Guest guest Posted October 9, 2001 Report Share Posted October 9, 2001 Hi, my name is Lillian and I have had RP for over 25 years. It did take a few years to get it diagnosed though. Please do not panic. I did that when I was first diagnosed and look how much later I am alive and well (except for once in awhile and writing to reassure you. Not only do you need to see a rheumatologist, but, you need to see one that has actually treated RP patients (victims?) his/her self.This difference made a big difference in my attitude about how I felt!!!! If you ever need to " talk " to someone , please feel free to contact me either directly or here on the RP group board. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 9, 2001 Report Share Posted October 9, 2001 Hi, my name is Lillian and I have had RP for over 25 years. It did take a few years to get it diagnosed though. Please do not panic. I did that when I was first diagnosed and look how much later I am alive and well (except for once in awhile and writing to reassure you. Not only do you need to see a rheumatologist, but, you need to see one that has actually treated RP patients (victims?) his/her self.This difference made a big difference in my attitude about how I felt!!!! If you ever need to " talk " to someone , please feel free to contact me either directly or here on the RP group board. Quote Link to comment Share on other sites More sharing options...
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