Guest guest Posted October 9, 2001 Report Share Posted October 9, 2001 Hello, Everyone, Yes it has been a while since i posted, but, i am thinking of all of you, and keeping prayers each day as it comes and goes. I have been reading the posts, and i would like to welcome all the new members. At to the rest of my family (on line) remember i am still here for anything. PLease if i can help in any way dont hesitate to post me a line, or what ever your heart and soul feels please know i am with all of you by your sides in spirit. I have a question... Gabby has tried for disabilty and he was denied. The SSI feels he can at least do part time, since he is only doing a few hours going to class. But school is an out for him, he wants mentally to stay active. Also he does miss some classes, and as all of you know, it is a struggle..also the social security feel his age is young. I am sure i dont need to write more, but, we all have been in that boat of denial.. So if anyone can give me a direction please let me know.. OK!! now, how are you all, while i read the posts i feel such a warmth feeling like finally i can talk to, and truly trust within my heart, and this is to every single one of you all... Well, i guess i will keep more in touch with you all, as for myself, i am getting ready to have carpitunnel surgery, in the next 2 or 3 weeks, so if you dont srr much of me posting, it is because i need surgery on the right hand, already did the left 2 years ago, and i regret it that i didnt have the surgery then but hey,,,, lolol,,,,,i tried to be wonder woman but it failed.. lolol. Please remember, i am here... so please send me updates on the good the bad, new grandma's and grandpa's etc.and the trips you all have taken, and next question how was the reunion?? i would love to see faces with the special love we all share. Remember me, Love and warmth and prayers are with each of your heart and souls.... Bonita Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 9, 2001 Report Share Posted October 9, 2001 Hello, Everyone, Yes it has been a while since i posted, but, i am thinking of all of you, and keeping prayers each day as it comes and goes. I have been reading the posts, and i would like to welcome all the new members. At to the rest of my family (on line) remember i am still here for anything. PLease if i can help in any way dont hesitate to post me a line, or what ever your heart and soul feels please know i am with all of you by your sides in spirit. I have a question... Gabby has tried for disabilty and he was denied. The SSI feels he can at least do part time, since he is only doing a few hours going to class. But school is an out for him, he wants mentally to stay active. Also he does miss some classes, and as all of you know, it is a struggle..also the social security feel his age is young. I am sure i dont need to write more, but, we all have been in that boat of denial.. So if anyone can give me a direction please let me know.. OK!! now, how are you all, while i read the posts i feel such a warmth feeling like finally i can talk to, and truly trust within my heart, and this is to every single one of you all... Well, i guess i will keep more in touch with you all, as for myself, i am getting ready to have carpitunnel surgery, in the next 2 or 3 weeks, so if you dont srr much of me posting, it is because i need surgery on the right hand, already did the left 2 years ago, and i regret it that i didnt have the surgery then but hey,,,, lolol,,,,,i tried to be wonder woman but it failed.. lolol. Please remember, i am here... so please send me updates on the good the bad, new grandma's and grandpa's etc.and the trips you all have taken, and next question how was the reunion?? i would love to see faces with the special love we all share. Remember me, Love and warmth and prayers are with each of your heart and souls.... Bonita Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 10, 2001 Report Share Posted October 10, 2001 Bonita, so good to see you posting.... Sorry you have to have surgery again... Know that I'll keep you in my thoughts and prayers... Oh there is so much to tell about the trip to Okie land... We had a wonderful time and laughed SO hard most of the time. There are some pictures the Heidi sent to the group. If you can't download them, or didnt get them let me know and I will send them to you... Wish I had some info to give to Gaby... I know at his age it is really hard to get on disability.. Tell him not to give up though... I am going to Stanford next week for my heart... would still be interested to know who his dr over there is... Just e mail me if you have time. Hope you continue to read and post to the group... AND I hope to meet you one day soon...we are sooo close.. My daughter is working in now... So maybe I'll get to see you. hugs Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 10, 2001 Report Share Posted October 10, 2001 Bonita, so good to see you posting.... Sorry you have to have surgery again... Know that I'll keep you in my thoughts and prayers... Oh there is so much to tell about the trip to Okie land... We had a wonderful time and laughed SO hard most of the time. There are some pictures the Heidi sent to the group. If you can't download them, or didnt get them let me know and I will send them to you... Wish I had some info to give to Gaby... I know at his age it is really hard to get on disability.. Tell him not to give up though... I am going to Stanford next week for my heart... would still be interested to know who his dr over there is... Just e mail me if you have time. Hope you continue to read and post to the group... AND I hope to meet you one day soon...we are sooo close.. My daughter is working in now... So maybe I'll get to see you. hugs Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 10, 2001 Report Share Posted October 10, 2001 Bonita, So good to hear from you. Good luck on your surgery,hoping you have a speedy recovery. Hugs, Sandy Well, i guess i will keep more in touch with you all, as for myself, i am getting ready to have carpitunnel surgery, in the next 2 or 3 weeks, so if you dont srr much of me posting, it is because i need surgery on the right hand, already did the left 2 years ago, and i regret it that i didnt have the surgery then but hey,,,, lolol,,,,,i tried to be wonder woman but it failed.. lolol. Please remember, i am here... so please send me updates on the good the bad, new grandma's and grandpa's etc.and the trips you all have taken, and next question how was the reunion?? i would love to see faces with the special love we all share.Remember me,Love and warmth and prayers are with each of your heart and souls....BonitaDISCLAIMER!!WE ARE NOT MEDICAL PROFESSIONALS, THEREFORE ANY INFORMATION THAT IS RECEIVED HERE IS FROM EXPERIENCE ONLY. PLEASE CONSULT WITH YOUR DOCTOR BEFORE TRYING ANYTHING THAT IS SUGGESTED. WE ARE NOT A SUBSTITUTE FOR YOUR PHYSICIAN AND ARE NOT TRYING TO BE. REMEMBER EVERYONE IS DIFFERENT AND TREATMENT MAYBE DIFFERENT FOR MANY OF US. THANK YOU Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 10, 2001 Report Share Posted October 10, 2001 Bonita, So good to hear from you. Good luck on your surgery,hoping you have a speedy recovery. Hugs, Sandy Well, i guess i will keep more in touch with you all, as for myself, i am getting ready to have carpitunnel surgery, in the next 2 or 3 weeks, so if you dont srr much of me posting, it is because i need surgery on the right hand, already did the left 2 years ago, and i regret it that i didnt have the surgery then but hey,,,, lolol,,,,,i tried to be wonder woman but it failed.. lolol. Please remember, i am here... so please send me updates on the good the bad, new grandma's and grandpa's etc.and the trips you all have taken, and next question how was the reunion?? i would love to see faces with the special love we all share.Remember me,Love and warmth and prayers are with each of your heart and souls....BonitaDISCLAIMER!!WE ARE NOT MEDICAL PROFESSIONALS, THEREFORE ANY INFORMATION THAT IS RECEIVED HERE IS FROM EXPERIENCE ONLY. PLEASE CONSULT WITH YOUR DOCTOR BEFORE TRYING ANYTHING THAT IS SUGGESTED. WE ARE NOT A SUBSTITUTE FOR YOUR PHYSICIAN AND ARE NOT TRYING TO BE. REMEMBER EVERYONE IS DIFFERENT AND TREATMENT MAYBE DIFFERENT FOR MANY OF US. THANK YOU Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 19, 2001 Report Share Posted October 19, 2001 How old is Gabby? Does he have RP? Does he have a diagnosis? Re: info for Hello, Everyone, Yes it has been a while since i posted, but, i am thinking of all of you, and keeping prayers each day as it comes and goes. I have been reading the posts, and i would like to welcome all the new members. At to the rest of my family (on line) remember i am still here for anything. PLease if i can help in any way dont hesitate to post me a line, or what ever your heart and soul feels please know i am with all of you by your sides in spirit. I have a question... Gabby has tried for disabilty and he was denied. The SSI feels he can at least do part time, since he is only doing a few hours going to class. But school is an out for him, he wants mentally to stay active. Also he does miss some classes, and as all of you know, it is a struggle..also the social security feel his age is young. I am sure i dont need to write more, but, we all have been in that boat of denial.. So if anyone can give me a direction please let me know.. OK!! now, how are you all, while i read the posts i feel such a warmth feeling like finally i can talk to, and truly trust within my heart, and this is to every single one of you all... Well, i guess i will keep more in touch with you all, as for myself, i am getting ready to have carpitunnel surgery, in the next 2 or 3 weeks, so if you dont srr much of me posting, it is because i need surgery on the right hand, already did the left 2 years ago, and i regret it that i didnt have the surgery then but hey,,,, lolol,,,,,i tried to be wonder woman but it failed.. lolol. Please remember, i am here... so please send me updates on the good the bad, new grandma's and grandpa's etc.and the trips you all have taken, and next question how was the reunion?? i would love to see faces with the special love we all share. Remember me, Love and warmth and prayers are with each of your heart and souls.... Bonita DISCLAIMER!! WE ARE NOT MEDICAL PROFESSIONALS, THEREFORE ANY INFORMATION THAT IS RECEIVED HERE IS FROM EXPERIENCE ONLY. PLEASE CONSULT WITH YOUR DOCTOR BEFORE TRYING ANYTHING THAT IS SUGGESTED. WE ARE NOT A SUBSTITUTE FOR YOUR PHYSICIAN AND ARE NOT TRYING TO BE. REMEMBER EVERYONE IS DIFFERENT AND TREATMENT MAYBE DIFFERENT FOR MANY OF US. THANK YOU Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 19, 2001 Report Share Posted October 19, 2001 How old is Gabby? Does he have RP? Does he have a diagnosis? Re: info for Hello, Everyone, Yes it has been a while since i posted, but, i am thinking of all of you, and keeping prayers each day as it comes and goes. I have been reading the posts, and i would like to welcome all the new members. At to the rest of my family (on line) remember i am still here for anything. PLease if i can help in any way dont hesitate to post me a line, or what ever your heart and soul feels please know i am with all of you by your sides in spirit. I have a question... Gabby has tried for disabilty and he was denied. The SSI feels he can at least do part time, since he is only doing a few hours going to class. But school is an out for him, he wants mentally to stay active. Also he does miss some classes, and as all of you know, it is a struggle..also the social security feel his age is young. I am sure i dont need to write more, but, we all have been in that boat of denial.. So if anyone can give me a direction please let me know.. OK!! now, how are you all, while i read the posts i feel such a warmth feeling like finally i can talk to, and truly trust within my heart, and this is to every single one of you all... Well, i guess i will keep more in touch with you all, as for myself, i am getting ready to have carpitunnel surgery, in the next 2 or 3 weeks, so if you dont srr much of me posting, it is because i need surgery on the right hand, already did the left 2 years ago, and i regret it that i didnt have the surgery then but hey,,,, lolol,,,,,i tried to be wonder woman but it failed.. lolol. Please remember, i am here... so please send me updates on the good the bad, new grandma's and grandpa's etc.and the trips you all have taken, and next question how was the reunion?? i would love to see faces with the special love we all share. Remember me, Love and warmth and prayers are with each of your heart and souls.... Bonita DISCLAIMER!! WE ARE NOT MEDICAL PROFESSIONALS, THEREFORE ANY INFORMATION THAT IS RECEIVED HERE IS FROM EXPERIENCE ONLY. PLEASE CONSULT WITH YOUR DOCTOR BEFORE TRYING ANYTHING THAT IS SUGGESTED. WE ARE NOT A SUBSTITUTE FOR YOUR PHYSICIAN AND ARE NOT TRYING TO BE. REMEMBER EVERYONE IS DIFFERENT AND TREATMENT MAYBE DIFFERENT FOR MANY OF US. THANK YOU Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 21, 2001 Report Share Posted October 21, 2001 hello I am reponding to the questions about Gabby, he is going to be 21 in July, and as of that date he will no longer be covered by any medical ins. or SSI, he did apply but the SSI told him his illness wasnt major, so he was denied, but he does have been diagnoised, by Lucille Packard Childrens Hospital and he has all the paper work, he is attending some College courses but the main reason he does go to school is because of the financial aide, it helps him with the bills and his mother is on SSI, so he is pushing himself to try to help. but the Drs. made him only take 1 course and cut back because of his illness. so right now, i am trying to find something or anyone who can give some info. yes also he does have RP. if i can give any more info on Gabby please dont hesitate to ask. We live in , Ca. and i lnow some SSI laws are based on different issues.. So thank you again and keep me posted. Love ya all. Bonita (aunty BeBe.) lolol... this is my nephews and nieces name for me they cant say Bonita when they were little so i am aunty BeBe... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 21, 2001 Report Share Posted October 21, 2001 hello I am reponding to the questions about Gabby, he is going to be 21 in July, and as of that date he will no longer be covered by any medical ins. or SSI, he did apply but the SSI told him his illness wasnt major, so he was denied, but he does have been diagnoised, by Lucille Packard Childrens Hospital and he has all the paper work, he is attending some College courses but the main reason he does go to school is because of the financial aide, it helps him with the bills and his mother is on SSI, so he is pushing himself to try to help. but the Drs. made him only take 1 course and cut back because of his illness. so right now, i am trying to find something or anyone who can give some info. yes also he does have RP. if i can give any more info on Gabby please dont hesitate to ask. We live in , Ca. and i lnow some SSI laws are based on different issues.. So thank you again and keep me posted. Love ya all. Bonita (aunty BeBe.) lolol... this is my nephews and nieces name for me they cant say Bonita when they were little so i am aunty BeBe... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 21, 2001 Report Share Posted October 21, 2001 Bonita, Have you tried SSD. Social Security Disability? It's somewhat different than SSI.Check with your Social Security Office. Ann Re: info for hello I am reponding to the questions about Gabby, he is going to be 21 in July, and as of that date he will no longer be covered by any medical ins. or SSI, he did apply but the SSI told him his illness wasnt major, so he was denied, but he does have been diagnoised, by Lucille Packard Childrens Hospital and he has all the paper work, he is attending some College courses but the main reason he does go to school is because of the financial aide, it helps him with the bills and his mother is on SSI, so he is pushing himself to try to help. but the Drs. made him only take 1 course and cut back because of his illness. so right now, i am trying to find something or anyone who can give some info. yes also he does have RP. if i can give any more info on Gabby please dont hesitate to ask. We live in , Ca. and i lnow some SSI laws are based on different issues.. So thank you again and keep me posted. Love ya all. Bonita (aunty BeBe.) lolol... this is my nephews and nieces name for me they cant say Bonita when they were little so i am aunty BeBe... DISCLAIMER!! WE ARE NOT MEDICAL PROFESSIONALS, THEREFORE ANY INFORMATION THAT IS RECEIVED HERE IS FROM EXPERIENCE ONLY. PLEASE CONSULT WITH YOUR DOCTOR BEFORE TRYING ANYTHING THAT IS SUGGESTED. WE ARE NOT A SUBSTITUTE FOR YOUR PHYSICIAN AND ARE NOT TRYING TO BE. REMEMBER EVERYONE IS DIFFERENT AND TREATMENT MAYBE DIFFERENT FOR MANY OF US. THANK YOU Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 21, 2001 Report Share Posted October 21, 2001 Bonita, Have you tried SSD. Social Security Disability? It's somewhat different than SSI.Check with your Social Security Office. Ann Re: info for hello I am reponding to the questions about Gabby, he is going to be 21 in July, and as of that date he will no longer be covered by any medical ins. or SSI, he did apply but the SSI told him his illness wasnt major, so he was denied, but he does have been diagnoised, by Lucille Packard Childrens Hospital and he has all the paper work, he is attending some College courses but the main reason he does go to school is because of the financial aide, it helps him with the bills and his mother is on SSI, so he is pushing himself to try to help. but the Drs. made him only take 1 course and cut back because of his illness. so right now, i am trying to find something or anyone who can give some info. yes also he does have RP. if i can give any more info on Gabby please dont hesitate to ask. We live in , Ca. and i lnow some SSI laws are based on different issues.. So thank you again and keep me posted. Love ya all. Bonita (aunty BeBe.) lolol... this is my nephews and nieces name for me they cant say Bonita when they were little so i am aunty BeBe... DISCLAIMER!! WE ARE NOT MEDICAL PROFESSIONALS, THEREFORE ANY INFORMATION THAT IS RECEIVED HERE IS FROM EXPERIENCE ONLY. PLEASE CONSULT WITH YOUR DOCTOR BEFORE TRYING ANYTHING THAT IS SUGGESTED. WE ARE NOT A SUBSTITUTE FOR YOUR PHYSICIAN AND ARE NOT TRYING TO BE. REMEMBER EVERYONE IS DIFFERENT AND TREATMENT MAYBE DIFFERENT FOR MANY OF US. THANK YOU Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 24, 2001 Report Share Posted October 24, 2001 In a message dated 10/24/01 2:05:53 PM Pacific Daylight Time, judyo_93@... writes: << I don't remember who did that, but she had her disability approved in less than two we >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 24, 2001 Report Share Posted October 24, 2001 In a message dated 10/24/01 2:05:53 PM Pacific Daylight Time, judyo_93@... writes: << I don't remember who did that, but she had her disability approved in less than two we >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 24, 2001 Report Share Posted October 24, 2001 In a message dated 10/24/01 2:05:53 PM Pacific Daylight Time, judyo_93@... writes: << I don't remember who did that, but she had her disability approved in less than two we >> I think it was Lucy who did this Bonita.. You might want to ask her. hugs Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 24, 2001 Report Share Posted October 24, 2001 In a message dated 10/24/01 2:05:53 PM Pacific Daylight Time, judyo_93@... writes: << I don't remember who did that, but she had her disability approved in less than two we >> I think it was Lucy who did this Bonita.. You might want to ask her. hugs Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 24, 2001 Report Share Posted October 24, 2001 Bonita, send a letter to your Senator, and/or the govenor of your state. I don't remember who did that, but she had her disability approved in less than two weeks. Keep fighting, we'll keep praying. Love Judy (Hang in there) RE: info for How old is Gabby? Does he have RP? Does he have a diagnosis?-----Original Message-----From: B4135@... Sent: Tuesday, October 09, 2001 11:14 PMTo: Rpolychondritis Subject: Re: info for Hello, Everyone, Yes it has been a while since i posted, but, i am thinking of all ofyou,and keeping prayers each day as it comes and goes. I have been reading theposts, and i would like to welcome all the new members. At to the rest ofmyfamily (on line) remember i am still here for anything. PLease if i can helpin any way dont hesitate to post me a line, or what ever your heart and soulfeels please know i am with all of you by your sides in spirit. I have aquestion... Gabby has tried for disabilty and he was denied. The SSI feelshecan at least do part time, since he is only doing a few hours going toclass.But school is an out for him, he wants mentally to stay active.Also he does miss some classes, and as all of you know, it is astruggle..also the social security feel his age is young. I am sure i dontneed to write more, but, we all have been in that boat of denial.. So ifanyone can give me a direction please let me know.. OK!! now, how are youall, while i read the posts i feel such a warmth feeling like finally i cantalk to, and truly trust within my heart, and this is to every single one ofyou all... Well, i guess i will keep more in touch with you all, as formyself, i am getting ready to have carpitunnel surgery, in the next 2 or 3weeks, so if you dont srr much of me posting, it is because i need surgeryonthe right hand, already did the left 2 years ago, and i regret it that ididnt have the surgery then but hey,,,, lolol,,,,,i tried to be wonder womanbut it failed.. lolol. Please remember, i am here... so please send meupdates on the good the bad, new grandma's and grandpa's etc.and the tripsyou all have taken, and next question how was the reunion?? i would love tosee faces with the special love we all share.Remember me,Love and warmth and prayers are with each of your heart and souls....BonitaDISCLAIMER!!WE ARE NOT MEDICAL PROFESSIONALS, THEREFORE ANY INFORMATION THAT IS RECEIVEDHERE IS FROM EXPERIENCE ONLY. PLEASE CONSULT WITH YOUR DOCTOR BEFORE TRYINGANYTHING THAT IS SUGGESTED. WE ARE NOT A SUBSTITUTE FOR YOUR PHYSICIAN ANDARE NOT TRYING TO BE. REMEMBER EVERYONE IS DIFFERENT AND TREATMENT MAYBEDIFFERENT FOR MANY OF US. THANK YOU Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 24, 2001 Report Share Posted October 24, 2001 Bonita, send a letter to your Senator, and/or the govenor of your state. I don't remember who did that, but she had her disability approved in less than two weeks. Keep fighting, we'll keep praying. Love Judy (Hang in there) RE: info for How old is Gabby? Does he have RP? Does he have a diagnosis?-----Original Message-----From: B4135@... Sent: Tuesday, October 09, 2001 11:14 PMTo: Rpolychondritis Subject: Re: info for Hello, Everyone, Yes it has been a while since i posted, but, i am thinking of all ofyou,and keeping prayers each day as it comes and goes. I have been reading theposts, and i would like to welcome all the new members. At to the rest ofmyfamily (on line) remember i am still here for anything. PLease if i can helpin any way dont hesitate to post me a line, or what ever your heart and soulfeels please know i am with all of you by your sides in spirit. I have aquestion... Gabby has tried for disabilty and he was denied. The SSI feelshecan at least do part time, since he is only doing a few hours going toclass.But school is an out for him, he wants mentally to stay active.Also he does miss some classes, and as all of you know, it is astruggle..also the social security feel his age is young. I am sure i dontneed to write more, but, we all have been in that boat of denial.. So ifanyone can give me a direction please let me know.. OK!! now, how are youall, while i read the posts i feel such a warmth feeling like finally i cantalk to, and truly trust within my heart, and this is to every single one ofyou all... Well, i guess i will keep more in touch with you all, as formyself, i am getting ready to have carpitunnel surgery, in the next 2 or 3weeks, so if you dont srr much of me posting, it is because i need surgeryonthe right hand, already did the left 2 years ago, and i regret it that ididnt have the surgery then but hey,,,, lolol,,,,,i tried to be wonder womanbut it failed.. lolol. Please remember, i am here... so please send meupdates on the good the bad, new grandma's and grandpa's etc.and the tripsyou all have taken, and next question how was the reunion?? i would love tosee faces with the special love we all share.Remember me,Love and warmth and prayers are with each of your heart and souls....BonitaDISCLAIMER!!WE ARE NOT MEDICAL PROFESSIONALS, THEREFORE ANY INFORMATION THAT IS RECEIVEDHERE IS FROM EXPERIENCE ONLY. PLEASE CONSULT WITH YOUR DOCTOR BEFORE TRYINGANYTHING THAT IS SUGGESTED. WE ARE NOT A SUBSTITUTE FOR YOUR PHYSICIAN ANDARE NOT TRYING TO BE. REMEMBER EVERYONE IS DIFFERENT AND TREATMENT MAYBEDIFFERENT FOR MANY OF US. THANK YOU Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.