Guest guest Posted October 16, 2001 Report Share Posted October 16, 2001 hi there pam here ive ben talking to bev about her rp got her to tell me about her flares ect . i thought that maybe someone in the group can help us we live in the u.k. about 12 miles from sheffield the local hospital is not much help to bev at all she got so fedup with the " surpassed specialist " that she stop going to see him he told her that the head presser was migraine!!!! [she had that for 4 years now] her own doc not much better bev asked her to make an appointment to see the rp specialist in london hospital and she said i cant do that as its out of our district [ that means it cast money] as for medication bev isn't taking any at all when she was first diagnosed they put her on antidepressant, malaria and steroids tablets which made her sick all the time she told the dc and said that she wasn't going to take them anymore the dc said ok but never put her on anything ells [ that was over 2 years ago ] as we live in the u.k. our medication is different to the ones you have is there anyone in the group who lives in the u.k. who can help with suggestions for medication bev would love to talk to someone who lives in the u.k. that has rp as she can,t use the pc because of her swelling and stiff joints in her hands and because of the head pressure reading email hurts her eyes i would be only to happy to pass on any phone no to her if you wont to send your no privet my email address is a95pudniw@... sorry this is so long but could,nt make it any shorter i log on to the group every day and told bev that maybe someone out there could help bye for now pam and bev Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 16, 2001 Report Share Posted October 16, 2001 hi there pam here ive ben talking to bev about her rp got her to tell me about her flares ect . i thought that maybe someone in the group can help us we live in the u.k. about 12 miles from sheffield the local hospital is not much help to bev at all she got so fedup with the " surpassed specialist " that she stop going to see him he told her that the head presser was migraine!!!! [she had that for 4 years now] her own doc not much better bev asked her to make an appointment to see the rp specialist in london hospital and she said i cant do that as its out of our district [ that means it cast money] as for medication bev isn't taking any at all when she was first diagnosed they put her on antidepressant, malaria and steroids tablets which made her sick all the time she told the dc and said that she wasn't going to take them anymore the dc said ok but never put her on anything ells [ that was over 2 years ago ] as we live in the u.k. our medication is different to the ones you have is there anyone in the group who lives in the u.k. who can help with suggestions for medication bev would love to talk to someone who lives in the u.k. that has rp as she can,t use the pc because of her swelling and stiff joints in her hands and because of the head pressure reading email hurts her eyes i would be only to happy to pass on any phone no to her if you wont to send your no privet my email address is a95pudniw@... sorry this is so long but could,nt make it any shorter i log on to the group every day and told bev that maybe someone out there could help bye for now pam and bev Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 16, 2001 Report Share Posted October 16, 2001 Pam, I agree with Liz... Bev should get to a rheumy and get on some medication. IT will surely make her feel better and stop any damage that is being done. Please let her know that she is in my prayers..... You are too. hugs Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 16, 2001 Report Share Posted October 16, 2001 Pam, I agree with Liz... Bev should get to a rheumy and get on some medication. IT will surely make her feel better and stop any damage that is being done. Please let her know that she is in my prayers..... You are too. hugs Quote Link to comment Share on other sites More sharing options...
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