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Re: Breathing - my experiences

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Dear Werner, thank you so much for the information. I get results of cat scan tomorrow but will also take your email with me. I still have the "gob" in my throat and a sore throat also. You have been a great help. Thank you again, very much....Sue Marth

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Dear Werner, thank you so much for the information. I get results of cat scan tomorrow but will also take your email with me. I still have the "gob" in my throat and a sore throat also. You have been a great help. Thank you again, very much....Sue Marth

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In a message dated 9/9/01 1:48:30 PM Pacific Daylight Time,

Arto.Toikka@... writes:

<< Werner, should we make plans for the third meeting, in Europe, 2007 ???

Deutschland, Suomi, our common " capital " , Brussels ???

>>

Arto, so good to hear from you... Sorry you were sick but soooo glad that you

are recovering.... We sure did miss you and Werner and Jean.... Wish you

could have been there...

Hey.. I think Brussels sounds great!!!! Look out Europe here we come!!!

know I'm thinking of you.. Let us know how your test comes out.

Thoughts and prayers are with you

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In a message dated 9/9/01 1:48:30 PM Pacific Daylight Time,

Arto.Toikka@... writes:

<< Werner, should we make plans for the third meeting, in Europe, 2007 ???

Deutschland, Suomi, our common " capital " , Brussels ???

>>

Arto, so good to hear from you... Sorry you were sick but soooo glad that you

are recovering.... We sure did miss you and Werner and Jean.... Wish you

could have been there...

Hey.. I think Brussels sounds great!!!! Look out Europe here we come!!!

know I'm thinking of you.. Let us know how your test comes out.

Thoughts and prayers are with you

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Hei Werner!

This is very interesting info for me, because I´m just beginning to use a

nebulizer and Atrovent.

> I would like to exchange some experiences. For me is improving breathing

> mainly to controll mucus and swelling of trachea and bronchi. In normal

daily

> work I inhale three times a day (always after the meals) for about 15 or

2o

> minutes.

My Atrovent dosage is only 2 ml (0,250 mg/ml) and it takes only a few

minutes to nebulize it.

I´ve tried Atrodual (incl. " SalbutamolSulfate " ?), too, but it may get you

trembling.

> In addition I inhale twice a day a powder of a corticoid (Budesonid). It

is

> similar to pred. The advantage is, that it comes directly to the place

where

> it has to work. My doc told me, that 1 mg of budesonid inhaled is

equivalent

> to 10 mg of pred. (I take 25 mg of pred in addition)

Have to ask my doc about this.

> When I get more difficulties for example by a cold, I inhale more often

and

> take in addition mucus diluting substances (NAC).

Would you tell some more of this " NAC " .

Have you tried to nebulize 0,9% salt liquid?

Sorry Werner, have forgotten, if you have any stents or a trach tube (I have

a trach).

I got results of my CT last week, and there´s not any dramatic changes.

I´ve had bronchiectasy in the mid block of my right lugn, and thats the

generator for my frequent resp. infections./pneumonias. It was dx almost 10

yrs. ago, I got RP 19 yrs ago and " the final trach " for 15 yrs ago.

As far as I know, none of you has this bronchiectasy, so it´s hard to say,

where´s it from?

I had to chance the hospital this year, but I like this " second class " much

more, and specially the new lugn doc is much more interested in my case,

than the old famous professor.

She (the new one) wanted to make a bronchoscope to me -it will be next week.

I was a bit sick during the Tulsa meeting, but now recovering very well.

Sometimes I´m afraid it´s not possible to fly overseas to meet our wonderful

sisters and brothers.

Werner, should we make plans for the third meeting, in Europe, 2007 ???

Deutschland, Suomi, our common " capital " , Brussels ???

Viele Danken,

Aufwiederhören,

Arto

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Hei Werner!

This is very interesting info for me, because I´m just beginning to use a

nebulizer and Atrovent.

> I would like to exchange some experiences. For me is improving breathing

> mainly to controll mucus and swelling of trachea and bronchi. In normal

daily

> work I inhale three times a day (always after the meals) for about 15 or

2o

> minutes.

My Atrovent dosage is only 2 ml (0,250 mg/ml) and it takes only a few

minutes to nebulize it.

I´ve tried Atrodual (incl. " SalbutamolSulfate " ?), too, but it may get you

trembling.

> In addition I inhale twice a day a powder of a corticoid (Budesonid). It

is

> similar to pred. The advantage is, that it comes directly to the place

where

> it has to work. My doc told me, that 1 mg of budesonid inhaled is

equivalent

> to 10 mg of pred. (I take 25 mg of pred in addition)

Have to ask my doc about this.

> When I get more difficulties for example by a cold, I inhale more often

and

> take in addition mucus diluting substances (NAC).

Would you tell some more of this " NAC " .

Have you tried to nebulize 0,9% salt liquid?

Sorry Werner, have forgotten, if you have any stents or a trach tube (I have

a trach).

I got results of my CT last week, and there´s not any dramatic changes.

I´ve had bronchiectasy in the mid block of my right lugn, and thats the

generator for my frequent resp. infections./pneumonias. It was dx almost 10

yrs. ago, I got RP 19 yrs ago and " the final trach " for 15 yrs ago.

As far as I know, none of you has this bronchiectasy, so it´s hard to say,

where´s it from?

I had to chance the hospital this year, but I like this " second class " much

more, and specially the new lugn doc is much more interested in my case,

than the old famous professor.

She (the new one) wanted to make a bronchoscope to me -it will be next week.

I was a bit sick during the Tulsa meeting, but now recovering very well.

Sometimes I´m afraid it´s not possible to fly overseas to meet our wonderful

sisters and brothers.

Werner, should we make plans for the third meeting, in Europe, 2007 ???

Deutschland, Suomi, our common " capital " , Brussels ???

Viele Danken,

Aufwiederhören,

Arto

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Hallo Arto !!!!

Ja , wir koennen das in Deutschland machen. lOL

Wow das were ja wonderbar. mmmm Denke mal

da koennten ja mal all hier ein richtiges Gute Bier

auch mal versuchen. LOL Hier in America ist es ja

nur @#$%^ LOL

Yes we can have it in Germany. LOL That would

be sooooo great. And everyone could finally find

out what real beer is supposed to taste like LOL.

Ok I hush and go back to dreaming about Germany. LOL

Love

Heidi

> Werner, should we make plans for the third meeting, in Europe, 2007 ???

> Deutschland, Suomi, our common " capital " , Brussels ???

>

> Viele Danken,

> Aufwiederhören,

>

> Arto

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Hallo Arto !!!!

Ja , wir koennen das in Deutschland machen. lOL

Wow das were ja wonderbar. mmmm Denke mal

da koennten ja mal all hier ein richtiges Gute Bier

auch mal versuchen. LOL Hier in America ist es ja

nur @#$%^ LOL

Yes we can have it in Germany. LOL That would

be sooooo great. And everyone could finally find

out what real beer is supposed to taste like LOL.

Ok I hush and go back to dreaming about Germany. LOL

Love

Heidi

> Werner, should we make plans for the third meeting, in Europe, 2007 ???

> Deutschland, Suomi, our common " capital " , Brussels ???

>

> Viele Danken,

> Aufwiederhören,

>

> Arto

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