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Hi Carol,

I am not on Cytoxan, but looked it up in my Nursing Drug Reference book and

this is what I found. It does not list Shortness of breath as a side

effect, but it does say that the Respiratory status needs to be monitored

for " fibrosis " . This, in itself, would cause shortness of breath. Also,

under nursing considerations, it says that a Pulmonary Function Study and

Chest X-rays should be done before and during the time you are taking the

medicine. It also says to monitor for difficulty breathing, unproductive

cough, chest pain and tachypnea (rapid respirations). It does not list this

as a common side effect, but I think it would be worth calling your Dr. and

just letting him know this is going on. I can't tell how High or low your

dose is based on what you are taking because my drug book lists the doses by

weight (mg/kg). My guess would be that this is probably unrelated to your

medicine, but you never know. Do you think you could be coming down with

bronchitis or some sort of respiratory infection? Anyway, I don't know if

that was helpful or not-- you will definately get your BEST help from others

in the group who are taking it! Good luck, I hope it gets better. I have a

lot of problems with Shortness of breath also, but it is just related to the

RP.

Kathi

>From: arnoldamber@...

>Reply-To: Rpolychondritis

>To: Rpolychondritis

>Subject: trouble breathing

>Date: Mon, 22 Oct 2001 22:21:18 -0000

>

>Hi,

>

>I am very happy to have joined this group, thank you.

>

>I have been on 80 mgs. of prednisone for a month. For two weeks I

>have been on 150 mgs. of Cytoxan daily. I was on Cytoxan for about a

>week when I started to notice shortness of breath and difficulty

>breathing. Is there anyone out there that is on cytoxan and if so is

>there anyone who is having these breathing problems? Obviously I am

>very concerned. Should I accept this side effect or is this such a

>serious side effect that I should ask my doctor to take me off of

>it. Or, if this side effect is o.k. how long does it last? Has

>anyone had to be on 150 mgs. of Cytoxan or 80 mgs. of prednisone? And

>I was told that I have to be on Cytoxan for a year after my RP goes

>int remission. Is this typical?

>

>Thank you,

>

>Carol

>

_________________________________________________________________

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Hi Carol,

I am not on Cytoxan, but looked it up in my Nursing Drug Reference book and

this is what I found. It does not list Shortness of breath as a side

effect, but it does say that the Respiratory status needs to be monitored

for " fibrosis " . This, in itself, would cause shortness of breath. Also,

under nursing considerations, it says that a Pulmonary Function Study and

Chest X-rays should be done before and during the time you are taking the

medicine. It also says to monitor for difficulty breathing, unproductive

cough, chest pain and tachypnea (rapid respirations). It does not list this

as a common side effect, but I think it would be worth calling your Dr. and

just letting him know this is going on. I can't tell how High or low your

dose is based on what you are taking because my drug book lists the doses by

weight (mg/kg). My guess would be that this is probably unrelated to your

medicine, but you never know. Do you think you could be coming down with

bronchitis or some sort of respiratory infection? Anyway, I don't know if

that was helpful or not-- you will definately get your BEST help from others

in the group who are taking it! Good luck, I hope it gets better. I have a

lot of problems with Shortness of breath also, but it is just related to the

RP.

Kathi

>From: arnoldamber@...

>Reply-To: Rpolychondritis

>To: Rpolychondritis

>Subject: trouble breathing

>Date: Mon, 22 Oct 2001 22:21:18 -0000

>

>Hi,

>

>I am very happy to have joined this group, thank you.

>

>I have been on 80 mgs. of prednisone for a month. For two weeks I

>have been on 150 mgs. of Cytoxan daily. I was on Cytoxan for about a

>week when I started to notice shortness of breath and difficulty

>breathing. Is there anyone out there that is on cytoxan and if so is

>there anyone who is having these breathing problems? Obviously I am

>very concerned. Should I accept this side effect or is this such a

>serious side effect that I should ask my doctor to take me off of

>it. Or, if this side effect is o.k. how long does it last? Has

>anyone had to be on 150 mgs. of Cytoxan or 80 mgs. of prednisone? And

>I was told that I have to be on Cytoxan for a year after my RP goes

>int remission. Is this typical?

>

>Thank you,

>

>Carol

>

_________________________________________________________________

Get your FREE download of MSN Explorer at http://explorer.msn.com/intl.asp

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Hi Carol,

Sandy here. I am on Cytoxan and have been on it for a couple of months now. Shortness of breath is not a common side effect of taking Cytoxan. Were you having breathing problems before you started the meds? I think you should call your Doctor.

The usual side effects are: Low blood counts, increased chance of infection, Shingles, Nausea & vomiting, hair loss, bladder irritation

and possible bleeding from the bladder.

Cytoxan is metabolized in the kidneys rather than the liver which is why it causes bladder problems.

My Rheumy told me I cannot take it for more than 2 years because if taken longer it greatly increases your chances of developing bladder cancer or Leukemia.

Hope this helps.

Sandy

Hi,I am very happy to have joined this group, thank you.I have been on 80 mgs. of prednisone for a month. For two weeks I have been on 150 mgs. of Cytoxan daily. I was on Cytoxan for about a week when I started to notice shortness of breath and difficulty breathing. Is there anyone out there that is on cytoxan and if so is there anyone who is having these breathing problems? Obviously I am very concerned. Should I accept this side effect or is this such a serious side effect that I should ask my doctor to take me off of it. Or, if this side effect is o.k. how long does it last? Has anyone had to be on 150 mgs. of Cytoxan or 80 mgs. of prednisone? And I was told that I have to be on Cytoxan for a year after my RP goes int remission. Is this typical?Thank you,CarolDISCLAIMER!!WE ARE NOT MEDICAL PROFESSIONALS, THEREFORE ANY INFORMATION THAT IS RECEIVED HERE IS FROM EXPERIENCE ONLY. PLEASE CONSULT WITH YOUR DOCTOR BEFORE TRYING ANYTHING THAT IS SUGGESTED. WE ARE NOT A SUBSTITUTE FOR YOUR PHYSICIAN AND ARE NOT TRYING TO BE. REMEMBER EVERYONE IS DIFFERENT AND TREATMENT MAYBE DIFFERENT FOR MANY OF US. THANK YOU

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Hi Carol,

Sandy here. I am on Cytoxan and have been on it for a couple of months now. Shortness of breath is not a common side effect of taking Cytoxan. Were you having breathing problems before you started the meds? I think you should call your Doctor.

The usual side effects are: Low blood counts, increased chance of infection, Shingles, Nausea & vomiting, hair loss, bladder irritation

and possible bleeding from the bladder.

Cytoxan is metabolized in the kidneys rather than the liver which is why it causes bladder problems.

My Rheumy told me I cannot take it for more than 2 years because if taken longer it greatly increases your chances of developing bladder cancer or Leukemia.

Hope this helps.

Sandy

Hi,I am very happy to have joined this group, thank you.I have been on 80 mgs. of prednisone for a month. For two weeks I have been on 150 mgs. of Cytoxan daily. I was on Cytoxan for about a week when I started to notice shortness of breath and difficulty breathing. Is there anyone out there that is on cytoxan and if so is there anyone who is having these breathing problems? Obviously I am very concerned. Should I accept this side effect or is this such a serious side effect that I should ask my doctor to take me off of it. Or, if this side effect is o.k. how long does it last? Has anyone had to be on 150 mgs. of Cytoxan or 80 mgs. of prednisone? And I was told that I have to be on Cytoxan for a year after my RP goes int remission. Is this typical?Thank you,CarolDISCLAIMER!!WE ARE NOT MEDICAL PROFESSIONALS, THEREFORE ANY INFORMATION THAT IS RECEIVED HERE IS FROM EXPERIENCE ONLY. PLEASE CONSULT WITH YOUR DOCTOR BEFORE TRYING ANYTHING THAT IS SUGGESTED. WE ARE NOT A SUBSTITUTE FOR YOUR PHYSICIAN AND ARE NOT TRYING TO BE. REMEMBER EVERYONE IS DIFFERENT AND TREATMENT MAYBE DIFFERENT FOR MANY OF US. THANK YOU

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