Guest guest Posted September 7, 2001 Report Share Posted September 7, 2001 Well I wanted to thank you all for all the responses, and the warm welcome. I live in Southeast Texas, which is about 1 1/2 hrs. from Houston. I am married to a wonderful man for 29 yrs. I have 2 children. My daughter is married & is 24, and my son is 21. I also have 3 granddogs. My daughter gave me the idea of searching for a support group online. She is currently on a support group for infertility, and has received so much help. I really don't know much about this RP, and can't find a doctor who can help with this. If you can help me find a doctor I would greatly appreciate it. I just want to thank you again. I will continue to keep you all in my prayers Best Wishes, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 7, 2001 Report Share Posted September 7, 2001 Well I wanted to thank you all for all the responses, and the warm welcome. I live in Southeast Texas, which is about 1 1/2 hrs. from Houston. I am married to a wonderful man for 29 yrs. I have 2 children. My daughter is married & is 24, and my son is 21. I also have 3 granddogs. My daughter gave me the idea of searching for a support group online. She is currently on a support group for infertility, and has received so much help. I really don't know much about this RP, and can't find a doctor who can help with this. If you can help me find a doctor I would greatly appreciate it. I just want to thank you again. I will continue to keep you all in my prayers Best Wishes, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 10, 2001 Report Share Posted September 10, 2001 In a message dated 09/07/2001 7:09:58 PM Central Daylight Time, nant8@... writes: << I really don't know much about this RP, and can't find a doctor who can help with this. If you can help me find a doctor I would greatly appreciate i >> , sorry you have RP, but you did come to the right place. I have learned more about RP than I ever wanted to know! But it is really necessary to KNOW. I am very fortunate to have excellent doctors who actually KNOW what the disease is, which is not common unfortunately. I am sure others can help you find a doctor in your area who can help you. The disease is so rare that many doctors don't have a clue about it. And since it affects everyone differently, it's hard to both diagnose and treat....BUT IT CAN BE TREATED! So don't lose hope or give up, you can live a long, mostly normal life with RP, so don't get too down. That is what we are here for, information and support. We give you a safe place to come to vent, get information and even cry. Hang in there, while it cannot be cured YET, it can be managed. Love, Judy O Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 10, 2001 Report Share Posted September 10, 2001 In a message dated 09/07/2001 7:09:58 PM Central Daylight Time, nant8@... writes: << I really don't know much about this RP, and can't find a doctor who can help with this. If you can help me find a doctor I would greatly appreciate i >> , sorry you have RP, but you did come to the right place. I have learned more about RP than I ever wanted to know! But it is really necessary to KNOW. I am very fortunate to have excellent doctors who actually KNOW what the disease is, which is not common unfortunately. I am sure others can help you find a doctor in your area who can help you. The disease is so rare that many doctors don't have a clue about it. And since it affects everyone differently, it's hard to both diagnose and treat....BUT IT CAN BE TREATED! So don't lose hope or give up, you can live a long, mostly normal life with RP, so don't get too down. That is what we are here for, information and support. We give you a safe place to come to vent, get information and even cry. Hang in there, while it cannot be cured YET, it can be managed. Love, Judy O Quote Link to comment Share on other sites More sharing options...
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