Guest guest Posted October 9, 2001 Report Share Posted October 9, 2001 Welcome Sue...........another Sue.......LOL, I'm so glad you found this group. Yes, we all understand how you are feeling. Scared to death, but please don't be. RP is manageable and can even go into remission, so please don't give up hope. There are lots of different drugs that can be used for RP and if one doesn't work for you, there are lots of others, so don't be discouraged. Ask all the questions that you have. There's a wealth of knowledge here and I'm sure someone can help you. Just remember we are ALL here for you and yes, we DO understand what you're going through and how you feel. Your email sounded so familiar when I read it. My PCP diagnosed me and she was sooooo excited when she realized what I had. Every new appointment with her, she would bring in a student doctor or doctors and they would ask the same questions over and over. She never did tell me what it was or how bad it could be and since she was so excited, I just assumed that a little pill would take care of it and make it alllllll better. THEN, I got smart and went searching for answers and boy, I didn't like the answers at all. Finally found this group and it has been a true blessing. I've learned more from these wonderful people than all the doctors in Virginia. There are great and very willing to help, so please don't hesitate to ask any and all questions. OK, that's it for me for now, just wanted to say hello and WELCOME to our wonderful family. Woods >>>>>>>>>>>>>>>>>>>>>>>>>> I'm just very confused & upset. I'm sure I will get the support I trulyneed from this board since we are all in the same boat. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 9, 2001 Report Share Posted October 9, 2001 Welcome Sue...........another Sue.......LOL, I'm so glad you found this group. Yes, we all understand how you are feeling. Scared to death, but please don't be. RP is manageable and can even go into remission, so please don't give up hope. There are lots of different drugs that can be used for RP and if one doesn't work for you, there are lots of others, so don't be discouraged. Ask all the questions that you have. There's a wealth of knowledge here and I'm sure someone can help you. Just remember we are ALL here for you and yes, we DO understand what you're going through and how you feel. Your email sounded so familiar when I read it. My PCP diagnosed me and she was sooooo excited when she realized what I had. Every new appointment with her, she would bring in a student doctor or doctors and they would ask the same questions over and over. She never did tell me what it was or how bad it could be and since she was so excited, I just assumed that a little pill would take care of it and make it alllllll better. THEN, I got smart and went searching for answers and boy, I didn't like the answers at all. Finally found this group and it has been a true blessing. I've learned more from these wonderful people than all the doctors in Virginia. There are great and very willing to help, so please don't hesitate to ask any and all questions. OK, that's it for me for now, just wanted to say hello and WELCOME to our wonderful family. Woods >>>>>>>>>>>>>>>>>>>>>>>>>> I'm just very confused & upset. I'm sure I will get the support I trulyneed from this board since we are all in the same boat. Quote Link to comment Share on other sites More sharing options...
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