Guest guest Posted October 25, 2001 Report Share Posted October 25, 2001 Hi Amber and Carol' I have been on Cytoxan since April. My doctor figured my dose based upon my " normal " weight.(Pre-medrol) I started with 50mg. and worked up to 175mg. As my Cytoxan increases, I am trying to decrease my medrol. The Cytoxan takes about three weeks to build a level. You may be surprised to hear that I have tracheal and bronchi involvement, so I was put on Cytoxan hoping that I would be able to breathe better. So far, so good. Drink lots of water and it should keep you from having bladder problems. I know a doctor who has had patients on Cytoxan for 6-7 years and they're doing great. Just drink and drink some more. Kathy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 25, 2001 Report Share Posted October 25, 2001 Hi Amber and Carol' I have been on Cytoxan since April. My doctor figured my dose based upon my " normal " weight.(Pre-medrol) I started with 50mg. and worked up to 175mg. As my Cytoxan increases, I am trying to decrease my medrol. The Cytoxan takes about three weeks to build a level. You may be surprised to hear that I have tracheal and bronchi involvement, so I was put on Cytoxan hoping that I would be able to breathe better. So far, so good. Drink lots of water and it should keep you from having bladder problems. I know a doctor who has had patients on Cytoxan for 6-7 years and they're doing great. Just drink and drink some more. Kathy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 25, 2001 Report Share Posted October 25, 2001 amber and carol am i understanding you that your mom is on 160 mg of pred. wow that is a lot. never heard of anyone being on that much before, how about it group, has any one out there been on that much pred before. dawn --- arnoldamber@... wrote: > I just want to say that my mom and are so greatful > to have found this > group. You all have been so helpful, and I hope to > be helpful to you > all as well. > > There have been a few people who emailed myself and > my mom, Carol, > regarding the Cytoxan. > > My mom recently went to her rheumy. and told him how > out of breath > she was. She wanted to know if she should be taking > the cytoxan > anymore. He said yes and upped her to 160mgs. of > prednisone and kept > her cytoxan at 150 mg. That seems like a lot. On > top of the > breathlessness, she is experiencing quite a bit of > swelling in her > lower legs. She was checked for blood clots, she is > o.k. there. > But, should her doctor keep her on this medicine > with these side > effects? > > My mom would like to know how much cytoxan most > individuals take, > what your side effects have been and also what > medicines you may have > used before cytoxan? Thank you. > > I know we are new and I am not sure if this has been > discussed, but > my mom just tried the C-Pap machine last night while > she slept. I > have yet to speak with her about how it worked last > night, but I > thought I would throw it out there in case it was > useful to any of > you and perhaps you have already discussed and used > this. > > Thank you, > > Amber & Carol > > __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 25, 2001 Report Share Posted October 25, 2001 amber and carol am i understanding you that your mom is on 160 mg of pred. wow that is a lot. never heard of anyone being on that much before, how about it group, has any one out there been on that much pred before. dawn --- arnoldamber@... wrote: > I just want to say that my mom and are so greatful > to have found this > group. You all have been so helpful, and I hope to > be helpful to you > all as well. > > There have been a few people who emailed myself and > my mom, Carol, > regarding the Cytoxan. > > My mom recently went to her rheumy. and told him how > out of breath > she was. She wanted to know if she should be taking > the cytoxan > anymore. He said yes and upped her to 160mgs. of > prednisone and kept > her cytoxan at 150 mg. That seems like a lot. On > top of the > breathlessness, she is experiencing quite a bit of > swelling in her > lower legs. She was checked for blood clots, she is > o.k. there. > But, should her doctor keep her on this medicine > with these side > effects? > > My mom would like to know how much cytoxan most > individuals take, > what your side effects have been and also what > medicines you may have > used before cytoxan? Thank you. > > I know we are new and I am not sure if this has been > discussed, but > my mom just tried the C-Pap machine last night while > she slept. I > have yet to speak with her about how it worked last > night, but I > thought I would throw it out there in case it was > useful to any of > you and perhaps you have already discussed and used > this. > > Thank you, > > Amber & Carol > > __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 25, 2001 Report Share Posted October 25, 2001 Dawn, Sure seems like a very high dose to me.. I don't know of anyone who has been on that much Pred. Sandy amber and carolam i understanding you that your mom is on 160 mg ofpred. wow that is a lot. never heard of anyonebeing on that much before, how about it group, hasany one out there been on that much pred before.dawn--- arnoldamber@... wrote:> I just want to say that my mom and are so greatful> to have found this > group. You all have been so helpful, and I hope to> be helpful to you > all as well.> > There have been a few people who emailed myself and> my mom, Carol, > regarding the Cytoxan. > > My mom recently went to her rheumy. and told him how> out of breath > she was. She wanted to know if she should be taking> the cytoxan > anymore. He said yes and upped her to 160mgs. of> prednisone and kept > her cytoxan at 150 mg. That seems like a lot. On> top of the > breathlessness, she is experiencing quite a bit of> swelling in her > lower legs. She was checked for blood clots, she is> o.k. there. > But, should her doctor keep her on this medicine> with these side > effects? > > My mom would like to know how much cytoxan most> individuals take, > what your side effects have been and also what> medicines you may have > used before cytoxan? Thank you.> > I know we are new and I am not sure if this has been> discussed, but > my mom just tried the C-Pap machine last night while> she slept. I > have yet to speak with her about how it worked last> night, but I > thought I would throw it out there in case it was> useful to any of > you and perhaps you have already discussed and used> this. > > Thank you,> > Amber & Carol> > __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 25, 2001 Report Share Posted October 25, 2001 Dawn, Sure seems like a very high dose to me.. I don't know of anyone who has been on that much Pred. Sandy amber and carolam i understanding you that your mom is on 160 mg ofpred. wow that is a lot. never heard of anyonebeing on that much before, how about it group, hasany one out there been on that much pred before.dawn--- arnoldamber@... wrote:> I just want to say that my mom and are so greatful> to have found this > group. You all have been so helpful, and I hope to> be helpful to you > all as well.> > There have been a few people who emailed myself and> my mom, Carol, > regarding the Cytoxan. > > My mom recently went to her rheumy. and told him how> out of breath > she was. She wanted to know if she should be taking> the cytoxan > anymore. He said yes and upped her to 160mgs. of> prednisone and kept > her cytoxan at 150 mg. That seems like a lot. On> top of the > breathlessness, she is experiencing quite a bit of> swelling in her > lower legs. She was checked for blood clots, she is> o.k. there. > But, should her doctor keep her on this medicine> with these side > effects? > > My mom would like to know how much cytoxan most> individuals take, > what your side effects have been and also what> medicines you may have > used before cytoxan? Thank you.> > I know we are new and I am not sure if this has been> discussed, but > my mom just tried the C-Pap machine last night while> she slept. I > have yet to speak with her about how it worked last> night, but I > thought I would throw it out there in case it was> useful to any of > you and perhaps you have already discussed and used> this. > > Thank you,> > Amber & Carol> > __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.