My ear is better today

[Guest guest]

Since I went up to 60 of pred I feel better. Pred is the only medication

I'm on right now. I don't know what to ask the Dr. when I go since I don't

know what is right or wrong with me. I don't know what the symptoms are

other than the things that have happened to me over the last year, eyes,

nose, throat, ear, chest, fatigue, nausea, headaches. Sure could use some

suggestions or insight.

Chills, sweats & exhaustion seem to be the worse of it today. Got an email

from one of the gals today asking if I had sent a blood sample to Dr.

Buckner as she would be interested in me. How does one go about this? I

feel like such a baby complaining but I don't know how to deal with this.

It will take time to learn to take it in stride I guess.

Thanks for all the support.

Sue

[Guest guest]

Since I went up to 60 of pred I feel better. Pred is the only medication

I'm on right now. I don't know what to ask the Dr. when I go since I don't

know what is right or wrong with me. I don't know what the symptoms are

other than the things that have happened to me over the last year, eyes,

nose, throat, ear, chest, fatigue, nausea, headaches. Sure could use some

suggestions or insight.

Chills, sweats & exhaustion seem to be the worse of it today. Got an email

from one of the gals today asking if I had sent a blood sample to Dr.

Buckner as she would be interested in me. How does one go about this? I

feel like such a baby complaining but I don't know how to deal with this.

It will take time to learn to take it in stride I guess.

Thanks for all the support.

Sue

[Guest guest]

Sue, you're not being a baby. It took each of time to learn how to deal with RP. It's a very aggravating disease. If we all had the same symptoms, that would help. But each of us is different, and I'm sure we all cope differently. Believe me, I have my "poor me" days, too, fortunately not to often. I usually get really down if I'm trying to cope with something else besides RP, as I've been trying to do with this miserable cold. It's hard to cope with it (the cold) when you can't take anything to help it along. So, I bitch and moan about it, ask my family! I'm not always Susie Sunshine, I just feel it takes less effort for me to ignore it and do what I want to do, because I'll be damned if this disease will beat me! It will not and that is all there is. So I guess that makes my coping method "sheer stubbornness". I've gotten thru much of my life by ignoring what I refuse to accept, and while it may not be the best way, it's all mine. And it works (sometimes). So you just do whatever it takes to get thru the day the best way you can, and don't worry about us thinking you are a baby, we have all been there and done that. We try really hard to be supportive of each other especially thru the bad times, and we all know, first hand, how hard it is to deal with the dx. Take care, and have a good day. Love, Judy My ear is better today Since I went up to 60 of pred I feel better. Pred is the only medicationI'm on right now. I don't know what to ask the Dr. when I go since I don'tknow what is right or wrong with me. I don't know what the symptoms areother than the things that have happened to me over the last year, eyes,nose, throat, ear, chest, fatigue, nausea, headaches. Sure could use somesuggestions or insight.Chills, sweats & exhaustion seem to be the worse of it today. Got an emailfrom one of the gals today asking if I had sent a blood sample to Dr.Buckner as she would be interested in me. How does one go about this? Ifeel like such a baby complaining but I don't know how to deal with this.It will take time to learn to take it in stride I guess.Thanks for all the support.Sue

[Guest guest]

Sue, you're not being a baby. It took each of time to learn how to deal with RP. It's a very aggravating disease. If we all had the same symptoms, that would help. But each of us is different, and I'm sure we all cope differently. Believe me, I have my "poor me" days, too, fortunately not to often. I usually get really down if I'm trying to cope with something else besides RP, as I've been trying to do with this miserable cold. It's hard to cope with it (the cold) when you can't take anything to help it along. So, I bitch and moan about it, ask my family! I'm not always Susie Sunshine, I just feel it takes less effort for me to ignore it and do what I want to do, because I'll be damned if this disease will beat me! It will not and that is all there is. So I guess that makes my coping method "sheer stubbornness". I've gotten thru much of my life by ignoring what I refuse to accept, and while it may not be the best way, it's all mine. And it works (sometimes). So you just do whatever it takes to get thru the day the best way you can, and don't worry about us thinking you are a baby, we have all been there and done that. We try really hard to be supportive of each other especially thru the bad times, and we all know, first hand, how hard it is to deal with the dx. Take care, and have a good day. Love, Judy My ear is better today Since I went up to 60 of pred I feel better. Pred is the only medicationI'm on right now. I don't know what to ask the Dr. when I go since I don'tknow what is right or wrong with me. I don't know what the symptoms areother than the things that have happened to me over the last year, eyes,nose, throat, ear, chest, fatigue, nausea, headaches. Sure could use somesuggestions or insight.Chills, sweats & exhaustion seem to be the worse of it today. Got an emailfrom one of the gals today asking if I had sent a blood sample to Dr.Buckner as she would be interested in me. How does one go about this? Ifeel like such a baby complaining but I don't know how to deal with this.It will take time to learn to take it in stride I guess.Thanks for all the support.Sue