Re: [SPAM] Re: Allergy and malabsorption

[Guest guest]

oh, that drooling was aweful! Find the right allergen and away it goes...

[sPAM][ ] Re: Allergy and malabsorption

I share your frustration. Dealing with celiac's disease at daycare

has been nothing short of a nightmare. My son is four and a half

and does not speak more than a handful of words. He has severe

developmental delay and is unable to know or express to his teachers

that he can not eat certain foods.

I have posted a detailed food list of the items my son can and can

not eat on the fridge in his daycare room. We pack all of his meals

and snacks to avoid any confusion with the foods provided through

his daycare. Still, on occasion, I have walked in to find him

snacking on a cookie or cracker.

My son drools uncontrollably and has horrible stomach upset each

time gluten is introduced to his diet. You would think the teachers

would rather not deal with the dirty diapers those cookies and

crackers produce, but they don't seem to understand the connection.

>

> My kids had their first accidental gluten exposure at music class

> yesterday. A little girl in the class made cookies for the teacher

and

> she shared and for some reason trusted my 4 year old when she said

they

> could have them. I explaied that in the future could she just let

> know that her cookies are at home and mommy will get

them as

> soon as they get there. I was not annoyed as these things will

happen

> but it is crazy, in this overstuffing American society, that

people feel

> the need to feed your kid in these 45 minute classes that are

scheduled

> right after breakfast. Of all the places I thought we'd have this

happen

> music class was not one of them. Still, I simply asked if she knew

if

> food would be coming in in the future to please let me know so I

could

> have a sub ready. I did not want to talk further about it as what

was

> done was done and it is bad enough my daughter (who is more aware)

can't

> have stuff. I am trying to just always have tasty alternatives

around,

> eat what she eats, engage her in the baking and shopping (which

she

> loves) and keep it positive so I can minimize the deprivation

factor.

> Anyway, later the teacher calls me. We are friendly and plan on

seeing

> each other socially. She is a doll and had a bad day where another

kid

> left the class unattended. She was upset about the dietary

infraction

> and called to apologize which was very sweet. We got to talking

and it

> turns out the little girl gave the cookies because she has very

severe

> and numerous allergies and made them with her mom but could not

eat

> them. This girl is very tiny and looks about 4 to me, has thin

hair and

> glasses. The class is for 3-5 year olds. I was stunned when the

teacher

> informed me she was 7. I guess this is the kid docs are thinking

of when

> they look for malabsorption and why, despite my good intel and

what I

> now know to be obvious signs in hindsight, it was not obvious. It

also

> may be why the docs still think I am nuts. I am grateful for what

our

> deal is. It is indeed easier than what so many have. Sara

obviously has

> other delays to be in this class. According to the teacher she is

on her

> way though and doing very well. I believe that. She is a bright

little

> girl just waiting to shine.

>