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Margaret, been there, done that- it doesn't feel good, so we wonder why we do it again! I was in the same boat 12 days ago (I remember exactly- because it was my sister's birthday and I even got pi..ed at her), anyways, stopped to get coffee and the woman working was just really nice! She made me smile, and later that day I thought, it was a nice way to begin the day- with a smile! Then I realized, I used to do that! It wasn't to long ago people used to think I was nice, fun, happy- HA! I then realized, I missed me!!!!!

stress and doctors!!!Hi everyone. I have been out of contact, just trying to get by with myexhaustion and everything. Tai Chi and Qigong are going well and at timesI feel better. I worry because it seems like no one is listening tome--well, out of my doctors. I was finally transferred to an internist,which was great, but my rheumy doesn't listen to me and says that ALL myproblems are due to the prednisone--my weakness, fatigue, migraines,sensitive scalp, bloody nose, red and inflamed cheeks and ear, to mentiononly a few things!!! Which I know is ridiculous. My hand problems startedyears ago, migraines, too... He also says that my leg and breathingproblems are due to my weight! Oh well...I am switching as ofJanuary--the soonest I could get in to another doctor. Anyway, I know this letter is just for venting :) I had an appointmentlast week with my internist and he gave me referrals to vestibular rehab,opthamology, and for MRI and x-rays...I have a " growth on my temple " andhave had a constant headache for a week--since the thing appeared. Italso hurts to chew---anyway, I went to the opthamologist today and helooked at my eyes, I asked about the thing on my temple and explainedthat my eye pain and headache started when that appeared, but he ignoredwhat I said and told me I was fine, but might need a newprescription...so I left that appointment not being able to see--I hateit when the dilate your eyes!! We then went to another appointment...onefor me, and the other for my daughter--counseling.I was ready to discuss the death of my brother and the grief I have beenfeeling that hospitalized me last year--it has been about a year sincehis death...but it didn't happen. The reason why is that I talked with mydaughter's counselor first...and told her about some really crappy stuffthat happened yesterday between my daughter and another kid from nextdoor...I then started talking about how everyone says I place a lot ofstress of her--she has anxiety and OCD, and is anorexic because ofthat...but I don't...if anything I try to keep her away from stress. Ipulled her out of school and am homeschooling because school is sostressful for her. I don't demand her to do things like keep her roomclean or do her homework, she does that herself. She does have chores,but her counselor said they were too much---that she should only focus onschool work, nothing else. I was so upset and walked out on her--she thenreported to my counselor and I had to discuss it with my counselor for anhour--not that I don't have other things going on, you know??? Then afterboth the appointments my daughter came up to me and said, " mom, mycounselor wouldn't listen to me today. She kept telling me what to do andthat I was doing too much and that I shouldn't do chores around thehouse. " I was so upset, but told her that maybe we should focus more onschool work, she said " NO, I like my chores, I get to pretend I amsomeone else and I have fun. " I just feel so stressed and so upset andlike I just can't handle things anymore. We have appointments everyday ofthe week, sometimes two or three on one day...we are always rushing hereand there and I just can't do it...then I have everything else to dealwith. I told my husband that I am worried because I am starting to feellike I did when I was hospitalized last year. He asked what we could doto stop that and I told him that I need help, but I don't get it...hetries, but he is gone all day. I just feel overwhelmed witheverything...paying bills, getting up in the morning, doing school workwith the kids, homeschool groups, appointments...taking my husband towork and picking him up. I am just so tired of fighting and would lovejust to stay in bed for the rest of my life and do nothing but sleep. Iam on paxil, but it isn't helping...I feel so HUGE and sounattractive...I wish that there was something magical that would help melose weight, but not on the prednisone!! Oh well. I am just glad that Ihave a supportive husband.Anyway, I am just venting. I have no one else to vent to. I worry myhusband so much and I know he has other stuff that he has to deal withand doesn't need a basket case for a wife, too :)I hope everyone else is doing ok. Take care.Margaret

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Margaret, been there, done that- it doesn't feel good, so we wonder why we do it again! I was in the same boat 12 days ago (I remember exactly- because it was my sister's birthday and I even got pi..ed at her), anyways, stopped to get coffee and the woman working was just really nice! She made me smile, and later that day I thought, it was a nice way to begin the day- with a smile! Then I realized, I used to do that! It wasn't to long ago people used to think I was nice, fun, happy- HA! I then realized, I missed me!!!!!

stress and doctors!!!Hi everyone. I have been out of contact, just trying to get by with myexhaustion and everything. Tai Chi and Qigong are going well and at timesI feel better. I worry because it seems like no one is listening tome--well, out of my doctors. I was finally transferred to an internist,which was great, but my rheumy doesn't listen to me and says that ALL myproblems are due to the prednisone--my weakness, fatigue, migraines,sensitive scalp, bloody nose, red and inflamed cheeks and ear, to mentiononly a few things!!! Which I know is ridiculous. My hand problems startedyears ago, migraines, too... He also says that my leg and breathingproblems are due to my weight! Oh well...I am switching as ofJanuary--the soonest I could get in to another doctor. Anyway, I know this letter is just for venting :) I had an appointmentlast week with my internist and he gave me referrals to vestibular rehab,opthamology, and for MRI and x-rays...I have a " growth on my temple " andhave had a constant headache for a week--since the thing appeared. Italso hurts to chew---anyway, I went to the opthamologist today and helooked at my eyes, I asked about the thing on my temple and explainedthat my eye pain and headache started when that appeared, but he ignoredwhat I said and told me I was fine, but might need a newprescription...so I left that appointment not being able to see--I hateit when the dilate your eyes!! We then went to another appointment...onefor me, and the other for my daughter--counseling.I was ready to discuss the death of my brother and the grief I have beenfeeling that hospitalized me last year--it has been about a year sincehis death...but it didn't happen. The reason why is that I talked with mydaughter's counselor first...and told her about some really crappy stuffthat happened yesterday between my daughter and another kid from nextdoor...I then started talking about how everyone says I place a lot ofstress of her--she has anxiety and OCD, and is anorexic because ofthat...but I don't...if anything I try to keep her away from stress. Ipulled her out of school and am homeschooling because school is sostressful for her. I don't demand her to do things like keep her roomclean or do her homework, she does that herself. She does have chores,but her counselor said they were too much---that she should only focus onschool work, nothing else. I was so upset and walked out on her--she thenreported to my counselor and I had to discuss it with my counselor for anhour--not that I don't have other things going on, you know??? Then afterboth the appointments my daughter came up to me and said, " mom, mycounselor wouldn't listen to me today. She kept telling me what to do andthat I was doing too much and that I shouldn't do chores around thehouse. " I was so upset, but told her that maybe we should focus more onschool work, she said " NO, I like my chores, I get to pretend I amsomeone else and I have fun. " I just feel so stressed and so upset andlike I just can't handle things anymore. We have appointments everyday ofthe week, sometimes two or three on one day...we are always rushing hereand there and I just can't do it...then I have everything else to dealwith. I told my husband that I am worried because I am starting to feellike I did when I was hospitalized last year. He asked what we could doto stop that and I told him that I need help, but I don't get it...hetries, but he is gone all day. I just feel overwhelmed witheverything...paying bills, getting up in the morning, doing school workwith the kids, homeschool groups, appointments...taking my husband towork and picking him up. I am just so tired of fighting and would lovejust to stay in bed for the rest of my life and do nothing but sleep. Iam on paxil, but it isn't helping...I feel so HUGE and sounattractive...I wish that there was something magical that would help melose weight, but not on the prednisone!! Oh well. I am just glad that Ihave a supportive husband.Anyway, I am just venting. I have no one else to vent to. I worry myhusband so much and I know he has other stuff that he has to deal withand doesn't need a basket case for a wife, too :)I hope everyone else is doing ok. Take care.Margaret

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