Guest guest Posted October 25, 2001 Report Share Posted October 25, 2001 I just want to say that my mom and are so greatful to have found this group. You all have been so helpful, and I hope to be helpful to you all as well. There have been a few people who emailed myself and my mom, Carol, regarding the Cytoxan. My mom recently went to her rheumy. and told him how out of breath she was. She wanted to know if she should be taking the cytoxan anymore. He said yes and upped her to 160mgs. of prednisone and kept her cytoxan at 150 mg. That seems like a lot. On top of the breathlessness, she is experiencing quite a bit of swelling in her lower legs. She was checked for blood clots, she is o.k. there. But, should her doctor keep her on this medicine with these side effects? My mom would like to know how much cytoxan most individuals take, what your side effects have been and also what medicines you may have used before cytoxan? Thank you. I know we are new and I am not sure if this has been discussed, but my mom just tried the C-Pap machine last night while she slept. I have yet to speak with her about how it worked last night, but I thought I would throw it out there in case it was useful to any of you and perhaps you have already discussed and used this. Thank you, Amber & Carol Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 25, 2001 Report Share Posted October 25, 2001 I just want to say that my mom and are so greatful to have found this group. You all have been so helpful, and I hope to be helpful to you all as well. There have been a few people who emailed myself and my mom, Carol, regarding the Cytoxan. My mom recently went to her rheumy. and told him how out of breath she was. She wanted to know if she should be taking the cytoxan anymore. He said yes and upped her to 160mgs. of prednisone and kept her cytoxan at 150 mg. That seems like a lot. On top of the breathlessness, she is experiencing quite a bit of swelling in her lower legs. She was checked for blood clots, she is o.k. there. But, should her doctor keep her on this medicine with these side effects? My mom would like to know how much cytoxan most individuals take, what your side effects have been and also what medicines you may have used before cytoxan? Thank you. I know we are new and I am not sure if this has been discussed, but my mom just tried the C-Pap machine last night while she slept. I have yet to speak with her about how it worked last night, but I thought I would throw it out there in case it was useful to any of you and perhaps you have already discussed and used this. Thank you, Amber & Carol Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.