Guest guest Posted October 16, 2001 Report Share Posted October 16, 2001 DAWN... SOUNDS LIKE YOU HAD AN AWFUL DAY... I WOULD HAVE BEEN PISSED OFF TOO.. I'VE BEEN THERE AND DONE THAT... BOY.. THESE DRS. I THINK YOU WERE RIGHT IN EVERYTHING YOU DID. GLAD TO SEE THAT YOU GOT THE 1MG PRED. I WISH HE WOULD DO SOMETHING FOR YOU. I NEED A RHEUMY TOO... MOST HAVE DROPPED MY INSURANCE SO THERE IS NONE CLOSE TO ME... AND THE ONES FAR AWAY DON'T KNOW ANYTHING ABOUT RP. I JUST WANT TO FIND ONE THAT WILL LISTEN... I'M SURE YOU DO TOO. BOY I WONDER WHAT YOUR DR WOULD THINK OF ME....... I WAS A SIZE 6 TWO YEARS AGO AND NOW I'VE GAINED 40 POUNDS AND AM IN A 16-18. FUNNY WHEN YOU'RE SMALL, THEY SEEM TO LISTEN... THEY SHOULD LISTEN TO YOU, YOU ARE SMALL... OH TO BE A SIZE 8 AGAIN... I'M TRYING..... I DID LOSE 2 POUNDS LAST WEEK... LOL IT'S A START. LOWERED MY PRED TO 9 MG AND NOW THINK MY RIBS ARE FLARING... DON'T WANT TO RAISE THE PRED, BUT DON'T WANT A FLARE.. WILL GIVE IT A DAY OR TWO... LOL PLEASE KNOW I'M THINKING OF YOU... YOU KNOW I'M HERE IF YOU NEED TO VENT. LOTS OF HUGS CLAUDIA Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 16, 2001 Report Share Posted October 16, 2001 DAWN... SOUNDS LIKE YOU HAD AN AWFUL DAY... I WOULD HAVE BEEN PISSED OFF TOO.. I'VE BEEN THERE AND DONE THAT... BOY.. THESE DRS. I THINK YOU WERE RIGHT IN EVERYTHING YOU DID. GLAD TO SEE THAT YOU GOT THE 1MG PRED. I WISH HE WOULD DO SOMETHING FOR YOU. I NEED A RHEUMY TOO... MOST HAVE DROPPED MY INSURANCE SO THERE IS NONE CLOSE TO ME... AND THE ONES FAR AWAY DON'T KNOW ANYTHING ABOUT RP. I JUST WANT TO FIND ONE THAT WILL LISTEN... I'M SURE YOU DO TOO. BOY I WONDER WHAT YOUR DR WOULD THINK OF ME....... I WAS A SIZE 6 TWO YEARS AGO AND NOW I'VE GAINED 40 POUNDS AND AM IN A 16-18. FUNNY WHEN YOU'RE SMALL, THEY SEEM TO LISTEN... THEY SHOULD LISTEN TO YOU, YOU ARE SMALL... OH TO BE A SIZE 8 AGAIN... I'M TRYING..... I DID LOSE 2 POUNDS LAST WEEK... LOL IT'S A START. LOWERED MY PRED TO 9 MG AND NOW THINK MY RIBS ARE FLARING... DON'T WANT TO RAISE THE PRED, BUT DON'T WANT A FLARE.. WILL GIVE IT A DAY OR TWO... LOL PLEASE KNOW I'M THINKING OF YOU... YOU KNOW I'M HERE IF YOU NEED TO VENT. LOTS OF HUGS CLAUDIA Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 16, 2001 Report Share Posted October 16, 2001 OK GUYS HERE GOES, I AM TOTALY TICKED OFF, PISSED OFF OR JUST PLAIN MAD DON'T KNOW HOW TO HANDLE THIS. I WENT TO RHEUMY TODAY, TRIED TO TELL HIM ABOUT HOW I HAD BEEN FEELING, ESPECIALLY LAST WEEKEND, I REALLY BELIEVE I WAS DOING INTO AN ADREANL CRISES, WELL HIS RESPOSNE WAS WELL I DON'T KNOW, MAYBE, THEN LAUGHED TOOK IN A REPORT FROM THE RADIOLOGIST ON MY BONE SCAN THAT SHOWED DEGENERATION OF THE LEFT FIBULA ALSO HIP JOINT AND FOOT, WELL HE SAID YOUR STILL WALKING AND HAVE MOTION SO ITS NOT THAT BAD. I ASK FOR SOMETHING ELSE TO TAKE BESIDES THE PRED SO I CAN GET OFF OF IT A LITTLE BIT MORE, HE SAID YOU DON'T NEED ANYTHING ELSE BESIDES THE METHO. I ASKED FOR SOMETHING FOR PAIN BESIDES JUST TYLENOL, NO ANSWER. HIS ANSWER TO THE WHOLE THING WAS LOOSE WEIGHT, NOW LET ME SAY THIS I HAVE PUT ON ABOUT 20 POUNDS IN THE LAST YEAR FROM THE PRED, BUT WHEN I STARTED PRED I WAS A SIZE 8 NOW I AM A SIZE 10 NOW TELL ME I S THAT TOO FAT, WILL HE HEAR ME ANYMORE IF I AM A SIZE 0 THAN A SIZE 10. THERE ISN'T ANYONE ELSE IN THIS AREA THAT KNOWS ANYTHING ABOUT RP, SO WHAT AM I SUPPOSE TO DO. ALSO MY INSURANCE WON'T PAY UNLESS I HAVE A REFERALL , AND I KNOW HE WON'T GIVE ME A REFERRRAL, NOW I AM REALLY STUCK' I FINALLY DEMANDED AND GOT A PRESCRIPTION FOR PRED IN 1 MG TABLETS INSTEAD OF 5 MGS. TOLD HIM I WAS ONLY GOING TO LOWER IT 1 MG EVERY 3 OR 4 WEEKS AND THAT WAS IT. SORRY GUYS BUT I HAVE HAD ENOUGH, CANT' FIGHT HIM ANYMORE JUST GO WITH THE FLOW, AND THE PAIN SO WHAT, TOLD MY HUBBY WHEN I AM DEAD JUST SUE HIM AND GET RICH. SORRY, JUST BUMMED OUT TODAY, DR BELIEVES IF BLOOD WORK IS NORMAL EVERYTHING IS NORMAL DR THAT IS DAWN Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 16, 2001 Report Share Posted October 16, 2001 OK GUYS HERE GOES, I AM TOTALY TICKED OFF, PISSED OFF OR JUST PLAIN MAD DON'T KNOW HOW TO HANDLE THIS. I WENT TO RHEUMY TODAY, TRIED TO TELL HIM ABOUT HOW I HAD BEEN FEELING, ESPECIALLY LAST WEEKEND, I REALLY BELIEVE I WAS DOING INTO AN ADREANL CRISES, WELL HIS RESPOSNE WAS WELL I DON'T KNOW, MAYBE, THEN LAUGHED TOOK IN A REPORT FROM THE RADIOLOGIST ON MY BONE SCAN THAT SHOWED DEGENERATION OF THE LEFT FIBULA ALSO HIP JOINT AND FOOT, WELL HE SAID YOUR STILL WALKING AND HAVE MOTION SO ITS NOT THAT BAD. I ASK FOR SOMETHING ELSE TO TAKE BESIDES THE PRED SO I CAN GET OFF OF IT A LITTLE BIT MORE, HE SAID YOU DON'T NEED ANYTHING ELSE BESIDES THE METHO. I ASKED FOR SOMETHING FOR PAIN BESIDES JUST TYLENOL, NO ANSWER. HIS ANSWER TO THE WHOLE THING WAS LOOSE WEIGHT, NOW LET ME SAY THIS I HAVE PUT ON ABOUT 20 POUNDS IN THE LAST YEAR FROM THE PRED, BUT WHEN I STARTED PRED I WAS A SIZE 8 NOW I AM A SIZE 10 NOW TELL ME I S THAT TOO FAT, WILL HE HEAR ME ANYMORE IF I AM A SIZE 0 THAN A SIZE 10. THERE ISN'T ANYONE ELSE IN THIS AREA THAT KNOWS ANYTHING ABOUT RP, SO WHAT AM I SUPPOSE TO DO. ALSO MY INSURANCE WON'T PAY UNLESS I HAVE A REFERALL , AND I KNOW HE WON'T GIVE ME A REFERRRAL, NOW I AM REALLY STUCK' I FINALLY DEMANDED AND GOT A PRESCRIPTION FOR PRED IN 1 MG TABLETS INSTEAD OF 5 MGS. TOLD HIM I WAS ONLY GOING TO LOWER IT 1 MG EVERY 3 OR 4 WEEKS AND THAT WAS IT. SORRY GUYS BUT I HAVE HAD ENOUGH, CANT' FIGHT HIM ANYMORE JUST GO WITH THE FLOW, AND THE PAIN SO WHAT, TOLD MY HUBBY WHEN I AM DEAD JUST SUE HIM AND GET RICH. SORRY, JUST BUMMED OUT TODAY, DR BELIEVES IF BLOOD WORK IS NORMAL EVERYTHING IS NORMAL DR THAT IS DAWN Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 17, 2001 Report Share Posted October 17, 2001 Dear Dawn, I'm pissed off too. These damn doctors act like God. I just spent $2,000 for cat scans and can't get the doctor to get back to me to explain results. I seriously think he doesn't know what to do with me so he wants me gone. These doctors don't listen anymore and who knows our bodies more than we do? One doctor I "accidently" went to said it was all in my head. She constantly told me when she was in medical school she had every disease she learned about. I walked out of her office. I had faxed my records there 5 days before the appointment and she never looked at them. Don't feel alone, we've all been treated badly.....Sue Marth Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 17, 2001 Report Share Posted October 17, 2001 Dear Dawn, I'm pissed off too. These damn doctors act like God. I just spent $2,000 for cat scans and can't get the doctor to get back to me to explain results. I seriously think he doesn't know what to do with me so he wants me gone. These doctors don't listen anymore and who knows our bodies more than we do? One doctor I "accidently" went to said it was all in my head. She constantly told me when she was in medical school she had every disease she learned about. I walked out of her office. I had faxed my records there 5 days before the appointment and she never looked at them. Don't feel alone, we've all been treated badly.....Sue Marth Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 17, 2001 Report Share Posted October 17, 2001 Dear Dawn, from what I understand there is one doctor in Wisconsin who knows RP and he's 3 hours away. You need to keep looking. There are web sites that list doctors and their specialities and alot have email address's. Good luck...Sue Marth Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 17, 2001 Report Share Posted October 17, 2001 Dear Dawn, from what I understand there is one doctor in Wisconsin who knows RP and he's 3 hours away. You need to keep looking. There are web sites that list doctors and their specialities and alot have email address's. Good luck...Sue Marth Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 17, 2001 Report Share Posted October 17, 2001 claudia i am so angry i don't know what to do. there just isn't another doctor to go to that knows anything about this rp. how do i go about finding someone. i have even though about going to dr. trentham but he is so far away that my insurance won't pay for it. so i don't know what to do. i feel so angry, all i want is for someone to actually care about what happens, and try to help instead of laughing dawn RCColloran@... wrote: DAWN... SOUNDS LIKE YOU HAD AN AWFUL DAY... I WOULD HAVE BEEN PISSED OFF TOO.. I'VE BEEN THERE AND DONE THAT... BOY.. THESE DRS. I THINK YOU WERE RIGHT IN EVERYTHING YOU DID. GLAD TO SEE THAT YOU GOT THE 1MG PRED. I WISH HE WOULD DO SOMETHING FOR YOU. I NEED A RHEUMY TOO... MOST HAVE DROPPED MY INSURANCE SO THERE IS NONE CLOSE TO ME... AND THE ONES FAR AWAY DON'T KNOW ANYTHING ABOUT RP. I JUST WANT TO FIND ONE THAT WILL LISTEN... I'M SURE YOU DO TOO. BOY I WONDER WHAT YOUR DR WOULD THINK OF ME....... I WAS A SIZE 6 TWO YEARS AGO AND NOW I'VE GAINED 40 POUNDS AND AM IN A 16-18. FUNNY WHEN YOU'RE SMALL, THEY SEEM TO LISTEN... THEY SHOULD LISTEN TO YOU, YOU ARE SMALL... OH TO BE A SIZE 8 AGAIN... I'M TRYING..... I DID LOSE 2 POUNDS LAST WEEK... LOL IT'S A START. LOWERED MY PRED TO 9 MG AND NOW THINK MY RIBS ARE FLARING... DON'T WANT TO RAISE THE PRED, BUT DON'T WANT A FLARE.. WILL GIVE IT A DAY OR TWO... LOL PLEASE KNOW I'M THINKING OF YOU... YOU KNOW I'M HERE IF YOU NEED TO VENT. LOTS OF HUGS CLAUDIADISCLAIMER!!WE ARE NOT MEDICAL PROFESSIONALS, THEREFORE ANY INFORMATION THAT IS RECEIVED HERE IS FROM EXPERIENCE ONLY. PLEASE CONSULT WITH YOUR DOCTOR BEFORE TRYING ANYTHING THAT IS SUGGESTED. WE ARE NOT A SUBSTITUTE FOR YOUR PHYSICIAN AND ARE NOT TRYING TO BE. REMEMBER EVERYONE IS DIFFERENT AND TREATMENT MAYBE DIFFERENT FOR MANY OF US. THANK YOU Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 17, 2001 Report Share Posted October 17, 2001 claudia i am so angry i don't know what to do. there just isn't another doctor to go to that knows anything about this rp. how do i go about finding someone. i have even though about going to dr. trentham but he is so far away that my insurance won't pay for it. so i don't know what to do. i feel so angry, all i want is for someone to actually care about what happens, and try to help instead of laughing dawn RCColloran@... wrote: DAWN... SOUNDS LIKE YOU HAD AN AWFUL DAY... I WOULD HAVE BEEN PISSED OFF TOO.. I'VE BEEN THERE AND DONE THAT... BOY.. THESE DRS. I THINK YOU WERE RIGHT IN EVERYTHING YOU DID. GLAD TO SEE THAT YOU GOT THE 1MG PRED. I WISH HE WOULD DO SOMETHING FOR YOU. I NEED A RHEUMY TOO... MOST HAVE DROPPED MY INSURANCE SO THERE IS NONE CLOSE TO ME... AND THE ONES FAR AWAY DON'T KNOW ANYTHING ABOUT RP. I JUST WANT TO FIND ONE THAT WILL LISTEN... I'M SURE YOU DO TOO. BOY I WONDER WHAT YOUR DR WOULD THINK OF ME....... I WAS A SIZE 6 TWO YEARS AGO AND NOW I'VE GAINED 40 POUNDS AND AM IN A 16-18. FUNNY WHEN YOU'RE SMALL, THEY SEEM TO LISTEN... THEY SHOULD LISTEN TO YOU, YOU ARE SMALL... OH TO BE A SIZE 8 AGAIN... I'M TRYING..... I DID LOSE 2 POUNDS LAST WEEK... LOL IT'S A START. LOWERED MY PRED TO 9 MG AND NOW THINK MY RIBS ARE FLARING... DON'T WANT TO RAISE THE PRED, BUT DON'T WANT A FLARE.. WILL GIVE IT A DAY OR TWO... LOL PLEASE KNOW I'M THINKING OF YOU... YOU KNOW I'M HERE IF YOU NEED TO VENT. LOTS OF HUGS CLAUDIADISCLAIMER!!WE ARE NOT MEDICAL PROFESSIONALS, THEREFORE ANY INFORMATION THAT IS RECEIVED HERE IS FROM EXPERIENCE ONLY. PLEASE CONSULT WITH YOUR DOCTOR BEFORE TRYING ANYTHING THAT IS SUGGESTED. WE ARE NOT A SUBSTITUTE FOR YOUR PHYSICIAN AND ARE NOT TRYING TO BE. REMEMBER EVERYONE IS DIFFERENT AND TREATMENT MAYBE DIFFERENT FOR MANY OF US. THANK YOU Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 17, 2001 Report Share Posted October 17, 2001 Sue i have really had it with doctors, i feel like just throwing my hands up and quiting. my biggest problem is there isn't any other drs. in my area that know RP. dawn grandm4@... wrote: Dear Dawn, I'm pissed off too. These damn doctors act like God. I just spent $2,000 for cat scans and can't get the doctor to get back to me to explain results. I seriously think he doesn't know what to do with me so he wants me gone. These doctors don't listen anymore and who knows our bodies more than we do? One doctor I "accidently" went to said it was all in my head. She constantly told me when she was in medical school she had every disease she learned about. I walked out of her office. I had faxed my records there 5 days before the appointment and she never looked at them. Don't feel alone, we've all been treated badly.....Sue Marth DISCLAIMER!!WE ARE NOT MEDICAL PROFESSIONALS, THEREFORE ANY INFORMATION THAT IS RECEIVED HERE IS FROM EXPERIENCE ONLY. PLEASE CONSULT WITH YOUR DOCTOR BEFORE TRYING ANYTHING THAT IS SUGGESTED. WE ARE NOT A SUBSTITUTE FOR YOUR PHYSICIAN AND ARE NOT TRYING TO BE. REMEMBER EVERYONE IS DIFFERENT AND TREATMENT MAYBE DIFFERENT FOR MANY OF US. THANK YOU Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 17, 2001 Report Share Posted October 17, 2001 Sue i have really had it with doctors, i feel like just throwing my hands up and quiting. my biggest problem is there isn't any other drs. in my area that know RP. dawn grandm4@... wrote: Dear Dawn, I'm pissed off too. These damn doctors act like God. I just spent $2,000 for cat scans and can't get the doctor to get back to me to explain results. I seriously think he doesn't know what to do with me so he wants me gone. These doctors don't listen anymore and who knows our bodies more than we do? One doctor I "accidently" went to said it was all in my head. She constantly told me when she was in medical school she had every disease she learned about. I walked out of her office. I had faxed my records there 5 days before the appointment and she never looked at them. Don't feel alone, we've all been treated badly.....Sue Marth DISCLAIMER!!WE ARE NOT MEDICAL PROFESSIONALS, THEREFORE ANY INFORMATION THAT IS RECEIVED HERE IS FROM EXPERIENCE ONLY. PLEASE CONSULT WITH YOUR DOCTOR BEFORE TRYING ANYTHING THAT IS SUGGESTED. WE ARE NOT A SUBSTITUTE FOR YOUR PHYSICIAN AND ARE NOT TRYING TO BE. REMEMBER EVERYONE IS DIFFERENT AND TREATMENT MAYBE DIFFERENT FOR MANY OF US. THANK YOU Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 17, 2001 Report Share Posted October 17, 2001 In a message dated 10/17/01 12:41:10 PM Pacific Daylight Time, dmorgan26347@... writes: << all i want is for someone to actually care about what happens, and try to help instead of laughing >> Dawn, I Know... that is what I want to... I have heard it all from " Go home and eat some chicken soup...you'll feel better " , " every night, reflect on your stress of the day " ( I really liked that one), " THERE IS SOOOO MUCH WRONG WITH YOU....WHAT DO YOU WANT ME TO DO???? " , I can't go out of state with my insurance... I am eligible for medicare, and I'm thinking of using it.. Maybe they would pay for a good dr. I don't know... I'm open to suggestions too. At least we have each other. LOL Hey, I'll meet ya half way and we can figure it out... probably not, but a real good excuse to meet you. LOl Lots of hugs Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 17, 2001 Report Share Posted October 17, 2001 In a message dated 10/17/01 12:41:10 PM Pacific Daylight Time, dmorgan26347@... writes: << all i want is for someone to actually care about what happens, and try to help instead of laughing >> Dawn, I Know... that is what I want to... I have heard it all from " Go home and eat some chicken soup...you'll feel better " , " every night, reflect on your stress of the day " ( I really liked that one), " THERE IS SOOOO MUCH WRONG WITH YOU....WHAT DO YOU WANT ME TO DO???? " , I can't go out of state with my insurance... I am eligible for medicare, and I'm thinking of using it.. Maybe they would pay for a good dr. I don't know... I'm open to suggestions too. At least we have each other. LOL Hey, I'll meet ya half way and we can figure it out... probably not, but a real good excuse to meet you. LOl Lots of hugs Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 17, 2001 Report Share Posted October 17, 2001 Dawn, Sometimes I think the Docs act this way because they don't know what the "hell" to do with us!! My last PCP got this look of dread everytime I walked in the office, scared him to death having to deal with all my problems. But at least he finally had the guts to tell me my problems were out of his league. Found myself a new PCP who is very good and works closely with my other Docs. What major cities are you near? Any hospitals affiliated with Universities? How far of a drive is it for you to Cleveland? Are you close to Pittsburgh? Trying to come up with some alternatives for you. Hugs, Sandy OK GUYS HERE GOES, I AM TOTALY TICKED OFF, PISSED OFF OR JUST PLAIN MAD DON'T KNOW HOW TO HANDLE THIS. I WENT TO RHEUMY TODAY, TRIED TO TELL HIM ABOUT HOW I HAD BEEN FEELING, ESPECIALLY LAST WEEKEND, I REALLY BELIEVE I WAS DOING INTO AN ADREANL CRISES, WELL HIS RESPOSNE WAS WELL I DON'T KNOW, MAYBE, THEN LAUGHED TOOK IN A REPORT FROM THE RADIOLOGIST ON MY BONE SCAN THAT SHOWED DEGENERATION OF THE LEFT FIBULA ALSO HIP JOINT AND FOOT, WELL HE SAID YOUR STILL WALKING AND HAVE MOTION SO ITS NOT THAT BAD. I ASK FOR SOMETHING ELSE TO TAKE BESIDES THE PRED SO I CAN GET OFF OF IT A LITTLE BIT MORE, HE SAID YOU DON'T NEED ANYTHING ELSE BESIDES THE METHO. I ASKED FOR SOMETHING FOR PAIN BESIDES JUST TYLENOL, NO ANSWER. HIS ANSWER TO THE WHOLE THING WAS LOOSE WEIGHT, NOW LET ME SAY THIS I HAVE PUT ON ABOUT 20 POUNDS IN THE LAST YEAR FROM THE PRED, BUT WHEN I STARTED PRED I WAS A SIZE 8 NOW I AM A SIZE 10 NOW TELL ME I S THAT TOO FAT, WILL HE HEAR ME ANYMORE IF I AM A SIZE 0 THAN A SIZE 10. THERE ISN'T ANYONE ELSE IN THIS AREA THAT KNOWS ANYTHING ABOUT RP, SO WHAT AM I SUPPOSE TO DO. ALSO MY INSURANCE WON'T PAY UNLESS I HAVE A REFERALL , AND I KNOW HE WON'T GIVE ME A REFERRRAL, NOW I AM REALLY STUCK' I FINALLY DEMANDED AND GOT A PRESCRIPTION FOR PRED IN 1 MG TABLETS INSTEAD OF 5 MGS. TOLD HIM I WAS ONLY GOING TO LOWER IT 1 MG EVERY 3 OR 4 WEEKS AND THAT WAS IT. SORRY GUYS BUT I HAVE HAD ENOUGH, CANT' FIGHT HIM ANYMORE JUST GO WITH THE FLOW, AND THE PAIN SO WHAT, TOLD MY HUBBY WHEN I AM DEAD JUST SUE HIM AND GET RICH. SORRY, JUST BUMMED OUT TODAY, DR BELIEVES IF BLOOD WORK IS NORMAL EVERYTHING IS NORMAL DR THAT IS DAWN Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 17, 2001 Report Share Posted October 17, 2001 Dawn, Sometimes I think the Docs act this way because they don't know what the "hell" to do with us!! My last PCP got this look of dread everytime I walked in the office, scared him to death having to deal with all my problems. But at least he finally had the guts to tell me my problems were out of his league. Found myself a new PCP who is very good and works closely with my other Docs. What major cities are you near? Any hospitals affiliated with Universities? How far of a drive is it for you to Cleveland? Are you close to Pittsburgh? Trying to come up with some alternatives for you. Hugs, Sandy OK GUYS HERE GOES, I AM TOTALY TICKED OFF, PISSED OFF OR JUST PLAIN MAD DON'T KNOW HOW TO HANDLE THIS. I WENT TO RHEUMY TODAY, TRIED TO TELL HIM ABOUT HOW I HAD BEEN FEELING, ESPECIALLY LAST WEEKEND, I REALLY BELIEVE I WAS DOING INTO AN ADREANL CRISES, WELL HIS RESPOSNE WAS WELL I DON'T KNOW, MAYBE, THEN LAUGHED TOOK IN A REPORT FROM THE RADIOLOGIST ON MY BONE SCAN THAT SHOWED DEGENERATION OF THE LEFT FIBULA ALSO HIP JOINT AND FOOT, WELL HE SAID YOUR STILL WALKING AND HAVE MOTION SO ITS NOT THAT BAD. I ASK FOR SOMETHING ELSE TO TAKE BESIDES THE PRED SO I CAN GET OFF OF IT A LITTLE BIT MORE, HE SAID YOU DON'T NEED ANYTHING ELSE BESIDES THE METHO. I ASKED FOR SOMETHING FOR PAIN BESIDES JUST TYLENOL, NO ANSWER. HIS ANSWER TO THE WHOLE THING WAS LOOSE WEIGHT, NOW LET ME SAY THIS I HAVE PUT ON ABOUT 20 POUNDS IN THE LAST YEAR FROM THE PRED, BUT WHEN I STARTED PRED I WAS A SIZE 8 NOW I AM A SIZE 10 NOW TELL ME I S THAT TOO FAT, WILL HE HEAR ME ANYMORE IF I AM A SIZE 0 THAN A SIZE 10. THERE ISN'T ANYONE ELSE IN THIS AREA THAT KNOWS ANYTHING ABOUT RP, SO WHAT AM I SUPPOSE TO DO. ALSO MY INSURANCE WON'T PAY UNLESS I HAVE A REFERALL , AND I KNOW HE WON'T GIVE ME A REFERRRAL, NOW I AM REALLY STUCK' I FINALLY DEMANDED AND GOT A PRESCRIPTION FOR PRED IN 1 MG TABLETS INSTEAD OF 5 MGS. TOLD HIM I WAS ONLY GOING TO LOWER IT 1 MG EVERY 3 OR 4 WEEKS AND THAT WAS IT. SORRY GUYS BUT I HAVE HAD ENOUGH, CANT' FIGHT HIM ANYMORE JUST GO WITH THE FLOW, AND THE PAIN SO WHAT, TOLD MY HUBBY WHEN I AM DEAD JUST SUE HIM AND GET RICH. SORRY, JUST BUMMED OUT TODAY, DR BELIEVES IF BLOOD WORK IS NORMAL EVERYTHING IS NORMAL DR THAT IS DAWN Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 24, 2001 Report Share Posted October 24, 2001 , my ribs are killing me too, but I think it is from the couging, which I can't get under control. And all I can take for all this is Tylenol (like that works!). So long as I don't speak, or take a deep breath, I can handle this. But as soon as I say that, I go off on another coughing jag, it's the pits Usually the ribs on my right side are the ones that give me RP trouble, and now it's the left side (from coughing). Gee, I sure hope that now it will start attacking my left ribs too! PITIFUL! I haven't been on line for almost a week, so please tell me how your appt went with Cardiologist went? How about the Podiatrist? Wouldn't it be nice to do or have something that didn't end in "ist"? I'm getting tired, so back to bed! You know, my dr has always told me that if I would just go to bed when something starts, then it wouldn't take hold and I would get over it. Well I did, and I am still sick! So there, Dr Ginsburg! Guess I told him, huh? Love you, please take care and let me know you are OK. Love, Judy Re: DAWN DR APPT DAWN... SOUNDS LIKE YOU HAD AN AWFUL DAY... I WOULD HAVE BEEN PISSED OFFTOO.. I'VE BEEN THERE AND DONE THAT... BOY.. THESE DRS. I THINK YOU WERERIGHT IN EVERYTHING YOU DID. GLAD TO SEE THAT YOU GOT THE 1MG PRED. I WISHHE WOULD DO SOMETHING FOR YOU.I NEED A RHEUMY TOO... MOST HAVE DROPPED MY INSURANCE SO THERE IS NONE CLOSETO ME... AND THE ONES FAR AWAY DON'T KNOW ANYTHING ABOUT RP. I JUST WANT TOFIND ONE THAT WILL LISTEN... I'M SURE YOU DO TOO.BOY I WONDER WHAT YOUR DR WOULD THINK OF ME....... I WAS A SIZE 6 TWO YEARSAGO AND NOW I'VE GAINED 40 POUNDS AND AM IN A 16-18. FUNNY WHEN YOU'RESMALL, THEY SEEM TO LISTEN... THEY SHOULD LISTEN TO YOU, YOU ARE SMALL... OHTO BE A SIZE 8 AGAIN... I'M TRYING..... I DID LOSE 2 POUNDS LAST WEEK...LOL IT'S A START.LOWERED MY PRED TO 9 MG AND NOW THINK MY RIBS ARE FLARING... DON'T WANT TORAISE THE PRED, BUT DON'T WANT A FLARE.. WILL GIVE IT A DAY OR TWO... LOLPLEASE KNOW I'M THINKING OF YOU... YOU KNOW I'M HERE IF YOU NEED TO VENT.LOTS OF HUGSCLAUDIADISCLAIMER!!WE ARE NOT MEDICAL PROFESSIONALS, THEREFORE ANY INFORMATION THAT IS RECEIVED HERE IS FROM EXPERIENCE ONLY. PLEASE CONSULT WITH YOUR DOCTOR BEFORE TRYING ANYTHING THAT IS SUGGESTED. WE ARE NOT A SUBSTITUTE FOR YOUR PHYSICIAN AND ARE NOT TRYING TO BE. REMEMBER EVERYONE IS DIFFERENT AND TREATMENT MAYBE DIFFERENT FOR MANY OF US. THANK YOU Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 24, 2001 Report Share Posted October 24, 2001 , my ribs are killing me too, but I think it is from the couging, which I can't get under control. And all I can take for all this is Tylenol (like that works!). So long as I don't speak, or take a deep breath, I can handle this. But as soon as I say that, I go off on another coughing jag, it's the pits Usually the ribs on my right side are the ones that give me RP trouble, and now it's the left side (from coughing). Gee, I sure hope that now it will start attacking my left ribs too! PITIFUL! I haven't been on line for almost a week, so please tell me how your appt went with Cardiologist went? How about the Podiatrist? Wouldn't it be nice to do or have something that didn't end in "ist"? I'm getting tired, so back to bed! You know, my dr has always told me that if I would just go to bed when something starts, then it wouldn't take hold and I would get over it. Well I did, and I am still sick! So there, Dr Ginsburg! Guess I told him, huh? Love you, please take care and let me know you are OK. Love, Judy Re: DAWN DR APPT DAWN... SOUNDS LIKE YOU HAD AN AWFUL DAY... I WOULD HAVE BEEN PISSED OFFTOO.. I'VE BEEN THERE AND DONE THAT... BOY.. THESE DRS. I THINK YOU WERERIGHT IN EVERYTHING YOU DID. GLAD TO SEE THAT YOU GOT THE 1MG PRED. I WISHHE WOULD DO SOMETHING FOR YOU.I NEED A RHEUMY TOO... MOST HAVE DROPPED MY INSURANCE SO THERE IS NONE CLOSETO ME... AND THE ONES FAR AWAY DON'T KNOW ANYTHING ABOUT RP. I JUST WANT TOFIND ONE THAT WILL LISTEN... I'M SURE YOU DO TOO.BOY I WONDER WHAT YOUR DR WOULD THINK OF ME....... I WAS A SIZE 6 TWO YEARSAGO AND NOW I'VE GAINED 40 POUNDS AND AM IN A 16-18. FUNNY WHEN YOU'RESMALL, THEY SEEM TO LISTEN... THEY SHOULD LISTEN TO YOU, YOU ARE SMALL... OHTO BE A SIZE 8 AGAIN... I'M TRYING..... I DID LOSE 2 POUNDS LAST WEEK...LOL IT'S A START.LOWERED MY PRED TO 9 MG AND NOW THINK MY RIBS ARE FLARING... DON'T WANT TORAISE THE PRED, BUT DON'T WANT A FLARE.. WILL GIVE IT A DAY OR TWO... LOLPLEASE KNOW I'M THINKING OF YOU... YOU KNOW I'M HERE IF YOU NEED TO VENT.LOTS OF HUGSCLAUDIADISCLAIMER!!WE ARE NOT MEDICAL PROFESSIONALS, THEREFORE ANY INFORMATION THAT IS RECEIVED HERE IS FROM EXPERIENCE ONLY. PLEASE CONSULT WITH YOUR DOCTOR BEFORE TRYING ANYTHING THAT IS SUGGESTED. WE ARE NOT A SUBSTITUTE FOR YOUR PHYSICIAN AND ARE NOT TRYING TO BE. REMEMBER EVERYONE IS DIFFERENT AND TREATMENT MAYBE DIFFERENT FOR MANY OF US. THANK YOU Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 24, 2001 Report Share Posted October 24, 2001 No wonder you're bummed out, I just got the summary of your "doctor" visit. He should be shot! Can you report him to anyone? Jeez, size 10! You know if I didn't love you so much, I would really hate you! Ironic isn't it, with all the other stuff you said, the one thing that sticks in my head is the size 10! Isn't there any other Rheumy in West Virginia? It's a big state, so you have to drive for a couple of hours, it would be worth it, just to have someone who knows what he is doing see you. Doesn't the doctor HAVE to give you a referral? I don't have an HMO so I'm not sure how this works. Look into reporting him to someone, Dawn, there has to be some way around that block of crap! I feel so helpless, I wish there were something I cold DO! Remember, you croaking and your honey (Bill? getting rich is NOT an option, OK? Hang in there, honey, I'll be praying for a good doctor for Dawn! Love you, Judy DAWN DR APPT OK GUYS HERE GOES, I AM TOTALY TICKED OFF, PISSED OFF OR JUST PLAIN MAD DON'T KNOW HOW TO HANDLE THIS. I WENT TO RHEUMY TODAY, TRIED TO TELL HIM ABOUT HOW I HAD BEEN FEELING, ESPECIALLY LAST WEEKEND, I REALLY BELIEVE I WAS DOING INTO AN ADREANL CRISES, WELL HIS RESPOSNE WAS WELL I DON'T KNOW, MAYBE, THEN LAUGHED TOOK IN A REPORT FROM THE RADIOLOGIST ON MY BONE SCAN THAT SHOWED DEGENERATION OF THE LEFT FIBULA ALSO HIP JOINT AND FOOT, WELL HE SAID YOUR STILL WALKING AND HAVE MOTION SO ITS NOT THAT BAD. I ASK FOR SOMETHING ELSE TO TAKE BESIDES THE PRED SO I CAN GET OFF OF IT A LITTLE BIT MORE, HE SAID YOU DON'T NEED ANYTHING ELSE BESIDES THE METHO. I ASKED FOR SOMETHING FOR PAIN BESIDES JUST TYLENOL, NO ANSWER. HIS ANSWER TO THE WHOLE THING WAS LOOSE WEIGHT, NOW LET ME SAY THIS I HAVE PUT ON ABOUT 20 POUNDS IN THE LAST YEAR FROM THE PRED, BUT WHEN I STARTED PRED I WAS A SIZE 8 NOW I AM A SIZE 10 NOW TELL ME I S THAT TOO FAT, WILL HE HEAR ME ANYMORE IF I AM A SIZE 0 THAN A SIZE 10. THERE ISN'T ANYONE ELSE IN THIS AREA THAT KNOWS ANYTHING ABOUT RP, SO WHAT AM I SUPPOSE TO DO. ALSO MY INSURANCE WON'T PAY UNLESS I HAVE A REFERALL , AND I KNOW HE WON'T GIVE ME A REFERRRAL, NOW I AM REALLY STUCK' I FINALLY DEMANDED AND GOT A PRESCRIPTION FOR PRED IN 1 MG TABLETS INSTEAD OF 5 MGS. TOLD HIM I WAS ONLY GOING TO LOWER IT 1 MG EVERY 3 OR 4 WEEKS AND THAT WAS IT. SORRY GUYS BUT I HAVE HAD ENOUGH, CANT' FIGHT HIM ANYMORE JUST GO WITH THE FLOW, AND THE PAIN SO WHAT, TOLD MY HUBBY WHEN I AM DEAD JUST SUE HIM AND GET RICH. SORRY, JUST BUMMED OUT TODAY, DR BELIEVES IF BLOOD WORK IS NORMAL EVERYTHING IS NORMAL DR THAT IS DAWN Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 24, 2001 Report Share Posted October 24, 2001 No wonder you're bummed out, I just got the summary of your "doctor" visit. He should be shot! Can you report him to anyone? Jeez, size 10! You know if I didn't love you so much, I would really hate you! Ironic isn't it, with all the other stuff you said, the one thing that sticks in my head is the size 10! Isn't there any other Rheumy in West Virginia? It's a big state, so you have to drive for a couple of hours, it would be worth it, just to have someone who knows what he is doing see you. Doesn't the doctor HAVE to give you a referral? I don't have an HMO so I'm not sure how this works. Look into reporting him to someone, Dawn, there has to be some way around that block of crap! I feel so helpless, I wish there were something I cold DO! Remember, you croaking and your honey (Bill? getting rich is NOT an option, OK? Hang in there, honey, I'll be praying for a good doctor for Dawn! Love you, Judy DAWN DR APPT OK GUYS HERE GOES, I AM TOTALY TICKED OFF, PISSED OFF OR JUST PLAIN MAD DON'T KNOW HOW TO HANDLE THIS. I WENT TO RHEUMY TODAY, TRIED TO TELL HIM ABOUT HOW I HAD BEEN FEELING, ESPECIALLY LAST WEEKEND, I REALLY BELIEVE I WAS DOING INTO AN ADREANL CRISES, WELL HIS RESPOSNE WAS WELL I DON'T KNOW, MAYBE, THEN LAUGHED TOOK IN A REPORT FROM THE RADIOLOGIST ON MY BONE SCAN THAT SHOWED DEGENERATION OF THE LEFT FIBULA ALSO HIP JOINT AND FOOT, WELL HE SAID YOUR STILL WALKING AND HAVE MOTION SO ITS NOT THAT BAD. I ASK FOR SOMETHING ELSE TO TAKE BESIDES THE PRED SO I CAN GET OFF OF IT A LITTLE BIT MORE, HE SAID YOU DON'T NEED ANYTHING ELSE BESIDES THE METHO. I ASKED FOR SOMETHING FOR PAIN BESIDES JUST TYLENOL, NO ANSWER. HIS ANSWER TO THE WHOLE THING WAS LOOSE WEIGHT, NOW LET ME SAY THIS I HAVE PUT ON ABOUT 20 POUNDS IN THE LAST YEAR FROM THE PRED, BUT WHEN I STARTED PRED I WAS A SIZE 8 NOW I AM A SIZE 10 NOW TELL ME I S THAT TOO FAT, WILL HE HEAR ME ANYMORE IF I AM A SIZE 0 THAN A SIZE 10. THERE ISN'T ANYONE ELSE IN THIS AREA THAT KNOWS ANYTHING ABOUT RP, SO WHAT AM I SUPPOSE TO DO. ALSO MY INSURANCE WON'T PAY UNLESS I HAVE A REFERALL , AND I KNOW HE WON'T GIVE ME A REFERRRAL, NOW I AM REALLY STUCK' I FINALLY DEMANDED AND GOT A PRESCRIPTION FOR PRED IN 1 MG TABLETS INSTEAD OF 5 MGS. TOLD HIM I WAS ONLY GOING TO LOWER IT 1 MG EVERY 3 OR 4 WEEKS AND THAT WAS IT. SORRY GUYS BUT I HAVE HAD ENOUGH, CANT' FIGHT HIM ANYMORE JUST GO WITH THE FLOW, AND THE PAIN SO WHAT, TOLD MY HUBBY WHEN I AM DEAD JUST SUE HIM AND GET RICH. SORRY, JUST BUMMED OUT TODAY, DR BELIEVES IF BLOOD WORK IS NORMAL EVERYTHING IS NORMAL DR THAT IS DAWN Quote Link to comment Share on other sites More sharing options...
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