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This is to all of those who are only on prednisone, an still having

problems. It is the analogy that my doctor thought of to explain RP.

He likened it to a wild cat in a trash can. This cat cannot get out,

so it is just wreaking havoc on the trash can....growling, spitting,

hissing, and tearing up everything in its path. The object is to get

the cat to go to sleep. To do that you start piling different things

on top on the trash can. A piece of cardboard here, a bit of plywood

there, some rocks, some bricks. Finally when you get the right

combination of stuff piled on top, the cat gives up, lies down, and

goes to sleep. Only when you are very sure that the cat is fast

asleep do you begin taking things off the pile. You do it very, very

slowly....only removing one thing at a time.

This makes so much sense to me, and everytime Heidi says " get the RP

in sleep mode " , I think of this analogy. I think those of us who are

on, or have been on multiple medications can totally agree with

this. It seems that just one medication does not put this cat (RP)

to sleep!

Recently, because I am doing so well on dialing back my prednisone, I

decided to try cutting just 1/2 of one of my azathioprine per day.

Nope! Definite no go! The cat tried to wake up, but I put him right

back to sleep by going back on the full dose. I will not try

removing two things at once again!

Anyway, hope this encourages those of you who are struggling with

your doctors for adequate treatment. This cat can be put to sleep,

but you do have to pile on the medications!

Take care all. Love, Sharon

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This is to all of those who are only on prednisone, an still having

problems. It is the analogy that my doctor thought of to explain RP.

He likened it to a wild cat in a trash can. This cat cannot get out,

so it is just wreaking havoc on the trash can....growling, spitting,

hissing, and tearing up everything in its path. The object is to get

the cat to go to sleep. To do that you start piling different things

on top on the trash can. A piece of cardboard here, a bit of plywood

there, some rocks, some bricks. Finally when you get the right

combination of stuff piled on top, the cat gives up, lies down, and

goes to sleep. Only when you are very sure that the cat is fast

asleep do you begin taking things off the pile. You do it very, very

slowly....only removing one thing at a time.

This makes so much sense to me, and everytime Heidi says " get the RP

in sleep mode " , I think of this analogy. I think those of us who are

on, or have been on multiple medications can totally agree with

this. It seems that just one medication does not put this cat (RP)

to sleep!

Recently, because I am doing so well on dialing back my prednisone, I

decided to try cutting just 1/2 of one of my azathioprine per day.

Nope! Definite no go! The cat tried to wake up, but I put him right

back to sleep by going back on the full dose. I will not try

removing two things at once again!

Anyway, hope this encourages those of you who are struggling with

your doctors for adequate treatment. This cat can be put to sleep,

but you do have to pile on the medications!

Take care all. Love, Sharon

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