Guest guest Posted October 11, 2001 Report Share Posted October 11, 2001 Sue S. Gosh it sure sounds like you are having a time of it! Do they have you on anything besides the pred for the RP? You shouldn't be tapering off the pred if you are still flaring. Remember that this is only my opinion. If you have been on the pred for very long you shouldn't be tapering off that fast either. You sound like you are pretty new to RP and that doesn't help at all! Sounds like you have good Dr.'s now if they will just get busy and get you under control. Dog gone RP! Know we are here for you anytime. Sometimes it is very hard for the spouses and loved ones of RP'rs to try to understand what we are going through. Heck we don't understand it! Keep your chin up and try not to let it get you down! Lots of Love Glenda ---Outgoing mail is certified Virus Free.Checked by AVG anti-virus system (http://www.grisoft.com).Version: 6.0.282 / Virus Database: 150 - Release Date: 9/25/2001 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 11, 2001 Report Share Posted October 11, 2001 Sue S. Gosh it sure sounds like you are having a time of it! Do they have you on anything besides the pred for the RP? You shouldn't be tapering off the pred if you are still flaring. Remember that this is only my opinion. If you have been on the pred for very long you shouldn't be tapering off that fast either. You sound like you are pretty new to RP and that doesn't help at all! Sounds like you have good Dr.'s now if they will just get busy and get you under control. Dog gone RP! Know we are here for you anytime. Sometimes it is very hard for the spouses and loved ones of RP'rs to try to understand what we are going through. Heck we don't understand it! Keep your chin up and try not to let it get you down! Lots of Love Glenda ---Outgoing mail is certified Virus Free.Checked by AVG anti-virus system (http://www.grisoft.com).Version: 6.0.282 / Virus Database: 150 - Release Date: 9/25/2001 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 12, 2001 Report Share Posted October 12, 2001 Sue, who is your rheumy? I see Dr. Bruce in Elk Grove. If your current rheumy is not familiar with RP, maybe giving him a call wouldn't be a bad thing. He handles RP patients and I really like him. Just a thought. Love,Judy O Sue S. Sue S. Gosh it sure sounds like you are having a time of it! Do they have you on anything besides the pred for the RP? You shouldn't be tapering off the pred if you are still flaring. Remember that this is only my opinion. If you have been on the pred for very long you shouldn't be tapering off that fast either. You sound like you are pretty new to RP and that doesn't help at all! Sounds like you have good Dr.'s now if they will just get busy and get you under control. Dog gone RP! Know we are here for you anytime. Sometimes it is very hard for the spouses and loved ones of RP'rs to try to understand what we are going through. Heck we don't understand it! Keep your chin up and try not to let it get you down! Lots of Love Glenda ---Outgoing mail is certified Virus Free.Checked by AVG anti-virus system (http://www.grisoft.com).Version: 6.0.282 / Virus Database: 150 - Release Date: 9/25/2001DISCLAIMER!!WE ARE NOT MEDICAL PROFESSIONALS, THEREFORE ANY INFORMATION THAT IS RECEIVED HERE IS FROM EXPERIENCE ONLY. PLEASE CONSULT WITH YOUR DOCTOR BEFORE TRYING ANYTHING THAT IS SUGGESTED. WE ARE NOT A SUBSTITUTE FOR YOUR PHYSICIAN AND ARE NOT TRYING TO BE. REMEMBER EVERYONE IS DIFFERENT AND TREATMENT MAYBE DIFFERENT FOR MANY OF US. THANK YOU Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 12, 2001 Report Share Posted October 12, 2001 Sue, who is your rheumy? I see Dr. Bruce in Elk Grove. If your current rheumy is not familiar with RP, maybe giving him a call wouldn't be a bad thing. He handles RP patients and I really like him. Just a thought. Love,Judy O Sue S. Sue S. Gosh it sure sounds like you are having a time of it! Do they have you on anything besides the pred for the RP? You shouldn't be tapering off the pred if you are still flaring. Remember that this is only my opinion. If you have been on the pred for very long you shouldn't be tapering off that fast either. You sound like you are pretty new to RP and that doesn't help at all! Sounds like you have good Dr.'s now if they will just get busy and get you under control. Dog gone RP! Know we are here for you anytime. Sometimes it is very hard for the spouses and loved ones of RP'rs to try to understand what we are going through. Heck we don't understand it! Keep your chin up and try not to let it get you down! Lots of Love Glenda ---Outgoing mail is certified Virus Free.Checked by AVG anti-virus system (http://www.grisoft.com).Version: 6.0.282 / Virus Database: 150 - Release Date: 9/25/2001DISCLAIMER!!WE ARE NOT MEDICAL PROFESSIONALS, THEREFORE ANY INFORMATION THAT IS RECEIVED HERE IS FROM EXPERIENCE ONLY. PLEASE CONSULT WITH YOUR DOCTOR BEFORE TRYING ANYTHING THAT IS SUGGESTED. WE ARE NOT A SUBSTITUTE FOR YOUR PHYSICIAN AND ARE NOT TRYING TO BE. REMEMBER EVERYONE IS DIFFERENT AND TREATMENT MAYBE DIFFERENT FOR MANY OF US. THANK YOU Quote Link to comment Share on other sites More sharing options...
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