Guest guest Posted October 25, 2001 Report Share Posted October 25, 2001 Sandy I wonder if she sleeps at all. I couldn't sleep on 80 mgs. of pred. dawn --- Sandy Catalusci wrote: > Dawn, > Sure seems like a very high dose to me.. > I don't know of anyone who has been on that much > Pred. > > Sandy > amber and carol > am i understanding you that your mom is on 160 mg > of > pred. wow that is a lot. never heard of anyone > being on that much before, how about it group, > has > any one out there been on that much pred before. > > dawn > --- arnoldamber@... wrote: > > I just want to say that my mom and are so > greatful > > to have found this > > group. You all have been so helpful, and I hope > to > > be helpful to you > > all as well. > > > > There have been a few people who emailed myself > and > > my mom, Carol, > > regarding the Cytoxan. > > > > My mom recently went to her rheumy. and told him > how > > out of breath > > she was. She wanted to know if she should be > taking > > the cytoxan > > anymore. He said yes and upped her to 160mgs. > of > > prednisone and kept > > her cytoxan at 150 mg. That seems like a lot. > On > > top of the > > breathlessness, she is experiencing quite a bit > of > > swelling in her > > lower legs. She was checked for blood clots, > she is > > o.k. there. > > But, should her doctor keep her on this medicine > > with these side > > effects? > > > > My mom would like to know how much cytoxan most > > individuals take, > > what your side effects have been and also what > > medicines you may have > > used before cytoxan? Thank you. > > > > I know we are new and I am not sure if this has > been > > discussed, but > > my mom just tried the C-Pap machine last night > while > > she slept. I > > have yet to speak with her about how it worked > last > > night, but I > > thought I would throw it out there in case it > was > > useful to any of > > you and perhaps you have already discussed and > used > > this. > > > > Thank you, > > > > Amber & Carol > > > > > > > __________________________________________________ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 25, 2001 Report Share Posted October 25, 2001 Sandy I wonder if she sleeps at all. I couldn't sleep on 80 mgs. of pred. dawn --- Sandy Catalusci wrote: > Dawn, > Sure seems like a very high dose to me.. > I don't know of anyone who has been on that much > Pred. > > Sandy > amber and carol > am i understanding you that your mom is on 160 mg > of > pred. wow that is a lot. never heard of anyone > being on that much before, how about it group, > has > any one out there been on that much pred before. > > dawn > --- arnoldamber@... wrote: > > I just want to say that my mom and are so > greatful > > to have found this > > group. You all have been so helpful, and I hope > to > > be helpful to you > > all as well. > > > > There have been a few people who emailed myself > and > > my mom, Carol, > > regarding the Cytoxan. > > > > My mom recently went to her rheumy. and told him > how > > out of breath > > she was. She wanted to know if she should be > taking > > the cytoxan > > anymore. He said yes and upped her to 160mgs. > of > > prednisone and kept > > her cytoxan at 150 mg. That seems like a lot. > On > > top of the > > breathlessness, she is experiencing quite a bit > of > > swelling in her > > lower legs. She was checked for blood clots, > she is > > o.k. there. > > But, should her doctor keep her on this medicine > > with these side > > effects? > > > > My mom would like to know how much cytoxan most > > individuals take, > > what your side effects have been and also what > > medicines you may have > > used before cytoxan? Thank you. > > > > I know we are new and I am not sure if this has > been > > discussed, but > > my mom just tried the C-Pap machine last night > while > > she slept. I > > have yet to speak with her about how it worked > last > > night, but I > > thought I would throw it out there in case it > was > > useful to any of > > you and perhaps you have already discussed and > used > > this. > > > > Thank you, > > > > Amber & Carol > > > > > > > __________________________________________________ > Quote Link to comment Share on other sites More sharing options...
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