Re: [Rpolychondritis sandy c

[Guest guest]

hi sandy

well its not the drive that scares me. i can go just about anywhere, it is the insurance that is the problem. they won't let us go out of state for any;thing, unless it is proven to be a life threating emergency at that point. like not breathing or the burn center or something. the place i go to is a medical school teaching facility you would think that they would be kinder and gentler to get the point across to the students but alas to no avail. thanks for the thought though

love ya

dawn

Sandy Catalusci wrote:

Dawn,

Sometimes I think the Docs act this way because they don't know what the "hell" to do with us!! My last PCP got this look of dread everytime I walked in the office, scared him to death having to deal with all my problems. But at least he finally had the guts to tell me my problems were out of his league. Found myself a new PCP

who is very good and works closely with my other Docs.

What major cities are you near? Any hospitals affiliated with Universities? How far of a drive is it for you to Cleveland? Are you

close to Pittsburgh? Trying to come up with some alternatives for you.

Hugs,

Sandy

OK GUYS

HERE GOES, I AM TOTALY TICKED OFF, PISSED OFF OR JUST PLAIN MAD

DON'T KNOW HOW TO HANDLE THIS. I WENT TO RHEUMY TODAY,

TRIED TO TELL HIM ABOUT HOW I HAD BEEN FEELING, ESPECIALLY LAST WEEKEND, I REALLY BELIEVE I WAS DOING INTO AN ADREANL CRISES, WELL HIS RESPOSNE WAS WELL I DON'T KNOW, MAYBE, THEN LAUGHED

TOOK IN A REPORT FROM THE RADIOLOGIST ON MY BONE SCAN THAT SHOWED DEGENERATION OF THE LEFT FIBULA ALSO HIP JOINT AND FOOT, WELL HE SAID YOUR STILL WALKING AND HAVE MOTION SO ITS NOT THAT BAD. I ASK FOR SOMETHING ELSE TO TAKE BESIDES THE PRED SO I CAN GET OFF OF IT A LITTLE BIT MORE, HE SAID YOU DON'T NEED ANYTHING ELSE BESIDES THE METHO. I ASKED FOR SOMETHING FOR PAIN BESIDES JUST TYLENOL, NO ANSWER. HIS ANSWER TO THE WHOLE THING WAS LOOSE WEIGHT, NOW LET ME SAY THIS I HAVE PUT ON ABOUT 20 POUNDS IN THE LAST YEAR FROM THE PRED, BUT WHEN I STARTED PRED I WAS A SIZE 8 NOW I AM A SIZE 10 NOW TELL ME I S THAT TOO FAT, WILL HE HEAR ME ANYMORE IF I AM A SIZE 0 THAN A SIZE 10.

THERE ISN'T ANYONE ELSE IN THIS AREA THAT KNOWS ANYTHING ABOUT RP, SO WHAT AM I SUPPOSE TO DO. ALSO MY INSURANCE WON'T PAY UNLESS I HAVE A REFERALL , AND I KNOW HE WON'T GIVE ME A REFERRRAL, NOW I AM REALLY STUCK'

I FINALLY DEMANDED AND GOT A PRESCRIPTION FOR PRED IN 1 MG TABLETS INSTEAD OF 5 MGS. TOLD HIM I WAS ONLY GOING TO LOWER IT 1 MG EVERY 3 OR 4 WEEKS AND THAT WAS IT.

SORRY GUYS BUT I HAVE HAD ENOUGH, CANT' FIGHT HIM ANYMORE

JUST GO WITH THE FLOW, AND THE PAIN SO WHAT, TOLD MY HUBBY WHEN I AM DEAD JUST SUE HIM AND GET RICH.

SORRY, JUST BUMMED OUT TODAY, DR BELIEVES IF BLOOD WORK IS NORMAL EVERYTHING IS NORMAL DR THAT IS

DAWN

[Guest guest]

hi sandy

well its not the drive that scares me. i can go just about anywhere, it is the insurance that is the problem. they won't let us go out of state for any;thing, unless it is proven to be a life threating emergency at that point. like not breathing or the burn center or something. the place i go to is a medical school teaching facility you would think that they would be kinder and gentler to get the point across to the students but alas to no avail. thanks for the thought though

love ya

dawn

Sandy Catalusci wrote:

Dawn,

Sometimes I think the Docs act this way because they don't know what the "hell" to do with us!! My last PCP got this look of dread everytime I walked in the office, scared him to death having to deal with all my problems. But at least he finally had the guts to tell me my problems were out of his league. Found myself a new PCP

who is very good and works closely with my other Docs.

What major cities are you near? Any hospitals affiliated with Universities? How far of a drive is it for you to Cleveland? Are you

close to Pittsburgh? Trying to come up with some alternatives for you.

Hugs,

Sandy

OK GUYS

HERE GOES, I AM TOTALY TICKED OFF, PISSED OFF OR JUST PLAIN MAD

DON'T KNOW HOW TO HANDLE THIS. I WENT TO RHEUMY TODAY,

TRIED TO TELL HIM ABOUT HOW I HAD BEEN FEELING, ESPECIALLY LAST WEEKEND, I REALLY BELIEVE I WAS DOING INTO AN ADREANL CRISES, WELL HIS RESPOSNE WAS WELL I DON'T KNOW, MAYBE, THEN LAUGHED

TOOK IN A REPORT FROM THE RADIOLOGIST ON MY BONE SCAN THAT SHOWED DEGENERATION OF THE LEFT FIBULA ALSO HIP JOINT AND FOOT, WELL HE SAID YOUR STILL WALKING AND HAVE MOTION SO ITS NOT THAT BAD. I ASK FOR SOMETHING ELSE TO TAKE BESIDES THE PRED SO I CAN GET OFF OF IT A LITTLE BIT MORE, HE SAID YOU DON'T NEED ANYTHING ELSE BESIDES THE METHO. I ASKED FOR SOMETHING FOR PAIN BESIDES JUST TYLENOL, NO ANSWER. HIS ANSWER TO THE WHOLE THING WAS LOOSE WEIGHT, NOW LET ME SAY THIS I HAVE PUT ON ABOUT 20 POUNDS IN THE LAST YEAR FROM THE PRED, BUT WHEN I STARTED PRED I WAS A SIZE 8 NOW I AM A SIZE 10 NOW TELL ME I S THAT TOO FAT, WILL HE HEAR ME ANYMORE IF I AM A SIZE 0 THAN A SIZE 10.

THERE ISN'T ANYONE ELSE IN THIS AREA THAT KNOWS ANYTHING ABOUT RP, SO WHAT AM I SUPPOSE TO DO. ALSO MY INSURANCE WON'T PAY UNLESS I HAVE A REFERALL , AND I KNOW HE WON'T GIVE ME A REFERRRAL, NOW I AM REALLY STUCK'

I FINALLY DEMANDED AND GOT A PRESCRIPTION FOR PRED IN 1 MG TABLETS INSTEAD OF 5 MGS. TOLD HIM I WAS ONLY GOING TO LOWER IT 1 MG EVERY 3 OR 4 WEEKS AND THAT WAS IT.

SORRY GUYS BUT I HAVE HAD ENOUGH, CANT' FIGHT HIM ANYMORE

JUST GO WITH THE FLOW, AND THE PAIN SO WHAT, TOLD MY HUBBY WHEN I AM DEAD JUST SUE HIM AND GET RICH.

SORRY, JUST BUMMED OUT TODAY, DR BELIEVES IF BLOOD WORK IS NORMAL EVERYTHING IS NORMAL DR THAT IS

DAWN