Re: Old-timers on SCD question

[Guest guest]

You might want to check out this recent blog post from a long-time SCDer. She

did end up having surgery, but please read through the post. She got some very

good scan results recently.

http://scdadventures.blogspot.com/2010/03/successful-scd-and-still-ileostomy.htm\

l

I don't have Crohn's, and have never had any scope. All I can say is my B12,

folate, and iron have been steady without regular supplements for a year now. I

have been on SCD 2 years, 2 months. The first year I did supplement a lot with

B12 and folate but slowly could go without.

Hope that helps,

Kat

http://scdkatfood.blogspot.com

>

> Okay, I know this is probably out there on another thread, I'm just not sure

how to find it! I want to know some specifics about those of you who have been

on SCD, without meds, for longer than just a few years. Thanks for any input

for a newbie like me!

>

> 1) How long have you been on SCD?

> 2) Have you had a colonoscopy, endosccopy, pill cam, etc. after being on SCD,

and what did it show?

> 3) What do your blood tests show? CRP? SED? Other markers?

> 4) Any other " official " ways your Crohn's has been measured and what did it

show?

>

> I believe in the benefit of SCD and am committed to it! I put myself on it

right after being diagnosed. BUT, I haven't yet met anyone who can say that

yes, through all of these tests and not just symptom-free, their Crohn's has

been helped. So....any input you can give me would be much appreciated!!!

>

> Pam

> AKA newfoundsun http://newfoundsun.wordpress.com

> DX 11/09

>

[Guest guest]

You might want to check out this recent blog post from a long-time SCDer. She

did end up having surgery, but please read through the post. She got some very

good scan results recently.

http://scdadventures.blogspot.com/2010/03/successful-scd-and-still-ileostomy.htm\

l

I don't have Crohn's, and have never had any scope. All I can say is my B12,

folate, and iron have been steady without regular supplements for a year now. I

have been on SCD 2 years, 2 months. The first year I did supplement a lot with

B12 and folate but slowly could go without.

Hope that helps,

Kat

http://scdkatfood.blogspot.com

>

> Okay, I know this is probably out there on another thread, I'm just not sure

how to find it! I want to know some specifics about those of you who have been

on SCD, without meds, for longer than just a few years. Thanks for any input

for a newbie like me!

>

> 1) How long have you been on SCD?

> 2) Have you had a colonoscopy, endosccopy, pill cam, etc. after being on SCD,

and what did it show?

> 3) What do your blood tests show? CRP? SED? Other markers?

> 4) Any other " official " ways your Crohn's has been measured and what did it

show?

>

> I believe in the benefit of SCD and am committed to it! I put myself on it

right after being diagnosed. BUT, I haven't yet met anyone who can say that

yes, through all of these tests and not just symptom-free, their Crohn's has

been helped. So....any input you can give me would be much appreciated!!!

>

> Pam

> AKA newfoundsun http://newfoundsun.wordpress.com

> DX 11/09

>

[Guest guest]

1. I've been on SCD since 12/01/08 (15 1/2 months)

2. I had a colonoscopy last May, and it showed a normal looking colon. However,

biopsies showed microscopic inflammation. This is a huge improvement though!

I've never had a normal looking colon. All fistulas and fissures are healed too

:-).

3. I don't think my doc has ever done any of those blood tests.

4. I've gained 16 pounds in the last year (up from 90 to 106).

Holly

Crohn's

SCD 12/01/08

>

> Okay, I know this is probably out there on another thread, I'm just not sure

how to find it! I want to know some specifics about those of you who have been

on SCD, without meds, for longer than just a few years. Thanks for any input

for a newbie like me!

>

> 1) How long have you been on SCD?

> 2) Have you had a colonoscopy, endosccopy, pill cam, etc. after being on SCD,

and what did it show?

> 3) What do your blood tests show? CRP? SED? Other markers?

> 4) Any other " official " ways your Crohn's has been measured and what did it

show?

>

> I believe in the benefit of SCD and am committed to it! I put myself on it

right after being diagnosed. BUT, I haven't yet met anyone who can say that

yes, through all of these tests and not just symptom-free, their Crohn's has

been helped. So....any input you can give me would be much appreciated!!!

>

> Pam

> AKA newfoundsun http://newfoundsun.wordpress.com

> DX 11/09

>

[Guest guest]

1. I've been on SCD since 12/01/08 (15 1/2 months)

2. I had a colonoscopy last May, and it showed a normal looking colon. However,

biopsies showed microscopic inflammation. This is a huge improvement though!

I've never had a normal looking colon. All fistulas and fissures are healed too

:-).

3. I don't think my doc has ever done any of those blood tests.

4. I've gained 16 pounds in the last year (up from 90 to 106).

Holly

Crohn's

SCD 12/01/08

>

> Okay, I know this is probably out there on another thread, I'm just not sure

how to find it! I want to know some specifics about those of you who have been

on SCD, without meds, for longer than just a few years. Thanks for any input

for a newbie like me!

>

> 1) How long have you been on SCD?

> 2) Have you had a colonoscopy, endosccopy, pill cam, etc. after being on SCD,

and what did it show?

> 3) What do your blood tests show? CRP? SED? Other markers?

> 4) Any other " official " ways your Crohn's has been measured and what did it

show?

>

> I believe in the benefit of SCD and am committed to it! I put myself on it

right after being diagnosed. BUT, I haven't yet met anyone who can say that

yes, through all of these tests and not just symptom-free, their Crohn's has

been helped. So....any input you can give me would be much appreciated!!!

>

> Pam

> AKA newfoundsun http://newfoundsun.wordpress.com

> DX 11/09

>