OT: LDN advice

[Guest guest]

Hi everyone,

So...I am still flairing since last week, and it doesn't seem to be related to

any of the foods - more related to stress, or to cold symptoms (nasal mucous,

trouble breathing at night) or my period, which seems to be a factor. I am about

to move, and I have three finals to finish by tomorrow, which won't happen,

since it hurts to sit up and it is starting to send me to the bathroom to drink

water or sit up. Back up to 8 times/day from 1 - 3.

I am on 5mg prednisone still, as I have been for a month since trying to taper

off of it and flairing up then. I will hear back from my naturopath if she wants

me to go back up to 10mg prednisone. I'm still off of supplements, except

prednisone, acyclovir, which I have to keep taking, allegra (to see if an

antihistamine would help), and probiotics (boulardii and HLC intensive). I've

been eating yogurt again too. It seems to be getting worse rather than better.

So I am at the point where I want to try LDN. It seems like the only side

effects are sleeping difficulties, which seem way better than the side effects

of other drugs, including prednisone. It also seems that I can start it, and

taper off prednisone, but while I am taking both they will " cancel each other

out. " Not sure which aspect of which will cancel. Anyone know how this works?

I was also curious how long people have had to wait to see any turn-around of

symptoms? The main goal now is to stop my bleeding, since I'm losing more and

more blood with each stool.

Also, are there any other side effects or reactions people have experienced?

Oh, and does LDN mask the effects of eating different foods that might not

otherwise be tolerated, like prednisone does?

Thanks all, I'm just leary of starting a new drug after my experience with

mesalamine. I want to know what signs to look for that it is working/not

working.

Kat

27

UC since June 09

SCD since Feb 10

prednisone, acyclovir, allegra, probiotics

[Guest guest]

Hi everyone,

So...I am still flairing since last week, and it doesn't seem to be related to

any of the foods - more related to stress, or to cold symptoms (nasal mucous,

trouble breathing at night) or my period, which seems to be a factor. I am about

to move, and I have three finals to finish by tomorrow, which won't happen,

since it hurts to sit up and it is starting to send me to the bathroom to drink

water or sit up. Back up to 8 times/day from 1 - 3.

I am on 5mg prednisone still, as I have been for a month since trying to taper

off of it and flairing up then. I will hear back from my naturopath if she wants

me to go back up to 10mg prednisone. I'm still off of supplements, except

prednisone, acyclovir, which I have to keep taking, allegra (to see if an

antihistamine would help), and probiotics (boulardii and HLC intensive). I've

been eating yogurt again too. It seems to be getting worse rather than better.

So I am at the point where I want to try LDN. It seems like the only side

effects are sleeping difficulties, which seem way better than the side effects

of other drugs, including prednisone. It also seems that I can start it, and

taper off prednisone, but while I am taking both they will " cancel each other

out. " Not sure which aspect of which will cancel. Anyone know how this works?

I was also curious how long people have had to wait to see any turn-around of

symptoms? The main goal now is to stop my bleeding, since I'm losing more and

more blood with each stool.

Also, are there any other side effects or reactions people have experienced?

Oh, and does LDN mask the effects of eating different foods that might not

otherwise be tolerated, like prednisone does?

Thanks all, I'm just leary of starting a new drug after my experience with

mesalamine. I want to know what signs to look for that it is working/not

working.

Kat

27

UC since June 09

SCD since Feb 10

prednisone, acyclovir, allegra, probiotics

[Guest guest]

Hi Kat

There is a group that you can join and ask your question..

http://groups.yahoo.com/group/LDNandIBD/

To view Graphs on how people feel about LDN:

http://www.ldndatabase.com/

Take care. Ozgur

From: BTVC-SCD

[mailto:BTVC-SCD ] On Behalf Of evenstrangerquark

Sent: Wednesday, March 17, 2010 11:02 AM

To: BTVC-SCD

Subject: OT: LDN advice

Hi everyone,

So...I am still flairing since last week, and it doesn't seem to be related to

any of the foods - more related to stress, or to cold symptoms (nasal mucous,

trouble breathing at night) or my period, which seems to be a factor. I am

about to move, and I have three finals to finish by tomorrow, which won't

happen, since it hurts to sit up and it is starting to send me to the bathroom

to drink water or sit up. Back up to 8 times/day from 1 - 3.

I am on 5mg prednisone still, as I have been for a month since trying to taper

off of it and flairing up then. I will hear back from my naturopath if she

wants me to go back up to 10mg prednisone. I'm still off of supplements, except

prednisone, acyclovir, which I have to keep taking, allegra (to see if an

antihistamine would help), and probiotics (boulardii and HLC intensive). I've

been eating yogurt again too. It seems to be getting worse rather than better.

So I am at the point where I want to try LDN. It seems like the only side

effects are sleeping difficulties, which seem way better than the side effects

of other drugs, including prednisone. It also seems that I can start it, and

taper off prednisone, but while I am taking both they will " cancel each

other out. " Not sure which aspect of which will cancel. Anyone know how

this works?

I was also curious how long people have had to wait to see any turn-around of

symptoms? The main goal now is to stop my bleeding, since I'm losing more and

more blood with each stool.

Also, are there any other side effects or reactions people have experienced?

Oh, and does LDN mask the effects of eating different foods that might not

otherwise be tolerated, like prednisone does?

Thanks all, I'm just leary of starting a new drug after my experience with

mesalamine. I want to know what signs to look for that it is working/not

working.

Kat

27

UC since June 09

SCD since Feb 10

prednisone, acyclovir, allegra, probiotics

Fethiye Mahallesi Havacılık Bulvarı No:17 06980 Kazan Ankara Türkiye Tel: (0312) 811 18 00 (pbx)Faks: (0312) 811 14 25 www.tai.com.tr "Bu mesaj ve ekleri mesajda gönderildiği belirtilen kişi ya da kişilere özel olup gizli bilgiler içeriyor olabilir. Mesajın muhatabı ilgilisi ya da gönderileni değilseniz lütfen mesajı herhangi bir şekilde kullanmayınız çoğaltmayınız ve başkalarına ifşa etmeyiniz. Eğer mesaj yanlışlıkla size ulaşmışsa anılan mesaj ve ekinde yer alan bilgileri gizli tutunuz ve mesajı gönderen kişiyi bilgilendirerek söz konusu mesaj ile eklerini derhal imha ediniz. Bu mesaj ve ekindeki belgelerin bilinen virüslere karşı kontrolü yapılmıştır. Ancak e-posta sistemlerinin taşıdığı risklerden dolayı şirketimiz bu mesajın ve içerdiği bilgilerin size değişikliğe uğrayarak veya geç ulaşmasından bütünlüğünün ve gizliliğinin korunamamasından virüs içermesinden ve herhangi bir sebeple bilgisayarınıza ve sisteminize verebileceği zararlardan sorumlu tutulamaz.Şirketimiz hakkında bilgi almak için lütfen web sitemizi ziyaret ediniz. (http://www.tai.com.tr)”Fethiye Mh. Havacilik Blv. No:17 06980 Kazan Ankara Turkey Tel: (90312) 811 18 00 (pbx)Fax: (90312) 811 14 25 www.tai.com.tr“This message together with its attachments is intended solely for the address(es) and may contain confidential or privileged information. If you are not the intended recipient please do not use copy or disclose the message for any purpose. Should you receive this message by mistake please keep all information contained in the message or its attachments strictly confidential and advise the sender and delete it immediately without retaining a copy. This message and its attachments have been swept by anti-virus systems for the presence of known viruses. However due to the risks of e-mail systems our company cannot accept liability for any changes or delay in receiving loss of integrity and confidentiality containing viruses and any damages caused in any way to your computer and system. To get information about our company please visit our web site. (http://www.tai.com.tr)”

[Guest guest]

Hi Kat

There is a group that you can join and ask your question..

http://groups.yahoo.com/group/LDNandIBD/

To view Graphs on how people feel about LDN:

http://www.ldndatabase.com/

Take care. Ozgur

From: BTVC-SCD

[mailto:BTVC-SCD ] On Behalf Of evenstrangerquark

Sent: Wednesday, March 17, 2010 11:02 AM

To: BTVC-SCD

Subject: OT: LDN advice

Hi everyone,

So...I am still flairing since last week, and it doesn't seem to be related to

any of the foods - more related to stress, or to cold symptoms (nasal mucous,

trouble breathing at night) or my period, which seems to be a factor. I am

about to move, and I have three finals to finish by tomorrow, which won't

happen, since it hurts to sit up and it is starting to send me to the bathroom

to drink water or sit up. Back up to 8 times/day from 1 - 3.

I am on 5mg prednisone still, as I have been for a month since trying to taper

off of it and flairing up then. I will hear back from my naturopath if she

wants me to go back up to 10mg prednisone. I'm still off of supplements, except

prednisone, acyclovir, which I have to keep taking, allegra (to see if an

antihistamine would help), and probiotics (boulardii and HLC intensive). I've

been eating yogurt again too. It seems to be getting worse rather than better.

So I am at the point where I want to try LDN. It seems like the only side

effects are sleeping difficulties, which seem way better than the side effects

of other drugs, including prednisone. It also seems that I can start it, and

taper off prednisone, but while I am taking both they will " cancel each

other out. " Not sure which aspect of which will cancel. Anyone know how

this works?

I was also curious how long people have had to wait to see any turn-around of

symptoms? The main goal now is to stop my bleeding, since I'm losing more and

more blood with each stool.

Also, are there any other side effects or reactions people have experienced?

Oh, and does LDN mask the effects of eating different foods that might not

otherwise be tolerated, like prednisone does?

Thanks all, I'm just leary of starting a new drug after my experience with

mesalamine. I want to know what signs to look for that it is working/not

working.

Kat

27

UC since June 09

SCD since Feb 10

prednisone, acyclovir, allegra, probiotics

Fethiye Mahallesi Havacılık Bulvarı No:17 06980 Kazan Ankara Türkiye Tel: (0312) 811 18 00 (pbx)Faks: (0312) 811 14 25 www.tai.com.tr "Bu mesaj ve ekleri mesajda gönderildiği belirtilen kişi ya da kişilere özel olup gizli bilgiler içeriyor olabilir. Mesajın muhatabı ilgilisi ya da gönderileni değilseniz lütfen mesajı herhangi bir şekilde kullanmayınız çoğaltmayınız ve başkalarına ifşa etmeyiniz. Eğer mesaj yanlışlıkla size ulaşmışsa anılan mesaj ve ekinde yer alan bilgileri gizli tutunuz ve mesajı gönderen kişiyi bilgilendirerek söz konusu mesaj ile eklerini derhal imha ediniz. Bu mesaj ve ekindeki belgelerin bilinen virüslere karşı kontrolü yapılmıştır. Ancak e-posta sistemlerinin taşıdığı risklerden dolayı şirketimiz bu mesajın ve içerdiği bilgilerin size değişikliğe uğrayarak veya geç ulaşmasından bütünlüğünün ve gizliliğinin korunamamasından virüs içermesinden ve herhangi bir sebeple bilgisayarınıza ve sisteminize verebileceği zararlardan sorumlu tutulamaz.Şirketimiz hakkında bilgi almak için lütfen web sitemizi ziyaret ediniz. (http://www.tai.com.tr)”Fethiye Mh. Havacilik Blv. No:17 06980 Kazan Ankara Turkey Tel: (90312) 811 18 00 (pbx)Fax: (90312) 811 14 25 www.tai.com.tr“This message together with its attachments is intended solely for the address(es) and may contain confidential or privileged information. If you are not the intended recipient please do not use copy or disclose the message for any purpose. Should you receive this message by mistake please keep all information contained in the message or its attachments strictly confidential and advise the sender and delete it immediately without retaining a copy. This message and its attachments have been swept by anti-virus systems for the presence of known viruses. However due to the risks of e-mail systems our company cannot accept liability for any changes or delay in receiving loss of integrity and confidentiality containing viruses and any damages caused in any way to your computer and system. To get information about our company please visit our web site. (http://www.tai.com.tr)”

[Guest guest]

> Hi everyone,

>

> So...I am still flairing since last week, and it doesn't seem to be related to

any of the foods - more related to stress, or to cold symptoms (nasal mucous,

trouble breathing at night) or my period, which seems to be a factor. I am about

to move, and I have three finals to finish by tomorrow, which won't happen,

since it hurts to sit up and it is starting to send me to the bathroom to drink

water or sit up. Back up to 8 times/day from 1 - 3.

>

> I am on 5mg prednisone still, as I have been for a month since trying to taper

off of it and flairing up then. I will hear back from my naturopath if she wants

me to go back up to 10mg prednisone. I'm still off of supplements, except

prednisone, acyclovir, which I have to keep taking, allegra (to see if an

antihistamine would help), and probiotics (boulardii and HLC intensive). I've

been eating yogurt again too. It seems to be getting worse rather than better.

Since the problem is mucous at the moment, drop the yogurt and other dairy.

>

> So I am at the point where I want to try LDN. It seems like the only side

effects are sleeping difficulties, which seem way better than the side effects

of other drugs, including prednisone. It also seems that I can start it, and

taper off prednisone, but while I am taking both they will " cancel each other

out. " Not sure which aspect of which will cancel. Anyone know how this works?

Prednisone tries to lower your immune response, LDN tries to modulate it

back to running really well. So they are trying to effect opposite responses.

> I was also curious how long people have had to wait to see any turn-around of

symptoms? The main goal now is to stop my bleeding, since I'm losing more and

more blood with each stool.

>

> Also, are there any other side effects or reactions people have experienced?

>

> Oh, and does LDN mask the effects of eating different foods that might not

otherwise be tolerated, like prednisone does?

No, it makes you able to progress through the SCD more rapidly, though,

because your immune system is not so whacked out.

You'll feel healthier.

One thing is that if you have yeast - and you my have yeast with all the

prednisone, the LDN won't work as well, if at all, because yeast blocks

it (for some reason that I don't believe is well understood yet.)

Do a yeast test before you begin, because if you have yeast, you won't

feel much effect from it.

>

> Thanks all, I'm just leary of starting a new drug after my experience with

mesalamine. I want to know what signs to look for that it is working/not

working.

It's nothing like mesalamine.

Mara

[Guest guest]

> Hi everyone,

>

> So...I am still flairing since last week, and it doesn't seem to be related to

any of the foods - more related to stress, or to cold symptoms (nasal mucous,

trouble breathing at night) or my period, which seems to be a factor. I am about

to move, and I have three finals to finish by tomorrow, which won't happen,

since it hurts to sit up and it is starting to send me to the bathroom to drink

water or sit up. Back up to 8 times/day from 1 - 3.

>

> I am on 5mg prednisone still, as I have been for a month since trying to taper

off of it and flairing up then. I will hear back from my naturopath if she wants

me to go back up to 10mg prednisone. I'm still off of supplements, except

prednisone, acyclovir, which I have to keep taking, allegra (to see if an

antihistamine would help), and probiotics (boulardii and HLC intensive). I've

been eating yogurt again too. It seems to be getting worse rather than better.

Since the problem is mucous at the moment, drop the yogurt and other dairy.

>

> So I am at the point where I want to try LDN. It seems like the only side

effects are sleeping difficulties, which seem way better than the side effects

of other drugs, including prednisone. It also seems that I can start it, and

taper off prednisone, but while I am taking both they will " cancel each other

out. " Not sure which aspect of which will cancel. Anyone know how this works?

Prednisone tries to lower your immune response, LDN tries to modulate it

back to running really well. So they are trying to effect opposite responses.

> I was also curious how long people have had to wait to see any turn-around of

symptoms? The main goal now is to stop my bleeding, since I'm losing more and

more blood with each stool.

>

> Also, are there any other side effects or reactions people have experienced?

>

> Oh, and does LDN mask the effects of eating different foods that might not

otherwise be tolerated, like prednisone does?

No, it makes you able to progress through the SCD more rapidly, though,

because your immune system is not so whacked out.

You'll feel healthier.

One thing is that if you have yeast - and you my have yeast with all the

prednisone, the LDN won't work as well, if at all, because yeast blocks

it (for some reason that I don't believe is well understood yet.)

Do a yeast test before you begin, because if you have yeast, you won't

feel much effect from it.

>

> Thanks all, I'm just leary of starting a new drug after my experience with

mesalamine. I want to know what signs to look for that it is working/not

working.

It's nothing like mesalamine.

Mara

[Guest guest]

Oh, and does LDN mask the effects of eating different foods that might not

otherwise be tolerated, like prednisone does?

It is important to not turn the board into an LDN board, but I will answer the

food question here.

I'm really an advocate for following SCD slowly, (regardless of medication). I

have been on SCD for 11 months and started LDN last September. I continued to

progress very slowly on SCD according to the pecanbread stages as a guide.

I found LDN to be helpful as an adjunct to SCD. I would still react to a new

food at times, and I find quantity to be an influence. I have recently added a

few raw fruits for the first time, but I don't think I can overdo it with them.

Carrots used to go right through me, and a few cooked ones don't now. However, I

am not about to eat a whole bowl of them, or dare try them raw. When trying a

new fruit or vegetable, I try it cooked and sometimes pureed first. I just

recently tried coffee, but I am not drinking it every day or a lot of it.

I think if you keep a food diary and progress slowly, and in moderation, the LDN

will not " mask " an intolerance because as the gut heals, tolerance increases- it

goes hand in hand. Just go slowly and back off if needed. I consider that I am

on SCD first and LND as a helper, and progress slowly on SCD as I would plan to

with or without LDN.

PJ

>

> Hi everyone,

>

> So...I am still flairing since last week, and it doesn't seem to be related to

any of the foods - more related to stress, or to cold symptoms (nasal mucous,

trouble breathing at night) or my period, which seems to be a factor. I am about

to move, and I have three finals to finish by tomorrow, which won't happen,

since it hurts to sit up and it is starting to send me to the bathroom to drink

water or sit up. Back up to 8 times/day from 1 - 3.

>

> I am on 5mg prednisone still, as I have been for a month since trying to taper

off of it and flairing up then. I will hear back from my naturopath if she wants

me to go back up to 10mg prednisone. I'm still off of supplements, except

prednisone, acyclovir, which I have to keep taking, allegra (to see if an

antihistamine would help), and probiotics (boulardii and HLC intensive). I've

been eating yogurt again too. It seems to be getting worse rather than better.

>

> So I am at the point where I want to try LDN. It seems like the only side

effects are sleeping difficulties, which seem way better than the side effects

of other drugs, including prednisone. It also seems that I can start it, and

taper off prednisone, but while I am taking both they will " cancel each other

out. " Not sure which aspect of which will cancel. Anyone know how this works?

>

> I was also curious how long people have had to wait to see any turn-around of

symptoms? The main goal now is to stop my bleeding, since I'm losing more and

more blood with each stool.

>

> Also, are there any other side effects or reactions people have experienced?

>

> Oh, and does LDN mask the effects of eating different foods that might not

otherwise be tolerated, like prednisone does?

>

> Thanks all, I'm just leary of starting a new drug after my experience with

mesalamine. I want to know what signs to look for that it is working/not

working.

>

> Kat

> 27

> UC since June 09

> SCD since Feb 10

> prednisone, acyclovir, allegra, probiotics

>

[Guest guest]

Oh, and does LDN mask the effects of eating different foods that might not

otherwise be tolerated, like prednisone does?

It is important to not turn the board into an LDN board, but I will answer the

food question here.

I'm really an advocate for following SCD slowly, (regardless of medication). I

have been on SCD for 11 months and started LDN last September. I continued to

progress very slowly on SCD according to the pecanbread stages as a guide.

I found LDN to be helpful as an adjunct to SCD. I would still react to a new

food at times, and I find quantity to be an influence. I have recently added a

few raw fruits for the first time, but I don't think I can overdo it with them.

Carrots used to go right through me, and a few cooked ones don't now. However, I

am not about to eat a whole bowl of them, or dare try them raw. When trying a

new fruit or vegetable, I try it cooked and sometimes pureed first. I just

recently tried coffee, but I am not drinking it every day or a lot of it.

I think if you keep a food diary and progress slowly, and in moderation, the LDN

will not " mask " an intolerance because as the gut heals, tolerance increases- it

goes hand in hand. Just go slowly and back off if needed. I consider that I am

on SCD first and LND as a helper, and progress slowly on SCD as I would plan to

with or without LDN.

PJ

>

> Hi everyone,

>

> So...I am still flairing since last week, and it doesn't seem to be related to

any of the foods - more related to stress, or to cold symptoms (nasal mucous,

trouble breathing at night) or my period, which seems to be a factor. I am about

to move, and I have three finals to finish by tomorrow, which won't happen,

since it hurts to sit up and it is starting to send me to the bathroom to drink

water or sit up. Back up to 8 times/day from 1 - 3.

>

> I am on 5mg prednisone still, as I have been for a month since trying to taper

off of it and flairing up then. I will hear back from my naturopath if she wants

me to go back up to 10mg prednisone. I'm still off of supplements, except

prednisone, acyclovir, which I have to keep taking, allegra (to see if an

antihistamine would help), and probiotics (boulardii and HLC intensive). I've

been eating yogurt again too. It seems to be getting worse rather than better.

>

> So I am at the point where I want to try LDN. It seems like the only side

effects are sleeping difficulties, which seem way better than the side effects

of other drugs, including prednisone. It also seems that I can start it, and

taper off prednisone, but while I am taking both they will " cancel each other

out. " Not sure which aspect of which will cancel. Anyone know how this works?

>

> I was also curious how long people have had to wait to see any turn-around of

symptoms? The main goal now is to stop my bleeding, since I'm losing more and

more blood with each stool.

>

> Also, are there any other side effects or reactions people have experienced?

>

> Oh, and does LDN mask the effects of eating different foods that might not

otherwise be tolerated, like prednisone does?

>

> Thanks all, I'm just leary of starting a new drug after my experience with

mesalamine. I want to know what signs to look for that it is working/not

working.

>

> Kat

> 27

> UC since June 09

> SCD since Feb 10

> prednisone, acyclovir, allegra, probiotics

>

[Guest guest]

Kat,

There are 3 or more Yahoo groups related to LDN you can check out.

There's lots of LDN knowledge there.

My recollection is that as long as you are using 10 mg Prednisone or

less, you can use LDN.

sue R

[Guest guest]

Kat,

There are 3 or more Yahoo groups related to LDN you can check out.

There's lots of LDN knowledge there.

My recollection is that as long as you are using 10 mg Prednisone or

less, you can use LDN.

sue R

[Guest guest]

Thanks guys! I'll check out the other groups. I appreciate all your input too.

Kat

>

> Kat,

>

> There are 3 or more Yahoo groups related to LDN you can check out.

> There's lots of LDN knowledge there.

> My recollection is that as long as you are using 10 mg Prednisone or

> less, you can use LDN.

>

> sue R

>

[Guest guest]

Thanks guys! I'll check out the other groups. I appreciate all your input too.

Kat

>

> Kat,

>

> There are 3 or more Yahoo groups related to LDN you can check out.

> There's lots of LDN knowledge there.

> My recollection is that as long as you are using 10 mg Prednisone or

> less, you can use LDN.

>

> sue R

>

[Guest guest]

Hi Kat,

I'm on LDN and I have to take hydrocortisone. Have had to for fifty years

and probably always will. You can take 10mg or less of Prednisone

with LDN. I THINK the conflict here is that much over that starts

suppressing the immune system and LDN bucks it back up so they are at

cross-purposes so you'd THINK it would be a good thing, but they say

not. It sounds to me like you need to up the prednisone back to

that 10mg. People make the same mistake with LDN that they make

with SCD, expecting instant miracles so they think they can just ditch

all their meds. Very seldom is this teh case. You need to keep the meds

you really need until you are doing better, both more stable from that,

and LDN having time to help (same as with SCD) and THEN cut the

prednisone, and very slowly. Like I said I doubt I can ever cut HC again

but every time I've been able to (after needing more for some crisis

period) I've had to decrease like 50-100 times slower than the docs ever

say. I also wonder if you've just kicked in the s boulardii,

as well as yoghurt. You may be causing serious die-off of candida from

the s boulardii as well as from the gut bacteria from the pro-biotics. We

need to sneak into all these powerful things slowly.

OK, back to LDN. Except for a very few people the only side-effect

is sleep disturbances at first. Generally the first week. I have SO much

trouble with any kind of meds except replacement hormones like my HC and

thyroid, I didn't believe them. So I scheduled a pretty free week: no

dentist appointments or anything. I was really glad I did, because I DID

have the sleep disturbances. I'd wake up after about four hours,

bam! (That's when the endorphins kick in). And then I either dozed

or didnt' get back to sleep. By the end of a tired week I was thinking

well, it's like everything else, I won't be able to take this stuff. Then

suddenly on the 7th night, most of that went away. I still will wake up

sometimes, but it's not BAM! Just a wake-up, so I go to the

bathroom and go back to sleep. I've never gotten the lurid dreams people

talk about, but I would say that after that week, I sleep better most of

the time, deeper, and I am conscious of more regular dreams. There

are some things people can take, and need to take, to help get to sleep

better or sleep later. I take 5HTP, which usually helps me sleep

later. I suspect it's those of us who weren't good sleepers before

who need this extra help.

Anyhow, I do think it's worth trying. I've had a number of small

things improve a lot. Almost immediately (well, after I started

sleeping again) I started being generally more cheerful, feeling more

hopeful, etc. Even on a very bad day it isn't all gloom and doom any

more, I just think, oh, bad day, gut will be better tomorrow or I will

sleep better, etc. And I don't worry about it. Brain definitely

working better which is a real help. LDN definitely works better with a

good diet and of course SCD is one of the best. You do need to

address candida sooner or later but that should be done anyhow. I

am more than satisfied with my results so far, and I'm not even yet

supposedly on a therapeutic dose! I stopped increasing when I knew I

needed to address candida for awhile so I've just kept the dose where I

was.

I come to all this from IBS, not UC or Crohn's, so I don't have bleeding

unless a hemmorhoid pops out. So I can't tell you about the

bleeding stuff. I think LDN is working slowly with SCD to improve

gut things in general, which is what I expected. I am also seeing slow

improvements in pain from my fibro, so I'm taking less in the way of pain

meds. Like I say, it's gradual. You should

stay on what you need for these type symptoms for awhile.

I have NOT noticed anything like masking of food reactions. I'm still

quite capable of getting reactions when I test new foods! Remember, LDN

means LOW dose! This by itself avoids most side effects for most

people.

Please get back if I can answer any other questions. And I'd joing

the lowdosenaltrexone group, too, if you haven't. People with all levels

of experience and types of problems there to talk to.

Take care,

[Guest guest]

Hi Kat,

I'm on LDN and I have to take hydrocortisone. Have had to for fifty years

and probably always will. You can take 10mg or less of Prednisone

with LDN. I THINK the conflict here is that much over that starts

suppressing the immune system and LDN bucks it back up so they are at

cross-purposes so you'd THINK it would be a good thing, but they say

not. It sounds to me like you need to up the prednisone back to

that 10mg. People make the same mistake with LDN that they make

with SCD, expecting instant miracles so they think they can just ditch

all their meds. Very seldom is this teh case. You need to keep the meds

you really need until you are doing better, both more stable from that,

and LDN having time to help (same as with SCD) and THEN cut the

prednisone, and very slowly. Like I said I doubt I can ever cut HC again

but every time I've been able to (after needing more for some crisis

period) I've had to decrease like 50-100 times slower than the docs ever

say. I also wonder if you've just kicked in the s boulardii,

as well as yoghurt. You may be causing serious die-off of candida from

the s boulardii as well as from the gut bacteria from the pro-biotics. We

need to sneak into all these powerful things slowly.

OK, back to LDN. Except for a very few people the only side-effect

is sleep disturbances at first. Generally the first week. I have SO much

trouble with any kind of meds except replacement hormones like my HC and

thyroid, I didn't believe them. So I scheduled a pretty free week: no

dentist appointments or anything. I was really glad I did, because I DID

have the sleep disturbances. I'd wake up after about four hours,

bam! (That's when the endorphins kick in). And then I either dozed

or didnt' get back to sleep. By the end of a tired week I was thinking

well, it's like everything else, I won't be able to take this stuff. Then

suddenly on the 7th night, most of that went away. I still will wake up

sometimes, but it's not BAM! Just a wake-up, so I go to the

bathroom and go back to sleep. I've never gotten the lurid dreams people

talk about, but I would say that after that week, I sleep better most of

the time, deeper, and I am conscious of more regular dreams. There

are some things people can take, and need to take, to help get to sleep

better or sleep later. I take 5HTP, which usually helps me sleep

later. I suspect it's those of us who weren't good sleepers before

who need this extra help.

Anyhow, I do think it's worth trying. I've had a number of small

things improve a lot. Almost immediately (well, after I started

sleeping again) I started being generally more cheerful, feeling more

hopeful, etc. Even on a very bad day it isn't all gloom and doom any

more, I just think, oh, bad day, gut will be better tomorrow or I will

sleep better, etc. And I don't worry about it. Brain definitely

working better which is a real help. LDN definitely works better with a

good diet and of course SCD is one of the best. You do need to

address candida sooner or later but that should be done anyhow. I

am more than satisfied with my results so far, and I'm not even yet

supposedly on a therapeutic dose! I stopped increasing when I knew I

needed to address candida for awhile so I've just kept the dose where I

was.

I come to all this from IBS, not UC or Crohn's, so I don't have bleeding

unless a hemmorhoid pops out. So I can't tell you about the

bleeding stuff. I think LDN is working slowly with SCD to improve

gut things in general, which is what I expected. I am also seeing slow

improvements in pain from my fibro, so I'm taking less in the way of pain

meds. Like I say, it's gradual. You should

stay on what you need for these type symptoms for awhile.

I have NOT noticed anything like masking of food reactions. I'm still

quite capable of getting reactions when I test new foods! Remember, LDN

means LOW dose! This by itself avoids most side effects for most

people.

Please get back if I can answer any other questions. And I'd joing

the lowdosenaltrexone group, too, if you haven't. People with all levels

of experience and types of problems there to talk to.

Take care,

[Guest guest]

Just real quick question on LDN.  I started it last night, slept fine, nothing out of the normal except maybe lack of lucid dreams.  I am so lethargic today.  I have been lately anyway but does LDN help at all with that?  What's the optimal dosing time for those of us who cannot move during the day...today *seems* worse to me.

 

Debbie houston cd 3.02 scd 12.05

[Guest guest]

Just real quick question on LDN.  I started it last night, slept fine, nothing out of the normal except maybe lack of lucid dreams.  I am so lethargic today.  I have been lately anyway but does LDN help at all with that?  What's the optimal dosing time for those of us who cannot move during the day...today *seems* worse to me.

 

Debbie houston cd 3.02 scd 12.05

[Guest guest]

Did you check for yeast first?

It could be immediate or could take several weeks or months.

Its a bit idiosyncratic.

I know it helped me and Jodi within days, but it doesn't always.

Also, what dose did you start on?

Mara

>

>

> Just real quick question on LDN. I started it last night, slept fine, nothing

out of the normal except maybe lack of lucid dreams. I am so lethargic today.

I have been lately anyway but does LDN help at all with that? What's the

optimal dosing time for those of us who cannot move during the day...today

*seems* worse to me.

[Guest guest]

Did you check for yeast first?

It could be immediate or could take several weeks or months.

Its a bit idiosyncratic.

I know it helped me and Jodi within days, but it doesn't always.

Also, what dose did you start on?

Mara

>

>

> Just real quick question on LDN. I started it last night, slept fine, nothing

out of the normal except maybe lack of lucid dreams. I am so lethargic today.

I have been lately anyway but does LDN help at all with that? What's the

optimal dosing time for those of us who cannot move during the day...today

*seems* worse to me.

[Guest guest]

Heya Debbie,

The lethargy and exhaustion is something some of us have to work through. Are

you gradually increasing your dose? What is that schedule like? Also, are you

using the transdermal cream in the emu oil base?

Jodi

>

> Just real quick question on LDN. I started it last night, slept fine,

> nothing out of the normal except maybe lack of lucid dreams. I am so

> lethargic today. I have been lately anyway but does LDN help at all with

> that? What's the optimal dosing time for those of us who cannot move during

> the day...today *seems* worse to me.

>

> Debbie houston cd 3.02 scd 12.05

>

[Guest guest]

Heya Debbie,

The lethargy and exhaustion is something some of us have to work through. Are

you gradually increasing your dose? What is that schedule like? Also, are you

using the transdermal cream in the emu oil base?

Jodi

>

> Just real quick question on LDN. I started it last night, slept fine,

> nothing out of the normal except maybe lack of lucid dreams. I am so

> lethargic today. I have been lately anyway but does LDN help at all with

> that? What's the optimal dosing time for those of us who cannot move during

> the day...today *seems* worse to me.

>

> Debbie houston cd 3.02 scd 12.05

>

[Guest guest]

Hey Jodi ;-), yes it's the emu oil cream.  I put it right on my gut.  I just started it yesterday.  Was wondering about the optimal time to take it.  I had planned to increase slowly.  Yeast could be a factor, I have been doing garlic and coconut but can't do the oil of oregano right now.  I did it around 9p last night.  I thought I read something about mid-day though.

 

Thanks for the responses,

Debbie

 

Heya Debbie,The lethargy and exhaustion is something some of us have to work through. Are you gradually increasing your dose? What is that schedule like? Also, are you using the transdermal cream in the emu oil base?

Jodi

>> Just real quick question on LDN. I started it last night, slept fine,

> nothing out of the normal except maybe lack of lucid dreams. I am so> lethargic today. I have been lately anyway but does LDN help at all with> that? What's the optimal dosing time for those of us who cannot move during

> the day...today *seems* worse to me.> > Debbie houston cd 3.02 scd 12.05>

[Guest guest]

Hey Jodi ;-), yes it's the emu oil cream.  I put it right on my gut.  I just started it yesterday.  Was wondering about the optimal time to take it.  I had planned to increase slowly.  Yeast could be a factor, I have been doing garlic and coconut but can't do the oil of oregano right now.  I did it around 9p last night.  I thought I read something about mid-day though.

 

Thanks for the responses,

Debbie

 

Heya Debbie,The lethargy and exhaustion is something some of us have to work through. Are you gradually increasing your dose? What is that schedule like? Also, are you using the transdermal cream in the emu oil base?

Jodi

>> Just real quick question on LDN. I started it last night, slept fine,

> nothing out of the normal except maybe lack of lucid dreams. I am so> lethargic today. I have been lately anyway but does LDN help at all with> that? What's the optimal dosing time for those of us who cannot move during

> the day...today *seems* worse to me.> > Debbie houston cd 3.02 scd 12.05>

[Guest guest]

No, you do it, optimally from 9:00 PM until 3:00 AM, unless you are one of the people who use it and can't sleep, then takeit during the day.Gut is okay, but they say to put it on the back of your wrist or insideyour elbow, where the veins are close to the surface, where it can beabsorbed really quickly. Did you try the spit test for yeast first thing in the AM, before youhave had anything to drink or brushed your teeth? MaraHey Jodi ;-), yes it's the emu oil cream. I put it right on my gut. I just started it yesterday. Was wondering about the optimal time to take it. I had planned to increase slowly. Yeast could be a factor, I have been doing garlic and coconut but can't do the oil of oregano right now. I did it around 9p last night. I thought I read something about mid-day though. Thanks for the responses,Debbie Heya Debbie,The lethargy and exhaustion is something some of us have to work through. Are you gradually increasing your dose? What is that schedule like? Also, are you using the transdermal cream in the emu oil base?Jodi>> Just real quick question on LDN. I started it last night, slept fine,> nothing out of the normal except maybe lack of lucid dreams. I am so> lethargic today. I have been lately anyway but does LDN help at all with> that? What's the optimal dosing time for those of us who cannot move during> the day...today *seems* worse to me.> > Debbie houston cd 3.02 scd 12.05>

[Guest guest]

No, you do it, optimally from 9:00 PM until 3:00 AM, unless you are one of the people who use it and can't sleep, then takeit during the day.Gut is okay, but they say to put it on the back of your wrist or insideyour elbow, where the veins are close to the surface, where it can beabsorbed really quickly. Did you try the spit test for yeast first thing in the AM, before youhave had anything to drink or brushed your teeth? MaraHey Jodi ;-), yes it's the emu oil cream. I put it right on my gut. I just started it yesterday. Was wondering about the optimal time to take it. I had planned to increase slowly. Yeast could be a factor, I have been doing garlic and coconut but can't do the oil of oregano right now. I did it around 9p last night. I thought I read something about mid-day though. Thanks for the responses,Debbie Heya Debbie,The lethargy and exhaustion is something some of us have to work through. Are you gradually increasing your dose? What is that schedule like? Also, are you using the transdermal cream in the emu oil base?Jodi>> Just real quick question on LDN. I started it last night, slept fine,> nothing out of the normal except maybe lack of lucid dreams. I am so> lethargic today. I have been lately anyway but does LDN help at all with> that? What's the optimal dosing time for those of us who cannot move during> the day...today *seems* worse to me.> > Debbie houston cd 3.02 scd 12.05>

[Guest guest]

Haven't done the spit test.  Have the feeling it will be positive...Ok, so 9p is the right time, great.  Get diflucan if it's positive--I have a GI appt. tomorrow late afternoon.  Maybe he will give it to me.  If not, I can try the oil of oregano again.

 

Thanks, Debbie