Guest guest Posted October 22, 2001 Report Share Posted October 22, 2001 hi all.. just wanted to let you know that I finally made it back from Stanford University. My appt was for Friday, but had tests scheduled all the way til this morning. Am really worn out and just want to sleep. LOL The heart Dr was great and so was his asst. He has referred me to an ENT and a Rhemmy. Don't have those appts yet... I have to go back on Nov 7 and have an MRI of my chest and then see him on the 16th. He did a pulmonary function test today and EKG and echocariogram. He feels that the damage to my valves is definately RP related... He read all of the info I took him. Maybe I am making some progress. Just wanted to let everyone know that I am home safe and sound and tomorrow I will try to answer all the mail I am behind in. Hugs Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 22, 2001 Report Share Posted October 22, 2001 hi all.. just wanted to let you know that I finally made it back from Stanford University. My appt was for Friday, but had tests scheduled all the way til this morning. Am really worn out and just want to sleep. LOL The heart Dr was great and so was his asst. He has referred me to an ENT and a Rhemmy. Don't have those appts yet... I have to go back on Nov 7 and have an MRI of my chest and then see him on the 16th. He did a pulmonary function test today and EKG and echocariogram. He feels that the damage to my valves is definately RP related... He read all of the info I took him. Maybe I am making some progress. Just wanted to let everyone know that I am home safe and sound and tomorrow I will try to answer all the mail I am behind in. Hugs Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 22, 2001 Report Share Posted October 22, 2001 Hi, Sweetie. So glad you are back. Sure missed you. Here's praying things will get better for you real soon. Know that Mom loves you bunches and bunches. Get rest now. Mom Re: Finally back!! >hi all.. just wanted to let you know that I finally made it back from >Stanford University. My appt was for Friday, but had tests scheduled all the >way til this morning. Am really worn out and just want to sleep. LOL > >The heart Dr was great and so was his asst. He has referred me to an ENT and >a Rhemmy. Don't have those appts yet... I have to go back on Nov 7 and have >an MRI of my chest and then see him on the 16th. He did a pulmonary function >test today and EKG and echocariogram. He feels that the damage to my valves >is definately RP related... He read all of the info I took him. Maybe I am >making some progress. > >Just wanted to let everyone know that I am home safe and sound and tomorrow I >will try to answer all the mail I am behind in. > >Hugs > > > >DISCLAIMER!! >WE ARE NOT MEDICAL PROFESSIONALS, THEREFORE ANY INFORMATION THAT IS RECEIVED HERE IS FROM EXPERIENCE ONLY. PLEASE CONSULT WITH YOUR DOCTOR BEFORE TRYING ANYTHING THAT IS SUGGESTED. WE ARE NOT A SUBSTITUTE FOR YOUR PHYSICIAN AND ARE NOT TRYING TO BE. REMEMBER EVERYONE IS DIFFERENT AND TREATMENT MAYBE DIFFERENT FOR MANY OF US. THANK YOU > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 22, 2001 Report Share Posted October 22, 2001 Hi, Sweetie. So glad you are back. Sure missed you. Here's praying things will get better for you real soon. Know that Mom loves you bunches and bunches. Get rest now. Mom Re: Finally back!! >hi all.. just wanted to let you know that I finally made it back from >Stanford University. My appt was for Friday, but had tests scheduled all the >way til this morning. Am really worn out and just want to sleep. LOL > >The heart Dr was great and so was his asst. He has referred me to an ENT and >a Rhemmy. Don't have those appts yet... I have to go back on Nov 7 and have >an MRI of my chest and then see him on the 16th. He did a pulmonary function >test today and EKG and echocariogram. He feels that the damage to my valves >is definately RP related... He read all of the info I took him. Maybe I am >making some progress. > >Just wanted to let everyone know that I am home safe and sound and tomorrow I >will try to answer all the mail I am behind in. > >Hugs > > > >DISCLAIMER!! >WE ARE NOT MEDICAL PROFESSIONALS, THEREFORE ANY INFORMATION THAT IS RECEIVED HERE IS FROM EXPERIENCE ONLY. PLEASE CONSULT WITH YOUR DOCTOR BEFORE TRYING ANYTHING THAT IS SUGGESTED. WE ARE NOT A SUBSTITUTE FOR YOUR PHYSICIAN AND ARE NOT TRYING TO BE. REMEMBER EVERYONE IS DIFFERENT AND TREATMENT MAYBE DIFFERENT FOR MANY OF US. THANK YOU > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 22, 2001 Report Share Posted October 22, 2001 , So glad you are back..Sounds like you have a good doc, but even better is you are going to see a Rheumy and ENT. This is great news!!! Praying your new Docs work out for you. I was really getting worried you were never going to find a good Rheumy. Love Ya, Sandy hi all.. just wanted to let you know that I finally made it back from Stanford University. My appt was for Friday, but had tests scheduled all the way til this morning. Am really worn out and just want to sleep. LOL The heart Dr was great and so was his asst. He has referred me to an ENT and a Rhemmy. Don't have those appts yet... I have to go back on Nov 7 and have an MRI of my chest and then see him on the 16th. He did a pulmonary function test today and EKG and echocariogram. He feels that the damage to my valves is definately RP related... He read all of the info I took him. Maybe I am making some progress. Just wanted to let everyone know that I am home safe and sound and tomorrow I will try to answer all the mail I am behind in. HugsDISCLAIMER!!WE ARE NOT MEDICAL PROFESSIONALS, THEREFORE ANY INFORMATION THAT IS RECEIVED HERE IS FROM EXPERIENCE ONLY. PLEASE CONSULT WITH YOUR DOCTOR BEFORE TRYING ANYTHING THAT IS SUGGESTED. WE ARE NOT A SUBSTITUTE FOR YOUR PHYSICIAN AND ARE NOT TRYING TO BE. REMEMBER EVERYONE IS DIFFERENT AND TREATMENT MAYBE DIFFERENT FOR MANY OF US. THANK YOU Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 22, 2001 Report Share Posted October 22, 2001 , So glad you are back..Sounds like you have a good doc, but even better is you are going to see a Rheumy and ENT. This is great news!!! Praying your new Docs work out for you. I was really getting worried you were never going to find a good Rheumy. Love Ya, Sandy hi all.. just wanted to let you know that I finally made it back from Stanford University. My appt was for Friday, but had tests scheduled all the way til this morning. Am really worn out and just want to sleep. LOL The heart Dr was great and so was his asst. He has referred me to an ENT and a Rhemmy. Don't have those appts yet... I have to go back on Nov 7 and have an MRI of my chest and then see him on the 16th. He did a pulmonary function test today and EKG and echocariogram. He feels that the damage to my valves is definately RP related... He read all of the info I took him. Maybe I am making some progress. Just wanted to let everyone know that I am home safe and sound and tomorrow I will try to answer all the mail I am behind in. HugsDISCLAIMER!!WE ARE NOT MEDICAL PROFESSIONALS, THEREFORE ANY INFORMATION THAT IS RECEIVED HERE IS FROM EXPERIENCE ONLY. PLEASE CONSULT WITH YOUR DOCTOR BEFORE TRYING ANYTHING THAT IS SUGGESTED. WE ARE NOT A SUBSTITUTE FOR YOUR PHYSICIAN AND ARE NOT TRYING TO BE. REMEMBER EVERYONE IS DIFFERENT AND TREATMENT MAYBE DIFFERENT FOR MANY OF US. THANK YOU Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 22, 2001 Report Share Posted October 22, 2001 Hi :-) It's good to have you back! I noticed that you weren't posting and I must have missed the one telling us that you would be on a road trip. Let's hope this is the true beginning of good things for you! What did the docs say about your Biaxin? I hope they will keep you on it. It looks like you still have quite a few appointments...hang in there, dear lady :-) ~Connie H. > hi all.. just wanted to let you know that I finally made it back from > Stanford University. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 22, 2001 Report Share Posted October 22, 2001 Hi :-) It's good to have you back! I noticed that you weren't posting and I must have missed the one telling us that you would be on a road trip. Let's hope this is the true beginning of good things for you! What did the docs say about your Biaxin? I hope they will keep you on it. It looks like you still have quite a few appointments...hang in there, dear lady :-) ~Connie H. > hi all.. just wanted to let you know that I finally made it back from > Stanford University. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 23, 2001 Report Share Posted October 23, 2001 In a message dated 10/22/01 5:55:18 PM Pacific Daylight Time, hcf@... writes: << Know that Mom loves you bunches and bunches. Get rest now. >> Thanks mom, but if I rest any more, I think I'll turn into my bed... LOL I love you bunches too. hugs Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 23, 2001 Report Share Posted October 23, 2001 In a message dated 10/22/01 5:55:18 PM Pacific Daylight Time, hcf@... writes: << Know that Mom loves you bunches and bunches. Get rest now. >> Thanks mom, but if I rest any more, I think I'll turn into my bed... LOL I love you bunches too. hugs Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 23, 2001 Report Share Posted October 23, 2001 In a message dated 10/22/01 7:53:47 PM Pacific Daylight Time, jhache@... writes: << ip. Let's hope this is the true beginning of good things for you! What did the docs say about your Biaxin? I hope they will keep you on it. >> Connie the heart dr didn't see any problems with it, but the rheumy might have another opinion on that one. LOL I know that my PCP will keep giving it to me though. I have lowered my pred to 9 mg and doing great...The cardiologist did say it was a good thing that I wasn't on the metho now with the possibility of surgery. It only complicates matters... So I guess I made the right choice on that one. Not planning on having any surgery though.... I will try next week to lower to 8mg... keep your fingers crossed. hugs Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 23, 2001 Report Share Posted October 23, 2001 In a message dated 10/22/01 6:32:54 PM Pacific Daylight Time, biglou5685@... writes: << I was really getting worried you were never going to find a good Rheumy. >> Sandy thanks.... I hope I get a good rheumy there. LOL I haven't seen him yet. The heart dr was wonderful... I will be keeping my fingers crossed. Hope you are doing okay... How is the cytoxin working? I'm praying it is working. hugs Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 23, 2001 Report Share Posted October 23, 2001 In a message dated 10/22/01 7:53:47 PM Pacific Daylight Time, jhache@... writes: << ip. Let's hope this is the true beginning of good things for you! What did the docs say about your Biaxin? I hope they will keep you on it. >> Connie the heart dr didn't see any problems with it, but the rheumy might have another opinion on that one. LOL I know that my PCP will keep giving it to me though. I have lowered my pred to 9 mg and doing great...The cardiologist did say it was a good thing that I wasn't on the metho now with the possibility of surgery. It only complicates matters... So I guess I made the right choice on that one. Not planning on having any surgery though.... I will try next week to lower to 8mg... keep your fingers crossed. hugs Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 23, 2001 Report Share Posted October 23, 2001 In a message dated 10/22/01 6:32:54 PM Pacific Daylight Time, biglou5685@... writes: << I was really getting worried you were never going to find a good Rheumy. >> Sandy thanks.... I hope I get a good rheumy there. LOL I haven't seen him yet. The heart dr was wonderful... I will be keeping my fingers crossed. Hope you are doing okay... How is the cytoxin working? I'm praying it is working. hugs Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 23, 2001 Report Share Posted October 23, 2001 Sandy it is so good to hear that something is finally working somewhere on you! I'm really sorry about the side effects... It is really good to see you post again.. or have I just been missing mail? LOL Tell Lou and the girls hello for me. hugs In a message dated 10/23/01 4:41:03 PM Pacific Daylight Time, biglou5685@... writes: << The Cytoxan seems to have put my Vasculitis into remission. YEAH!! It is also helping the Sjogrens but has had no effect on the RP yet. I'm still hopefull, I can go up to 100mg. more a day if I have to.I have 4 DR. appointments next week so I'll see what happens. I do have to say though that the Cytoxan has been the nastiest as far as side effects go but I can deal with it if it works. >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 23, 2001 Report Share Posted October 23, 2001 Sandy it is so good to hear that something is finally working somewhere on you! I'm really sorry about the side effects... It is really good to see you post again.. or have I just been missing mail? LOL Tell Lou and the girls hello for me. hugs In a message dated 10/23/01 4:41:03 PM Pacific Daylight Time, biglou5685@... writes: << The Cytoxan seems to have put my Vasculitis into remission. YEAH!! It is also helping the Sjogrens but has had no effect on the RP yet. I'm still hopefull, I can go up to 100mg. more a day if I have to.I have 4 DR. appointments next week so I'll see what happens. I do have to say though that the Cytoxan has been the nastiest as far as side effects go but I can deal with it if it works. >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 23, 2001 Report Share Posted October 23, 2001 , I'm keeping my fingers crossed too that this new Rheumy will be good. The Cytoxan seems to have put my Vasculitis into remission. YEAH!! It is also helping the Sjogrens but has had no effect on the RP yet. I'm still hopefull, I can go up to 100mg. more a day if I have to.I have 4 DR. appointments next week so I'll see what happens. I do have to say though that the Cytoxan has been the nastiest as far as side effects go but I can deal with it if it works. Love Ya, Sandy << I was really getting worried you were never going to find a good Rheumy. >>Sandy thanks.... I hope I get a good rheumy there. LOL I haven't seen him yet. The heart dr was wonderful... I will be keeping my fingers crossed. Hope you are doing okay... How is the cytoxin working? I'm praying it is working. hugs DISCLAIMER!!WE ARE NOT MEDICAL PROFESSIONALS, THEREFORE ANY INFORMATION THAT IS RECEIVED HERE IS FROM EXPERIENCE ONLY. PLEASE CONSULT WITH YOUR DOCTOR BEFORE TRYING ANYTHING THAT IS SUGGESTED. WE ARE NOT A SUBSTITUTE FOR YOUR PHYSICIAN AND ARE NOT TRYING TO BE. REMEMBER EVERYONE IS DIFFERENT AND TREATMENT MAYBE DIFFERENT FOR MANY OF US. THANK YOU Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 23, 2001 Report Share Posted October 23, 2001 , I'm keeping my fingers crossed too that this new Rheumy will be good. The Cytoxan seems to have put my Vasculitis into remission. YEAH!! It is also helping the Sjogrens but has had no effect on the RP yet. I'm still hopefull, I can go up to 100mg. more a day if I have to.I have 4 DR. appointments next week so I'll see what happens. I do have to say though that the Cytoxan has been the nastiest as far as side effects go but I can deal with it if it works. Love Ya, Sandy << I was really getting worried you were never going to find a good Rheumy. >>Sandy thanks.... I hope I get a good rheumy there. LOL I haven't seen him yet. The heart dr was wonderful... I will be keeping my fingers crossed. Hope you are doing okay... How is the cytoxin working? I'm praying it is working. hugs DISCLAIMER!!WE ARE NOT MEDICAL PROFESSIONALS, THEREFORE ANY INFORMATION THAT IS RECEIVED HERE IS FROM EXPERIENCE ONLY. PLEASE CONSULT WITH YOUR DOCTOR BEFORE TRYING ANYTHING THAT IS SUGGESTED. WE ARE NOT A SUBSTITUTE FOR YOUR PHYSICIAN AND ARE NOT TRYING TO BE. REMEMBER EVERYONE IS DIFFERENT AND TREATMENT MAYBE DIFFERENT FOR MANY OF US. THANK YOU Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 29, 2001 Report Share Posted October 29, 2001 Dear Sandy I recently saw my rheumatologist and he thinks I now have Sjogrens too. I thought one autoimmune disease was enough! Could you send me whatever information you have on it, and/or what your taking for it? What kind of eye drops do you use etc,? Thanks so much it would really be a help. Sue Park Re: Finally back!! , I'm keeping my fingers crossed too that this new Rheumy will be good. The Cytoxan seems to have put my Vasculitis into remission. YEAH!! It is also helping the Sjogrens but has had no effect on the RP yet. I'm still hopefull, I can go up to 100mg. more a day if I have to.I have 4 DR. appointments next week so I'll see what happens. I do have to say though that the Cytoxan has been the nastiest as far as side effects go but I can deal with it if it works. Love Ya, Sandy << I was really getting worried you were never going to find a good Rheumy. >> Sandy thanks.... I hope I get a good rheumy there. LOL I haven't seen him yet. The heart dr was wonderful... I will be keeping my fingers crossed. Hope you are doing okay... How is the cytoxin working? I'm praying it is working. hugs DISCLAIMER!! WE ARE NOT MEDICAL PROFESSIONALS, THEREFORE ANY INFORMATION THAT IS RECEIVED HERE IS FROM EXPERIENCE ONLY. PLEASE CONSULT WITH YOUR DOCTOR BEFORE TRYING ANYTHING THAT IS SUGGESTED. WE ARE NOT A SUBSTITUTE FOR YOUR PHYSICIAN AND ARE NOT TRYING TO BE. REMEMBER EVERYONE IS DIFFERENT AND TREATMENT MAYBE DIFFERENT FOR MANY OF US. THANK YOU Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 29, 2001 Report Share Posted October 29, 2001 Dear Sandy I recently saw my rheumatologist and he thinks I now have Sjogrens too. I thought one autoimmune disease was enough! Could you send me whatever information you have on it, and/or what your taking for it? What kind of eye drops do you use etc,? Thanks so much it would really be a help. Sue Park Re: Finally back!! , I'm keeping my fingers crossed too that this new Rheumy will be good. The Cytoxan seems to have put my Vasculitis into remission. YEAH!! It is also helping the Sjogrens but has had no effect on the RP yet. I'm still hopefull, I can go up to 100mg. more a day if I have to.I have 4 DR. appointments next week so I'll see what happens. I do have to say though that the Cytoxan has been the nastiest as far as side effects go but I can deal with it if it works. Love Ya, Sandy << I was really getting worried you were never going to find a good Rheumy. >> Sandy thanks.... I hope I get a good rheumy there. LOL I haven't seen him yet. The heart dr was wonderful... I will be keeping my fingers crossed. Hope you are doing okay... How is the cytoxin working? I'm praying it is working. hugs DISCLAIMER!! WE ARE NOT MEDICAL PROFESSIONALS, THEREFORE ANY INFORMATION THAT IS RECEIVED HERE IS FROM EXPERIENCE ONLY. PLEASE CONSULT WITH YOUR DOCTOR BEFORE TRYING ANYTHING THAT IS SUGGESTED. WE ARE NOT A SUBSTITUTE FOR YOUR PHYSICIAN AND ARE NOT TRYING TO BE. REMEMBER EVERYONE IS DIFFERENT AND TREATMENT MAYBE DIFFERENT FOR MANY OF US. THANK YOU Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 29, 2001 Report Share Posted October 29, 2001 Sandy thanks alot I really appreciate the information. The rheumatologist ran a bunch of blood tests and hopefully I'll know more next week. The dry eyes, mouth, and skin, bother me alot these days. Hopefully the eye drops will help and with the nasal spray my sores in my nose will clear up. Thanks for the advise, I'll try that eye drop next. Thanks again, Sue Park Re: Finally back!! > > > , > I'm keeping my fingers crossed too that this new Rheumy will be good. > The Cytoxan seems to have put my Vasculitis into remission. YEAH!! It is also helping the Sjogrens but has had no effect on the RP yet. > I'm still hopefull, I can go up to 100mg. more a day if I have to.I have 4 DR. appointments next week so I'll see what happens. I do have to say though that the Cytoxan has been the nastiest as far as side effects go but I can deal with it if it works. > > Love Ya, > Sandy > > > > > << I was really getting worried you were never going to find a good Rheumy. >> > Sandy thanks.... I hope I get a good rheumy there. LOL I haven't seen him > yet. The heart dr was wonderful... I will be keeping my fingers crossed. > Hope you are doing okay... How is the cytoxin working? I'm praying it is > working. > > hugs > > > > > DISCLAIMER!! > WE ARE NOT MEDICAL PROFESSIONALS, THEREFORE ANY INFORMATION THAT IS RECEIVED HERE IS FROM EXPERIENCE ONLY. PLEASE CONSULT WITH YOUR DOCTOR BEFORE TRYING ANYTHING THAT IS SUGGESTED. WE ARE NOT A SUBSTITUTE FOR YOUR PHYSICIAN AND ARE NOT TRYING TO BE. REMEMBER EVERYONE IS DIFFERENT AND TREATMENT MAYBE DIFFERENT FOR MANY OF US. THANK YOU > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 29, 2001 Report Share Posted October 29, 2001 Sandy thanks alot I really appreciate the information. The rheumatologist ran a bunch of blood tests and hopefully I'll know more next week. The dry eyes, mouth, and skin, bother me alot these days. Hopefully the eye drops will help and with the nasal spray my sores in my nose will clear up. Thanks for the advise, I'll try that eye drop next. Thanks again, Sue Park Re: Finally back!! > > > , > I'm keeping my fingers crossed too that this new Rheumy will be good. > The Cytoxan seems to have put my Vasculitis into remission. YEAH!! It is also helping the Sjogrens but has had no effect on the RP yet. > I'm still hopefull, I can go up to 100mg. more a day if I have to.I have 4 DR. appointments next week so I'll see what happens. I do have to say though that the Cytoxan has been the nastiest as far as side effects go but I can deal with it if it works. > > Love Ya, > Sandy > > > > > << I was really getting worried you were never going to find a good Rheumy. >> > Sandy thanks.... I hope I get a good rheumy there. LOL I haven't seen him > yet. The heart dr was wonderful... I will be keeping my fingers crossed. > Hope you are doing okay... How is the cytoxin working? I'm praying it is > working. > > hugs > > > > > DISCLAIMER!! > WE ARE NOT MEDICAL PROFESSIONALS, THEREFORE ANY INFORMATION THAT IS RECEIVED HERE IS FROM EXPERIENCE ONLY. PLEASE CONSULT WITH YOUR DOCTOR BEFORE TRYING ANYTHING THAT IS SUGGESTED. WE ARE NOT A SUBSTITUTE FOR YOUR PHYSICIAN AND ARE NOT TRYING TO BE. REMEMBER EVERYONE IS DIFFERENT AND TREATMENT MAYBE DIFFERENT FOR MANY OF US. THANK YOU > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 30, 2001 Report Share Posted October 30, 2001 Hi Sue P., Here is a sight that has good info on sjogrens... http://www.orthop.washington.edu/arthritis/types/sjogrens/01 I use Genteal Lubricant eye gel and for my nose I have a cream made by the Cleveland Clinic. Once the furnace goes on we run humidifiers, that really helps. My skin gets really bad. My dermatologist gave me a script for a skin cream today but my insurance won't cover it. It's $53.00 a tube so I guess I won't be filling that prescription. I have noticed an improvement since I went on Cytoxan. The biggest problem I have is swallowing, hard to swallow when your throat is so dry. It limits what I can eat. I drink lots of fluid, I always have a bottle of water with me. Let me know how you do. Hugs, Sandy Re: Finally back!! , I'm keeping my fingers crossed too that this new Rheumy will be good. The Cytoxan seems to have put my Vasculitis into remission. YEAH!! It is also helping the Sjogrens but has had no effect on the RP yet. I'm still hopefull, I can go up to 100mg. more a day if I have to.I have 4 DR. appointments next week so I'll see what happens. I do have to say though that the Cytoxan has been the nastiest as far as side effects go but I can deal with it if it works. Love Ya, Sandy << I was really getting worried you were never going to find a good Rheumy. >> Sandy thanks.... I hope I get a good rheumy there. LOL I haven't seen him yet. The heart dr was wonderful... I will be keeping my fingers crossed. Hope you are doing okay... How is the cytoxin working? I'm praying it is working. hugs DISCLAIMER!! WE ARE NOT MEDICAL PROFESSIONALS, THEREFORE ANY INFORMATION THAT IS RECEIVED HERE IS FROM EXPERIENCE ONLY. PLEASE CONSULT WITH YOUR DOCTOR BEFORE TRYING ANYTHING THAT IS SUGGESTED. WE ARE NOT A SUBSTITUTE FOR YOUR PHYSICIAN AND ARE NOT TRYING TO BE. REMEMBER EVERYONE IS DIFFERENT AND TREATMENT MAYBE DIFFERENT FOR MANY OF US. THANK YOU Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 30, 2001 Report Share Posted October 30, 2001 Hi Sue P., Here is a sight that has good info on sjogrens... http://www.orthop.washington.edu/arthritis/types/sjogrens/01 I use Genteal Lubricant eye gel and for my nose I have a cream made by the Cleveland Clinic. Once the furnace goes on we run humidifiers, that really helps. My skin gets really bad. My dermatologist gave me a script for a skin cream today but my insurance won't cover it. It's $53.00 a tube so I guess I won't be filling that prescription. I have noticed an improvement since I went on Cytoxan. The biggest problem I have is swallowing, hard to swallow when your throat is so dry. It limits what I can eat. I drink lots of fluid, I always have a bottle of water with me. Let me know how you do. Hugs, Sandy Re: Finally back!! , I'm keeping my fingers crossed too that this new Rheumy will be good. The Cytoxan seems to have put my Vasculitis into remission. YEAH!! It is also helping the Sjogrens but has had no effect on the RP yet. I'm still hopefull, I can go up to 100mg. more a day if I have to.I have 4 DR. appointments next week so I'll see what happens. I do have to say though that the Cytoxan has been the nastiest as far as side effects go but I can deal with it if it works. Love Ya, Sandy << I was really getting worried you were never going to find a good Rheumy. >> Sandy thanks.... I hope I get a good rheumy there. LOL I haven't seen him yet. The heart dr was wonderful... I will be keeping my fingers crossed. Hope you are doing okay... How is the cytoxin working? I'm praying it is working. hugs DISCLAIMER!! WE ARE NOT MEDICAL PROFESSIONALS, THEREFORE ANY INFORMATION THAT IS RECEIVED HERE IS FROM EXPERIENCE ONLY. PLEASE CONSULT WITH YOUR DOCTOR BEFORE TRYING ANYTHING THAT IS SUGGESTED. WE ARE NOT A SUBSTITUTE FOR YOUR PHYSICIAN AND ARE NOT TRYING TO BE. REMEMBER EVERYONE IS DIFFERENT AND TREATMENT MAYBE DIFFERENT FOR MANY OF US. THANK YOU Quote Link to comment Share on other sites More sharing options...
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