney stones they never passed nor was never found on x-ray, 1993, still having trouble with sinus by now I had a sore to come on the inside of my nose, the dummy I had for a E.N.T. Dr. did what he called a biopsy in the office, and all kind of blood work. His answer was it might be Wagener's, just a short time after his biopsy in 1995, my nose fell in. 1997, more kidney problems and still having sinus, I went to a E.N.T at Emory hosp.and had a biopsy on my nose and ear, this time I was told I had RP. I ask about having my nose fixed he said it would be ok and gave me a name of a Dr. to see at Georgia Baptist hosp. He did not offer any type of treatment at this time nor did he tell me very much about it. The next week I started having awful rib pain, my regular MD. was out of town, I went to see a new MD. her answer, I had cracked a rib coughing. After two months she could not understand why I was still in so much pain, again in 2000 I had another round of rib pain, this one stayed with me for about three months, pain pills and antibiotics that is all I ever got from the DR. In Sept, of this year more rib pain, I went back to my old MD. This time after more bloodwork and test I was told I had 20 rib fractures and degenerative changes in the neck and back. I was then sent to a rheumatologist, who did more test, four weeks ago he diagnosis me with RP and started treating me for it with celebrex, Imuran, Colchicine, and pain med when I need it. At this time I have 50% kidney function along with the nose, ribs, osteoporosis and God only knows what else he is still looking and it's not looking very good to me, I will fill you in later on the rest of it. Now will some one tell me how to become a full member of the group and what your rules are ? I have lot of ?? OH, could I get a members list to? Thank God for each of you and what you are doing here. Barbara Cash 2626 Buford Hwy Cumming, Georgia 30041 (770)--887-0647 DISCLAIMER!!WE ARE NOT MEDICAL PROFESSIONALS, THEREFORE ANY INFORMATION THAT IS RECEIVED HERE IS FROM EXPERIENCE ONLY. PLEASE CONSULT WITH YOUR DOCTOR BEFORE TRYING ANYTHING THAT IS SUGGESTED. WE ARE NOT A SUBSTITUTE FOR YOUR PHYSICIAN AND ARE NOT TRYING TO BE. REMEMBER EVERYONE IS DIFFERENT AND TREATMENT MAYBE DIFFERENT FOR MANY OF US. THANK YOU Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 3, 2001 Report Share Posted December 3, 2001 Glenda Thanks for the info. I would like to know how the foundation works. My husband is all time doing things for me,( bless his heart )but this takes the cake! May I use a line from Martha S. and say this is a very good thing. Love Barb > Barbara > You are a member! Your husband signed you up and that is all you have to do. Now if you want to join the foundation that is different. Someone will post you with more information on that if you would like. > > Feel free to ask all the questions you want! That is what the group is for. They are the greatest group of people you will ever have the opportunity to me. > > Post when ever and as much as you would like! We are here for you! > > Lots of Love > Glenda > > Yesterday is History....Tomorrow is a Mystery...Today is a Gift! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 3, 2001 Report Share Posted December 3, 2001 Glenda Thanks for the info. I would like to know how the foundation works. My husband is all time doing things for me,( bless his heart )but this takes the cake! May I use a line from Martha S. and say this is a very good thing. Love Barb > Barbara > You are a member! Your husband signed you up and that is all you have to do. Now if you want to join the foundation that is different. Someone will post you with more information on that if you would like. > > Feel free to ask all the questions you want! That is what the group is for. They are the greatest group of people you will ever have the opportunity to me. > > Post when ever and as much as you would like! We are here for you! > > Lots of Love > Glenda > > Yesterday is History....Tomorrow is a Mystery...Today is a Gift! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 4, 2001 Report Share Posted December 4, 2001 Barbara, Welcome to the most wonderful group there is... You will soon see that we all become family. I'm so sorry that you had to go through so much before you found the right dr. Seems like alot of us have to go through this process of finding the right team. Luckily you have. Please ask all the questions you want. We all learn from them I am 50, live in Calif. , have 3 daughters and 1 grandaughter and 1 stepgrandson. I was diagnosed with RP in 1998. Oh and I've been married a LONG time to Rich, my husband, he is wonderful. I am lucky that I have a great support system at home, but I think we all need to talk to ones who really know what we deal with. Again Welcome and I can't wait to get to know you better. hugs Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 4, 2001 Report Share Posted December 4, 2001 Barbara, Welcome to the most wonderful group there is... You will soon see that we all become family. I'm so sorry that you had to go through so much before you found the right dr. Seems like alot of us have to go through this process of finding the right team. Luckily you have. Please ask all the questions you want. We all learn from them I am 50, live in Calif. , have 3 daughters and 1 grandaughter and 1 stepgrandson. I was diagnosed with RP in 1998. Oh and I've been married a LONG time to Rich, my husband, he is wonderful. I am lucky that I have a great support system at home, but I think we all need to talk to ones who really know what we deal with. Again Welcome and I can't wait to get to know you better. hugs Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 13, 2010 Report Share Posted March 13, 2010 Hey Gang - So I have UC and started the diet about a week ago - I am doing pretty well - stomach pain way less, little to no gas, had two bms yesterday and one was halfway formed!!!!! I did notice way more diarrhea in the beginning - like 8 to 10 times a day at my worst!!! Which I read often happnes at the beginning. One thing that worries me a little is the color - it is darker than normal and kinda green. What a way to introduce myself to the group!! - a question on diarrhea color!!! But just wondered if that was something others had found happens? Also does anyone know of any support groups in the Austin, Texas area? I know having one would help - Thanks! - Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 13, 2010 Report Share Posted March 13, 2010 Hey Gang - So I have UC and started the diet about a week ago - I am doing pretty well - stomach pain way less, little to no gas, had two bms yesterday and one was halfway formed!!!!! I did notice way more diarrhea in the beginning - like 8 to 10 times a day at my worst!!! Which I read often happnes at the beginning. One thing that worries me a little is the color - it is darker than normal and kinda green. What a way to introduce myself to the group!! - a question on diarrhea color!!! But just wondered if that was something others had found happens? Also does anyone know of any support groups in the Austin, Texas area? I know having one would help - Thanks! - Quote Link to comment Share on other sites More sharing options...
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