Re: DAWN DR APPT\judy o

October 24, 2001

-

Judy

I am going to try to send this through the group site, i have tried 3

or 4 times tonight to send from yahoo and it locks up on me.

thanks for the encouraging words, i do appreciate it. But think of

this i am only 5 foot tall so a size 10 for me and my small frame is

kind of large, if I were 6 foot tall a size 10 would be a small

size. i have been through som many drs i am afraid to try again,

its not that we don't have good drs in WV its finding one the

insuracne will pay for and that knows RP.

thanks again, hope this goes through this time

dawn

-- In Rpolychondritis@y..., " Judith Ostry " <judyo_93@m...> wrote:

> No wonder you're bummed out, I just got the summary of

your " doctor " visit. He should be shot! Can you report him to

anyone? Jeez, size 10! You know if I didn't love you so much, I

would really hate you! Ironic isn't it, with all the other stuff you

said, the one thing that sticks in my head is the size 10!

>

> Isn't there any other Rheumy in West Virginia? It's a big state,

so you have to drive for a couple of hours, it would be worth it,

just to have someone who knows what he is doing see you. Doesn't the

doctor HAVE to give you a referral? I don't have an HMO so I'm not

sure how this works. Look into reporting him to someone, Dawn, there

has to be some way around that block of crap! I feel so helpless, I

wish there were something I cold DO!

> Remember, you croaking and your honey (Bill? getting rich is NOT an

option, OK? Hang in there, honey, I'll be praying for a good doctor

for Dawn! Love you, Judy

>

> DAWN DR APPT

>

> OK GUYS

> HERE GOES, I AM TOTALY TICKED OFF, PISSED OFF OR JUST PLAIN MAD

> DON'T KNOW HOW TO HANDLE THIS. I WENT TO RHEUMY TODAY,

> TRIED TO TELL HIM ABOUT HOW I HAD BEEN FEELING, ESPECIALLY LAST

WEEKEND, I REALLY BELIEVE I WAS DOING INTO AN ADREANL CRISES, WELL

HIS RESPOSNE WAS WELL I DON'T KNOW, MAYBE, THEN LAUGHED

> TOOK IN A REPORT FROM THE RADIOLOGIST ON MY BONE SCAN THAT SHOWED

DEGENERATION OF THE LEFT FIBULA ALSO HIP JOINT AND FOOT, WELL HE

SAID YOUR STILL WALKING AND HAVE MOTION SO ITS NOT THAT BAD. I ASK

FOR SOMETHING ELSE TO TAKE BESIDES THE PRED SO I CAN GET OFF OF IT A

LITTLE BIT MORE, HE SAID YOU DON'T NEED ANYTHING ELSE BESIDES THE

METHO. I ASKED FOR SOMETHING FOR PAIN BESIDES JUST TYLENOL, NO

ANSWER. HIS ANSWER TO THE WHOLE THING WAS LOOSE WEIGHT, NOW LET

ME SAY THIS I HAVE PUT ON ABOUT 20 POUNDS IN THE LAST YEAR FROM THE

PRED, BUT WHEN I STARTED PRED I WAS A SIZE 8 NOW I AM A SIZE 10

NOW TELL ME I S THAT TOO FAT, WILL HE HEAR ME ANYMORE IF I AM A

SIZE 0 THAN A SIZE 10.

> THERE ISN'T ANYONE ELSE IN THIS AREA THAT KNOWS ANYTHING ABOUT RP,

SO WHAT AM I SUPPOSE TO DO. ALSO MY INSURANCE WON'T PAY UNLESS I

HAVE A REFERALL , AND I KNOW HE WON'T GIVE ME A REFERRRAL, NOW I

AM REALLY STUCK'

> I FINALLY DEMANDED AND GOT A PRESCRIPTION FOR PRED IN 1 MG TABLETS

INSTEAD OF 5 MGS. TOLD HIM I WAS ONLY GOING TO LOWER IT 1 MG EVERY

3 OR 4 WEEKS AND THAT WAS IT.

> SORRY GUYS BUT I HAVE HAD ENOUGH, CANT' FIGHT HIM ANYMORE

> JUST GO WITH THE FLOW, AND THE PAIN SO WHAT, TOLD MY HUBBY

WHEN I AM DEAD JUST SUE HIM AND GET RICH.

> SORRY, JUST BUMMED OUT TODAY, DR BELIEVES IF BLOOD WORK IS

NORMAL EVERYTHING IS NORMAL DR THAT IS

> DAWN

>

October 24, 2001