Guest guest Posted September 9, 2001 Report Share Posted September 9, 2001 Okay, I promise I won't post much more today....LOL Just trying to get all caught up. Just a few important things here: To all of you wonderful members who contributed to the RP Foundation in OK, I just want you to know I will be sending out the membership cards this week... I haven't forgotten, I promise... Thanks to all of you.... It will go to a very important cause. I will sign you up on the Foundation site also... This site is used for voting purposes and for keeping you updated on any new happenings with the foundation. Not to worry, there aren't many posts on this site...LOL At least not as many as on this one. And thank you to all of you who have contributed for another year... The Foundation is on a roll now!! For all of the newbies, let me tell you a little about the RP Foundation... It is a non profit Foundation and was formed to provide public awareness to the public and the medical profession... We have our tax exempt status and are all ready to get the ball rolling now... We are in the process of forming committes for funraising, newsletters, brochures, etc. This is all volunteer work, no one on the board or committees gets paid... We do this to get the information out there on RP..and maybe find one day find a CURE!! Dr. Jane Buckner in Seattle WA has agreed to work with us... We are asking for contributions of $15 a year. We have a newsletter that Elaine has done a great job on... Thank you Elaine. The Board of Directors are, Angie, , Roy, Lu, Heidi, Glenda and myself... We have costs for postage, printing, stationary etc... the list goes on... If you feel that you can help in any way.. please let one of us know... We have a volunteer co ordinator who is Barbarba Angerhofer... Please post and let her know if there is anything you would like to volunteer for... Tell her your interests and talents and she will keep you on her list to put you to work... If anyone feels that they would like to belong to the foundation but can not afford a contribution, PLEASE contact one of the board members...We do have angels among us that are willing to help out and sponser anyone in need... This is all confidential and no one will know who sponsers who...We have an angel fund for this purpose... If you feel like you would like to sponser someone, please just sent your check and mark it " Angel Fund " Please make all check or money orders out to " RP Foundation " and mail them to RP Foundation c/o Colloran 775 Bounty Place Manteca, Ca 95337 Also, anyone may make donations... If you have friends or family who would like to donate to a great cause, just tell them about the RP Fondation... You may also tell them that instead of a Birthday or Christmas gift, they can donate to the RP Foundation. Just a thought... I know family suffers as much as the RPer's and are willing to help find a cure as soon as we are... I want to thank you all for making a difference in RP... I know we will start seeing results soon. Thanks to all, and remember if you have any questions, please feel free to ask... Hugs to all Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 9, 2001 Report Share Posted September 9, 2001 Okay, I promise I won't post much more today....LOL Just trying to get all caught up. Just a few important things here: To all of you wonderful members who contributed to the RP Foundation in OK, I just want you to know I will be sending out the membership cards this week... I haven't forgotten, I promise... Thanks to all of you.... It will go to a very important cause. I will sign you up on the Foundation site also... This site is used for voting purposes and for keeping you updated on any new happenings with the foundation. Not to worry, there aren't many posts on this site...LOL At least not as many as on this one. And thank you to all of you who have contributed for another year... The Foundation is on a roll now!! For all of the newbies, let me tell you a little about the RP Foundation... It is a non profit Foundation and was formed to provide public awareness to the public and the medical profession... We have our tax exempt status and are all ready to get the ball rolling now... We are in the process of forming committes for funraising, newsletters, brochures, etc. This is all volunteer work, no one on the board or committees gets paid... We do this to get the information out there on RP..and maybe find one day find a CURE!! Dr. Jane Buckner in Seattle WA has agreed to work with us... We are asking for contributions of $15 a year. We have a newsletter that Elaine has done a great job on... Thank you Elaine. The Board of Directors are, Angie, , Roy, Lu, Heidi, Glenda and myself... We have costs for postage, printing, stationary etc... the list goes on... If you feel that you can help in any way.. please let one of us know... We have a volunteer co ordinator who is Barbarba Angerhofer... Please post and let her know if there is anything you would like to volunteer for... Tell her your interests and talents and she will keep you on her list to put you to work... If anyone feels that they would like to belong to the foundation but can not afford a contribution, PLEASE contact one of the board members...We do have angels among us that are willing to help out and sponser anyone in need... This is all confidential and no one will know who sponsers who...We have an angel fund for this purpose... If you feel like you would like to sponser someone, please just sent your check and mark it " Angel Fund " Please make all check or money orders out to " RP Foundation " and mail them to RP Foundation c/o Colloran 775 Bounty Place Manteca, Ca 95337 Also, anyone may make donations... If you have friends or family who would like to donate to a great cause, just tell them about the RP Fondation... You may also tell them that instead of a Birthday or Christmas gift, they can donate to the RP Foundation. Just a thought... I know family suffers as much as the RPer's and are willing to help find a cure as soon as we are... I want to thank you all for making a difference in RP... I know we will start seeing results soon. Thanks to all, and remember if you have any questions, please feel free to ask... Hugs to all Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 10, 2001 Report Share Posted September 10, 2001 , So glad you are home.LOL I came home today to over 80 emails.LOL I missed you really I did! Thanks for posting the info. about the foundation. Work is being done behind the scenes it just doesn't appear like we are doing much yet. I am going to make a quilt and action it off through the group and or ebay. Mike(Doris' husband) and I are working a brochure. We still need to add the websites to it and the addy to the groups. is going to check with who we got the info. from to see if it is okay if we use it. If anyone would like to help with anything please let Barbara Angerhofer know. I can use all the help I can get. Now that we are a non profit organization things will start moving along real soon. Please everyone think about becoming a member! It is important to all of us. The sooner we get the funds the sooner things will get done. It is going to cost money to print brochures, etc. to give to Doctors and their patients. Well enough from me!LOL Lots of Love Glenda ---Outgoing mail is certified Virus Free.Checked by AVG anti-virus system (http://www.grisoft.com).Version: 6.0.277 / Virus Database: 146 - Release Date: 9/5/2001 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 10, 2001 Report Share Posted September 10, 2001 , So glad you are home.LOL I came home today to over 80 emails.LOL I missed you really I did! Thanks for posting the info. about the foundation. Work is being done behind the scenes it just doesn't appear like we are doing much yet. I am going to make a quilt and action it off through the group and or ebay. Mike(Doris' husband) and I are working a brochure. We still need to add the websites to it and the addy to the groups. is going to check with who we got the info. from to see if it is okay if we use it. If anyone would like to help with anything please let Barbara Angerhofer know. I can use all the help I can get. Now that we are a non profit organization things will start moving along real soon. Please everyone think about becoming a member! It is important to all of us. The sooner we get the funds the sooner things will get done. It is going to cost money to print brochures, etc. to give to Doctors and their patients. Well enough from me!LOL Lots of Love Glenda ---Outgoing mail is certified Virus Free.Checked by AVG anti-virus system (http://www.grisoft.com).Version: 6.0.277 / Virus Database: 146 - Release Date: 9/5/2001 Quote Link to comment Share on other sites More sharing options...
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