Guest guest Posted October 15, 2001 Report Share Posted October 15, 2001 Cathy D,How did the doctors finally find out that your dad didn't have chronic bronchitis, but damage due to the RP?What tests were done to determine this? Any help you can give me on this would be greatly appreciated. W , It took several years to diagnose Dad, but I understand that is normal. He had ear flares that were diagnosed as just some sort of infection. He saw ENT after that for the chronic bronchitis. He was even in the hospital twice. There probably is underlying lung problems. His primary care physician is the one who finally figured it out when he ordered a CT scan of the upper trachea and bronchial passages. Dad was getting food caught all the time. Dinner was turning into quite an ordeal. He would leave the table to throw up at least 3 times a week. So the doc ordered the test because we were all at our wits ends. And it came back with the narrowing of the passages. Our PCP thought he knew then but had it looked at again with RP in mind and that is what the radiologist said...consistent with RP. Our doc apologized for not picking it up sooner, but I think he did a great job. He just wasn't looking for something that rare. Now we hope to at least stop it from getting worse with the medication. The Rheumatologist wants us to see a thoracic surgeon to see if something else can be done wants he gets the inflammation under control. I hope this explanation makes sense. This is still pretty new to us and I am finding my way, thanks to reading what all of these folks have to say. So ask for a CT scan, but I would tell the radiologist what you want to look for or rule out. They aren't going to think of it. Cathy D. www.geocities.com/cdonohoue/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 15, 2001 Report Share Posted October 15, 2001 Cathy D,How did the doctors finally find out that your dad didn't have chronic bronchitis, but damage due to the RP?What tests were done to determine this? Any help you can give me on this would be greatly appreciated. W , It took several years to diagnose Dad, but I understand that is normal. He had ear flares that were diagnosed as just some sort of infection. He saw ENT after that for the chronic bronchitis. He was even in the hospital twice. There probably is underlying lung problems. His primary care physician is the one who finally figured it out when he ordered a CT scan of the upper trachea and bronchial passages. Dad was getting food caught all the time. Dinner was turning into quite an ordeal. He would leave the table to throw up at least 3 times a week. So the doc ordered the test because we were all at our wits ends. And it came back with the narrowing of the passages. Our PCP thought he knew then but had it looked at again with RP in mind and that is what the radiologist said...consistent with RP. Our doc apologized for not picking it up sooner, but I think he did a great job. He just wasn't looking for something that rare. Now we hope to at least stop it from getting worse with the medication. The Rheumatologist wants us to see a thoracic surgeon to see if something else can be done wants he gets the inflammation under control. I hope this explanation makes sense. This is still pretty new to us and I am finding my way, thanks to reading what all of these folks have to say. So ask for a CT scan, but I would tell the radiologist what you want to look for or rule out. They aren't going to think of it. Cathy D. www.geocities.com/cdonohoue/ Quote Link to comment Share on other sites More sharing options...
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