Guest guest Posted March 18, 2010 Report Share Posted March 18, 2010 Yes, and for me at least, it boosted them within days of starting a very lose dose! I was surprised and thrilled. Well, that's what LDN does, boosts endorphins. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 18, 2010 Report Share Posted March 18, 2010 Yes, and for me at least, it boosted them within days of starting a very lose dose! I was surprised and thrilled. Well, that's what LDN does, boosts endorphins. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 19, 2010 Report Share Posted March 19, 2010 I have had to stop yoga and pilates since developing upper GI disorders; any abdominal pressure (bending) sets off my Sphincter of Oddi [sigh] I only recently, after six years on SCD, was able to start up beginning-level tai chi. During the past six years all I could do was walk, and even that has been a challenge most days since I’m also dealing with neuropathies. My advice is to just stick to walking until you aren’t as symptomatic. Much of your body’s energy requirements is going into dealing with your digestive disruption and healing, so there isn’t much left to sustain physical activity. Walking is a good but mild exercise, less impact on your body’s energy levels. On bad days you can just take a short walk, but on better days you can walk further, or take several walks. As your body heals you should be able to do more physical activity. Kim M. SCD 6 years Sphincter of Oddi dysfunction 6+ years neurological & spinal deterioration 3+ years >>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>> What have people done for endorphines when they can't exercise? I used to do hot yoga 4 times/week, walk, hike and dance in my livingroom. Now I can only walk on my good days Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 19, 2010 Report Share Posted March 19, 2010 I have had to stop yoga and pilates since developing upper GI disorders; any abdominal pressure (bending) sets off my Sphincter of Oddi [sigh] I only recently, after six years on SCD, was able to start up beginning-level tai chi. During the past six years all I could do was walk, and even that has been a challenge most days since I’m also dealing with neuropathies. My advice is to just stick to walking until you aren’t as symptomatic. Much of your body’s energy requirements is going into dealing with your digestive disruption and healing, so there isn’t much left to sustain physical activity. Walking is a good but mild exercise, less impact on your body’s energy levels. On bad days you can just take a short walk, but on better days you can walk further, or take several walks. As your body heals you should be able to do more physical activity. Kim M. SCD 6 years Sphincter of Oddi dysfunction 6+ years neurological & spinal deterioration 3+ years >>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>> What have people done for endorphines when they can't exercise? I used to do hot yoga 4 times/week, walk, hike and dance in my livingroom. Now I can only walk on my good days Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 19, 2010 Report Share Posted March 19, 2010 Thanks for your good toughts my way Becky. It was getting to the point where nothing I thought of or did would bring any sense of well-being. I've cut some stress off my plate (no more school next quarter, moving in with the folks), and I've started sleeping more. Going back up on prednisone may have helped too. I haven't been able to drive due to anemia, but with the sun lately, my front porch is awesome. I've been doing homework out there and drinking my peppermint tea. I think all of the above has helped. More sleep definitely - more able to keep things in perspective and enjoy the ride, even if it is a bumpy one, and definitely not the one I expected when I started getting sick at age 20. C'est la vie! At least the sun is shining! Kat > > > > > What have people done for endorphines when they can't exercise? I used to do hot yoga 4 times/week, walk, hike and dance in my livingroom. Now I can only walk on my good days. The other days are too painful, mostly from swelling caused by prednisone. Even when I am not in pain and feel up to it, my yoga routine causes more bleeding, as does dancing, or anything aerobic. I havne't been able to exercise for the better part of a year essentially and my endorphines went from " I feel happy most of the time, things feel good, I feel a happy response to situations " to " nothing makes me feel good and I just want to curl up in a ball or punch something and cry. " I know this is hormone related, but it's hard to get through, and the worse I feel, the worse my symptoms get. > > > > > > Any advice? > > > > > > (I broke down and ate less than 1/4 tsp of cocoa powder two nights ago, and again yesterday and I immediately felt better and my pain went away. I was able to do schoolwork and felt happy. Didn't last more than 3ish hours though, and I know I should not keep it up.) > > > > Well, that's what LDN does, boosts endorphins. > > > > Mara > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 19, 2010 Report Share Posted March 19, 2010 Thanks for your good toughts my way Becky. It was getting to the point where nothing I thought of or did would bring any sense of well-being. I've cut some stress off my plate (no more school next quarter, moving in with the folks), and I've started sleeping more. Going back up on prednisone may have helped too. I haven't been able to drive due to anemia, but with the sun lately, my front porch is awesome. I've been doing homework out there and drinking my peppermint tea. I think all of the above has helped. More sleep definitely - more able to keep things in perspective and enjoy the ride, even if it is a bumpy one, and definitely not the one I expected when I started getting sick at age 20. C'est la vie! At least the sun is shining! Kat > > > > > What have people done for endorphines when they can't exercise? I used to do hot yoga 4 times/week, walk, hike and dance in my livingroom. Now I can only walk on my good days. The other days are too painful, mostly from swelling caused by prednisone. Even when I am not in pain and feel up to it, my yoga routine causes more bleeding, as does dancing, or anything aerobic. I havne't been able to exercise for the better part of a year essentially and my endorphines went from " I feel happy most of the time, things feel good, I feel a happy response to situations " to " nothing makes me feel good and I just want to curl up in a ball or punch something and cry. " I know this is hormone related, but it's hard to get through, and the worse I feel, the worse my symptoms get. > > > > > > Any advice? > > > > > > (I broke down and ate less than 1/4 tsp of cocoa powder two nights ago, and again yesterday and I immediately felt better and my pain went away. I was able to do schoolwork and felt happy. Didn't last more than 3ish hours though, and I know I should not keep it up.) > > > > Well, that's what LDN does, boosts endorphins. > > > > Mara > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 19, 2010 Report Share Posted March 19, 2010 It might be working for you perfectly fine, but just not countering your fatique which comes from a different illness source that endorphins won't cure. Or, it could be that you are one of the people that it will take a lot of time for it to work. They say it takes 6 months for maximum effect. Mara > LDN is definitely worth a shot, but it doesn't provide the endorphin boost to everyone, unfortunately. I was really hopeful that it would be my answer to fatigue, but nada. I don't think I'm yeasty (spit test is good, no more itchy rashes, rotating anti-fungals), so either LDN just doesn't work for me, or there's something else wrong with my body. It's worth trying though, just in case it might help you out. > > Holly > Crohn's > SCD 12/01/08 > > >> >>> What have people done for endorphines when they can't exercise? I usedto >>> do hot yoga 4 times/week, walk, hike and dance in my livingroom. NowI >>> can only walk on my good days. The other days are too painful, mostly >>> from swelling caused by prednisone. Even when I am not in pain and feel >>> up to it, my yoga routine causes more bleeding, as does dancing, or >>> anything aerobic. I havne't been able to exercise for the better part of >>> a year essentially and my endorphines went from " I feel happy most ofthe >>> time, things feel good, I feel a happy response to situations " to >>> " nothing makes me feel good and I just want to curl up in a ball orpunch >>> something and cry. " I know this is hormone related, but it's hardto get >>> through, and the worse I feel, the worse my symptoms get. >>> >>> Any advice? >> >> Take LDN. >> >> n >> >> >> >> -- >> Now available. A fine gift for cat lovers: >> Confessions of a Cataholic: My Life With the 10 Cats Who Caused My >> Addiction >> by n Van Til >> www.wordpowerpublishing.com ; signed copies; free shipping in U.S., >> reduced shipping elsewhere >> > > > > > ------------------------------------ > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 19, 2010 Report Share Posted March 19, 2010 It might be working for you perfectly fine, but just not countering your fatique which comes from a different illness source that endorphins won't cure. Or, it could be that you are one of the people that it will take a lot of time for it to work. They say it takes 6 months for maximum effect. Mara > LDN is definitely worth a shot, but it doesn't provide the endorphin boost to everyone, unfortunately. I was really hopeful that it would be my answer to fatigue, but nada. I don't think I'm yeasty (spit test is good, no more itchy rashes, rotating anti-fungals), so either LDN just doesn't work for me, or there's something else wrong with my body. It's worth trying though, just in case it might help you out. > > Holly > Crohn's > SCD 12/01/08 > > >> >>> What have people done for endorphines when they can't exercise? I usedto >>> do hot yoga 4 times/week, walk, hike and dance in my livingroom. NowI >>> can only walk on my good days. The other days are too painful, mostly >>> from swelling caused by prednisone. Even when I am not in pain and feel >>> up to it, my yoga routine causes more bleeding, as does dancing, or >>> anything aerobic. I havne't been able to exercise for the better part of >>> a year essentially and my endorphines went from " I feel happy most ofthe >>> time, things feel good, I feel a happy response to situations " to >>> " nothing makes me feel good and I just want to curl up in a ball orpunch >>> something and cry. " I know this is hormone related, but it's hardto get >>> through, and the worse I feel, the worse my symptoms get. >>> >>> Any advice? >> >> Take LDN. >> >> n >> >> >> >> -- >> Now available. A fine gift for cat lovers: >> Confessions of a Cataholic: My Life With the 10 Cats Who Caused My >> Addiction >> by n Van Til >> www.wordpowerpublishing.com ; signed copies; free shipping in U.S., >> reduced shipping elsewhere >> > > > > > ------------------------------------ > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 19, 2010 Report Share Posted March 19, 2010 How do you know when to increase? I'm feeling out of sorts. Not sleeping or exhausted during the day but not exactly feeling like doing much. Has anyone 'weepy' ever been affected by LDN? In a good way...? Thanks, Debbie 40 cd > It might be working for you perfectly fine, but just > not countering your fatique which comes from > a different illness source that endorphins won't cure. > > Or, it could be that you are one of the people that > it will take a lot of time for it to work. They > say it takes 6 months for maximum effect. > > Mara > > > > >> LDN is definitely worth a shot, but it doesn't provide the endorphin boost >> to everyone, unfortunately. I was really hopeful that it would be my >> answer to fatigue, but nada. I don't think I'm yeasty (spit test is good, >> no more itchy rashes, rotating anti-fungals), so either LDN just doesn't >> work for me, or there's something else wrong with my body. It's worth >> trying though, just in case it might help you out. >> >> Holly >> Crohn's >> SCD 12/01/08 >> >> >>> >>>> What have people done for endorphines when they can't exercise? I usedto >>>> >>>> do hot yoga 4 times/week, walk, hike and dance in my livingroom. NowI >>>> can only walk on my good days. The other days are too painful, mostly >>>> from swelling caused by prednisone. Even when I am not in pain and feel >>>> up to it, my yoga routine causes more bleeding, as does dancing, or >>>> anything aerobic. I havne't been able to exercise for the better part of >>>> >>>> a year essentially and my endorphines went from " I feel happy most ofthe >>>> >>>> time, things feel good, I feel a happy response to situations " to >>>> " nothing makes me feel good and I just want to curl up in a ball orpunch >>>> >>>> something and cry. " I know this is hormone related, but it's hardto get >>>> >>>> through, and the worse I feel, the worse my symptoms get. >>>> >>>> Any advice? >>> >>> Take LDN. >>> >>> n >>> >>> >>> >>> -- >>> Now available. A fine gift for cat lovers: >>> Confessions of a Cataholic: My Life With the 10 Cats Who Caused My >>> Addiction >>> by n Van Til >>> www.wordpowerpublishing.com ; signed copies; free shipping in U.S., >>> reduced shipping elsewhere >>> >> >> >> >> >> ------------------------------------ >> >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 19, 2010 Report Share Posted March 19, 2010 How do you know when to increase? I'm feeling out of sorts. Not sleeping or exhausted during the day but not exactly feeling like doing much. Has anyone 'weepy' ever been affected by LDN? In a good way...? Thanks, Debbie 40 cd > It might be working for you perfectly fine, but just > not countering your fatique which comes from > a different illness source that endorphins won't cure. > > Or, it could be that you are one of the people that > it will take a lot of time for it to work. They > say it takes 6 months for maximum effect. > > Mara > > > > >> LDN is definitely worth a shot, but it doesn't provide the endorphin boost >> to everyone, unfortunately. I was really hopeful that it would be my >> answer to fatigue, but nada. I don't think I'm yeasty (spit test is good, >> no more itchy rashes, rotating anti-fungals), so either LDN just doesn't >> work for me, or there's something else wrong with my body. It's worth >> trying though, just in case it might help you out. >> >> Holly >> Crohn's >> SCD 12/01/08 >> >> >>> >>>> What have people done for endorphines when they can't exercise? I usedto >>>> >>>> do hot yoga 4 times/week, walk, hike and dance in my livingroom. NowI >>>> can only walk on my good days. The other days are too painful, mostly >>>> from swelling caused by prednisone. Even when I am not in pain and feel >>>> up to it, my yoga routine causes more bleeding, as does dancing, or >>>> anything aerobic. I havne't been able to exercise for the better part of >>>> >>>> a year essentially and my endorphines went from " I feel happy most ofthe >>>> >>>> time, things feel good, I feel a happy response to situations " to >>>> " nothing makes me feel good and I just want to curl up in a ball orpunch >>>> >>>> something and cry. " I know this is hormone related, but it's hardto get >>>> >>>> through, and the worse I feel, the worse my symptoms get. >>>> >>>> Any advice? >>> >>> Take LDN. >>> >>> n >>> >>> >>> >>> -- >>> Now available. A fine gift for cat lovers: >>> Confessions of a Cataholic: My Life With the 10 Cats Who Caused My >>> Addiction >>> by n Van Til >>> www.wordpowerpublishing.com ; signed copies; free shipping in U.S., >>> reduced shipping elsewhere >>> >> >> >> >> >> ------------------------------------ >> >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 20, 2010 Report Share Posted March 20, 2010 Or it may simply take a lot longer. I've had excellent results from LDN in a few months on small things, but nothing yet on fibro or pain, really. Fortunately I didn't expect quick results. And it is quite true that (as a doctor told me years ago) you can have more than one problem causing the same effect. Many will cause exhaustion. I've been taking it for almost 3 months now. I have close to a year supply (I bought thirty 50mg tablets), so I'll keep taking it at least that long. I'm glad I'm still in the window for it to take effect! Holly Crohn's SCD 12/01/08 > > It might be working for you perfectly fine, but just > not countering your fatique which comes from > a different illness source that endorphins won't cure. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 20, 2010 Report Share Posted March 20, 2010 Or it may simply take a lot longer. I've had excellent results from LDN in a few months on small things, but nothing yet on fibro or pain, really. Fortunately I didn't expect quick results. And it is quite true that (as a doctor told me years ago) you can have more than one problem causing the same effect. Many will cause exhaustion. I've been taking it for almost 3 months now. I have close to a year supply (I bought thirty 50mg tablets), so I'll keep taking it at least that long. I'm glad I'm still in the window for it to take effect! Holly Crohn's SCD 12/01/08 > > It might be working for you perfectly fine, but just > not countering your fatique which comes from > a different illness source that endorphins won't cure. Quote Link to comment Share on other sites More sharing options...
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