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After almost a year I notice how much i've been doing wrong. So, back to basics but need advice.

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I've been on SCD since for about 9 months so far and with my most recent flare I started looking at what i've been doing. Since the past 4 months before this flare I was doing fine and then with the need to take antibiotics which killed my insides, I think I have to start over. I'm having alot of trouble identifying what foods I am reacting to right now. I think the problem is that I am weening off my medicine too quickyl, but I have no choice in that matter. So, as i'm weening off the meds i'm also trying to introduce new foods one at a time. It seems like i'm reacting to everything because i'm getting progressively worse and not better no matter what I take out or add in as far as new foods. I'm eating plain beef and plain chicken from the crock pot with pepper and salt. Sometimes I add marjoram but very little. I am also eating ripe avocado and just yesterday tried eating some well cooked beets with plain hamburger for iron. In the time I was doing good on SCD and was taking only a little but of medicine I could tolerate almond flour well, steamed carrots, juices, apple cider, raisins, and a bunch of other things. I have cut all that out because I don't want to make things worse than they already are. I'm worried about losing too much weight. I'm already at a lower weight than I was when I wrestled in high school, and I had to run around with a plastic bag around my body to lose that weight!Should I eat the foods I could tolerate before to try and gain some weight back?my biggest concerns right now are blood loss since i'm starting to get pale, and weight.Suggestions for moving forward from here? I don't have the option of increasing my meds right now because of health insurance.-UC - 1+ yearsSCD - 7 months 100% strict and 4 months restricted diet.Asacol - 5 pills a day Hotmail: Trusted email with Microsoft’s powerful SPAM protection. Sign up now.

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I've been on SCD since for about 9 months so far and with my most recent flare I started looking at what i've been doing. Since the past 4 months before this flare I was doing fine and then with the need to take antibiotics which killed my insides, I think I have to start over. I'm having alot of trouble identifying what foods I am reacting to right now. I think the problem is that I am weening off my medicine too quickyl, but I have no choice in that matter. So, as i'm weening off the meds i'm also trying to introduce new foods one at a time. It seems like i'm reacting to everything because i'm getting progressively worse and not better no matter what I take out or add in as far as new foods. I'm eating plain beef and plain chicken from the crock pot with pepper and salt. Sometimes I add marjoram but very little. I am also eating ripe avocado and just yesterday tried eating some well cooked beets with plain hamburger for iron. In the time I was doing good on SCD and was taking only a little but of medicine I could tolerate almond flour well, steamed carrots, juices, apple cider, raisins, and a bunch of other things. I have cut all that out because I don't want to make things worse than they already are. I'm worried about losing too much weight. I'm already at a lower weight than I was when I wrestled in high school, and I had to run around with a plastic bag around my body to lose that weight!Should I eat the foods I could tolerate before to try and gain some weight back?my biggest concerns right now are blood loss since i'm starting to get pale, and weight.Suggestions for moving forward from here? I don't have the option of increasing my meds right now because of health insurance.-UC - 1+ yearsSCD - 7 months 100% strict and 4 months restricted diet.Asacol - 5 pills a day Hotmail: Trusted email with Microsoft’s powerful SPAM protection. Sign up now.

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Hi,

I would recommend to start writing down what you eat including the intensity of your symptoms and trips to the restroom. I would also re comment to add yogurt and Lyo Sun capsules and also minimize the sugar (even from fruits) in your diet. The dose of Asacol that you are taking is so small that I am afraid with all the foods that you are adding this is just too much for your intestine at this point as you are not healed. I would also remove pepper from your diet ( no spices at this point). Eat everything fresh ( no more that 48 hours old), no fry food, made from scratch chicken soup could help a lot to heal and liver ( for the iron).

Best,

Subject: After almost a year I notice how much i've been doing wrong. So, back to basics but need advice.To: btvc-scd Date: Sunday, March 14, 2010, 12:16 PM

I've been on SCD since for about 9 months so far and with my most recent flare I started looking at what i've been doing. Since the past 4 months before this flare I was doing fine and then with the need to take antibiotics which killed my insides, I think I have to start over. I'm having alot of trouble identifying what foods I am reacting to right now. I think the problem is that I am weening off my medicine too quickyl, but I have no choice in that matter. So, as i'm weening off the meds i'm also trying to introduce new foods one at a time. It seems like i'm reacting to everything because i'm getting progressively worse and not better no matter what I take out or add in as far as new foods. I'm eating plain beef and plain chicken from the crock pot with pepper and salt. Sometimes I add marjoram but very little. I am also eating ripe avocado and just yesterday tried eating some well cooked beets with plain hamburger for iron. In the time I was

doing good on SCD and was taking only a little but of medicine I could tolerate almond flour well, steamed carrots, juices, apple cider, raisins, and a bunch of other things. I have cut all that out because I don't want to make things worse than they already are. I'm worried about losing too much weight. I'm already at a lower weight than I was when I wrestled in high school, and I had to run around with a plastic bag around my body to lose that weight!Should I eat the foods I could tolerate before to try and gain some weight back?my biggest concerns right now are blood loss since i'm starting to get pale, and weight.Suggestions for moving forward from here? I don't have the option of increasing my meds right now because of health insurance.-UC - 1+ yearsSCD - 7 months 100% strict and 4 months restricted diet.Asacol - 5 pills a day

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Hi,

I would recommend to start writing down what you eat including the intensity of your symptoms and trips to the restroom. I would also re comment to add yogurt and Lyo Sun capsules and also minimize the sugar (even from fruits) in your diet. The dose of Asacol that you are taking is so small that I am afraid with all the foods that you are adding this is just too much for your intestine at this point as you are not healed. I would also remove pepper from your diet ( no spices at this point). Eat everything fresh ( no more that 48 hours old), no fry food, made from scratch chicken soup could help a lot to heal and liver ( for the iron).

Best,

Subject: After almost a year I notice how much i've been doing wrong. So, back to basics but need advice.To: btvc-scd Date: Sunday, March 14, 2010, 12:16 PM

I've been on SCD since for about 9 months so far and with my most recent flare I started looking at what i've been doing. Since the past 4 months before this flare I was doing fine and then with the need to take antibiotics which killed my insides, I think I have to start over. I'm having alot of trouble identifying what foods I am reacting to right now. I think the problem is that I am weening off my medicine too quickyl, but I have no choice in that matter. So, as i'm weening off the meds i'm also trying to introduce new foods one at a time. It seems like i'm reacting to everything because i'm getting progressively worse and not better no matter what I take out or add in as far as new foods. I'm eating plain beef and plain chicken from the crock pot with pepper and salt. Sometimes I add marjoram but very little. I am also eating ripe avocado and just yesterday tried eating some well cooked beets with plain hamburger for iron. In the time I was

doing good on SCD and was taking only a little but of medicine I could tolerate almond flour well, steamed carrots, juices, apple cider, raisins, and a bunch of other things. I have cut all that out because I don't want to make things worse than they already are. I'm worried about losing too much weight. I'm already at a lower weight than I was when I wrestled in high school, and I had to run around with a plastic bag around my body to lose that weight!Should I eat the foods I could tolerate before to try and gain some weight back?my biggest concerns right now are blood loss since i'm starting to get pale, and weight.Suggestions for moving forward from here? I don't have the option of increasing my meds right now because of health insurance.-UC - 1+ yearsSCD - 7 months 100% strict and 4 months restricted diet.Asacol - 5 pills a day

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I'll take the spices out of everything except for the chicken and beef that I already have in the fridge. I took the yogurt out to see if that was my problem but I don't think so anymore, so i'll add that back in.I've been eating the livers from the chickens that I buy. Is beef liver just as good? Fortunatly I love the taste of liver, but I was always told not to eat too much of it.-UC - 1+ yearsSCD - 7 months 100% strict and 4 months restricted diet.Asacol - 5 pills a dayTo: BTVC-SCD From: pmazd@...Date: Sun, 14 Mar 2010 09:37:13 -0700Subject: Re: After almost a year I notice how much i've been doing wrong. So, back to basics but need advice.

Hi,

I would recommend to start writing down what you eat including the intensity of your symptoms and trips to the restroom. I would also re comment to add yogurt and Lyo Sun capsules and also minimize the sugar (even from fruits) in your diet. The dose of Asacol that you are taking is so small that I am afraid with all the foods that you are adding this is just too much for your intestine at this point as you are not healed. I would also remove pepper from your diet ( no spices at this point). Eat everything fresh ( no more that 48 hours old), no fry food, made from scratch chicken soup could help a lot to heal and liver ( for the iron).

Best,

From: T <scdguy26 (AT) hotmail (DOT) com>Subject: After almost a year I notice how much i've been doing wrong. So, back to basics but need advice.To: btvc-scd Date: Sunday, March 14, 2010, 12:16 PM

I've been on SCD since for about 9 months so far and with my most recent flare I started looking at what i've been doing. Since the past 4 months before this flare I was doing fine and then with the need to take antibiotics which killed my insides, I think I have to start over. I'm having alot of trouble identifying what foods I am reacting to right now. I think the problem is that I am weening off my medicine too quickyl, but I have no choice in that matter. So, as i'm weening off the meds i'm also trying to introduce new foods one at a time. It seems like i'm reacting to everything because i'm getting progressively worse and not better no matter what I take out or add in as far as new foods. I'm eating plain beef and plain chicken from the crock pot with pepper and salt. Sometimes I add marjoram but very little. I am also eating ripe avocado and just yesterday tried eating some well cooked beets with plain hamburger for iron. In the time I was

doing good on SCD and was taking only a little but of medicine I could tolerate almond flour well, steamed carrots, juices, apple cider, raisins, and a bunch of other things. I have cut all that out because I don't want to make things worse than they already are. I'm worried about losing too much weight. I'm already at a lower weight than I was when I wrestled in high school, and I had to run around with a plastic bag around my body to lose that weight!Should I eat the foods I could tolerate before to try and gain some weight back?my biggest concerns right now are blood loss since i'm starting to get pale, and weight.Suggestions for moving forward from here? I don't have the option of increasing my meds right now because of health insurance.-UC - 1+ yearsSCD - 7 months 100% strict and 4 months restricted diet.Asacol - 5 pills a day

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I'll take the spices out of everything except for the chicken and beef that I already have in the fridge. I took the yogurt out to see if that was my problem but I don't think so anymore, so i'll add that back in.I've been eating the livers from the chickens that I buy. Is beef liver just as good? Fortunatly I love the taste of liver, but I was always told not to eat too much of it.-UC - 1+ yearsSCD - 7 months 100% strict and 4 months restricted diet.Asacol - 5 pills a dayTo: BTVC-SCD From: pmazd@...Date: Sun, 14 Mar 2010 09:37:13 -0700Subject: Re: After almost a year I notice how much i've been doing wrong. So, back to basics but need advice.

Hi,

I would recommend to start writing down what you eat including the intensity of your symptoms and trips to the restroom. I would also re comment to add yogurt and Lyo Sun capsules and also minimize the sugar (even from fruits) in your diet. The dose of Asacol that you are taking is so small that I am afraid with all the foods that you are adding this is just too much for your intestine at this point as you are not healed. I would also remove pepper from your diet ( no spices at this point). Eat everything fresh ( no more that 48 hours old), no fry food, made from scratch chicken soup could help a lot to heal and liver ( for the iron).

Best,

From: T <scdguy26 (AT) hotmail (DOT) com>Subject: After almost a year I notice how much i've been doing wrong. So, back to basics but need advice.To: btvc-scd Date: Sunday, March 14, 2010, 12:16 PM

I've been on SCD since for about 9 months so far and with my most recent flare I started looking at what i've been doing. Since the past 4 months before this flare I was doing fine and then with the need to take antibiotics which killed my insides, I think I have to start over. I'm having alot of trouble identifying what foods I am reacting to right now. I think the problem is that I am weening off my medicine too quickyl, but I have no choice in that matter. So, as i'm weening off the meds i'm also trying to introduce new foods one at a time. It seems like i'm reacting to everything because i'm getting progressively worse and not better no matter what I take out or add in as far as new foods. I'm eating plain beef and plain chicken from the crock pot with pepper and salt. Sometimes I add marjoram but very little. I am also eating ripe avocado and just yesterday tried eating some well cooked beets with plain hamburger for iron. In the time I was

doing good on SCD and was taking only a little but of medicine I could tolerate almond flour well, steamed carrots, juices, apple cider, raisins, and a bunch of other things. I have cut all that out because I don't want to make things worse than they already are. I'm worried about losing too much weight. I'm already at a lower weight than I was when I wrestled in high school, and I had to run around with a plastic bag around my body to lose that weight!Should I eat the foods I could tolerate before to try and gain some weight back?my biggest concerns right now are blood loss since i'm starting to get pale, and weight.Suggestions for moving forward from here? I don't have the option of increasing my meds right now because of health insurance.-UC - 1+ yearsSCD - 7 months 100% strict and 4 months restricted diet.Asacol - 5 pills a day

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Hi ,

It doesn't look to me like you are doing anything wrong food-wise. I'm

concerned about you weaning off the meds. I know people have done that, but to

me, the time to try that is when you are stable, not when you are getting worse.

It hate that you have to decrease the Asacol, which seems to have worked. I know

of drug companies that have made arrangements for people who have had difficulty

buying meds. The recent recession has left a lot of people without health

insurance. I know that doctors are aware of this and don't want their patients

to stop their medication. Maybe your doctor has some drug samples or can switch

you to another medication? Is there a free clinic in your area or relatives that

can help? I know in the past that you have responded to prednisone, which is not

very expensive.I hope you can get some medication. I'm concerned that by saving

money on Asacol while you are not doing well, that you may end up feeling worse

which is a lot more expensive ( and miserable ) to fix in the long run.

Staying on SCD in the long run will help, but losing weight and blood will not

help you heal at the moment. Yes, cutting back to soups and bland foods help,

but you have tried this and may need some more help to get this under control.

Feel better,

PJ

>

>

> I've been on SCD since for about 9 months so far and with my most recent flare

I started looking at what i've been doing. Since the past 4 months before this

flare I was doing fine and then with the need to take antibiotics which killed

my insides, I think I have to start over. I'm having alot of trouble identifying

what foods I am reacting to right now. I think the problem is that I am weening

off my medicine too quickyl, but I have no choice in that matter. So, as i'm

weening off the meds i'm also trying to introduce new foods one at a time. It

seems like i'm reacting to everything because i'm getting progressively worse

and not better no matter what I take out or add in as far as new foods. I'm

eating plain beef and plain chicken from the crock pot with pepper and salt.

Sometimes I add marjoram but very little. I am also eating ripe avocado and just

yesterday tried eating some well cooked beets with plain hamburger for iron. In

the time I was doing good on SCD and was taking only a little but of medicine I

could tolerate almond flour well, steamed carrots, juices, apple cider, raisins,

and a bunch of other things. I have cut all that out because I don't want to

make things worse than they already are. I'm worried about losing too much

weight. I'm already at a lower weight than I was when I wrestled in high school,

and I had to run around with a plastic bag around my body to lose that weight!

>

> Should I eat the foods I could tolerate before to try and gain some weight

back?

>

> my biggest concerns right now are blood loss since i'm starting to get pale,

and weight.

>

> Suggestions for moving forward from here? I don't have the option of

increasing my meds right now because of health insurance.

>

> -

> UC - 1+ years

> SCD - 7 months 100% strict and 4 months restricted diet.

> Asacol - 5 pills a day

>

>

>

>

>

> _________________________________________________________________

> Hotmail: Trusted email with Microsoft's powerful SPAM protection.

> http://clk.atdmt.com/GBL/go/210850552/direct/01/

>

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Posted
Posted

Hi ,

It doesn't look to me like you are doing anything wrong food-wise. I'm

concerned about you weaning off the meds. I know people have done that, but to

me, the time to try that is when you are stable, not when you are getting worse.

It hate that you have to decrease the Asacol, which seems to have worked. I know

of drug companies that have made arrangements for people who have had difficulty

buying meds. The recent recession has left a lot of people without health

insurance. I know that doctors are aware of this and don't want their patients

to stop their medication. Maybe your doctor has some drug samples or can switch

you to another medication? Is there a free clinic in your area or relatives that

can help? I know in the past that you have responded to prednisone, which is not

very expensive.I hope you can get some medication. I'm concerned that by saving

money on Asacol while you are not doing well, that you may end up feeling worse

which is a lot more expensive ( and miserable ) to fix in the long run.

Staying on SCD in the long run will help, but losing weight and blood will not

help you heal at the moment. Yes, cutting back to soups and bland foods help,

but you have tried this and may need some more help to get this under control.

Feel better,

PJ

>

>

> I've been on SCD since for about 9 months so far and with my most recent flare

I started looking at what i've been doing. Since the past 4 months before this

flare I was doing fine and then with the need to take antibiotics which killed

my insides, I think I have to start over. I'm having alot of trouble identifying

what foods I am reacting to right now. I think the problem is that I am weening

off my medicine too quickyl, but I have no choice in that matter. So, as i'm

weening off the meds i'm also trying to introduce new foods one at a time. It

seems like i'm reacting to everything because i'm getting progressively worse

and not better no matter what I take out or add in as far as new foods. I'm

eating plain beef and plain chicken from the crock pot with pepper and salt.

Sometimes I add marjoram but very little. I am also eating ripe avocado and just

yesterday tried eating some well cooked beets with plain hamburger for iron. In

the time I was doing good on SCD and was taking only a little but of medicine I

could tolerate almond flour well, steamed carrots, juices, apple cider, raisins,

and a bunch of other things. I have cut all that out because I don't want to

make things worse than they already are. I'm worried about losing too much

weight. I'm already at a lower weight than I was when I wrestled in high school,

and I had to run around with a plastic bag around my body to lose that weight!

>

> Should I eat the foods I could tolerate before to try and gain some weight

back?

>

> my biggest concerns right now are blood loss since i'm starting to get pale,

and weight.

>

> Suggestions for moving forward from here? I don't have the option of

increasing my meds right now because of health insurance.

>

> -

> UC - 1+ years

> SCD - 7 months 100% strict and 4 months restricted diet.

> Asacol - 5 pills a day

>

>

>

>

>

> _________________________________________________________________

> Hotmail: Trusted email with Microsoft's powerful SPAM protection.

> http://clk.atdmt.com/GBL/go/210850552/direct/01/

>

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Posted
Posted

Can you ask your doctor about whether colazal would work for you or not

viz. the sulpha?

I have a ton I would be happy to donate to you from when I stopped it

last year.

And PJ is right that the doctor may have some asacol samples - I know my

doctor gave me a bunch of colazal samples on a few occasions - they

may certainly have some lying around.

>

> Hi ,

> It doesn't look to me like you are doing anything wrong food-wise. I'm

concerned about you weaning off the meds. I know people have done that, but to

me, the time to try that is when you are stable, not when you are getting worse.

>

> It hate that you have to decrease the Asacol, which seems to have worked. I

know of drug companies that have made arrangements for people who have had

difficulty buying meds. The recent recession has left a lot of people without

health insurance. I know that doctors are aware of this and don't want their

patients to stop their medication. Maybe your doctor has some drug samples or

can switch you to another medication? Is there a free clinic in your area or

relatives that can help? I know in the past that you have responded to

prednisone, which is not very expensive.I hope you can get some medication. I'm

concerned that by saving money on Asacol while you are not doing well, that you

may end up feeling worse which is a lot more expensive ( and miserable ) to fix

in the long run.

>

> Staying on SCD in the long run will help, but losing weight and blood will not

help you heal at the moment. Yes, cutting back to soups and bland foods help,

but you have tried this and may need some more help to get this under control.

>

> Feel better,

>

> PJ

>

>

>

>>

>>

>> I've been on SCD since for about 9 months so far and with my most recent

flare I started looking at what i've been doing. Since the past 4 months before

this flare I was doing fine and then with the need to take antibiotics which

killed my insides, I think I have to start over. I'm having alot of trouble

identifying what foods I am reacting to right now. I think the problem is that I

am weening off my medicine too quickyl, but I have no choice in that matter. So,

as i'm weening off the meds i'm also trying to introduce new foods one at a

time. It seems like i'm reacting to everything because i'm getting progressively

worse and not better no matter what I take out or add in as far as new foods.

I'm eating plain beef and plain chicken from the crock pot with pepper and salt.

Sometimes I add marjoram but very little. I am also eating ripe avocado and just

yesterday tried eating some well cooked beets with plain hamburger for iron. In

the time I was doing good on SCD and was tak!

> ing only a little but of medicine I could tolerate almond flour well, steamed

carrots, juices, apple cider, raisins, and a bunch of other things. I have cut

all that out because I don't want to make things worse than they already are.

I'm worried about losing too much weight. I'm already at a lower weight than I

was when I wrestled in high school, and I had to run around with a plastic bag

around my body to lose that weight!

>>

>> Should I eat the foods I could tolerate before to try and gain some weight

back?

>>

>> my biggest concerns right now are blood loss since i'm starting to get pale,

and weight.

>>

>> Suggestions for moving forward from here? I don't have the option of

increasing my meds right now because of health insurance.

>>

>> -

>> UC - 1+ years

>> SCD - 7 months 100% strict and 4 months restricted diet.

>> Asacol - 5 pills a day

>>

>>

>>

>>

>>

>> _________________________________________________________________

>> Hotmail: Trusted email with Microsoft's powerful SPAM protection.

>> http://clk.atdmt.com/GBL/go/210850552/direct/01/

>>

>

>

>

>

> ------------------------------------

>

>

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Posted
Posted

I'll take the spices out of everything except for the chicken and beef that I already have in the fridge. I took the yogurt out to see if that was my problem but I don't think so anymore, so i'll add that back in.I've been eating the livers from the chickens that I buy. Is beef liver just as good? A little bit different in taste, but yeah. Mara

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Guest guest

Guest guest

Posted
Posted

Can you ask your doctor about whether colazal would work for you or not

viz. the sulpha?

I have a ton I would be happy to donate to you from when I stopped it

last year.

And PJ is right that the doctor may have some asacol samples - I know my

doctor gave me a bunch of colazal samples on a few occasions - they

may certainly have some lying around.

>

> Hi ,

> It doesn't look to me like you are doing anything wrong food-wise. I'm

concerned about you weaning off the meds. I know people have done that, but to

me, the time to try that is when you are stable, not when you are getting worse.

>

> It hate that you have to decrease the Asacol, which seems to have worked. I

know of drug companies that have made arrangements for people who have had

difficulty buying meds. The recent recession has left a lot of people without

health insurance. I know that doctors are aware of this and don't want their

patients to stop their medication. Maybe your doctor has some drug samples or

can switch you to another medication? Is there a free clinic in your area or

relatives that can help? I know in the past that you have responded to

prednisone, which is not very expensive.I hope you can get some medication. I'm

concerned that by saving money on Asacol while you are not doing well, that you

may end up feeling worse which is a lot more expensive ( and miserable ) to fix

in the long run.

>

> Staying on SCD in the long run will help, but losing weight and blood will not

help you heal at the moment. Yes, cutting back to soups and bland foods help,

but you have tried this and may need some more help to get this under control.

>

> Feel better,

>

> PJ

>

>

>

>>

>>

>> I've been on SCD since for about 9 months so far and with my most recent

flare I started looking at what i've been doing. Since the past 4 months before

this flare I was doing fine and then with the need to take antibiotics which

killed my insides, I think I have to start over. I'm having alot of trouble

identifying what foods I am reacting to right now. I think the problem is that I

am weening off my medicine too quickyl, but I have no choice in that matter. So,

as i'm weening off the meds i'm also trying to introduce new foods one at a

time. It seems like i'm reacting to everything because i'm getting progressively

worse and not better no matter what I take out or add in as far as new foods.

I'm eating plain beef and plain chicken from the crock pot with pepper and salt.

Sometimes I add marjoram but very little. I am also eating ripe avocado and just

yesterday tried eating some well cooked beets with plain hamburger for iron. In

the time I was doing good on SCD and was tak!

> ing only a little but of medicine I could tolerate almond flour well, steamed

carrots, juices, apple cider, raisins, and a bunch of other things. I have cut

all that out because I don't want to make things worse than they already are.

I'm worried about losing too much weight. I'm already at a lower weight than I

was when I wrestled in high school, and I had to run around with a plastic bag

around my body to lose that weight!

>>

>> Should I eat the foods I could tolerate before to try and gain some weight

back?

>>

>> my biggest concerns right now are blood loss since i'm starting to get pale,

and weight.

>>

>> Suggestions for moving forward from here? I don't have the option of

increasing my meds right now because of health insurance.

>>

>> -

>> UC - 1+ years

>> SCD - 7 months 100% strict and 4 months restricted diet.

>> Asacol - 5 pills a day

>>

>>

>>

>>

>>

>> _________________________________________________________________

>> Hotmail: Trusted email with Microsoft's powerful SPAM protection.

>> http://clk.atdmt.com/GBL/go/210850552/direct/01/

>>

>

>

>

>

> ------------------------------------

>

>

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Posted
Posted

I'll take the spices out of everything except for the chicken and beef that I already have in the fridge. I took the yogurt out to see if that was my problem but I don't think so anymore, so i'll add that back in.I've been eating the livers from the chickens that I buy. Is beef liver just as good? A little bit different in taste, but yeah. Mara

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Relatives will help, and if I had to I could go to my mom to get the money... It's my own fault i'm so stubborn with not wanting to take medicine, and i'm even more stubborn when it comes to asking people for help. I'm going to call the doc once they are open tomorrow and get more prednisone so I have something to get me through. It's less than $10.00 so that should be ok for now. Gotta do what we gotta do I guess when it comes to medicine. Then I plan on re-filling all the scripts in the beginning of april once the insurance kicks in and go from there. I will be much more careful about weening off the meds this time. My concern before was that they would cover up any food reactions which is why I went down so quickly.-UC - 1+ yearsSCD - 7 months 100% strict and 4 months restricted diet.Asacol - 5 pills a dayTo: BTVC-SCD From: smdsmom2008@...Date: Sun, 14 Mar 2010 16:55:32 +0000Subject: Re: After almost a year I notice how much i've been doing wrong. So, back to basics but need advice.

Hi ,

It doesn't look to me like you are doing anything wrong food-wise. I'm concerned about you weaning off the meds. I know people have done that, but to me, the time to try that is when you are stable, not when you are getting worse.

It hate that you have to decrease the Asacol, which seems to have worked. I know of drug companies that have made arrangements for people who have had difficulty buying meds. The recent recession has left a lot of people without health insurance. I know that doctors are aware of this and don't want their patients to stop their medication. Maybe your doctor has some drug samples or can switch you to another medication? Is there a free clinic in your area or relatives that can help? I know in the past that you have responded to prednisone, which is not very expensive.I hope you can get some medication. I'm concerned that by saving money on Asacol while you are not doing well, that you may end up feeling worse which is a lot more expensive ( and miserable ) to fix in the long run.

Staying on SCD in the long run will help, but losing weight and blood will not help you heal at the moment. Yes, cutting back to soups and bland foods help, but you have tried this and may need some more help to get this under control.

Feel better,

PJ

>

>

> I've been on SCD since for about 9 months so far and with my most recent flare I started looking at what i've been doing. Since the past 4 months before this flare I was doing fine and then with the need to take antibiotics which killed my insides, I think I have to start over. I'm having alot of trouble identifying what foods I am reacting to right now. I think the problem is that I am weening off my medicine too quickyl, but I have no choice in that matter. So, as i'm weening off the meds i'm also trying to introduce new foods one at a time. It seems like i'm reacting to everything because i'm getting progressively worse and not better no matter what I take out or add in as far as new foods. I'm eating plain beef and plain chicken from the crock pot with pepper and salt. Sometimes I add marjoram but very little. I am also eating ripe avocado and just yesterday tried eating some well cooked beets with plain hamburger for iron. In the time I was doing good on SCD and was taking only a little but of medicine I could tolerate almond flour well, steamed carrots, juices, apple cider, raisins, and a bunch of other things. I have cut all that out because I don't want to make things worse than they already are. I'm worried about losing too much weight. I'm already at a lower weight than I was when I wrestled in high school, and I had to run around with a plastic bag around my body to lose that weight!

>

> Should I eat the foods I could tolerate before to try and gain some weight back?

>

> my biggest concerns right now are blood loss since i'm starting to get pale, and weight.

>

> Suggestions for moving forward from here? I don't have the option of increasing my meds right now because of health insurance.

>

> -

> UC - 1+ years

> SCD - 7 months 100% strict and 4 months restricted diet.

> Asacol - 5 pills a day

>

>

>

>

>

> __________________________________________________________

> Hotmail: Trusted email with Microsoft's powerful SPAM protection.

> http://clk.atdmt.com/GBL/go/210850552/direct/01/

>

The New Busy is not the old busy. Search, chat and e-mail from your inbox. Get started.

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Share on other sites
Guest guest

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Posted
Posted

Relatives will help, and if I had to I could go to my mom to get the money... It's my own fault i'm so stubborn with not wanting to take medicine, and i'm even more stubborn when it comes to asking people for help. I'm going to call the doc once they are open tomorrow and get more prednisone so I have something to get me through. It's less than $10.00 so that should be ok for now. Gotta do what we gotta do I guess when it comes to medicine. Then I plan on re-filling all the scripts in the beginning of april once the insurance kicks in and go from there. I will be much more careful about weening off the meds this time. My concern before was that they would cover up any food reactions which is why I went down so quickly.-UC - 1+ yearsSCD - 7 months 100% strict and 4 months restricted diet.Asacol - 5 pills a dayTo: BTVC-SCD From: smdsmom2008@...Date: Sun, 14 Mar 2010 16:55:32 +0000Subject: Re: After almost a year I notice how much i've been doing wrong. So, back to basics but need advice.

Hi ,

It doesn't look to me like you are doing anything wrong food-wise. I'm concerned about you weaning off the meds. I know people have done that, but to me, the time to try that is when you are stable, not when you are getting worse.

It hate that you have to decrease the Asacol, which seems to have worked. I know of drug companies that have made arrangements for people who have had difficulty buying meds. The recent recession has left a lot of people without health insurance. I know that doctors are aware of this and don't want their patients to stop their medication. Maybe your doctor has some drug samples or can switch you to another medication? Is there a free clinic in your area or relatives that can help? I know in the past that you have responded to prednisone, which is not very expensive.I hope you can get some medication. I'm concerned that by saving money on Asacol while you are not doing well, that you may end up feeling worse which is a lot more expensive ( and miserable ) to fix in the long run.

Staying on SCD in the long run will help, but losing weight and blood will not help you heal at the moment. Yes, cutting back to soups and bland foods help, but you have tried this and may need some more help to get this under control.

Feel better,

PJ

>

>

> I've been on SCD since for about 9 months so far and with my most recent flare I started looking at what i've been doing. Since the past 4 months before this flare I was doing fine and then with the need to take antibiotics which killed my insides, I think I have to start over. I'm having alot of trouble identifying what foods I am reacting to right now. I think the problem is that I am weening off my medicine too quickyl, but I have no choice in that matter. So, as i'm weening off the meds i'm also trying to introduce new foods one at a time. It seems like i'm reacting to everything because i'm getting progressively worse and not better no matter what I take out or add in as far as new foods. I'm eating plain beef and plain chicken from the crock pot with pepper and salt. Sometimes I add marjoram but very little. I am also eating ripe avocado and just yesterday tried eating some well cooked beets with plain hamburger for iron. In the time I was doing good on SCD and was taking only a little but of medicine I could tolerate almond flour well, steamed carrots, juices, apple cider, raisins, and a bunch of other things. I have cut all that out because I don't want to make things worse than they already are. I'm worried about losing too much weight. I'm already at a lower weight than I was when I wrestled in high school, and I had to run around with a plastic bag around my body to lose that weight!

>

> Should I eat the foods I could tolerate before to try and gain some weight back?

>

> my biggest concerns right now are blood loss since i'm starting to get pale, and weight.

>

> Suggestions for moving forward from here? I don't have the option of increasing my meds right now because of health insurance.

>

> -

> UC - 1+ years

> SCD - 7 months 100% strict and 4 months restricted diet.

> Asacol - 5 pills a day

>

>

>

>

>

> __________________________________________________________

> Hotmail: Trusted email with Microsoft's powerful SPAM protection.

> http://clk.atdmt.com/GBL/go/210850552/direct/01/

>

The New Busy is not the old busy. Search, chat and e-mail from your inbox. Get started.

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Share on other sites
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Posted
Posted

Mara,Colazol is something I am planning on looking into, not sure if it contains sulfa or not but I wanted to ask the doc about it because it has the 2 pronged attack with keeping bacteria under control as well as anti-inflamatory like the asacol. Also going to ask about sulfasaline and see if I can get past the allergy reaction by following the directions from some scd site I found where you start with 1/4 pill and work your way up. Apparently a lot of people can get over the reaction this way.-UC - 1+ yearsSCD - 7 months 100% strict and 4 months restricted diet.Asacol - 5 pills a dayTo: BTVC-SCD From: alcibiades@...Date: Sun, 14 Mar 2010 13:09:10 -0400Subject: Re: Re: After almost a year I notice how much i've been doing wrong. So, back to basics but need advice.

Can you ask your doctor about whether colazal would work for you or not

viz. the sulpha?

I have a ton I would be happy to donate to you from when I stopped it

last year.

And PJ is right that the doctor may have some asacol samples - I know my

doctor gave me a bunch of colazal samples on a few occasions - they

may certainly have some lying around.

>

> Hi ,

> It doesn't look to me like you are doing anything wrong food-wise. I'm concerned about you weaning off the meds. I know people have done that, but to me, the time to try that is when you are stable, not when you are getting worse.

>

> It hate that you have to decrease the Asacol, which seems to have worked. I know of drug companies that have made arrangements for people who have had difficulty buying meds. The recent recession has left a lot of people without health insurance. I know that doctors are aware of this and don't want their patients to stop their medication. Maybe your doctor has some drug samples or can switch you to another medication? Is there a free clinic in your area or relatives that can help? I know in the past that you have responded to prednisone, which is not very expensive.I hope you can get some medication. I'm concerned that by saving money on Asacol while you are not doing well, that you may end up feeling worse which is a lot more expensive ( and miserable ) to fix in the long run.

>

> Staying on SCD in the long run will help, but losing weight and blood will not help you heal at the moment. Yes, cutting back to soups and bland foods help, but you have tried this and may need some more help to get this under control.

>

> Feel better,

>

> PJ

>

>

>

>>

>>

>> I've been on SCD since for about 9 months so far and with my most recent flare I started looking at what i've been doing. Since the past 4 months before this flare I was doing fine and then with the need to take antibiotics which killed my insides, I think I have to start over. I'm having alot of trouble identifying what foods I am reacting to right now. I think the problem is that I am weening off my medicine too quickyl, but I have no choice in that matter. So, as i'm weening off the meds i'm also trying to introduce new foods one at a time. It seems like i'm reacting to everything because i'm getting progressively worse and not better no matter what I take out or add in as far as new foods. I'm eating plain beef and plain chicken from the crock pot with pepper and salt. Sometimes I add marjoram but very little. I am also eating ripe avocado and just yesterday tried eating some well cooked beets with plain hamburger for iron. In the time I was doing good on SCD and was tak!

> ing only a little but of medicine I could tolerate almond flour well, steamed carrots, juices, apple cider, raisins, and a bunch of other things. I have cut all that out because I don't want to make things worse than they already are. I'm worried about losing too much weight. I'm already at a lower weight than I was when I wrestled in high school, and I had to run around with a plastic bag around my body to lose that weight!

>>

>> Should I eat the foods I could tolerate before to try and gain some weight back?

>>

>> my biggest concerns right now are blood loss since i'm starting to get pale, and weight.

>>

>> Suggestions for moving forward from here? I don't have the option of increasing my meds right now because of health insurance.

>>

>> -

>> UC - 1+ years

>> SCD - 7 months 100% strict and 4 months restricted diet.

>> Asacol - 5 pills a day

>>

>>

>>

>>

>>

>> __________________________________________________________

>> Hotmail: Trusted email with Microsoft's powerful SPAM protection.

>> http://clk.atdmt.com/GBL/go/210850552/direct/01/

>>

>

>

>

>

> ------------------------------------

>

>

Link to comment
Share on other sites
Guest guest

Guest guest

Posted
Posted

Mara,Colazol is something I am planning on looking into, not sure if it contains sulfa or not but I wanted to ask the doc about it because it has the 2 pronged attack with keeping bacteria under control as well as anti-inflamatory like the asacol. Also going to ask about sulfasaline and see if I can get past the allergy reaction by following the directions from some scd site I found where you start with 1/4 pill and work your way up. Apparently a lot of people can get over the reaction this way.-UC - 1+ yearsSCD - 7 months 100% strict and 4 months restricted diet.Asacol - 5 pills a dayTo: BTVC-SCD From: alcibiades@...Date: Sun, 14 Mar 2010 13:09:10 -0400Subject: Re: Re: After almost a year I notice how much i've been doing wrong. So, back to basics but need advice.

Can you ask your doctor about whether colazal would work for you or not

viz. the sulpha?

I have a ton I would be happy to donate to you from when I stopped it

last year.

And PJ is right that the doctor may have some asacol samples - I know my

doctor gave me a bunch of colazal samples on a few occasions - they

may certainly have some lying around.

>

> Hi ,

> It doesn't look to me like you are doing anything wrong food-wise. I'm concerned about you weaning off the meds. I know people have done that, but to me, the time to try that is when you are stable, not when you are getting worse.

>

> It hate that you have to decrease the Asacol, which seems to have worked. I know of drug companies that have made arrangements for people who have had difficulty buying meds. The recent recession has left a lot of people without health insurance. I know that doctors are aware of this and don't want their patients to stop their medication. Maybe your doctor has some drug samples or can switch you to another medication? Is there a free clinic in your area or relatives that can help? I know in the past that you have responded to prednisone, which is not very expensive.I hope you can get some medication. I'm concerned that by saving money on Asacol while you are not doing well, that you may end up feeling worse which is a lot more expensive ( and miserable ) to fix in the long run.

>

> Staying on SCD in the long run will help, but losing weight and blood will not help you heal at the moment. Yes, cutting back to soups and bland foods help, but you have tried this and may need some more help to get this under control.

>

> Feel better,

>

> PJ

>

>

>

>>

>>

>> I've been on SCD since for about 9 months so far and with my most recent flare I started looking at what i've been doing. Since the past 4 months before this flare I was doing fine and then with the need to take antibiotics which killed my insides, I think I have to start over. I'm having alot of trouble identifying what foods I am reacting to right now. I think the problem is that I am weening off my medicine too quickyl, but I have no choice in that matter. So, as i'm weening off the meds i'm also trying to introduce new foods one at a time. It seems like i'm reacting to everything because i'm getting progressively worse and not better no matter what I take out or add in as far as new foods. I'm eating plain beef and plain chicken from the crock pot with pepper and salt. Sometimes I add marjoram but very little. I am also eating ripe avocado and just yesterday tried eating some well cooked beets with plain hamburger for iron. In the time I was doing good on SCD and was tak!

> ing only a little but of medicine I could tolerate almond flour well, steamed carrots, juices, apple cider, raisins, and a bunch of other things. I have cut all that out because I don't want to make things worse than they already are. I'm worried about losing too much weight. I'm already at a lower weight than I was when I wrestled in high school, and I had to run around with a plastic bag around my body to lose that weight!

>>

>> Should I eat the foods I could tolerate before to try and gain some weight back?

>>

>> my biggest concerns right now are blood loss since i'm starting to get pale, and weight.

>>

>> Suggestions for moving forward from here? I don't have the option of increasing my meds right now because of health insurance.

>>

>> -

>> UC - 1+ years

>> SCD - 7 months 100% strict and 4 months restricted diet.

>> Asacol - 5 pills a day

>>

>>

>>

>>

>>

>> __________________________________________________________

>> Hotmail: Trusted email with Microsoft's powerful SPAM protection.

>> http://clk.atdmt.com/GBL/go/210850552/direct/01/

>>

>

>

>

>

> ------------------------------------

>

>

Link to comment
Share on other sites
Guest guest

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Posted
Posted

Mara,Colazol is something I am planning on looking into, not sure if it contains sulfa or not but I wanted to ask the doc about it because it has the 2 pronged attack with keeping bacteria under control as well as anti-inflamatory like the asacol. Also going to ask about sulfasaline and see if I can get past the allergy reaction by following the directions from some scd site I found where you start with 1/4 pill and work your way up. Apparently a lot of people can get over the reaction this way.http://en.wikipedia.org/wiki/Colazalhttp://en.wikipedia.org/wiki/MesalazineMara

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Guest guest

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Posted
Posted

Mara,Colazol is something I am planning on looking into, not sure if it contains sulfa or not but I wanted to ask the doc about it because it has the 2 pronged attack with keeping bacteria under control as well as anti-inflamatory like the asacol. Also going to ask about sulfasaline and see if I can get past the allergy reaction by following the directions from some scd site I found where you start with 1/4 pill and work your way up. Apparently a lot of people can get over the reaction this way.http://en.wikipedia.org/wiki/Colazalhttp://en.wikipedia.org/wiki/MesalazineMara

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Share on other sites
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Posted
Posted

and anyone else without insurance, www.needymeds.com is a good

resource for low-,no-cost patient assistance programs.

Merck has a discount card and so does TogetherRX for different types

of medicine.

If you don't find the medicine you need, look at the manufacturer and

google them. For instance, Shire is the only company for Pentasa so

you would have to contact them directly via an 800 number. Even

though it says they do not have patient assistance at this time, they

do and I think a Crohn's Disease or UC diagnosis is required but it's

been awhile since I've done that so it could have changed. They also

have to go through your doctor and it's required you pick it up from

your doctor. You just have to read the different requirements for

each medicine.

Sorry if this is OT.

Debbie houston cd

>

> Mara,

>

> Colazol is something I am planning on looking into, not sure if it contains

> sulfa or not but I wanted to ask the doc about it because it has the 2

> pronged attack with keeping bacteria under control as well as

> anti-inflamatory like the asacol. Also going to ask about sulfasaline and

> see if I can get past the allergy reaction by following the directions from

> some scd site I found where you start with 1/4 pill and work your way up.

> Apparently a lot of people can get over the reaction this way.

>

> -

> UC - 1+ years

> SCD - 7 months 100% strict and 4 months restricted diet.

> Asacol - 5 pills a day

>

>

>

>

>

>

> To: BTVC-SCD

> From: alcibiades@...

> Date: Sun, 14 Mar 2010 13:09:10 -0400

> Subject: Re: Re: After almost a year I notice how much i've been

> doing wrong. So, back to basics but need advice.

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

> Can you ask your doctor about whether colazal would work for you or

> not

>

> viz. the sulpha?

>

>

>

> I have a ton I would be happy to donate to you from when I stopped it

>

> last year.

>

>

>

> And PJ is right that the doctor may have some asacol samples - I know my

>

> doctor gave me a bunch of colazal samples on a few occasions - they

>

> may certainly have some lying around.

>

>

>

>

>

>

>

>>

>

>> Hi ,

>

>> It doesn't look to me like you are doing anything wrong food-wise. I'm

>> concerned about you weaning off the meds. I know people have done that,

>> but to me, the time to try that is when you are stable, not when you are

>> getting worse.

>

>>

>

>> It hate that you have to decrease the Asacol, which seems to have worked.

>> I know of drug companies that have made arrangements for people who have

>> had difficulty buying meds. The recent recession has left a lot of people

>> without health insurance. I know that doctors are aware of this and don't

>> want their patients to stop their medication. Maybe your doctor has some

>> drug samples or can switch you to another medication? Is there a free

>> clinic in your area or relatives that can help? I know in the past that

>> you have responded to prednisone, which is not very expensive.I hope you

>> can get some medication. I'm concerned that by saving money on Asacol

>> while you are not doing well, that you may end up feeling worse which is a

>> lot more expensive ( and miserable ) to fix in the long run.

>

>>

>

>> Staying on SCD in the long run will help, but losing weight and blood will

>> not help you heal at the moment. Yes, cutting back to soups and bland

>> foods help, but you have tried this and may need some more help to get

>> this under control.

>

>>

>

>> Feel better,

>

>>

>

>> PJ

>

>>

>

>>

>

>>

>

>>>

>

>>>

>

>>> I've been on SCD since for about 9 months so far and with my most recent

>>> flare I started looking at what i've been doing. Since the past 4 months

>>> before this flare I was doing fine and then with the need to take

>>> antibiotics which killed my insides, I think I have to start over. I'm

>>> having alot of trouble identifying what foods I am reacting to right now.

>>> I think the problem is that I am weening off my medicine too quickyl, but

>>> I have no choice in that matter. So, as i'm weening off the meds i'm also

>>> trying to introduce new foods one at a time. It seems like i'm reacting

>>> to everything because i'm getting progressively worse and not better no

>>> matter what I take out or add in as far as new foods. I'm eating plain

>>> beef and plain chicken from the crock pot with pepper and salt. Sometimes

>>> I add marjoram but very little. I am also eating ripe avocado and just

>>> yesterday tried eating some well cooked beets with plain hamburger for

>>> iron. In the time I was doing good on SCD and was tak!

>

>> ing only a little but of medicine I could tolerate almond flour well,

>> steamed carrots, juices, apple cider, raisins, and a bunch of other

>> things. I have cut all that out because I don't want to make things worse

>> than they already are. I'm worried about losing too much weight. I'm

>> already at a lower weight than I was when I wrestled in high school, and I

>> had to run around with a plastic bag around my body to lose that weight!

>

>>>

>

>>> Should I eat the foods I could tolerate before to try and gain some

>>> weight back?

>

>>>

>

>>> my biggest concerns right now are blood loss since i'm starting to get

>>> pale, and weight.

>

>>>

>

>>> Suggestions for moving forward from here? I don't have the option of

>>> increasing my meds right now because of health insurance.

>

>>>

>

>>> -

>

>>> UC - 1+ years

>

>>> SCD - 7 months 100% strict and 4 months restricted diet.

>

>>> Asacol - 5 pills a day

>

>>>

>

>>>

>

>>>

>

>>>

>

>>>

>

>>> __________________________________________________________

>

>>> Hotmail: Trusted email with Microsoft's powerful SPAM protection.

>

>>> http://clk.atdmt.com/GBL/go/210850552/direct/01/

>

>>>

>

>>

>

>>

>

>>

>

>>

>

>> ------------------------------------

>

>>

>

>>

Link to comment
Share on other sites
Guest guest

Guest guest

Posted
Posted

and anyone else without insurance, www.needymeds.com is a good

resource for low-,no-cost patient assistance programs.

Merck has a discount card and so does TogetherRX for different types

of medicine.

If you don't find the medicine you need, look at the manufacturer and

google them. For instance, Shire is the only company for Pentasa so

you would have to contact them directly via an 800 number. Even

though it says they do not have patient assistance at this time, they

do and I think a Crohn's Disease or UC diagnosis is required but it's

been awhile since I've done that so it could have changed. They also

have to go through your doctor and it's required you pick it up from

your doctor. You just have to read the different requirements for

each medicine.

Sorry if this is OT.

Debbie houston cd

>

> Mara,

>

> Colazol is something I am planning on looking into, not sure if it contains

> sulfa or not but I wanted to ask the doc about it because it has the 2

> pronged attack with keeping bacteria under control as well as

> anti-inflamatory like the asacol. Also going to ask about sulfasaline and

> see if I can get past the allergy reaction by following the directions from

> some scd site I found where you start with 1/4 pill and work your way up.

> Apparently a lot of people can get over the reaction this way.

>

> -

> UC - 1+ years

> SCD - 7 months 100% strict and 4 months restricted diet.

> Asacol - 5 pills a day

>

>

>

>

>

>

> To: BTVC-SCD

> From: alcibiades@...

> Date: Sun, 14 Mar 2010 13:09:10 -0400

> Subject: Re: Re: After almost a year I notice how much i've been

> doing wrong. So, back to basics but need advice.

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

> Can you ask your doctor about whether colazal would work for you or

> not

>

> viz. the sulpha?

>

>

>

> I have a ton I would be happy to donate to you from when I stopped it

>

> last year.

>

>

>

> And PJ is right that the doctor may have some asacol samples - I know my

>

> doctor gave me a bunch of colazal samples on a few occasions - they

>

> may certainly have some lying around.

>

>

>

>

>

>

>

>>

>

>> Hi ,

>

>> It doesn't look to me like you are doing anything wrong food-wise. I'm

>> concerned about you weaning off the meds. I know people have done that,

>> but to me, the time to try that is when you are stable, not when you are

>> getting worse.

>

>>

>

>> It hate that you have to decrease the Asacol, which seems to have worked.

>> I know of drug companies that have made arrangements for people who have

>> had difficulty buying meds. The recent recession has left a lot of people

>> without health insurance. I know that doctors are aware of this and don't

>> want their patients to stop their medication. Maybe your doctor has some

>> drug samples or can switch you to another medication? Is there a free

>> clinic in your area or relatives that can help? I know in the past that

>> you have responded to prednisone, which is not very expensive.I hope you

>> can get some medication. I'm concerned that by saving money on Asacol

>> while you are not doing well, that you may end up feeling worse which is a

>> lot more expensive ( and miserable ) to fix in the long run.

>

>>

>

>> Staying on SCD in the long run will help, but losing weight and blood will

>> not help you heal at the moment. Yes, cutting back to soups and bland

>> foods help, but you have tried this and may need some more help to get

>> this under control.

>

>>

>

>> Feel better,

>

>>

>

>> PJ

>

>>

>

>>

>

>>

>

>>>

>

>>>

>

>>> I've been on SCD since for about 9 months so far and with my most recent

>>> flare I started looking at what i've been doing. Since the past 4 months

>>> before this flare I was doing fine and then with the need to take

>>> antibiotics which killed my insides, I think I have to start over. I'm

>>> having alot of trouble identifying what foods I am reacting to right now.

>>> I think the problem is that I am weening off my medicine too quickyl, but

>>> I have no choice in that matter. So, as i'm weening off the meds i'm also

>>> trying to introduce new foods one at a time. It seems like i'm reacting

>>> to everything because i'm getting progressively worse and not better no

>>> matter what I take out or add in as far as new foods. I'm eating plain

>>> beef and plain chicken from the crock pot with pepper and salt. Sometimes

>>> I add marjoram but very little. I am also eating ripe avocado and just

>>> yesterday tried eating some well cooked beets with plain hamburger for

>>> iron. In the time I was doing good on SCD and was tak!

>

>> ing only a little but of medicine I could tolerate almond flour well,

>> steamed carrots, juices, apple cider, raisins, and a bunch of other

>> things. I have cut all that out because I don't want to make things worse

>> than they already are. I'm worried about losing too much weight. I'm

>> already at a lower weight than I was when I wrestled in high school, and I

>> had to run around with a plastic bag around my body to lose that weight!

>

>>>

>

>>> Should I eat the foods I could tolerate before to try and gain some

>>> weight back?

>

>>>

>

>>> my biggest concerns right now are blood loss since i'm starting to get

>>> pale, and weight.

>

>>>

>

>>> Suggestions for moving forward from here? I don't have the option of

>>> increasing my meds right now because of health insurance.

>

>>>

>

>>> -

>

>>> UC - 1+ years

>

>>> SCD - 7 months 100% strict and 4 months restricted diet.

>

>>> Asacol - 5 pills a day

>

>>>

>

>>>

>

>>>

>

>>>

>

>>>

>

>>> __________________________________________________________

>

>>> Hotmail: Trusted email with Microsoft's powerful SPAM protection.

>

>>> http://clk.atdmt.com/GBL/go/210850552/direct/01/

>

>>>

>

>>

>

>>

>

>>

>

>>

>

>> ------------------------------------

>

>>

>

>>

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Guest guest

Posted
Posted

awesome, thanks!-UC - 1+ yearsSCD - 7 months 100% strict and 4 months restricted diet.Asacol - 5 pills a dayTo: BTVC-SCD From: texdebl@...Date: Sun, 14 Mar 2010 12:32:11 -0500Subject: Re: Re: After almost a year I notice how much i've been doing wrong. So, back to basics but need advice.

and anyone else without insurance, www.needymeds.com is a good

resource for low-,no-cost patient assistance programs.

Merck has a discount card and so does TogetherRX for different types

of medicine.

If you don't find the medicine you need, look at the manufacturer and

google them. For instance, Shire is the only company for Pentasa so

you would have to contact them directly via an 800 number. Even

though it says they do not have patient assistance at this time, they

do and I think a Crohn's Disease or UC diagnosis is required but it's

been awhile since I've done that so it could have changed. They also

have to go through your doctor and it's required you pick it up from

your doctor. You just have to read the different requirements for

each medicine.

Sorry if this is OT.

Debbie houston cd

>

> Mara,

>

> Colazol is something I am planning on looking into, not sure if it contains

> sulfa or not but I wanted to ask the doc about it because it has the 2

> pronged attack with keeping bacteria under control as well as

> anti-inflamatory like the asacol. Also going to ask about sulfasaline and

> see if I can get past the allergy reaction by following the directions from

> some scd site I found where you start with 1/4 pill and work your way up.

> Apparently a lot of people can get over the reaction this way.

>

> -

> UC - 1+ years

> SCD - 7 months 100% strict and 4 months restricted diet.

> Asacol - 5 pills a day

>

>

>

>

>

>

> To: BTVC-SCD

> From: alcibiades (AT) rcn (DOT) com

> Date: Sun, 14 Mar 2010 13:09:10 -0400

> Subject: Re: Re: After almost a year I notice how much i've been

> doing wrong. So, back to basics but need advice.

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

> Can you ask your doctor about whether colazal would work for you or

> not

>

> viz. the sulpha?

>

>

>

> I have a ton I would be happy to donate to you from when I stopped it

>

> last year.

>

>

>

> And PJ is right that the doctor may have some asacol samples - I know my

>

> doctor gave me a bunch of colazal samples on a few occasions - they

>

> may certainly have some lying around.

>

>

>

>

>

>

>

>>

>

>> Hi ,

>

>> It doesn't look to me like you are doing anything wrong food-wise. I'm

>> concerned about you weaning off the meds. I know people have done that,

>> but to me, the time to try that is when you are stable, not when you are

>> getting worse.

>

>>

>

>> It hate that you have to decrease the Asacol, which seems to have worked.

>> I know of drug companies that have made arrangements for people who have

>> had difficulty buying meds. The recent recession has left a lot of people

>> without health insurance. I know that doctors are aware of this and don't

>> want their patients to stop their medication. Maybe your doctor has some

>> drug samples or can switch you to another medication? Is there a free

>> clinic in your area or relatives that can help? I know in the past that

>> you have responded to prednisone, which is not very expensive.I hope you

>> can get some medication. I'm concerned that by saving money on Asacol

>> while you are not doing well, that you may end up feeling worse which is a

>> lot more expensive ( and miserable ) to fix in the long run.

>

>>

>

>> Staying on SCD in the long run will help, but losing weight and blood will

>> not help you heal at the moment. Yes, cutting back to soups and bland

>> foods help, but you have tried this and may need some more help to get

>> this under control.

>

>>

>

>> Feel better,

>

>>

>

>> PJ

>

>>

>

>>

>

>>

>

>>>

>

>>>

>

>>> I've been on SCD since for about 9 months so far and with my most recent

>>> flare I started looking at what i've been doing. Since the past 4 months

>>> before this flare I was doing fine and then with the need to take

>>> antibiotics which killed my insides, I think I have to start over. I'm

>>> having alot of trouble identifying what foods I am reacting to right now.

>>> I think the problem is that I am weening off my medicine too quickyl, but

>>> I have no choice in that matter. So, as i'm weening off the meds i'm also

>>> trying to introduce new foods one at a time. It seems like i'm reacting

>>> to everything because i'm getting progressively worse and not better no

>>> matter what I take out or add in as far as new foods. I'm eating plain

>>> beef and plain chicken from the crock pot with pepper and salt. Sometimes

>>> I add marjoram but very little. I am also eating ripe avocado and just

>>> yesterday tried eating some well cooked beets with plain hamburger for

>>> iron. In the time I was doing good on SCD and was tak!

>

>> ing only a little but of medicine I could tolerate almond flour well,

>> steamed carrots, juices, apple cider, raisins, and a bunch of other

>> things. I have cut all that out because I don't want to make things worse

>> than they already are. I'm worried about losing too much weight. I'm

>> already at a lower weight than I was when I wrestled in high school, and I

>> had to run around with a plastic bag around my body to lose that weight!

>

>>>

>

>>> Should I eat the foods I could tolerate before to try and gain some

>>> weight back?

>

>>>

>

>>> my biggest concerns right now are blood loss since i'm starting to get

>>> pale, and weight.

>

>>>

>

>>> Suggestions for moving forward from here? I don't have the option of

>>> increasing my meds right now because of health insurance.

>

>>>

>

>>> -

>

>>> UC - 1+ years

>

>>> SCD - 7 months 100% strict and 4 months restricted diet.

>

>>> Asacol - 5 pills a day

>

>>>

>

>>>

>

>>>

>

>>>

>

>>>

>

>>> __________________________________________________________

>

>>> Hotmail: Trusted email with Microsoft's powerful SPAM protection.

>

>>> http://clk.atdmt.com/GBL/go/210850552/direct/01/

>

>>>

>

>>

>

>>

>

>>

>

>>

>

>> ------------------------------------

>

>>

>

>>

Link to comment
Share on other sites
Guest guest

Guest guest

Posted
Posted

awesome, thanks!-UC - 1+ yearsSCD - 7 months 100% strict and 4 months restricted diet.Asacol - 5 pills a dayTo: BTVC-SCD From: texdebl@...Date: Sun, 14 Mar 2010 12:32:11 -0500Subject: Re: Re: After almost a year I notice how much i've been doing wrong. So, back to basics but need advice.

and anyone else without insurance, www.needymeds.com is a good

resource for low-,no-cost patient assistance programs.

Merck has a discount card and so does TogetherRX for different types

of medicine.

If you don't find the medicine you need, look at the manufacturer and

google them. For instance, Shire is the only company for Pentasa so

you would have to contact them directly via an 800 number. Even

though it says they do not have patient assistance at this time, they

do and I think a Crohn's Disease or UC diagnosis is required but it's

been awhile since I've done that so it could have changed. They also

have to go through your doctor and it's required you pick it up from

your doctor. You just have to read the different requirements for

each medicine.

Sorry if this is OT.

Debbie houston cd

>

> Mara,

>

> Colazol is something I am planning on looking into, not sure if it contains

> sulfa or not but I wanted to ask the doc about it because it has the 2

> pronged attack with keeping bacteria under control as well as

> anti-inflamatory like the asacol. Also going to ask about sulfasaline and

> see if I can get past the allergy reaction by following the directions from

> some scd site I found where you start with 1/4 pill and work your way up.

> Apparently a lot of people can get over the reaction this way.

>

> -

> UC - 1+ years

> SCD - 7 months 100% strict and 4 months restricted diet.

> Asacol - 5 pills a day

>

>

>

>

>

>

> To: BTVC-SCD

> From: alcibiades (AT) rcn (DOT) com

> Date: Sun, 14 Mar 2010 13:09:10 -0400

> Subject: Re: Re: After almost a year I notice how much i've been

> doing wrong. So, back to basics but need advice.

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

> Can you ask your doctor about whether colazal would work for you or

> not

>

> viz. the sulpha?

>

>

>

> I have a ton I would be happy to donate to you from when I stopped it

>

> last year.

>

>

>

> And PJ is right that the doctor may have some asacol samples - I know my

>

> doctor gave me a bunch of colazal samples on a few occasions - they

>

> may certainly have some lying around.

>

>

>

>

>

>

>

>>

>

>> Hi ,

>

>> It doesn't look to me like you are doing anything wrong food-wise. I'm

>> concerned about you weaning off the meds. I know people have done that,

>> but to me, the time to try that is when you are stable, not when you are

>> getting worse.

>

>>

>

>> It hate that you have to decrease the Asacol, which seems to have worked.

>> I know of drug companies that have made arrangements for people who have

>> had difficulty buying meds. The recent recession has left a lot of people

>> without health insurance. I know that doctors are aware of this and don't

>> want their patients to stop their medication. Maybe your doctor has some

>> drug samples or can switch you to another medication? Is there a free

>> clinic in your area or relatives that can help? I know in the past that

>> you have responded to prednisone, which is not very expensive.I hope you

>> can get some medication. I'm concerned that by saving money on Asacol

>> while you are not doing well, that you may end up feeling worse which is a

>> lot more expensive ( and miserable ) to fix in the long run.

>

>>

>

>> Staying on SCD in the long run will help, but losing weight and blood will

>> not help you heal at the moment. Yes, cutting back to soups and bland

>> foods help, but you have tried this and may need some more help to get

>> this under control.

>

>>

>

>> Feel better,

>

>>

>

>> PJ

>

>>

>

>>

>

>>

>

>>>

>

>>>

>

>>> I've been on SCD since for about 9 months so far and with my most recent

>>> flare I started looking at what i've been doing. Since the past 4 months

>>> before this flare I was doing fine and then with the need to take

>>> antibiotics which killed my insides, I think I have to start over. I'm

>>> having alot of trouble identifying what foods I am reacting to right now.

>>> I think the problem is that I am weening off my medicine too quickyl, but

>>> I have no choice in that matter. So, as i'm weening off the meds i'm also

>>> trying to introduce new foods one at a time. It seems like i'm reacting

>>> to everything because i'm getting progressively worse and not better no

>>> matter what I take out or add in as far as new foods. I'm eating plain

>>> beef and plain chicken from the crock pot with pepper and salt. Sometimes

>>> I add marjoram but very little. I am also eating ripe avocado and just

>>> yesterday tried eating some well cooked beets with plain hamburger for

>>> iron. In the time I was doing good on SCD and was tak!

>

>> ing only a little but of medicine I could tolerate almond flour well,

>> steamed carrots, juices, apple cider, raisins, and a bunch of other

>> things. I have cut all that out because I don't want to make things worse

>> than they already are. I'm worried about losing too much weight. I'm

>> already at a lower weight than I was when I wrestled in high school, and I

>> had to run around with a plastic bag around my body to lose that weight!

>

>>>

>

>>> Should I eat the foods I could tolerate before to try and gain some

>>> weight back?

>

>>>

>

>>> my biggest concerns right now are blood loss since i'm starting to get

>>> pale, and weight.

>

>>>

>

>>> Suggestions for moving forward from here? I don't have the option of

>>> increasing my meds right now because of health insurance.

>

>>>

>

>>> -

>

>>> UC - 1+ years

>

>>> SCD - 7 months 100% strict and 4 months restricted diet.

>

>>> Asacol - 5 pills a day

>

>>>

>

>>>

>

>>>

>

>>>

>

>>>

>

>>> __________________________________________________________

>

>>> Hotmail: Trusted email with Microsoft's powerful SPAM protection.

>

>>> http://clk.atdmt.com/GBL/go/210850552/direct/01/

>

>>>

>

>>

>

>>

>

>>

>

>>

>

>> ------------------------------------

>

>>

>

>>

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Share on other sites
Guest guest

Guest guest

Posted
Posted

Suggestions for moving forward from here? I don't have the option of increasing my meds right now because of health insurance.Hey ,What about trying a vitamin E enema? I'm not sure how expensive the vitamin E capsules would be, or the ear bulb thingy, but if you could get some then that might help with the bleeding. It got me out of one flare a while ago. Didn't get me out of another more serious one, but if you don't have any other options, it might help in addition to everything else you're doing.Another thing, are you making broth by simmering the bones and other 'junk' for a long time with some ACV? I know it's supposed to have really healing properties, which I'm sure you could do with =) Also, I read over on the GAPS group that adding a raw egg yolk to your mug of broth gives super easily-absorbed nutrition. Peace =)Alyssa 16 yo UC April 2008, dx Sept 2008SCD June 2009 (restarted)Azathioprine 50 mg 1x per dayPrednisone 35 mg 1x per day

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Posted
Posted

Suggestions for moving forward from here? I don't have the option of increasing my meds right now because of health insurance.Hey ,What about trying a vitamin E enema? I'm not sure how expensive the vitamin E capsules would be, or the ear bulb thingy, but if you could get some then that might help with the bleeding. It got me out of one flare a while ago. Didn't get me out of another more serious one, but if you don't have any other options, it might help in addition to everything else you're doing.Another thing, are you making broth by simmering the bones and other 'junk' for a long time with some ACV? I know it's supposed to have really healing properties, which I'm sure you could do with =) Also, I read over on the GAPS group that adding a raw egg yolk to your mug of broth gives super easily-absorbed nutrition. Peace =)Alyssa 16 yo UC April 2008, dx Sept 2008SCD June 2009 (restarted)Azathioprine 50 mg 1x per dayPrednisone 35 mg 1x per day

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Posted
Posted

I drink the broth from the chickens I cook, but there's no ACV in it and I don't cook it for 36 hours. I'd have to look for a source of bones to use for that and then i'll try it. I was doing the vit E thing and adding it to the medicine for about 2 weeks. Not sure if that's counter productive or not, so I i'm taking the E out for a few days to see. Then i'll bring it back again if there's no change :). TMI warning - One difference with the Vit E is that I have a super lubed up and soft rear end now.... don't know if that's a good thing or a bad thing.-UC - 1+ yearsSCD - 7 months 100% strict and 4 months restricted diet.Asacol - 5 pills a dayTo: BTVC-SCD From: luckycharms@...Date: Sun, 14 Mar 2010 18:33:59 -0400Subject: Re: After almost a year I notice how much i've been doing wrong. So, back to basics but need advice.

Suggestions for moving forward from here? I don't have the option of increasing my meds right now because of health insurance.Hey ,What about trying a vitamin E enema? I'm not sure how expensive the vitamin E capsules would be, or the ear bulb thingy, but if you could get some then that might help with the bleeding. It got me out of one flare a while ago. Didn't get me out of another more serious one, but if you don't have any other options, it might help in addition to everything else you're doing.Another thing, are you making broth by simmering the bones and other 'junk' for a long time with some ACV? I know it's supposed to have really healing properties, which I'm sure you could do with =) Also, I read over on the GAPS group that adding a raw egg yolk to your mug of broth gives super easily-absorbed nutrition. Peace =)Alyssa 16 yo UC April 2008, dx Sept 2008SCD June 2009 (restarted)Azathioprine 50 mg 1x per dayPrednisone 35 mg 1x per day

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