Guest guest Posted October 24, 2001 Report Share Posted October 24, 2001 Hi Chuck, It seems when I check my mail and respond on occasion to some of the e-mails, it seems to be one of yours. First, I wanted to know if your body was adjusting finally to the methotrexate. I was the one who sent you the information I had on that drug. Dr. T is also my Rhuemy, but I have to say that as of the 21st of this month, I have completed one year of remmission and have not had a flare since February of 2000! Dr T treated me with only the methotrexate, no prednisone and after 7 months, was weaned off and here I am .... You mentioned thyroid ... yes it is one of the diseases that is associated with RP. I have hyopthryoidism and take .125 mgs (small dose) of synthroid daily for this. I had been treated for about 5 years for this condition prior to being diagnosed with RP. However, the thryoid problem exists within my family history. My sister was 12 when she had her thyroid removed due to cancer of theyroid. My father also takes synthroid to regulate his thyroid. So, in my case, it's hereditary and no one else in my family has RP. I'm the lucky one! Additionally, my sister survived and is now 40 years old with 3 boys but takes a high amount of thyroid replacement daily. It's one little tablet daily and you go about your business. Extreme lack of energy is a good sign your thyroid is involved ... the blood tests will reveal the problem if is the thyroid. You could also be anemic from the metho and that can cause fatigue and one to be extremely tired .... So, this is my 2 cents for the month. Hope it helped. Take care, be well, rest and as Heidi says, take those vitamins! Just me, Kathleen (NY) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 24, 2001 Report Share Posted October 24, 2001 Hi Chuck, It seems when I check my mail and respond on occasion to some of the e-mails, it seems to be one of yours. First, I wanted to know if your body was adjusting finally to the methotrexate. I was the one who sent you the information I had on that drug. Dr. T is also my Rhuemy, but I have to say that as of the 21st of this month, I have completed one year of remmission and have not had a flare since February of 2000! Dr T treated me with only the methotrexate, no prednisone and after 7 months, was weaned off and here I am .... You mentioned thyroid ... yes it is one of the diseases that is associated with RP. I have hyopthryoidism and take .125 mgs (small dose) of synthroid daily for this. I had been treated for about 5 years for this condition prior to being diagnosed with RP. However, the thryoid problem exists within my family history. My sister was 12 when she had her thyroid removed due to cancer of theyroid. My father also takes synthroid to regulate his thyroid. So, in my case, it's hereditary and no one else in my family has RP. I'm the lucky one! Additionally, my sister survived and is now 40 years old with 3 boys but takes a high amount of thyroid replacement daily. It's one little tablet daily and you go about your business. Extreme lack of energy is a good sign your thyroid is involved ... the blood tests will reveal the problem if is the thyroid. You could also be anemic from the metho and that can cause fatigue and one to be extremely tired .... So, this is my 2 cents for the month. Hope it helped. Take care, be well, rest and as Heidi says, take those vitamins! Just me, Kathleen (NY) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 24, 2001 Report Share Posted October 24, 2001 In a message dated 10/24/01 12:47:53 PM Pacific Daylight Time, katwench@... writes: << I have completed one year of remmission and have not had a flare since February of 2000! >> Kat, this is WONDERFUL news.... I hope you stay this way forever... I know we will all get to where you are someday... Thanks for sharing the great news. hugs Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 24, 2001 Report Share Posted October 24, 2001 In a message dated 10/24/01 12:47:53 PM Pacific Daylight Time, katwench@... writes: << I have completed one year of remmission and have not had a flare since February of 2000! >> Kat, this is WONDERFUL news.... I hope you stay this way forever... I know we will all get to where you are someday... Thanks for sharing the great news. hugs Quote Link to comment Share on other sites More sharing options...
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